New to group

[Guest guest]

Hi Everyone,

My name is Deborah. Thank you for letting me join the group. I was diagnosed

with Hashi's in 2003. I have been undergoing chemotherapy since March 2010

for another illness. It has wreaked havoc on my body in so many ways, now my

thyroid.

Latest blood tests and I am still in shock. Please keep in mind everything has

been retested 4 times in total by 2 different labs.

T3 Uptake 19 (31-39)

T4 (thyroxine) 3.6 (4.7-13.3)

T7 0.7 (1.4-4.5)

TSH 266.34 (0.34-4.82)

red blood cells 2.81 (4.20-5.4)

Hemoglobin 9.4 (12.0-16.0)

Hematocrit 27.8 (38-47)

Platelets 68 (150-375)

I am no longer on chemo due to all of this. I have to get this taken care of

before I can resume chemo. I have had enough. My body has had enough. You

get so used to functioning in a cloud, that it is your normal. Doctors and

nurses have asked me how I am doing so well. I exclaim " I have not worked

sinced February, I am not doing well. "

I hope you can give me some input. I know the chemo is not what this group

focuses on. Just disregard that. I had to post though since it has a huge

bearing too.

Deborah

[Guest guest]

They increased to 75 synthroid from 30 synthroid.  My TSH was a 3 in May.   My body has tanked and said " No More " .    It is a wonder I can still think.   I am off to see an endo at 4pm today.     We will see what happens.  

 

Deborah,Oh my goodnes, so sorry you are going through this.  Are you on any thyroid medications???I can't offer advice, others in the group will.  I am still trying to regulate my thyroid as well.Hang in there.

 

To: Thyroiditis From: deborahsavon@...Date: Mon, 26 Jul 2010 16:41:08 +0000

Subject: New to group 

Hi Everyone,My name is Deborah. Thank you for letting me join the group. I was diagnosed with Hashi's in 2003. I have been undergoing chemotherapy since March 2010 for another illness. It has wreaked havoc on my body in so many ways, now my thyroid.

Latest blood tests and I am still in shock. Please keep in mind everything has been retested 4 times in total by 2 different labs. T3 Uptake 19 (31-39)T4 (thyroxine) 3.6 (4.7-13.3)T7 0.7 (1.4-4.5)TSH 266.34 (0.34-4.82)

red blood cells 2.81 (4.20-5.4)Hemoglobin 9.4 (12.0-16.0)Hematocrit 27.8 (38-47)Platelets 68 (150-375)I am no longer on chemo due to all of this. I have to get this taken care of before I can resume chemo. I have had enough. My body has had enough. You get so used to functioning in a cloud, that it is your normal. Doctors and nurses have asked me how I am doing so well. I exclaim " I have not worked sinced February, I am not doing well. "

I hope you can give me some input. I know the chemo is not what this group focuses on. Just disregard that. I had to post though since it has a huge bearing too. Deborah

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[Guest guest]

I have a few pieces of advice to you first I will say get off the synthroid stay

away from synthetic hormones and get onto natural thyroid medication if your

endo wont give natural thyroid medication find another that will or just go to

your family doctor many family doctors (in my experiance) are way better then

endo's are I have been through 5 endo's none want to listen to me. I traveled 2

hours ONE WAY for the last endo because he sounded great would give natural

thyroid hormones then after 2 visits I gave up on him. In my opinion your

medication should have been increased much more then they did when I wet from

50mg of synthroid to 120 of natural thyroid my TSH was 30 on the 50mg of

synthroid and natural thyroid hormones are stronger since there are all the T's

and not just T4 like in synthroid!

Here are some links with info for you...

http://www.stopthethyroidmadness.com/natural-thyroid-101/

http://www.citybeat.com/cincinnati/article-6268-synthroid-not-fda-approved.html

http://www.thyroid-info.com/articles/synthroidproblems.htm

Next I will recommend you start a gluten free diet I am sure it will help with

many of your symptoms and may help with other health problems as well. Also if

you eat Iodine rich foods get off them like seaweed(wraps for sushi) Kelp (also

wraps for sushi) Iodized salt (switch to sea salt)...

