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Anne,

Wow, you are new to this! If your DAN found "nothing unusual except for yeast", then I suggest you change your DAN. If your child is not speaking age appropriately then he is apraxic and most probably autistic. Question for you:

Was your child developing normally then regressed (around 2 years old)?

If the answer is "yes", then suggest several avenues.

1. Test for toxicity (porphyrins test).

2. If toxic, then detoxify.

Detoxification can happen any number of ways -- MB12, Valtrex or chelation. Chelation is the most effective in detoxifying. Valtrex is the easiest. Suggest testing for high testosterone also.

Use lots of vitamins -- like Kirkman's spectrum complete.

Good luck!

Abid

Subject: ConfusedTo: mb12 valtrex Date: Wednesday, October 8, 2008, 2:14 PM

Hello All--I am new to the bio-med area. My son (newly 4) was diagnosed PDD-NOS last year. We tried the GF/CF diet for three months and saw no changes -- except his appetite improved when we took him off it. I think he is apraxic but not sure. He stims quite a bit and has expressive speech delay but otherwise they tell me he is on the mild side. We're doing ABA (about 30-33 hours weekly)and he gets OT and ST in preschool.I had him tested by a DAN! doc who found nothing unusual -- except high yeast in stool. We got a prescript for MB-12 shots and Nystatin but I am confused about when to give -- especially considering all the probiotics and vitamins. I know to give the MB-12 at night. But what about the Nystatin and everything else? Also, my son didn't test positive for any allergies or celiac disease -- does this mean the GF/CF diet is a waste of time for him?Thanks for your

advice--Anne

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Hi,

You don't have to give the mB-12 shots at night if that doesn't work

with your schedule. The only reason for this is a lot of people start

out giving them at night when their kids are asleep. That didn't work

out for us so well :-) It's more important to give them consistently

at a time you will easily remember. We used the prescription numbing

cream EMLA for a while, then realized for us it just prolonged the

experience. If you want you can use a topical OTC liquid like

Ambesol. We don't use anything right now, and my son (4) doesn't even

flinch. Make sure you are getting the tiny tiny needles from your

pharmacy. I actually poked myself with a needle when we started and

didn't feel anything. Some report a mild burning sensation when the

mB-12 is pushed in, but there is no numbing cream for that,

unforunately :-)

The Nystatin can be taken with other supplements, we don't give ours

close to our probiotic. There are lots of opinions on this, but our

DAN does not like anti-fungals and probiotics given together. You

will get a lot of different ideas on this one, that's just what we

do.

Just because your son did not test positive for any allergies or

celiac does not necessarily mean he will not benefit from the diet.

There is a small subset of these kids that appear just to need

a " clean " diet, one with organic whole foods, free of dyes,

preservatives, all that yucky synthetic junk. I would encourage you

to revisit the diet just to make sure it was done entirely correctly.

Infractions can happen in the weirdest places. Also, some people say

gluten can take up to 6 months to leave the body completely. Keep in

mind our kids don't have " allergies " to gluten and casein in the

traditional sense - not like a peanut allergy or something. This is

different.

Did you remove soy as well? We didn't see any changes with the diet

really until we took out soy and food coloring. Soy is not good for

our kids and can mimic the casien protein.

HTH-

>

> Hello All--

>

> I am new to the bio-med area. My son (newly 4) was diagnosed PDD-

NOS

> last year. We tried the GF/CF diet for three months and saw no

> changes -- except his appetite improved when we took him off it. I

> think he is apraxic but not sure. He stims quite a bit and has

> expressive speech delay but otherwise they tell me he is on the

mild

> side. We're doing ABA (about 30-33 hours weekly)and he gets OT and

ST

> in preschool.

>

> I had him tested by a DAN! doc who found nothing unusual -- except

> high yeast in stool. We got a prescript for MB-12 shots and

Nystatin

> but I am confused about when to give -- especially considering all

the

> probiotics and vitamins. I know to give the MB-12 at night. But

what

> about the Nystatin and everything else?

>

> Also, my son didn't test positive for any allergies or celiac

disease -

> - does this mean the GF/CF diet is a waste of time for him?

>

> Thanks for your advice--

>

> Anne

>

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Does Chelation help with viruses? We have been Chelating with DMSA since June.

