Lung Transplant

[Guest guest]

Hello Everyone:

I've had IPF going on for about 13 months now, I'am on O2 at 6

Liters 24/7, and it really stinks, and really getting tired of the

tube.

My wife and I was at the pulmonary Doctor last friday and he wants

me to call a doctor in Phila for a lung transplant he has also giving

me a package of all my test results to take, and IM scared to death,

I have been through the ringer, with all the test you can imagine, I

have tests coming out of my ears.

I had to retire from my government job, after 34 years of service,

because the Dr. said that my working day's are over with, Boy that

was a big bomb for us to cope with, first the Dr's said that I had

UIP, and said that I had only 4 years to live, Well I guess now maybe

3 or less, but Im still here. I had a lung parts of my left lung

removed for test, and the Dr's in Phila said the I had UIP, so my Dr.

here had them send the samples to the Mayo Clinic in Az, and it came

back as IPF, and my condition is getting worse by the day.

I would love to talk to someone that went through a lung transplant,

before and afterwards, there's no one here where I live the has IPF

or no one to talk to and no support groups, IM just stuck out there

by myself and it does get to be scarey.

And when I get real nerves I smoke a cigertte I know thats not good,

but need something to calm me down.

Oh yea I forgot, about 6 months after I got the IPF, I got R/A, it

was so bad they had to rush me to the hospital, I couldn't move at

all, IM on pain killers from my R/A Doctor and just O2 from my

pulmonary Doctor, I've known now, that my IPF stages had advanced and

everytime, I talk to the Dr. I get the run around, I 53 years old

with a very lovely supported wife and 2 great daughter's, 32 and 27

years old and 2 female Jack Russels, I use an electric scooter and

had a electric lift for our van, and I go to P/T twice a week.

I always read your wonderful board, and it's looks very supportive,

and you guy's make everyone feel like family.

Well so much for me, love to talk to you guy's more, maybe I can

help out, who knows.

But like I said IM really scared to death about this lung

transplant, I don't know, If I want to have it done.

Thank You And God Bless All:

RAndy