I also recommend Dr Datis kharrazian, he has a webpage many articles some

interviews you can listen to online and a GREAT book.

Last make sure to get your Free T3, vit D, vit C, Iron, ferritin checked too

Free T3 being off can be the reason for having all thyroid symptoms even when

the other thyroid labs come back good this is why its important to take a

natural thyroid medication (natural meds have ALL the T's not just T4 only

synthetic medications.

Good luck

>

> >

> >

> > Deborah,

> > Oh my goodnes, so sorry you are going through this. Are you on any thyroid

> > medications???

> > I can't offer advice, others in the group will. I am still trying to

> > regulate my thyroid as well.

> > Hang in there.

> >

> >

> > ------------------------------

> > To: Thyroiditis

> > From: deborahsavon@...

> > Date: Mon, 26 Jul 2010 16:41:08 +0000

> > Subject: New to group

> >

> >

> > Hi Everyone,

> > My name is Deborah. Thank you for letting me join the group. I was

> > diagnosed with Hashi's in 2003. I have been undergoing chemotherapy since

> > March 2010 for another illness. It has wreaked havoc on my body in so many

> > ways, now my thyroid.

> >

> > Latest blood tests and I am still in shock. Please keep in mind everything

> > has been retested 4 times in total by 2 different labs.

> >

> > T3 Uptake 19 (31-39)

> > T4 (thyroxine) 3.6 (4.7-13.3)

> > T7 0.7 (1.4-4.5)

> > TSH 266.34 (0.34-4.82)

> > red blood cells 2.81 (4.20-5.4)

> > Hemoglobin 9.4 (12.0-16.0)

> > Hematocrit 27.8 (38-47)

> > Platelets 68 (150-375)

> >

> > I am no longer on chemo due to all of this. I have to get this taken care

> > of before I can resume chemo. I have had enough. My body has had enough. You

> > get so used to functioning in a cloud, that it is your normal. Doctors and

> > nurses have asked me how I am doing so well. I exclaim " I have not worked

> > sinced February, I am not doing well. "

> >

> > I hope you can give me some input. I know the chemo is not what this group

> > focuses on. Just disregard that. I had to post though since it has a huge

> > bearing too.

> >

> > Deborah

> >

> >

> >

> > ------------------------------

> > Hotmail is redefining busy with tools for the New Busy. Get more from your

> > inbox. See

how.<http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:\

WL:en-US:WM_HMP:042010_2>

> >

> >

> >

>

>

>

> --

> Deborah

> My Cricut Cartridges

> AE, BC, BL, CC, CL, DC, EDPD, G, LL, LS, LT, MD, Oct31 PC, PDDU,PS, Pooh

> and Friends, TBBM, WIMG, WC, Zoo

>

[Guest guest]

,

Thanks for the advice.  I used to be on Armour.   It actually made me go into Hyper and then Hypo almost continuously.  My heart now misses beats, etc because of that huge fluctuation.   I have been on chemo for 5 months too.  The chemo has a huge bearing on autoimmune diseases.   I appreciate the advice, but I cannot do Armour again, not for a long time.  

The endo was very thorough.  He spent 90 minutes with me.   He ordered a sonogram and he wants me to go to a cardiologist for more testing on my heart.   He is very familiar with my other disease and the chemo I am on.  I have to go to someone who has knowledge of both diseases I have. 

 

I would love to go all natural, but it is not in the cards right now and may never be.  Armour was not good for me.  I was on it from April 2005 through October 2009. They switched me to Synthroid because I kept going hyper.     

 

 I was diagnosed with cancer October 22, 2009.   I began chemo March 2010 and stopped last Thursday due to thyroid and other blood levels not good.   

