Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Doris, I'm happy to hear that your Mom's move went so well. And I'm glad she's taking such good care of the kids. . . DORIS KARATOPRAK <dkaratoprak@roge rs.com> To Sent by: LBD <lbdcaregivers > LBDcaregivers@yah cc oogroups.com Subject mom's move 02/11/2008 03:24 PM Please respond to LBDcaregivers@yah oogroups.com Hi Everyone, Just an update on my mom. I don't post too often but wanted to share an interesting experience re hallucinations. Last Wednesday during a snow storm my sister called my mom and discovered that at that moment my mom was dressed in her coat and boots ready to go outside to help the 'kids' that she has to look after. For the past few weeks it has been all sorts of things about the kids that she has to look after. We have tried to deflect and divert but it has not gone away. So I called our CCAC which is the agency which assesses and helps find placements for people. When I told the case worker about the four episodes since Thanksgiving of mom having the intention of leaving the apartment to help the kids or to find someone else (with three cans of ginger ale and some bread), and about all of the confusion and behaviours that have been evident since last fall she said that mom should be put on the crisis list for placement. We do have her name in at three nursing homes. She also gave me a number to call for emergency shelter for seniors in this situation as she felt mom should be under 24 hour care. Well we were able to get a respite place which is quite nice and she has settled in with some expected behaviours and agitation. What I wanted to share is that the 'kids' came with us. When my husband put a nail in the wall to hang her key on, her comment was " oh that's good, it's high enough so that the kids can't reach it " . She has also mentioned them a few times. This morning she told me that 'they left the kids here, but I don't mind that'. So it looks like hallucinations or delusions follow us no matter where we go. She is aware that there is a move of some kind, but is still acting for the caregiver from the other place. I tell her that is on holiday. Well that's where we are now. Just waiting for the next move to her hopefully permanent placement. Take care everyone. Doris Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Living independently with much support until now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Dear Doris, Hi and good to hear from you - from me, too. I know lots of us have missed you, so it is great to see your name and get your update. How wonderful you could get this assistance for your mom, and that she is on waiting lists for a permanent place. So sorry to hear that the kids moved, too - my mom has these visitors also. Sometimes the hallucinations are much worse - very scary and the cause of great distress. And yes, even the mild ones create work and concern for all of us caregivers. Take good care - whether we hear from you or not, you're always in our hearts. Lin Sharon Murray wrote: hi doris, sharon here, long time no chat!!!!! it is very common for our lo's to have hallucinations, and not scary ones for most of them, animals, children, things that seem to calm them, unfortuantely my dad had horrible hallucinations but he was in the military during the cold war and he just knew every time i left and went to the store that the cia or kgb was kidnapping me to get to him, i wouldnt worrry as long the kids aren't upsetting her. hugs. sharon DORIS KARATOPRAK wrote: Hi Everyone, Just an update on my mom. I don't post too often but wanted to share an interesting experience re hallucinations. Last Wednesday during a snow storm my sister called my mom and discovered that at that moment my mom was dressed in her coat and boots ready to go outside to help the 'kids' that she has to look after. For the past few weeks it has been all sorts of things about the kids that she has to look after. We have tried to deflect and divert but it has not gone away. So I called our CCAC which is the agency which assesses and helps find placements for people. When I told the case worker about the four episodes since Thanksgiving of mom having the intention of leaving the apartment to help the kids or to find someone else (with three cans of ginger ale and some bread), and about all of the confusion and behaviours that have been evident since last fall she said that mom should be put on the crisis list for placement. We do have her name in at three nursing homes. She also gave me a number to call for emergency shelter for seniors in this situation as she felt mom should be under 24 hour care. Well we were able to get a respite place which is quite nice and she has settled in with some expected behaviours and agitation. What I wanted to share is that the 'kids' came with us. When my husband put a nail in the wall to hang her key on, her comment was " oh that's good, it's high enough so that the kids can't reach it " . She has also mentioned them a few times. This morning she told me that 'they left the kids here, but I don't mind that'. So it looks like hallucinations or delusions follow us no matter where we go. She is aware that there is a move of some kind, but is still acting for the caregiver from the other place. I tell her that is on holiday. Well that's where we are now. Just waiting for the next move to her hopefully permanent placement. Take care everyone. Doris Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Living independently with much support until now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Thanks Lin and Norma. Doris Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Living independently with much support until now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) Re: mom's move Dear Doris, Hi and good to hear from you - from me, too. I know lots of us have missed you, so it is great to see your name and get your update. How wonderful you could get this assistance for your mom, and that she is on waiting lists for a permanent place. So sorry to hear that the kids moved, too - my mom has these visitors also. Sometimes the hallucinations are much worse - very scary and the cause of great distress. And yes, even the mild ones create work and concern for all of us caregivers. Take good care - whether we hear from you or not, you're always in our hearts. Lin Sharon Murray <ladyandhertramp@ yahoo.com> wrote: hi doris, sharon here, long time no chat!!!!! it is very common for our lo's to have hallucinations, and not scary ones for most of them, animals, children, things that seem to calm them, unfortuantely my dad had horrible hallucinations but he was in the military during the cold war and he just knew every time i left and went to the store that the cia or kgb was kidnapping me to get to him, i wouldnt worrry as long the kids aren't upsetting her. hugs. sharon DORIS KARATOPRAK wrote: Hi Everyone, Just an update on my mom. I don't post too often but wanted to share an interesting experience re hallucinations. Last Wednesday during a snow storm my sister called my mom and discovered that at that moment my mom was dressed in her coat and boots ready to go outside to help the 'kids' that she has to look after. For the past few weeks it has been all sorts of things about the kids that she has to look after. We have tried to deflect and divert but it has not gone away. So I called our CCAC which is the agency which assesses and helps find placements for people. When I told the case worker about the four episodes since Thanksgiving of mom having the intention of leaving the apartment to help the kids or to find someone else (with three cans of ginger ale and some bread), and about all of the confusion and behaviours that have been evident since last fall she said that mom should be put on the crisis list for placement. We do have her name in at three nursing homes. She also gave me a number to call for emergency shelter for seniors in this situation as she felt mom should be under 24 hour care. Well we were able to get a respite place which is quite nice and she has settled in with some expected behaviours and agitation. What I wanted to share is that the 'kids' came with us. When my husband put a nail in the wall to hang her key on, her comment was " oh that's good, it's high enough so that the kids can't reach it " . She has also mentioned them a few times. This morning she told me that 'they left the kids here, but I don't mind that'. So it looks like hallucinations or delusions follow us no matter where we go. She is aware that there is a move of some kind, but is still acting for the caregiver from the other place. I tell her that is on holiday. Well that's where we are now. Just waiting for the next move to her hopefully permanent placement. Take care everyone. Doris Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Living independently with much support until now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) ------------ --------- --------- --- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 Thanks Sharon. Good to have you back. Doris Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Living independently with much support until now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) Re: mom's move hi doris, sharon here, long time no chat!!!!! it is very common for our lo's to have hallucinations, and not scary ones for most of them, animals, children, things that seem to calm them, unfortuantely my dad had horrible hallucinations but he was in the military during the cold war and he just knew every time i left and went to the store that the cia or kgb was kidnapping me to get to him, i wouldnt worrry as long the kids aren't upsetting her. hugs. sharon DORIS KARATOPRAK <dkaratoprak@ rogers.com> wrote: Hi Everyone, Just an update on my mom. I don't post too often but wanted to share an interesting experience re hallucinations. Last Wednesday during a snow storm my sister called my mom and discovered that at that moment my mom was dressed in her coat and boots ready to go outside to help the 'kids' that she has to look after. For the past few weeks it has been all sorts of things about the kids that she has to look after. We have tried to deflect and divert but it has not gone away. So I called our CCAC which is the agency which assesses and helps find placements for people. When I told the case worker about the four episodes since Thanksgiving of mom having the intention of leaving the apartment to help the kids or to find someone else (with three cans of ginger ale and some bread), and about all of the confusion and behaviours that have been evident since last fall she said that mom should be put on the crisis list for placement. We do have her name in at three nursing homes. She also gave me a number to call for emergency shelter for seniors in this situation as she felt mom should be under 24 hour care. Well we were able to get a respite place which is quite nice and she has settled in with some expected behaviours and agitation. What I wanted to share is that the 'kids' came with us. When my husband put a nail in the wall to hang her key on, her comment was " oh that's good, it's high enough so that the kids can't reach it " . She has also mentioned them a few times. This morning she told me that 'they left the kids here, but I don't mind that'. So it looks like hallucinations or delusions follow us no matter where we go. She is aware that there is a move of some kind, but is still acting for the caregiver from the other place. I tell her that is on holiday. Well that's where we are now. Just waiting for the next move to her hopefully permanent placement. Take care everyone. Doris Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Living independently with much support until now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) ------------ --------- --------- --- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2008 Report Share Posted February 12, 2008 Doris, Good to hear your Mom has temp placement. It is good to know you won't have to worry about her going " out. " Hope you find a placement soon. To many moves made Mom a bit nervous. Thanks for the update. Hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. mom's move Hi Everyone, Just an update on my mom. I don't post too often but wanted to share an interesting experience re hallucinations. Last Wednesday during a snow storm my sister called my mom and discovered that at that moment my mom was dressed in her coat and boots ready to go outside to help the 'kids' that she has to look after. For the past few weeks it has been all sorts of things about the kids that she has to look after. We have tried to deflect and divert but it has not gone away. So I called our CCAC which is