We have not got back results from our most recent test yet. I thought that it

was for metals, of which my son had some but pretty low toxicity. Now I'm

confused. Please help.

>

>

> Subject: Confused

> To: mb12 valtrex

> Date: Wednesday, October 8, 2008, 2:14 PM

>

>

>

>

>

>

> Hello All--

>

> I am new to the bio-med area. My son (newly 4) was

> diagnosed PDD-NOS

> last year. We tried the GF/CF diet for three months and saw

> no

> changes -- except his appetite improved when we took him

> off it. I

> think he is apraxic but not sure. He stims quite a bit and

> has

> expressive speech delay but otherwise they tell me he is on

> the mild

> side. We're doing ABA (about 30-33 hours weekly)and he

> gets OT and ST

> in preschool.

>

> I had him tested by a DAN! doc who found nothing unusual --

> except

> high yeast in stool. We got a prescript for MB-12 shots and

> Nystatin

> but I am confused about when to give -- especially

> considering all the

> probiotics and vitamins. I know to give the MB-12 at night.

> But what

> about the Nystatin and everything else?

>

> Also, my son didn't test positive for any allergies or

> celiac disease -

> - does this mean the GF/CF diet is a waste of time for him?

>

> Thanks for your advice--

>

> Anne

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Chelation very well may help with viruses. If your child was tested (i.e porphyrins test) to be toxic, then you should continue to chelate. Removal of heavy metals will make the methylation cycle function properly. Methylation cycle is the bodies detox cycle. The metals may have been the spark that started the whole problem with the immune system. > > From: irishmom32 <irishmom32yahoo (DOT) com>> Subject: Confused> To: mb12 valtrex@ yahoogroups. com> Date: Wednesday, October 8, 2008, 2:14 PM> > > > > > > Hello All--> > I am new to the bio-med area. My son (newly 4) was> diagnosed PDD-NOS > last year. We tried the GF/CF diet for three months and saw> no > changes -- except his appetite improved when we took him> off it. I > think he is apraxic but not sure. He stims quite a bit and> has > expressive speech delay but otherwise they tell me he is on> the mild > side. We're

doing ABA (about 30-33 hours weekly)and he> gets OT and ST > in preschool.> > I had him tested by a DAN! doc who found nothing unusual --> except > high yeast in stool. We got a prescript for MB-12 shots and> Nystatin > but I am confused about when to give -- especially> considering all the > probiotics and vitamins. I know to give the MB-12 at night.> But what > about the Nystatin and everything else? > > Also, my son didn't test positive for any allergies or> celiac disease -> - does this mean the GF/CF diet is a waste of time for him?> > Thanks for your advice--> > Anne

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Hi, Our allergy tests were run at a lab and read by our naturopath.

They did the IGE and the IGG's. I don't know how they read them. She

looked at them and said he was clear of allergies. However she said

that sensitivities do not show up as clearly as true allergies. Our

naturopath follows the DAN! protocol for less than 1/2 the price.

> >

> > Hello All--

> >

> > I am new to the bio-med area. My son (newly 4) was diagnosed

PDD-NOS

> > last year. We tried the GF/CF diet for three months and saw no

> > changes -- except his appetite improved when we took him off it. I

> > think he is apraxic but not sure. He stims quite a bit and has

> > expressive speech delay but otherwise they tell me he is on the

mild

> > side. We're doing ABA (about 30-33 hours weekly)and he gets OT

and ST

> > in preschool.

> >

> > I had him tested by a DAN! doc who found nothing unusual -- except

> > high yeast in stool. We got a prescript for MB-12 shots and

Nystatin

> > but I am confused about when to give -- especially considering

all the

> > probiotics and vitamins. I know to give the MB-12 at night. But

what

> > about the Nystatin and everything else?

> >

> > Also, my son didn't test positive for any allergies or celiac

disease -

> > - does this mean the GF/CF diet is a waste of time for him?

