Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Hi, I have not posted much and am the husband of an IPF sufferer, who is in the advanced stages. We are both 76; my wife has had the disease for about three years, and probably much longer before it was diagnosed. She does not like to use a computer but I try and keep her up to date on things here. , you said a very important thing, that this list does you as much good as it does for your hubby. This is so true. I read it every day and it is so supporting for me. I'd like to list a few things that we have had to adjust to, in order to make life better for both of us. These are not health care related, but have to do with coping with things around the house. Maybe it will give you ideas that you can adopt. I am legally blind with a guide dog and my wife cannot drive anymore. Check around to see if there is an on-line grocery shopping program in your area. They are wonderful and very convenient. For a small charge they will deliver groceries right to your kitchen table. Look into meals-on wheels; they are reasonable and sure make it nice if you don't have a good cook in the household anymore. Find a trusted housekeeper who would help with the cleaning. Look into a power chair if it is too tiring to move about the house. If you qualify for Medicare, they will buy one for you. There are quite small ones now that will get around inside very well. Most counties have some sort of transportation that is available for use if you cannot drive. They charge a small fee and it is free if you don't have the money at the time. They will come pick you up for shopping and doctor visits, etc. Some communities will even provide volunteers to come to your house and visit with you, or play cards, etc. Hope this helps... we are utilizing most of the above. Thanks for all your support. Bob and Joan Layton, Ut Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Hi Bob and Joan, Thank you for reminding me that it is ok to ask for help. I am relatively young (45 on Wednesday) and I still try to do all for my husband and kids. We must not be as excepting of Bruce's disease as we show others. Thank you every one! Carman -------------- Original message -------------- Hi,I have not posted much and am the husband of an IPF sufferer, who is in the advanced stages. We are both 76; my wife has had the disease for about three years, and probably much longer before it was diagnosed. She does not like to use a computer but I try and keep her up to date on things here., you said a very important thing, that this list does you as much good as it does for your hubby. This is so true. I read it every day and it is so supporting for me.I'd like to list a few things that we have had to adjust to, in order to make life better for both of us. These are not health care related, but have to do with coping with things around the house. Maybe it will give you ideas that you can adopt. I am legally blind with a guide dog and my wife cannot drive anymore.Check around to see if there is an on-line grocery shopping program in your area. They are wonderful and very convenient. For a small charge they will deliver groceries right to your kitchen table.Look into meals-on wheels; they are reasonable and sure make it nice if you don't have a good cook in the household anymore.Find a trusted housekeeper who would help with the cleaning.Look into a power chair if it is too tiring to move about the house. If you qualify for Medicare, they will buy one for you. There are quite small ones now that will get around inside very well.Most counties have some sort of transportation that is available for use if you cannot drive. They charge a small fee and it is free if you don't have the money at the time. They will come pick you up for shopping and doctor visits, etc. Some communities will even provide volunteers to come to your house and visit with you, or play cards, etc.Hope this helps... we are utilizing most of the above.Thanks for all your support.Bob and JoanLayton, Ut Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Thanks for your help. Your note gets the print-out treatment for future use. If you think of anything more, well, you've got grateful and eager reader. Owen > > Hi, > > I have not posted much and am the husband of an > IPF sufferer, who is in the advanced stages. We > are both 76; my wife has had the disease for about > three years, and probably much longer before it > was diagnosed. She does not like to use a > computer but I try and keep her up to date on > things here. > > , you said a very important thing, that this > list does you as much good as it does for your > hubby. This is so true. I read it every day and > it is so supporting for me. > > I'd like to list a few things that we have had to > adjust to, in order to make life better for both > of us. These are not health care related, but > have to do with coping with things around the > house. Maybe it will give you ideas that you can > adopt. I am legally blind with a guide dog and my > wife cannot drive anymore. > > Check around to see if there is an on-line grocery > shopping program in your area. They are wonderful > and very convenient. For a small charge they will > deliver groceries right to your kitchen table. > > Look into meals-on wheels; they are reasonable and > sure make it nice if you don't have a good cook in > the household anymore. > > Find a trusted housekeeper who would help with the > cleaning. > > Look into a power chair if it is too tiring to > move about the house. If you qualify for Medicare, > they will buy one for you. There are quite small > ones now that will get around inside very well. > > Most counties have some sort of transportation > that is available for use if you cannot drive. > They charge a small fee and it is free if you > don't have the money at the time. They will come > pick you up for shopping and doctor visits, etc. > Some communities will even provide volunteers to > come to your house and visit with you, or play > cards, etc. > > Hope this helps... we are utilizing most of the above. > > Thanks for all your support. > > Bob and Joan > Layton, Ut > Quote Link to comment Share on other sites More sharing options...
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