Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Hello all, Just a little update to let you know that I'm still here. Haven't had a chance to stop in the last few days. Tomorrow mom see's the neurologist. She hasn't seen this one before. He's the one that comes the the NH. So I've been trying to get my ducks in a row with her previous behaviors, all doctors notes, tests and anything else I can come up with. Also printed out tons of things from this list (thank you all for your contributions). Trying to be armed and dangerous when I go in there. Did some needed reading last week. One was The Fearless Caregiver. Really did inspire me to do what I need to do in the way I need to do it. I liked the diagram that was there showing the LO in the center of a circle. The circle being her circle of caregivers, including me. Seems like caregiver rights are put on the burner sometimes when the LO is in a NH. It's like 'let the doctors take care of her'. But they only see her once a month and don't see the changes their meds have created. So I'll continue on the mission and stand up for my rights:) Decided to send mom flowers every week. Thought it might brighten her day. She told the nurse she didn't know why I was doing it and she wished I would get out of her life. That's gratitude:) I try not to take it personally. Back to work for me. I'll check in after the appointment. hugs to all, Donna Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Hi Donna - thanks for the update! We'll want to know the outcome after the visit with the neurologist too. Thanks for the book suggestion too - I'll add to the Suggested Reading database... Sorry your mom didn't say the right words to thank you for the flowers... SIGH... But you seem to know what is " mom " and what is " Lewy " talk - so that's positive... I used to send treats to the staff at my mom's NH... The biggest hit was a basket from Edible Arrangements (http://www.ediblearrangements.com/) As my grandmother used to say - you get more bees w/ honey, than vinegar... And especially since CNAs don't get paid as much as they're worth - they appreciated it... Not to mention mom benefitted from the extra attention she received... > > Hello all, > > Just a little update to let you know that I'm still here. Haven't had > a chance to stop in the last few days. > > Tomorrow mom see's the neurologist. She hasn't seen this one before. > He's the one that comes the the NH. So I've been trying to get my > ducks in a row with her previous behaviors, all doctors notes, tests > and anything else I can come up with. Also printed out tons of things > from this list (thank you all for your contributions). Trying to be > armed and dangerous when I go in there. > > Did some needed reading last week. One was The Fearless Caregiver. > Really did inspire me to do what I need to do in the way I need to do > it. I liked the diagram that was there showing the LO in the center > of a circle. The circle being her circle of caregivers, including me. > Seems like caregiver rights are put on the burner sometimes when the > LO is in a NH. It's like 'let the doctors take care of her'. But they > only see her once a month and don't see the changes their meds have > created. So I'll continue on the mission and stand up for my rights:) > > Decided to send mom flowers every week. Thought it might brighten her > day. She told the nurse she didn't know why I was doing it and she > wished I would get out of her life. That's gratitude:) I try not to > take it personally. > > Back to work for me. I'll check in after the appointment. > > hugs to all, > Donna Jean > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 HI , Its should be written into law somewhere that every caregiver get one of these edible arrangement once a week. Aren't they wonderful. Not only are they yummy but they are beautiful. I'm sure the staff at the NH loved you and your mom reaped the rewards. Courage Re: Just an update Hi Donna - thanks for the update! We'll want to know the outcome after the visit with the neurologist too. Thanks for the book suggestion too - I'll add to the Suggested Reading database... Sorry your mom didn't say the right words to thank you for the flowers... SIGH... But you seem to know what is " mom " and what is " Lewy " talk - so that's positive... I used to send treats to the staff at my mom's NH... The biggest hit was a basket from Edible Arrangements (http://www.ediblearrangements.com/) As my grandmother used to say - you get more bees w/ honey, than vinegar... And especially since CNAs don't get paid as much as they're worth - they appreciated it... Not to mention mom benefitted from the extra attention she received... > > Hello all, > > Just a little update to let you know that I'm still here. Haven't had > a chance to stop in the last few days. > > Tomorrow mom see's the neurologist. She hasn't seen this one before. > He's the one that comes the the NH. So I've been trying to get my > ducks in a row with her previous behaviors, all doctors notes, tests > and anything else I can come up with. Also printed out tons of things > from this list (thank you all for your contributions). Trying to be > armed and dangerous when I go in there. > > Did some needed reading last week. One was The Fearless Caregiver. > Really did inspire me to do what I need to do in the way I need to do > it. I liked the diagram that was there showing the LO in the center > of a circle. The circle being her circle of caregivers, including me. > Seems like caregiver rights are put on the burner sometimes when the > LO is in a NH. It's like 'let the doctors take care of her'. But they > only see her once a month and don't see the changes their meds have > created. So I'll continue on the mission and stand up for my rights:) > > Decided to send mom flowers every week. Thought it might brighten her > day. She told the nurse she didn't know why I was doing it and she > wished I would get out of her life. That's gratitude:) I try not to > take it personally. > > Back to work for me. I'll check in after the appointment. > > hugs to all, > Donna Jean > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Since informed us about the edible arrangements that is what I have been giving to acknowledge a death in a family, used as thank yous in Mom's nh. When she died I got so many flower arrangements. It took time and energy to tend to and deal with them. Sending the edible arrangement instead, I feel family can pick at nutritious food when eating full meals perhaps seems too much. Thank you ! , Oakville Ont. Mother, age 92, died Aug. 12/06 after 13 year decline from PDD > > > > Hello all, > > > > Just a little update to let you know that I'm still here. Haven't > had > > a chance to stop in the last few days. > > > > Tomorrow mom see's the neurologist. She hasn't seen this one > before. > > He's the one that comes the the NH. So I've been trying to get my > > ducks in a row with her previous behaviors, all doctors notes, > tests > > and anything else I can come up with. Also printed out tons of > things > > from this list (thank you all for your contributions). Trying to be > > armed and dangerous when I go in there. > > > > Did some needed reading last week. One was The Fearless Caregiver. > > Really did inspire me to do what I need to do in the way I need to > do > > it. I liked the diagram that was there showing the LO in the center > > of a circle. The circle being her circle of caregivers, including > me. > > Seems like caregiver rights are put on the burner sometimes when > the > > LO is in a NH. It's like 'let the doctors take care of her'. But > they > > only see her once a month and don't see the changes their meds have > > created. So I'll continue on the mission and stand up for my > rights:) > > > > Decided to send mom flowers every week. Thought it might brighten > her > > day. She told the nurse she didn't know why I was doing it and she > > wished I would get out of her life. That's gratitude:) I try not to > > take it personally. > > > > Back to work for me. I'll check in after the appointment. > > > > hugs to all, > > Donna Jean > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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