> >

> > Thanks for your advice--

> >

> > Anne

> >

>

>

>

>

>

>

>

------------------------------------------------------------------------------

>

>

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.173 / Virus Database: 270.7.6/1716 - Release Date:

10/9/2008 9:44 AM

>

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  • 2 years later...
Guest guest

Well that's what I was wondering. I was thinking that I stressed my adrenals by maybe raising my dessicated thyroid to fast. So I'm a psuedo hyper. :)Sender: Thyroiditis Date: Sat, 19 Mar 2011 21:46:11 -0700To: <Thyroiditis >ReplyTo: Thyroiditis Subject: Re: Confused i would not do that until you have done a lot of research...The TSH is actually a pituitary hormone that causes the thyroid toproduce more hormone... why would a 0.0 of TSH mean to kill thethyroid???? Hi, my name is and was diagnosed with hashimoto'sDec/09. I have so much to talk about but would like toaddress a problem that is occuring right now. My questionis:-f your tsh is 0.0 and a FT4 is 2.1 does this mean youneed to have your thyroid killed? My endo wants to do thisbecause i am sweating so bad, slight increase in the heartrate, insomia. I have not been on meds for 4 months. I wason synthroid/cytomel stoppped it and switched to ERFA.after about a month my tsh dropped and has not moved for 4months. Sincerely,

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I also overheat from arthritis like symptoms(burning arms, other areas of body) and expect to possibly get a RA or something similiar diagnosis. HEAT can be an inflammatory disorder, I bet there are a dozen things that can cause inflammation, even food allergies. Now that I'm off of nightshade veggies the worst of my burning arms is finally calming down. I wasn't allergic before, but I'm likley now, or they are just too hard on me at my age(and I'm only 38). But I have had multiple injuries in some of these places with scar tissue in my muscles.

Light

Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely,

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maybe they should test to see if your pituitary shut down all hormones first.---------- Original Message ----------From: jojocantsleep@...To: Thyroiditis Subject: Re: ConfusedDate: Sun, 20 Mar 2011 05:06:32 +0000i would not do that until you have done a lot of research...The TSH is actually a pituitary hormone that causes the thyroid to produce more hormone... why would a 0.0 of TSH mean to kill the thyroid???? Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely,

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This number is perfect according to another very experienced member I know in another thyroid group. If they are on even a tiny dose of T4, maybe it just should be stopped, even if it's only 25mcg's. Or Iodine could drag it this far down, that could be stopped.

Light

I Always Get the Best of Everything!

Abraham-Hicks

Subject: ConfusedTo: Thyroiditis Date: Saturday, March 19, 2011, 5:26 PM

Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely,

____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com

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I wonder if her pituitary is failing, that is a possibility of low tsh and not high t4. I do see that she needs an endo willing to research a little more. ----- ConfusedTo: Thyroiditis Date: Saturday, March 19, 2011, 5:26 PM Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely, ____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com

____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com

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,

A TSH of 0.0 is NOT perfect. It would only be a good thing if the person is on a

suppressive dose of thyroid hormone(s) - typically post-cancer.

I have certainly seen it argued that somewhere around 1.2 is optimum in healthy

people. When on treatment people might need to have that somewhat lower. Maybe

0.3? But not as low as 0.0.

Rod

>

> This number is perfect according to another very experienced member I know in

another thyroid group. If they are on even a tiny dose of T4, maybe it just

should be stopped, even if it's only 25mcg's. Or Iodine could drag it this far

down, that could be stopped.

>

>

> Light

> I Always Get the Best of Everything!

> Abraham-Hicks

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,Are you still on the ERFA? What amount on synthroid and what amount of cytomel were you on before you switched to ERFA? And how much ERFA did you take daily? Do you take any supplements, cortisol, iron, Bs, D3?I would experiment with every other alternative first. Hashimoto's is an auto-immune disease, not a thyroid disease. Look into Low Dose Naltrexone to stop the attacks on your thyroid, check your adrenals, ferritin, supplements, etc. Killing the thyroid gland is a last resort. If you switched to Natural recently and haven't yet, you might spend a week exploring the website Stopthethyroidmadness.com . TSH isn't as important as doctor's think it is. Did they check your free T3? I think you need a second opinion....Good luck and I'm so sorry,

Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:

-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months.

