Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 , Working out is good, however, we have to be careful and watch our numbers! Our oxygen saturation should stay about 88-90 (depending on which doctor you talk to) and your heart should be in your "target" heart range for your age and weight. , build up slowly!! I know it's frustrating because you used to be so athletic, but pride yourself on the baby steps. Or, break up the activity. Go in the am and then in the pm, if you are able. I find that if I break things up a little, it helps too. Sher - congrats on your accomplishment! I know it can be tiring, but I strongly believe there is a real benefit to staying active (with your doc's guidance) When I first started walking, I seriously could only walk a block and was pooped! Now I walk between 30-60 minutes a day (most of the time) I do find I miss it when I don't walk!denise randel wrote: Hi Sher, I am sitting here miserable and out of breath and mad at myself because today was my second day at the gym and I didn't listen to doctor's nstructions. I was supposed to do 5 minutes on the treadmill and 4 simple weight exercises. I did double-no big deal I thought what could 10 little old minutes do? A LOT!!!! I am shaky, heart racing, need oxygen now out of breath. I am so impressed that you can do 20 minutes and it gives me something to work up to. But I learned that I need to work up to it slowly. . . Anyway, good to be back, good to be missed, and good to have inspirational frends. I will be in Portland around the 20th of July, Salem on the 27th. Hope we can still get together sometime in there- ( who has no clue what she has other than advanced pulmonary fibrosis 3/06).Sher K Bauman wrote: Hi Peggy! Yes, I went to rehab today in fact. Walked 20 min at 1.9. 15 min on the stepper. I do feel better but an hour later I'm poooooped out! We bought a treadmill and I will use it every day...."I think I can, I think I can, I think I can"...LOL I read the posts every few days, reply to some and then do what I can a lay down for awhile. Hope you are doing well. Nice to have Ginger and back! Hugs, Sher Re: Love You It Does not matter the numbersPeggy, What a great way to start the morning-with your upbeat post! I love thinking of angel's wings brushing by me AND you are so right, we could die tomorrow from an accident or something unrelated to PF. I am 50 and lucky to have had many more years than your sister and although odds are I won't be ever pushing 80, I too have had a great life and I need to quit focusing on numbers. God bless your cheery heart Peggy-Peggy wrote: Dearest Barb & Arlen, I can tell you what it feels like to be 63 almost 64.. WONDERFUL.. I went Grocery shopping and did NOT get hit by a car. Did not get high jacked.. Did not get robbed.. BUT I did get 345.00 worth of groceries and felt so cute riding around on that little cart in the store. My daughter thought I had lost my mind and I felt 32.. Always 32. Just don't look in the mirror. Healthy (just can't breath) Happy. Now I can go into the kitchen and look in my pantry and Thank the Good Lord for his Grace and Mercies.. My husband has been doing the shopping so there were things NEEDED. I sure took care of that.. LOL So being 63 is Great.. I love my life, hose up the nose and all. As soon as we get my hubby straightened out we are going somewhere. gotta think bout that..I had a sister that died at 28, had two little boys and was 8 mos pregnant with another boy. I was 12, I didn't think I could live without her, but life does go on.. she still crosses my mind and I cry for her but I KNOW she is with my Mother and they are celebrating. I'm looking forward to my Home Coming party too.. But I have learned to Thank the Lord for all things. My husbands brother died when the Skyway Bridge fell in the early 80's he was 43 just driving to work.No I am not in denial, I honestly am not afraid of death. Not looking for it but am living each day like I have 50 years left.. I can feel the brush of Angle wings. God Bless you each and every one... Peggy 09/04 ipf Hey, Arlen: I know what you mean about being angry about not being able to grow as old as you once thought you would. I am 48 fixin' to turn 49 and at first I was angry at people in their sixities complaining about not being able to live much longer. I thought damn, I am never going to see sixty and there they are complaining. I have asked several people personally what it feels like to be in the sixities or seventies and no one has ever answered my question. I would love to know what it feels like, because I probably won't even see my mid fifties. But, like you, I am over it and have also been reading the obits. Lots of younger people than me are dying. I should be grateful for the time that I have had. Perhaps I have fulfilled the plan that God had for me and I will go on to a new future when I die. Hang in there Arlen, it has gotten better for me and I am sure it will for you. It is awful t say, but I am almost looking forward to the end, because I suspect a new beginning.Barb in Ky ipf or pf / 11-05sarleno@... wrote: KAtG (???), My sympathies in hearing of MAtt's (???) diagnosis. I think he's not alone, but I'm not sure. Please excuse my lowly ignorance, but what are RA and HP? I'm not especially intelligent, and abbreviations baffle me. What is Embrel? VATS is actual surgery into the lung, and as such is risky for anyone. It does, however, confirm an IPF diagnosis. I know my life will never get back to the track it was on, but at least I have time to prepare for what they say is inevitable. I find the whole thing shocking, as I feel pretty damn good for my age (61), except for being out-of-breath all the time. I was pretty bitter at first, but after looking in the papers at the obits for awhile, I realize that there are lots of fellows in their 30-40's passing away, leaving young children. I always thought I'd be around into my 80-90's, but have to accept what comes my way. It's all a part of the life cycle. I don't especially like my prognosis, but guess I'll have to live with it (ha ha). All my best,.........Arlen How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Yahoo! Sports Fantasy Football ’06 - Go with the leader. Start your league today! <http://us.rd.yahoo.com/evt=33539/*http://football.fantasysports.yahoo.com?ovchn=YAH & amp;ovcpn=Integration & amp;ovcrn=Mail+footer & amp;ovrfd=YAH & amp;ovtac=AD> Yahoo! Groups gets better. Check out the new email design. Plus there’s much more to come. Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Thanks for the peptalk-I needed it. Leanne Storch wrote: , Working out is good, however, we have to be careful and watch our numbers! Our oxygen saturation should stay about 88-90 (depending on which doctor you talk to) and your heart should be in your "target" heart range for your age and weight. , build up slowly!! I know it's frustrating because you used to be so athletic, but pride yourself on the baby steps. Or, break up the activity. Go in the am and then in the pm, if you are able. I find that if I break things up a little, it helps too. Sher - congrats on your accomplishment! I know it can be tiring, but I strongly believe there is a real benefit to staying active (with your doc's guidance) When I first started walking, I seriously could only walk a block and was pooped! Now I walk between 30-60 minutes a day (most of the time) I do find I miss it when I don't walk!denise randel wrote: Hi Sher, I am sitting here miserable and out of breath and mad at myself because today was my second day at the gym and I didn't listen to doctor's nstructions. I was supposed to do 5 minutes on the treadmill and 4 simple weight exercises. I did double-no big deal I thought what could 10 little old minutes do? A LOT!!!! I am shaky, heart racing, need oxygen now out of breath. I am so impressed that you can do 20 minutes and it gives me something to work up to. But I learned that I need to work up to it slowly. . . Anyway, good to be back, good to be missed, and good to have inspirational frends. I will be in Portland around the 20th of July, Salem on the 27th. Hope we can still get together sometime in there- ( who has no clue what she has other than advanced pulmonary fibrosis 3/06).Sher K Bauman wrote: Hi Peggy! Yes, I went to rehab today in fact. Walked 20 min at 1.9. 15 min on the stepper. I do feel better but an hour later I'm poooooped out! We bought a treadmill and I will use it every day...."I think I can, I think I can, I think I can"...LOL I read the posts every few days, reply to some and then do what I can a lay down for awhile. Hope you are doing well. Nice to have Ginger and back! Hugs, Sher Re: Love You It Does not matter the numbersPeggy, What a great way to start the morning-with your upbeat post! I love thinking of angel's wings brushing by me AND you are so right, we could die tomorrow from an accident or something unrelated to PF. I am 50 and lucky to have had many more years than your sister and although odds are I won't be ever pushing 80, I too have had a great life and I need to quit focusing on numbers. God bless your cheery heart Peggy-Peggy wrote: Dearest Barb & Arlen, I can tell you what it feels like to be 63 almost 64.. WONDERFUL.. I went Grocery shopping and did NOT get hit by a car. Did not get high jacked.. Did not get robbed.. BUT I did get 345.00 worth of groceries and felt so cute riding around on that little cart in the store. My daughter thought I had lost my mind and I felt 32.. Always 32. Just don't look in the mirror. Healthy (just can't breath) Happy. Now I can go into the kitchen and look in my pantry and Thank the Good Lord for his Grace and Mercies.. My husband has been doing the shopping so there were things NEEDED. I sure took care of that.. LOL So being 63 is Great.. I love my life, hose up the nose and all. As soon as we get my hubby straightened out we are going somewhere. gotta think bout that..I had a sister that died at 28, had two little boys and was 8 mos pregnant with another boy. I was 12, I didn't think I could live without her, but life does go on.. she still crosses my mind and I cry for her but I KNOW she is with my Mother and they are celebrating. I'm looking forward to my Home Coming party too.. But I have learned to Thank the Lord for all things. My husbands brother died when the Skyway Bridge fell in the early 80's he was 43 just driving to work.No I am not in denial, I honestly am not afraid of death. Not looking for it but am living each day like I have 50 years left.. I can feel the brush of Angle wings. God Bless you each and every one... Peggy 09/04 ipf Hey, Arlen: I know what you mean about being angry about not being able to grow as old as you once thought you would. I am 48 fixin' to turn 49 and at first I was angry at people in their sixities complaining about not being able to live much longer. I thought damn, I am never going to see sixty and there they are complaining. I have asked several people personally what it feels like to be in the sixities or seventies and no one has ever answered my question. I would love to know what it feels like, because I probably won't even see my mid fifties. But, like you, I am over it and have also been reading the obits. Lots of younger people than me are dying. I should be grateful for the time that I have had. Perhaps I have fulfilled the plan that God had for me and I will go on to a new future when I die. Hang in there Arlen, it has gotten better for me and I am sure it will for you. It is awful t say, but I am almost looking forward to the end, because I suspect a new beginning.Barb in Ky ipf or pf / 11-05sarleno@... wrote: KAtG (???), My sympathies in hearing of MAtt's (???) diagnosis. I think he's not alone, but I'm not sure. Please excuse my lowly ignorance, but what are RA and HP? I'm not especially intelligent, and abbreviations baffle me. What is Embrel? VATS is actual surgery into the lung, and as such is risky for anyone. It does, however, confirm an IPF diagnosis. I know my life will never get back to the track it was on, but at least I have time to prepare for what they say is inevitable. I find the whole thing shocking, as I feel pretty damn good for my age (61), except for being out-of-breath all the time. I was pretty bitter at first, but after looking in the papers at the obits for awhile, I realize that there are lots of fellows in their 30-40's passing away, leaving young children. I always thought I'd be around into my 80-90's, but have to accept what comes my way. It's all a part of the life cycle. I don't especially like my prognosis, but guess I'll have to live with it (ha ha). All my best,.........Arlen How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Yahoo! Sports Fantasy Football ’06 - Go with the leader. Start your league today! <http://us.rd.yahoo.com/evt=33539/*http://football.fantasysports.yahoo.com?ovchn=YAH & amp;ovcpn=Integration & amp;ovcrn=Mail+footer & amp;ovrfd=YAH & amp;ovtac=AD> Yahoo! Groups gets better. Check out the new email design. Plus there’s much more to come. Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.