 

 

 

[Guest guest]

Many people had problems with Armour because of the formula change that is not

uncommon the problems you had from it. There are other natural thyroid

medications I personally think the compounded thyroid porcine that you would get

at a compounding pharmacy is the best. Hypo/Hyper swings are common for some

hashi patients but I have been told by many people it happened when they were on

Armour when they changed the fillers they use.

Synthroid is the last thing I would use and the last thing I would recommend

anyone to use. levothyroxine is even better then synthroid. I hope you start

feeling better soon and good luck with the chemo.

>

> ,

> Thanks for the advice. I used to be on Armour. It actually made me go

> into Hyper and then Hypo almost continuously. My heart now misses beats,

> etc because of that huge fluctuation. I have been on chemo for 5 months

> too. The chemo has a huge bearing on autoimmune diseases. I appreciate

> the advice, but I cannot do Armour again, not for a long time.

> The endo was very thorough. He spent 90 minutes with me. He ordered a

> sonogram and he wants me to go to a cardiologist for more testing on my

> heart. He is very familiar with my other disease and the chemo I am on. I

> have to go to someone who has knowledge of both diseases I have.

>

> I would love to go all natural, but it is not in the cards right now and may

> never be. Armour was not good for me. I was on it from April 2005 through

> October 2009. They switched me to Synthroid because I kept going hyper.

>

> I was diagnosed with cancer October 22, 2009. I began chemo March 2010

> and stopped last Thursday due to thyroid and other blood levels not good.

>

[Guest guest]

Deborah,

I hope your endo. has some insight....keep us posted!!! I was MISERABLE on the synthroid and have done much better on the natural thyroid made by the compounding pharmacy. I am still not 100%, but so much better than when on the synthroid. The synthroid caused weight gain, more memory fog, and I felt like I was a zombie walking around emotionless. I feel a little more human now on the natural thyroid. Hang in there and keep us posted!

To: Thyroiditis From: deborahsavon@...Date: Mon, 26 Jul 2010 13:21:20 -0500Subject: Re: New to group

They increased to 75 synthroid from 30 synthroid. My TSH was a 3 in May. My body has tanked and said "No More". It is a wonder I can still think. I am off to see an endo at 4pm today. We will see what happens.

On Mon, Jul 26, 2010 at 1:17 PM, <wendyincortezmsn> wrote:

Deborah,Oh my goodnes, so sorry you are going through this. Are you on any thyroid medications???I can't offer advice, others in the group will. I am still trying to regulate my thyroid as well.Hang in there.

To: Thyroiditis From: deborahsavongmailDate: Mon, 26 Jul 2010 16:41:08 +0000Subject: New to group

Hi Everyone,My name is Deborah. Thank you for letting me join the group. I was diagnosed with Hashi's in 2003. I have been undergoing chemotherapy since March 2010 for another illness. It has wreaked havoc on my body in so many ways, now my thyroid.Latest blood tests and I am still in shock. Please keep in mind everything has been retested 4 times in total by 2 different labs. T3 Uptake 19 (31-39)T4 (thyroxine) 3.6 (4.7-13.3)T7 0.7 (1.4-4.5)TSH 266.34 (0.34-4.82)red blood cells 2.81 (4.20-5.4)Hemoglobin 9.4 (12.0-16.0)Hematocrit 27.8 (38-47)Platelets 68 (150-375)I am no longer on chemo due to all of this. I have to get this taken care of before I can resume chemo. I have had enough. My body has had enough. You get so used to functioning in a cloud, that it is your normal. Doctors and nurses have asked me how I am doing so well. I exclaim "I have not worked sinced February, I am not doing well." I hope you can give me some input. I know the chemo is not what this group focuses on. Just disregard that. I had to post though since it has a huge bearing too. Deborah

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DeborahMy Cricut Cartridges

AE, BC, BL, CC, CL, DC, EDPD, G, LL, LS, LT, MD, Oct31 PC, PDDU,PS, Pooh and Friends, TBBM, WIMG, WC, Zoo

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