the agency which assesses and helps find placements for people. When I told the case worker about the four episodes since Thanksgiving of mom having the intention of leaving the apartment to help the kids or to find someone else (with three cans of ginger ale and some bread), and about all of the confusion and behaviours that have been evident since last fall she said that mom should be put on the crisis list for placement. We do have her name in at three nursing homes. She also gave me a number to call for emergency shelter for seniors in this situation as she felt mom should be under 24 hour care. Well we were able to get a respite place which is quite nice and she has settled in with some expected behaviours and agitation. What I wanted to share is that the 'kids' came with us. When my husband put a nail in the wall to hang her key on, her comment was " oh that's good, it's high enough so that the kids can't reach it " . She has also mentioned them a few times. This morning she told me that 'they left the kids here, but I don't mind that'. So it looks like hallucinations or delusions follow us no matter where we go. She is aware that there is a move of some kind, but is still acting for the caregiver from the other place. I tell her that is on holiday. Well that's where we are now. Just waiting for the next move to her hopefully permanent placement. Take care everyone. Doris Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Living independently with much support until now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2008 Report Share Posted February 12, 2008 HI Doris, I do hope that your mom is happy in her permanent placement. It does hurt to put them in care but sometimes, especially for the sake of their own safety, its the best thing to happen. Please let us know how it goes. Courage mom's move Hi Everyone, Just an update on my mom. I don't post too often but wanted to share an interesting experience re hallucinations. Last Wednesday during a snow storm my sister called my mom and discovered that at that moment my mom was dressed in her coat and boots ready to go outside to help the 'kids' that she has to look after. For the past few weeks it has been all sorts of things about the kids that she has to look after. We have tried to deflect and divert but it has not gone away. So I called our CCAC which is the agency which assesses and helps find placements for people. When I told the case worker about the four episodes since Thanksgiving of mom having the intention of leaving the apartment to help the kids or to find someone else (with three cans of ginger ale and some bread), and about all of the confusion and behaviours that have been evident since last fall she said that mom should be put on the crisis list for placement. We do have her name in at three nursing homes. She also gave me a number to call for emergency shelter for seniors in this situation as she felt mom should be under 24 hour care. Well we were able to get a respite place which is quite nice and she has settled in with some expected behaviours and agitation. What I wanted to share is that the 'kids' came with us. When my husband put a nail in the wall to hang her key on, her comment was " oh that's good, it's high enough so that the kids can't reach it " . She has also mentioned them a few times. This morning she told me that 'they left the kids here, but I don't mind that'. So it looks like hallucinations or delusions follow us no matter where we go. She is aware that there is a move of some kind, but is still acting for the caregiver from the other place. I tell her that is on holiday. Well that's where we are now. Just waiting for the next move to her hopefully permanent placement. Take care everyone. Doris Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Living independently with much support until now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2008 Report Share Posted February 12, 2008 Thanks Courage. I did leave a message today about the next step. Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Moving to Long Term Care facility on Feb. 13, 2008. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) mom's move Hi Everyone, Just an update on my mom. I don't post too often but wanted to share an interesting experience re hallucinations. Last Wednesday during a snow storm my sister called my mom and discovered that at that moment my mom was dressed in her coat and boots ready to go outside to help the 'kids' that she has to look after. For the past few weeks it has been all sorts of things about the kids that she has to look after. We have tried to deflect and divert but it has not gone away. So I called our CCAC which is the agency which assesses and helps find placements for people. When I told the case worker about the four episodes since Thanksgiving of mom having the intention of leaving the apartment to help the kids or to find someone else (with three cans of ginger ale and some bread), and about all of the confusion and behaviours that have been evident since last fall she said that mom should be put on the crisis list for placement. We do have her name in at three nursing homes. She also gave me a number to call for emergency shelter for seniors in this situation as she felt mom should be under 24 hour care. Well we were able to get a respite place which is quite nice and she has settled in with some expected behaviours and agitation. What I wanted to share is that the 'kids' came with us. When my husband put a nail in the wall to hang her key on, her comment was " oh that's good, it's high enough so that the kids can't reach it " . She has also mentioned them a few times. This morning she told me that 'they left the kids here, but I don't mind that'. So it looks like hallucinations or delusions follow us no matter where we go. She is aware that there is a move of some kind, but is still acting for the caregiver from the other place. I tell her that is on holiday. Well that's where we are now. Just waiting for the next move to her hopefully permanent placement. Take care everyone. Doris Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Living independently with much support until now. On waiting list for NH. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) Quote Link to comment Share on other sites More sharing options...
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