Re: SS Disability

[Guest guest]

What a great site with such great people! Just want I wanted. So

cool.

Now, what would be real good, in my opinion, is for the Foundation

handout to include that e-mail address so us newbies would have that

info in the beginning. It'd be useful for us to judge our condition

and circumstances.

So does anyone know the e-mail address for the Foundation so we

might tell them what we think they should consider as a service or

a topic for research?

Thanks . You do a great service for us.

Hi, I am new

> here and just want to say hello to all. I have IPF since Aug 2003

> (At this time they put me on a vent. and told me I was going to

> die. I was in Critical Care for 3 weeks with 2 lung bios. First

> showed Organized pneumonia and the second acute pneumonia) After

a

> month in the hospital I went home on constant oxygen 2L. 5

months

> later I returned to work only walking with oxygen. Doctor told me

> they believed it was auto immune and put me on Cytoxan as well as

> Predisone 10 mg. daily. I have tried to wein off Predisone, but

I

> get sick each time I do.

> > I worked until Dec. 2005 and shortness of breath became too

> difficult while working 8 hrs. without oxygen. I am now on 4 L

> oxygen walking or movment and 3 L resting and sleeping. I have

> applied for Social Security Disability and was wondering if anyone

> here has done so and if they had good results. I am 58 yrs. old,

a

> widow of 7 years after 27 years of marriage.

> > I am looking forward to sharing and visiting with other than

> walk in the same shoes as I.

> > Thanks,

> > Ann

> >

> >

> >