Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 Hello I am still in the process of testing. Thyroid issues run in my family on my mom's side so I wasn't surprised when I noticed some inflammation on my thyroid. I am also noticing dry skin, mild weight gain, puffy face, water retention and brain fog. I had some blood work done and my TSH is 1.3 -range is 0.3- 4.82. My microsomal antibody test was 526- range anything above 60 signifies autoimmune. They are thinking it is Hashimoto's but are waiting for my T-3 test and my ultrasound. Has anyone been diagnosed with Hashimoto's and had normal range TSH and t-3? I have heard that there are 2 schools of thought...some say treat it anyway and others say don't treat until bloodwork shows something. Also my thyroid is inflamed so curious as to what they would do to bring down the inflammation. Any advice or input would be greatly appreciated. Thanks so much Jody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 Did they test your TPO (thyroid Peroxidase antibodies) or your Tyroiglobulin antibodies? I personally never heard of a person being diagnosed with Hashi from microsomal antibody alone. I was told to be diagnosed with Hashimoto, TPO or Thryoglobulin will be high. My TPO for example is currently 2500 and that is low compared to what they used to be and the normal range is under 35. Microsomal antibodies can also indicate other diseases but I am not very familiar with any of them but from what I have read high microsomal levels means there has been damage to the thyroid. Your thyroid may be enlarged from nodules with they can make microsomal antibodies high as well from what I understand from research. I have nodules in my thyroid but I have had them for many years my thyroid is VERY swollen because of them but I did not have hashimoto until about 8 years after the nodules and enlarged thyroid was found. Before my antibodies and thyroid hormones were fine. I also read recently in an article that a person with a healthy thyroid can develop an in-larged thyroid from lack of Iodine (BUT Iodine for a Hashi person is VERY controversal I AVOID Iodine because all the research I have followd says Iodine for a Hashi person hurts the thyroid more by raising antibody levels and attacking they thyroid. but anyway the article had said a normal functioning thyroid can become enlarged (goiter) producing microsomal antibodies beacuse the thyroid was damaged from very low iodine but thyroid will still function correctly. They did not have any links between hashi on this article. Although your TSH is good the normal range your lab uses is outdated the normal range is now 0.3-3.0 most patients feel best under 2 and some people and doctors as around or under 1 (FINDING a doctor like that is very tough) If you have Hashi some people have swings were their TSH will go high, low, normal, low, high etc... I have Hashimoto by my labs without medication are CRAZY!!! From all the doctor I have seen they say unless goiter causes problem to let it alone. Mine was left untouched for about 8 years. Some will never cause any problems and then other will sometimes during child bearing years, puberty, or menopause. BUT some doctors think that starting thyroid hormones with high antibodies even if thyroid production shows well on labs is needed because some studies suggest it may help to halt the damage it is not certain. I was also told before that because your thyroid has been damaged and you have antibodies that giving your body thyroid hormones is needed to help the thyroid out so it does not have to work so hard like giving someone with a bum knee a cane... On the flip side starting thyroid hormones if not needed may turn you hyperthyroid so many doctors fear giving whats not needed. If your doctor does diagnose you with Hashinoto and does start you on thyroid hormones I personally recommend natural thyroid medication there are several different types available now most common is armour thyroid. Natural thyroid meds have all the important T's your thyroid needs but because of sales pitches most doctors prescribe synthroid. I tried it for 2 years and it made me feel worse the entire time I was on it. I now take compounded thyroid medication and it is fantastic! it has greatly changed how I feel. This link explains natural thyroid meds and the difference between them and synthetics. http://www.stopthethyroidmadness.com/natural-thyroid-101/ Another thing your doctor should check your Iron and ferritin as if they are low they can give the symptoms you have stated you have and sometime many more. Also your vit D and vit C should be check as they are important too. Has your doctor check your Free T4? checking the Free t4 and Free T3 are important too! Good luck! > > Hello > > I am still in the process of testing. Thyroid issues run in my family on my mom's side so I wasn't surprised when I noticed some inflammation on my thyroid. I am also noticing dry skin, mild weight gain, puffy