Sincerely,

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Hi all, I did do testing for permenopause and it was fine. Nevere thought about the glucose situation. I will check my glucose when the symptoms happen! :)Sender: Thyroiditis Date: Sun, 20 Mar 2011 01:12:07 -0700 (PDT)To: <Thyroiditis >ReplyTo: Thyroiditis Subject: Re: Confused , Is there any other avenue you could persue to find out if your sweating could be comming from another health issue. It is my understanding 0.0 is "perfect" and euthroid, which means your body is having enough hormones to make your pituitary gland happy. And so it's at the ideal levels, could you be starting perimetapause? Or could you be taking niacin and then getting upset over flushing? Has anything else in your life changed that may be causing this?When I overheat from low thryroid(which you don't even have) I don't sweat, I just cannot sweat and feel extremely hot. So this could be so many other things, blood sugar problems, or eating foods that make you sweat by chinese standards(chili peppers, etc)....foods considered HOT by their definition! LightSubject: ConfusedTo: Thyroiditis Date: Saturday, March 19, 2011, 5:26 PM Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely,

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He wants to do RAI on my thyroid. I'm scared. :)Sender: Thyroiditis Date: Sun, 20 Mar 2011 08:16:58 GMTTo: <Thyroiditis >ReplyTo: Thyroiditis Subject: Re: Confused 0.0 means your thyroid is running too high. anything under .3 is too low. This is serious and I would do what your endo says. can cause a heart attack and heart failure if not taken care of. Sometimes endrocrinologists know what they are doing.----- ConfusedTo: Thyroiditis Date: Saturday, March 19, 2011, 5:26 PM Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely, ____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com

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Hello!I do have a ft4 that is 2.1 reference range (0.8-1.8) maybe I should have my pituitary checked! :)Sender: Thyroiditis Date: Sun, 20 Mar 2011 08:29:39 GMTTo: <Thyroiditis >ReplyTo: Thyroiditis Subject: Re: Confused I wonder if her pituitary is failing, that is a possibility of low tsh and not high t4. I do see that she needs an endo willing to research a little more. ----- ConfusedTo: Thyroiditis Date: Saturday, March 19, 2011, 5:26 PM Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely, ____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com ____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com

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Hello, I stopped the erfa 4 months ago. I took the erfa because I was feeling so bad. I was on synthroid 88mcg and cytomel 10mg first then swiched to erfa. I'm not sure what to do. I am getting a second opinion! :)Sender: Thyroiditis Date: Sun, 20 Mar 2011 12:37:53 +0100To: <Thyroiditis >ReplyTo: Thyroiditis Subject: Re: Confused ,Are you still on the ERFA? What amount on synthroid and what amount of cytomel were you on before you switched to ERFA? And how much ERFA did you take daily? Do you take any supplements, cortisol, iron, Bs, D3?I would experiment with every other alternative first. Hashimoto's is an auto-immune disease, not a thyroid disease. Look into Low Dose Naltrexone to stop the attacks on your thyroid, check your adrenals, ferritin, supplements, etc. Killing the thyroid gland is a last resort. If you switched to Natural recently and haven't yet, you might spend a week exploring the website Stopthethyroidmadness.com . TSH isn't as important as doctor's think it is. Did they check your free T3? I think you need a second opinion....Good luck and I'm so sorry, Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely,

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,

Are you taking t4 at all? Levothyroid? that couldn't be converting and isjust floating around in your system and is the reasons for this t4 result?

I was taken off of gluten because it was scientifically now tied to thyroid problems. Have you done major diet modifications?

Light

I Always Get the Best of Everything!

Abraham-Hicks

Subject: ConfusedTo: Thyroiditis Date: Saturday, March 19, 2011, 5:26 PM

Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely,

____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com

____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com

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Why would they have you on it at all if you are now hyperthyroid? Why wouldn't the End just say stop to see if your levels go up a bit?

Light

Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely,

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millions of us Diagnosed hypot patients have had uneducated DRs doing these

types of rapid Rx dosage changes . to our longterm detriment. becuz DRs actually

believe the TSH tells thyroid hormone status in the entire body. wrong :0

TSH does not tell one's body thyroid hormoneS status. the TSH lab test merely

shows the amount of Pituitary hormone that the Pituitary gland is making

and plenty of things affect the Pit's production of TSH, including

AUtoimmune/Immune constituents like antibodies and Cytokines!

and ofcourse 'stress' can affect TSH production aslo,, which means varying

levels of any and all of the stress Neuropeptides in the nervous system and the

Sterss hOrmones ,, can and do affect the Pitutiary glands PRoduction of TSH

having an Autoimmune disease is 'stresful'

being HypOt anywhere in the body is stressful'

skipping meals and having unoptimal blood sugar swings is 'stressful'

worrying is 'stressful'

all these things force our brain to increase the stress response by increasing

the stress-system and the Co-systems that operate the fight/flight response =

including the ANS and PNS and Blood Sugar Regulation andincluding our LIVERs

sugar handling duties; which means the LIVER has much less time and energy to be

making our important THRYODI hromone called T3!

