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Maddy today

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Maddy has been on the diamox since yesterday afternoon and is doing

great. She is back to eating and drinking and no pain complaints. I

spoke to Dr. M today and he said since she improved while on diamox

then he thinks she maybe be partially blocked in 1 or both catheters.

He said he looked at her films (xray,ct,mri)taken with in the last 14

days and he knws her scans never show anything wrong even when there

is. He said Dr. W will be back tomorrow and he will talk to her about

scheduling her with Dr. W for a revision of one or both catheters. He

said she will call me tomorrow. He told me to go ahead and stop the

neurotin since the diamox works,this was around 3 pm,so she wasnt gonna

need her 4 pm dose. However about 530 Maddy started saying her tummy

hurt and she was gonna puke and she did 3 times,looked like everything

she had taken in most of the day. I talked to neurosurgery and Dr. M

told me to put her back on the neurotin. I am supposed to check in with

them in the morning,but if she continues to vomit bring her to the ER

and have them paged. Its been about 2 hours and no more puking and she

is asleep. I will keep you all posted. Please keep Maddy in your

prayers.

p.s. maddy has been on diamox many times and I have asked her doc why

not keep her on it,but he said it could be dangerous,it depletes the

body of potassium,also it covers up her symptoms.

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