face, water retention and brain fog. I had some blood work done and my TSH is 1.3 -range is 0.3- 4.82. My microsomal antibody test was 526- range anything above 60 signifies autoimmune. They are thinking it is Hashimoto's but are waiting for my T-3 test and my ultrasound. Has anyone been diagnosed with Hashimoto's and had normal range TSH and t-3? I have heard that there are 2 schools of thought...some say treat it anyway and others say don't treat until bloodwork shows something. Also my thyroid is inflamed so curious as to what they would do to bring down the inflammation. > Any advice or input would be greatly appreciated. > Thanks so much > Jody > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 I should also say I am not completely certain of the microsomal testing because I was told differently by different doctors some told me microsomal is a different test then TPO and another told me they are the same so make sure to check on this I never really have gotten good true answers on IF they are or ARE NOT! I was told that there are microsomal antibodes, Thyroid peroxidase antibodies and then microsomal TPO antibodies are they all the same I DO NOT NO FOR SURE! My aunt that has rheumatoid arthritis has Microsomal antibodies and when I asked my old doctor if it was the same as TPO he said No thatevery autoimmune disease has different antibodies and that microsomal does not always mean thyroiditis. Like celiac has IGA antibody... So I would ask some others on here I am sure someone else would help more as I have never got a straight answer of what it is and I am not familiar with the microsomal testing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 Hi , This all can be quite confusing. A microsomal antibody test can also be called: thyroid peroxidase (TPO) antibody (TPOAb) test, thyroid peroxidase autoantibody test, antimicrosomal antibody test, antithyroid microsomal antibody test and so on. Essentially, the thyroid peroxidase antibodies and microsomal TPO antibodies are THE SAME and are referred to by more than a few names. Hope that clears it up for you, ~Bj & #8195; > > I should also say I am not completely certain of the microsomal testing because I was told differently by different doctors some told me microsomal is a different test then TPO and another told me they are the same so make sure to check on this I never really have gotten good true answers on IF they are or ARE NOT! > I was told that there are microsomal antibodes, Thyroid peroxidase antibodies and then microsomal TPO antibodies are they all the same I DO NOT NO FOR SURE! > My aunt that has rheumatoid arthritis has Microsomal antibodies and when I asked my old doctor if it was the same as TPO he said No thatevery autoimmune disease has different antibodies and that microsomal does not always mean thyroiditis. Like celiac has IGA antibody... > > So I would ask some others on here I am sure someone else would help more as I have never got a straight answer of what it is and I am not familiar with the microsomal testing! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 Thanks for the clarification I was always told they were different antibody tests. Anyway Jody, JUST my opinion I do not recommend seeing an Endocrinoligist which is more than likely the specialist they will send you too. I have been through MANY Endo's they have lots of knowledge for diabetes but most dont no much about thyroid. I know many people on here do not see Endo's anymore either. Some just see their Family doctors, a DO or even some see a chiropractor to treat their thyroid! Also I have known people that have had Graves that 'turned into' Hashi and people that have had hashi that 'turned into' graves. I also have a friend that has graves but has hypothyroid symptoms here doctor told her that the early start of graves has hypothyroid symptoms which defiantly would make some sense with your TSH being on the lower end, I know I meself cant seem to get my TSH that low I take more and more meds and it never gets there although I would love for it to get their.I also have heard that some people can be diagnosed with both I am not sure how that would work! Here is what I found... http://www.bellaonline.com/articles/art39710.asp http://www.bellaonline.com/articles/art61292.asp http://thyroid.about.com/cs/hypothyroidism/a/hypoandhyper.htm So from those TPO or Microsomal antibodes are found in both Hashi and graves and the deciding factor would be based on TSH FT4 FT3 and TSI (Thyroid Stimulating Imunnoglobulins) looks like if you have TSI you have graves. http://www.nlm.nih.gov/medlineplus/ency/article/000371.htm http://www.nlm.nih.gov/medlineplus/ency/article/000375.htm http://www.nlm.nih.gov/medlineplus/ency/article/000388.htm http://www.labtestsonline.org/understanding/analytes/tsh/test.html > > > > > > Hello > > > > > > I am still in the process of testing. Thyroid issues run in my family on my mom's side so I wasn't surprised when I noticed some