and doing all the Other " Metabolic Pathways' including DETOX Pathways 1 and 2

when those are not running well ,, you can get a build up of _intermediate

factors that are VERY oxidative and damaging to the cells =when instead the

LIver Detox Pathways 1 and 2 should be 'metabolizing' our Old HORmones and

toxins and other negative things and excreting them from the body via our

bile/intesines..

double whammy /trippy whammy

all from being in stress-mode chronically

including higher levels of 'toxins' and Stress-neurohormones floating around in

our body and brain and blood also makes our BRAIN Even more stressed and it

increases the Brain's Stress Sensing Sensivity and Stress Response and

Stress-Instructions to the body's stress systems even more

vicious upward spiraling of the entire stress-system and its catbolic stress

chemicals,,

until we start learning how to Reverse the stress=system upregulation :)

====

so gotta test Free T3 and Free T4 and Reverse T3 (and ok TSH :) and also SHBG

and assess Cortisol Saliva* Tests

and Learn about " Adrenal Fatigue " SIgns and SYmptoms of brain and body and

thoughts/emotions....

to assess how stressed your various body parts and systems and brain parts ar4e/

which brain parts :)/ to see how truly " Adrenal Fatiuged " you are (a Stupid

name for what is really a problem with the entires Stress ssystem =of which our

Brain is the " head " :) and is in charge of telling the adrenals -and every other

part= what to do :/

still the LIfestyle guidelines that the Good AF doctors talk about are key -even

tho they are over-simplifying how the body works = which affects our

underrstanding and treatment decisions...

=

GOOGLE : Dr Lam + " Adrenal Fatiuge "

even tho he doesn't talk about how the body works at teh 'Molecular

levels/biochemistry

his writings and cautions to go lower and slower shows that he realizes our

" Metabolic Pathways/Enzymatic chemical reactions that occur at the molecular

level in all of our cells and organs

-are just as important as the 'organs' and body parts they run.

the basics/ lifestyle food sleep thoughts exercise antioxidents nutrition vits

minerals amino acids fatty acids all from the foods we should be eating and

glycemic control and stress management

are key :) the foundation

you can do it :)

-Carol

>

>

>  

>

> Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much

to talk about but would like to address a problem that is occuring right now. My

question is:

>

> -f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your

thyroid killed? My endo wants to do this because i am sweating so bad, slight

increase in the heart rate, insomia. I have not been on meds for 4 months. I was

on synthroid/cytomel stoppped it and switched to ERFA. after about a month my

tsh dropped and has not moved for 4 months.

>

> Sincerely,

>

>

>

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Guest guest

,

That's all right, I don't need an apology - I just wanted it to be noted in the

thread in case anyone mistakenly takes it to be true.

Of course, as others will tell you, TSH is often (or always?) inappropriate for

managing thyroid hormone dosage.

Rod

> >

> > This number is perfect according to another very experienced member I know

in another thyroid group. If they are on even a tiny dose of T4, maybe it just

should be stopped, even if it's only 25mcg's. Or Iodine could drag it this far

down, that could be stopped.

> >

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Hi ,I have been off meds for 4 months.L :)Sender: Thyroiditis Date: Sun, 20 Mar 2011 13:25:23 -0700 (PDT)To: <Thyroiditis >ReplyTo: Thyroiditis Subject: Re: Confused Why would they have you on it at all if you are now hyperthyroid? Why wouldn't the End just say stop to see if your levels go up a bit? Light Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely,

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I'm not taking any meds except for vitamins. I thought about doing a gluten free diet. The thing that I do notice is that I think I'm iodine defficient. I don't have any iodine in my diet and live in the goiter belt (wyoming). I'm calling a natural path md tomorrow.L :)Sender: Thyroiditis Date: Sun, 20 Mar 2011 13:23:29 -0700 (PDT)To: <Thyroiditis >ReplyTo: Thyroiditis Subject: Re: Confused , Are you taking t4 at all? Levothyroid? that couldn't be converting and isjust floating around in your system and is the reasons for this t4 result? I was taken off of gluten because it was scientifically now tied to thyroid problems. Have you done major diet modifications? LightI Always Get the Best of Everything!Abraham-HicksSubject: ConfusedTo: Thyroiditis Date: Saturday, March 19, 2011, 5:26 PM Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely, ____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com ____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com

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Really! I think there is confusion. Yes, a suppressed TSH can occur from

overmedication as you say. BUT in this case has NOT taken any T meds for

FOUR months, therefore OVER medication has clearly already been ruled out here.

