Re: anyone recovered their child from mucosal damage from miralax

[Guest guest]

please read the files section, there's lots of info...........welcome! I would say those tests are right on.........we were told a similar diagnosis, pancreas, stomach, gallbladder not working properly. There's a fda adverse reaction I found with a woman stating she had her gallbladder removed after ingesting PEG. I have a feeling it did a number on the internal organs as well.............jeanie To: miralax Sent: Sat, January 21, 2012 2:42:30 PMSubject: anyone recovered their child from mucosal damage from miralax

Hi,

I'm new here. I've read a little bit and have a lot more reading to do - a lot of good info! My son, now 14, has struggled with food intolerances and constipation since he was small. The constipation wasn't severe until he was about 11 and started having rectal bleeding. with bowel movements. I had not been paying much attention to his bowel habits at this point in time since he was 11 and seemed OK. Our ped sent us to GI specialist who diagnosed constipation and put him on miralax, senna, and a few enemas. He was on this protocol for about 4-5 months. His stools were water during this time, and I finally followed my gut that this was completely the wrong approach to his constipation and quit everything the GI had prescribed. His stools did not return to formed stools for months, and I am not sure that they have ever returned to a consistently formed stool. (He doesn't like discussing this at his age. He says they are formed at this point.) I

felt like his digestion had been severely compromised from the miralax, but that it was improving and would likely heal over time. His GI system has always been sensitive because of the food intolerances, and I think in his case the miralax was the wrong approach.

However, we recently had the GI Effects testing done through Metrametrix, and had some results showing maldigestion of fats and low levels of pancreatic enzymes. Since I don't have previous tests to compare to I can only speculate, but I feel like his GI mucosa was damaged by the miralax (and wasn't in good shape to begin with because of food intolerances), and that is what is causing the maldigestion and low enzyme numbers.

SO - I will be talking to the doctor who ordered the tests this coming week, as well as scheduling an appointment with a naturopath familiar with Metametrix tests, but am wondering if anybody else has encountered gut mucosal damage from the miralax and if you were able to treat and heal the damage? If so, what did you do? I've started my son on glutamine and slippery elm, increased his probiotics, cut out all gluten, and added digestive enzymes to his protocol. He is also taking colostrum, cod liver oil, zinc, a multi, and B12. Any other suggestions and/or comments would be welcome.

[Guest guest]

Thanks, Jeanie. Have you or your child recovered (whoever was damaged)? I just

had a look at the files section, and didn't find what I'm looking for. What I am

hoping to find are success stories of people healing their GI tracts (or their

kids' guts) after the damage from Miralax. I'm especially interested in

improvements in pancreatic function, but that might be like asking to find a

needle in the haystack because I suspect most people have not had their

pancreatic function checked. So, if anybody has recovered from malabsorption

issues, that is what I'm looking for. I would be happy to hear of any

improvements with diet, supplements, or just improvement over time, or anything

else. Thanks!

>

> please read the files section, there's lots of info...........welcome! I would

> say those tests are right on.........we were told a similar diagnosis,

pancreas,

> stomach, gallbladder not working properly. There's a fda adverse reaction I

> found with a woman stating she had her gallbladder removed after ingesting

PEG.

> I have a feeling it did a number on the internal organs as well.............

>

> jeanie

>

>

>

>

>

> ________________________________

>

> To: miralax

> Sent: Sat, January 21, 2012 2:42:30 PM

> Subject: anyone recovered their child from mucosal damage from

miralax

>

>

> Hi,

>

> I'm new here. I've read a little bit and have a lot more reading to do - a

lot

> of good info! My son, now 14, has struggled with food intolerances and

> constipation since he was small. The constipation wasn't severe until he was

> about 11 and started having rectal bleeding. with bowel movements. I had not

> been paying much attention to his bowel habits at this point in time since he

> was 11 and seemed OK. Our ped sent us to GI specialist who diagnosed

> constipation and put him on miralax, senna, and a few enemas. He was on this

> protocol for about 4-5 months. His stools were water during this time, and I

> finally followed my gut that this was completely the wrong approach to his

> constipation and quit everything the GI had prescribed. His stools did not

> return to formed stools for months, and I am not sure that they have ever

> returned to a consistently formed stool. (He doesn't like discussing this at

his

> age. He says they are formed at this point.) I felt like his digestion had

been

> severely compromised from the miralax, but that it was improving and would

> likely heal over time. His GI system has always been sensitive because of the

> food intolerances, and I think in his case the miralax was the wrong approach.