inflammation on my thyroid. I am also noticing dry skin, mild weight gain, puffy face, water retention and brain fog. I had some blood work done and my TSH is 1.3 -range is 0.3- 4.82. My microsomal antibody test was 526- range anything above 60 signifies autoimmune. They are thinking it is Hashimoto's but are waiting for my T-3 test and my ultrasound. Has anyone been diagnosed with Hashimoto's and had normal range TSH and t-3? I have heard that there are 2 schools of thought...some say treat it anyway and others say don't treat until bloodwork shows something. Also my thyroid is inflamed so curious as to what they would do to bring down the inflammation. > > > Any advice or input would be greatly appreciated. > > > Thanks so much > > > Jody > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 I am new to all of this, but if referred to an Endo you can look on thyroid.org for a thyroid specialist in your state. I was annoyed that most of the endos pretty much focused on diabetes and seemed to dismiss my concerns. But the doc I found on Thyroid.org so far is great....I've had bad luck both my former endos moved to different states, but this new one so far is great and has not dismissed me AT ALL. > > > > > > > > Hello > > > > > > > > I am still in the process of testing. Thyroid issues run in my family on my mom's side so I wasn't surprised when I noticed some inflammation on my thyroid. I am also noticing dry skin, mild weight gain, puffy face, water retention and brain fog. I had some blood work done and my TSH is 1.3 -range is 0.3- 4.82. My microsomal antibody test was 526- range anything above 60 signifies autoimmune. They are thinking it is Hashimoto's but are waiting for my T-3 test and my ultrasound. Has anyone been diagnosed with Hashimoto's and had normal range TSH and t-3? I have heard that there are 2 schools of thought...some say treat it anyway and others say don't treat until bloodwork shows something. Also my thyroid is inflamed so curious as to what they would do to bring down the inflammation. > > > > Any advice or input would be greatly appreciated. > > > > Thanks so much > > > > Jody > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2010 Report Share Posted July 30, 2010 I tried 3 doctors from thyroid.org all 3 were a HUGE fail for me. I even drove 2 hours one way to see the last one because people talked SOOO HIGHLY of him. He was on thyroid.org and was on another website where they rated doctors and he had a 5 out of 5 the only good thing about him was he gave natural compounded thyroid. He would not check my vit c or vit D did not care that my FT4 Iron and Ferritin were WAY WAY out of range. And would not check me for adrenal fatigue even though all the signs pointed to it. The other two I went to, One told me thyroid levels were fine and my symptoms were not from my thyroid and walked out of the office before I could say or ask anything then when I got my copy of the lab report me TSH was 30.8... yea not fine. The other told me after having an ultrasound that the nodule I had for 9 years had just disapeared and that I was fine and my hashimot would go away now that my nodule was gone so I should stop taking thyroid hormones???? REALLY HUH.... THEN later that week when my family doctor got the report he called alarmed because my nodule WAS INDEED still there and it had doubled in size and I now had several more nodules as well.... I GUESS it must be a hit and miss but all the endos I have been to have been misses... I have tired others by recommendations even found a website that rates doctors went to or called all the doctors in my area that had a 4 or 5 rating with no luck! Because of that I recommend family doctors Or DO. my family doctor is a DO and he has given better care to me then any of the Endo's I have went to and has MUCH more knowledge then any of them as well. Endo's usually dont study much of the thyroid they focus mainly on diabetes. > > > > > > > > > > Hello > > > > > > > > > > I am still in the process of testing. Thyroid issues run in my family on my mom's side so I wasn't surprised when I noticed some inflammation on my thyroid. I am also noticing dry skin, mild weight gain, puffy face, water retention and brain fog. I had some blood work done and my TSH is 1.3 -range is 0.3- 4.82. My microsomal antibody test was 526- range anything above 60 signifies autoimmune. They are thinking it is Hashimoto's but are waiting for my T-3 test and my ultrasound. Has anyone been diagnosed with Hashimoto's and had normal range TSH and t-3? I have heard that there are 2 schools of thought...some say treat it anyway and others say don't treat until bloodwork shows something. Also my thyroid is inflamed so curious as to what they would do to bring down the inflammation. > > > > > Any advice or input would be greatly appreciated. > > > > > Thanks so much > > > > > Jody > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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