Actually, A TSH of ZERO is NOT perfect – far from it. Normal TSH is .3-3.0.

When TSH is ZERO the pituitary-thyroid communication is broken as in my case

with central hyPOthyroidism, my TSH is always ZERO, and so TSH is a very BAD way

to treat my Hashis. However, I am a minority and this happens rarely. I have

only seen two other people on thyroid support boards with CH without full-blown

hypopituitarism.

Another reason that TSH is ZERO is in Graves' hyperthyroidism, where TSH

Receptor Antibodies take OVER the pituitary's job of regulating TSH. This also

is common in Hashitoxicosis and hyper nodules. (, I will write more on these

tomorrow.)

As Rod and others indictated, TSH is often a bad way to treat hypo patients as

thyroid meds suppress TSH, that is why it is of UTMOST importance to always test

FT3 and FT4, sometimes rT3, too. Thyroid meds both natural and synthetic meds

suppresses TSH -that is what thyroid meds are supposed to do while supplying our

bodies with enough T hormone for metabolisim and so on.

Due to a number of things including physiologic or emotional stress, insulin

resistance or diabetes, aging, chronic fatigue syndrome and fibromyalgia,

calorie deprivation or starvation, depression, PMS, obesity, gut bugs,

inflammation, and numerous other conditions - the pituitary TSH levels do NOT

correlate with thyroid hormone levels and function in the rest of the body.

Therefore, TSH is not a reliable gauge of an individual's true thyroid function

status.

Happy hormones,

~Bj

> > >

> > > This number is perfect according to another very experienced member I know

in another thyroid group. If they are on even a tiny dose of T4, maybe it just

should be stopped, even if it's only 25mcg's. Or Iodine could drag it this far

down, that could be stopped.

> > >

> > >

> > > Light

> > > I Always Get the Best of Everything!

> > > Abraham-Hicks

> >

>

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Just a quick note - you are NOt optimal as you are NOt on any meds. It is

probably something else such as diet, AF or other AI. Pressed for time and will

reply more tomorrow. ~Bj

> > >

> > > This number is perfect according to another very experienced member I know

in another thyroid group. If they are on even a tiny dose of T4, maybe it just

should be stopped, even if it's only 25mcg's. Or Iodine could drag it this far

down, that could be stopped.

> > >

> > >

> > > Light

> > > I Always Get the Best of Everything!

> > > Abraham-Hicks

> >

>

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There's a problem with Hashimotos, you have to do low levels or not deliberately take iodine, as it encourages your thyroid to work even more! If you've not had antibody testing done for your thyroid, push for it. When I took iodine in high theraputic doses per a certain online Dr.'s protocol, it is supposed tohave told my thyroid to work a lot and the anitbodies from my autoimmune system went crazy and now they are very very high. IF you have an out of control immune system that's causing problems, then that's you main issue, as it can cause other organs to get damaged! This is why I'm off gluten, and am being tested for arthritis and other major autoimmune diseases, so I am completely aware and can make more changes to my lifestyle(change out food that may be contribiting) to mange them and prevent other damage to my body.

Light

Subject: ConfusedTo: Thyroiditis Date: Saturday, March 19, 2011, 5:26 PM

Hi, my name is and was diagnosed with hashimoto's Dec/09. I have so much to talk about but would like to address a problem that is occuring right now. My question is:-f your tsh is 0.0 and a FT4 is 2.1 does this mean you need to have your thyroid killed? My endo wants to do this because i am sweating so bad, slight increase in the heart rate, insomia. I have not been on meds for 4 months. I was on synthroid/cytomel stoppped it and switched to ERFA. after about a month my tsh dropped and has not moved for 4 months. Sincerely,

____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com

____________________________________________________________Grouponâ„¢ Official Site1 ridiculously huge coupon a day. Get 50-90% off your city's best!Groupon.com

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