>

>

> However, we recently had the GI Effects testing done through Metrametrix, and

> had some results showing maldigestion of fats and low levels of pancreatic

> enzymes. Since I don't have previous tests to compare to I can only

speculate,

> but I feel like his GI mucosa was damaged by the miralax (and wasn't in good

> shape to begin with because of food intolerances), and that is what is causing

> the maldigestion and low enzyme numbers.

>

>

> SO - I will be talking to the doctor who ordered the tests this coming week,

as

> well as scheduling an appointment with a naturopath familiar with Metametrix

> tests, but am wondering if anybody else has encountered gut mucosal damage

from

> the miralax and if you were able to treat and heal the damage? If so, what

did

> you do? I've started my son on glutamine and slippery elm, increased his

> probiotics, cut out all gluten, and added digestive enzymes to his protocol.

He

> is also taking colostrum, cod liver oil, zinc, a multi, and B12. Any other

> suggestions and/or comments would be welcome.

>

[Guest guest]

I think you are on the right track -- but you may be doing so much at once that

it's hard to see what's having an effect - either + or -. At 11 you are surely

going to get some resistance to a strict diet, so please start informing him

that he's got a 3-4 day delay for some foods so he's got to start being very

aware of how different foods 'sit' with him. For my son (constipated from DTaP

shot at 8 weeks to roughhly 4 years old) it took about 2 years after Miralax

before he was basically healed. The next 2 years were less taxing -- diet was

98% good which helped him (age 7 -8 by then) to start recognizing his own

reaction to foods. We avoid gluten and dairy and supplement with enzymes

(Kirkman) when dining out. Our story is a little easier than most people's sine

my son seems to have food intolerances - not allergies nor celiac. HTH

> >

> > please read the files section, there's lots of info...........welcome! I

would

> > say those tests are right on.........we were told a similar diagnosis,

pancreas,

> > stomach, gallbladder not working properly. There's a fda adverse reaction I

> > found with a woman stating she had her gallbladder removed after ingesting

PEG.

> > I have a feeling it did a number on the internal organs as well.............

> >

> > jeanie

> >

> >

> >

> >

> >

> > ________________________________

> > From: nwmamaof2 <nwmamaof2@>

> > To: miralax

> > Sent: Sat, January 21, 2012 2:42:30 PM

> > Subject: anyone recovered their child from mucosal damage from

miralax

> >

> >

> > Hi,

> >

> > I'm new here. I've read a little bit and have a lot more reading to do - a

lot

> > of good info! My son, now 14, has struggled with food intolerances and

> > constipation since he was small. The constipation wasn't severe until he

was

> > about 11 and started having rectal bleeding. with bowel movements. I had

not

> > been paying much attention to his bowel habits at this point in time since

he

> > was 11 and seemed OK. Our ped sent us to GI specialist who diagnosed

> > constipation and put him on miralax, senna, and a few enemas. He was on

this

> > protocol for about 4-5 months. His stools were water during this time, and

I

> > finally followed my gut that this was completely the wrong approach to his

> > constipation and quit everything the GI had prescribed. His stools did not

> > return to formed stools for months, and I am not sure that they have ever

> > returned to a consistently formed stool. (He doesn't like discussing this at

his

> > age. He says they are formed at this point.) I felt like his digestion had

been

> > severely compromised from the miralax, but that it was improving and would

> > likely heal over time. His GI system has always been sensitive because of

the

> > food intolerances, and I think in his case the miralax was the wrong

approach.

> >

> >

> > However, we recently had the GI Effects testing done through Metrametrix,

and

> > had some results showing maldigestion of fats and low levels of pancreatic

> > enzymes. Since I don't have previous tests to compare to I can only

speculate,

> > but I feel like his GI mucosa was damaged by the miralax (and wasn't in good

> > shape to begin with because of food intolerances), and that is what is

causing

> > the maldigestion and low enzyme numbers.

> >

> >

> > SO - I will be talking to the doctor who ordered the tests this coming week,

as

> > well as scheduling an appointment with a naturopath familiar with Metametrix

> > tests, but am wondering if anybody else has encountered gut mucosal damage

from

> > the miralax and if you were able to treat and heal the damage? If so, what

did

> > you do? I've started my son on glutamine and slippery elm, increased his

> > probiotics, cut out all gluten, and added digestive enzymes to his protocol.

He

> > is also taking colostrum, cod liver oil, zinc, a multi, and B12. Any other

> > suggestions and/or comments would be welcome.

> >

>