Re: OT: IVIG treatment - Allie

[Guest guest]

Hi JIm ,

Do you have a way to contact his friend and ask her if she would accept to give me th ename and tel of her Dcotor please ?

THank you Jim ,

Marie

To: Lyme and Rife Group Jim! <Lyme_and_Rife > Sent: Tuesday, September 13, 2011 5:39 PMSubject: OT: IVIG treatment - Allie

Hi Allie,

I just came accross this article written by my friend Jenna , talking about her

Lyme treatment journey... She mentions she received IVIG infusions with good

success... Since I know Jenna to be an honest person, I trust what she wrote here.

http://www.lymediseaseresource.com/Jennas_Treatment.html

>>>My Lyme Neurologist has diagnosed my life-long illness as “Post-Lyme Auto-Immune Syndrome with severe immune system deficiencies.†This was my treatment plan as of fall 2009; however, as of October (19)2010, I began IVIG infusions every 3 weeks for a 3 month trial) after 9 months of diagnostic testing which proved my significantly deficient immune system, and severely depleted IVIG. I was taken off all antibiotics in preparation for this powerful treatment, and continued with the list of supplements and prescription drugs below.

I was very surprised to experience such a dramatic herx after my first infusion. This makes sense but I wasn't thinking about herxing...(DUH!) The side effect of headaches blew rapidly into migraines (which for me are still preferable to the other symptoms of neuro Lyme.)

I thought to myself, "If this is the path out of hell, I will gladly suffer through any number of migraines." However, it appears that a massive amount of hydration before during and after will take care of all but 2 or 3 days of severe migraines and the intensity subsides slightly after each infusion.

After 3 months, my recovery was remarkable! Of all the protocols I have tried, nothing has come close to giving me actually MORE energy than I had before my collapse, I was able to eat dinner in a restaurant with 2 of my children, my 18 month grandchild and husband...the first time out in over 4 years! Without earplugs or even struggles to "get through"! I wasn't a ghost watching in pain from afar, I was having FUN!!

New tests show my immune system is improving. I am approved for six more months of infusions before we re-evaluate. I hate to get my hopes up too high because I am far from symptom free, but even with the migrains and herxing I feel better than I have in years and years!!<<<<

Take care,

Jim