Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 P.S. I was only there for the day...like a Dr. visit....but was with Dr. for about 2 hours. Ginger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 J, My transplant Dr. did not tell me what kinds of tests they will do but he said it's a 3 day hosp. stay. I go see him again March 2. Good Luck to you, I'll be praying for you. Peggy on 2/5/06 10:02 PM, janne5303 at joycedalton29@... wrote: Because my fibrosis was caused by autoimmune disease, it could be controlled somewhat by immune suppressants. As long as it was stable, there was no conversation about transplant. Now that it is progressing, I am being sent for an evaluation. What does it consist of and how many days does it take? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 we go back to the Mayo on the 13th - during that time, we'll talk w/the transplant people - do you think that is the same as an evaluation, it was my understanding that it'll just be some preliminary stuff for now???? Yes, I do...they will already have your medical records from the referring Dr. So I am sure they will have read over everything by the time of your appointment on the 13th. Usually it is preliminary stuff...the dos and don'ts...possabilities,and the not possible. They will probably tell you what they need for you to do in order for you to be a transplant candidate. Good luck and I will remember you in prayers...especially on the 13th. kiss kiss ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 we go back to the Mayo on the 13th - during that time, we'll talk w/the transplant people - do you think that is the same as an evaluation, it was my understanding that it'll just be some preliminary stuff for now???? Kim Re: Transplant evaluation My evaluation was in October in Dallas. I took with me, my most recent x~rays, PFT results, blood work results, and medication I was on. Te Dr I saw had aleady read my history and consulted with my Dr. They weighed me, listened to my chest and explained all to me. They said that should a donor become available that would accommodate 2 transplant recipients. He said (1) He'd like me to loose 60lbs more so as to fall into their criteria measure, (2) with the help of my Dr, try to get into one of the programs where they are testing the gamma-feron, and (3) try the NAC. They thoroughly explained everything...were very patient in answering any questions I had. It was sort of a joke to me in a sense, loose 60lbs more on PREDNISONE??? Let's get real. The programs have all the volunteers they need as they are in the final stages of the testing. And to me, the NAC seemed way to easy to be a cure. Thats how it went with me...in reality,I felt they were kindly saying I was not a good transplant candidate. The procedure may be different elewhere. Hope abounds forever. Jesus is the Great Physician. YGingerY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 My transplant evaluation consisted of 1 weeks worth of tests --it came to almost $25,000 worth of tests!!!! Jan --------- Re: Transplant evaluation My evaluation was in October in Dallas. I took with me, my most recent x~rays, PFT results, blood work results, and medication I was on. Te Dr I saw had aleady read my history and consulted with my Dr. They weighed me, listened to my chest and explained all to me. They said that should a donor become available that would accommodate 2 transplant recipients. He said (1) He'd like me to loose 60lbs more so as to fall into their criteria measure, (2) with the help of my Dr, try to get into one of the programs where they are testing the gamma-feron, and (3) try the NAC. They thoroughly explained everything...were very patient in answering any questions I had. It was sort of a joke to me in a sense, loose 60lbs more on PREDNISONE??? Let's get real. The programs have all the volunteers they need as they are in the final stages of the testing. And to me, the NAC seemed way to easy to be a cure. Thats how it went with me...in reality,I felt they were kindly saying I was not a good transplant candidate. The procedure may be different elewhere. Hope abounds forever. Jesus is the Great Physician. YGingerY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 My transplant evaluation consisted of 1 weeks worth of tests --it came to almost $25,000 worth of tests!!!! Jan --------- Re: Transplant evaluation My evaluation was in October in Dallas. I took with me, my most recent x~rays, PFT results, blood work results, and medication I was on. Te Dr I saw had aleady read my history and consulted with my Dr. They weighed me, listened to my chest and explained all to me. They said that should a donor become available that would accommodate 2 transplant recipients. He said (1) He'd like me to loose 60lbs more so as to fall into their criteria measure, (2) with the help of my Dr, try to get into one of the programs where they are testing the gamma-feron, and (3) try the NAC. They thoroughly explained everything...were very patient in answering any questions I had. It was sort of a joke to me in a sense, loose 60lbs more on PREDNISONE??? Let's get real. The programs have all the volunteers they need as they are in the final stages of the testing. And to me, the NAC seemed way to easy to be a cure. Thats how it went with me...in reality,I felt they were kindly saying I was not a good transplant candidate. The procedure may be different elewhere. Hope abounds forever. Jesus is the Great Physician. YGingerY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 thanks for the thoughts & prayers. Kim Re: Transplant evaluation we go back to the Mayo on the 13th - during that time, we'll talk w/the transplant people - do you think that is the same as an evaluation, it was my understanding that it'll just be some preliminary stuff for now???? Yes, I do...they will already have your medical records from the referring Dr. So I am sure they will have read over everything by the time of your appointment on the 13th. Usually it is preliminary stuff...the dos and don'ts...possabilities,and the not possible. They will probably tell you what they need for you to do in order for you to be a transplant candidate. Good luck and I will remember you in prayers...especially on the 13th. kiss kiss ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 I know what you mean on the costs - we rec'd some bills & it's crazy - but what do you do - thankfully we have insurance. Kim Re: Transplant evaluation My evaluation was in October in Dallas. I took with me, my most recent x~rays, PFT results, blood work results, and medication I was on. Te Dr I saw had aleady read my history and consulted with my Dr. They weighed me, listened to my chest and explained all to me. They said that should a donor become available that would accommodate 2 transplant recipients. He said (1) He'd like me to loose 60lbs more so as to fall into their criteria measure, (2) with the help of my Dr, try to get into one of the programs where they are testing the gamma-feron, and (3) try the NAC. They thoroughly explained everything...were very patient in answering any questions I had. It was sort of a joke to me in a sense, loose 60lbs more on PREDNISONE??? Let's get real. The programs have all the volunteers they need as they are in the final stages of the testing. And to me, the NAC seemed way to easy to be a cure. Thats how it went with me...in reality,I felt they were kindly saying I was not a good transplant candidate. The procedure may be different elewhere. Hope abounds forever. Jesus is the Great Physician. YGingerY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Hello, to those who are involved with transplant, How long did it take you to get scheduled for the evaluation. It has been weeks since the process started. I have gotten new papers a couple of times to release information. Then a call saying I was "in the computer." I just want to get it over with so that I will know where I am. It is so dark and stormy here in the Midwest. Constant rain for days. Makes me blue. I need some sunshine!! And daisies would be nice. Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Hi Joyce, Sending sunshine, flowers and prayers from Florida. Hope this finds you feeling well. As far as the evaluation goes I have met with my transplant Dr. twice. I am to go to a RA. Dr on the 17th. I went on the second but could hardly walk so no PT that day. My Dr. seems to think I have fibromialgia.. Oh my lord I hope and pray not. I had that years ago, I don't think I could stand that news. Anyhow he said once I loose about 50 lbs. and prove I can walk well and am strong enough to exercise my new lung I'll go into the hosp. for a battery of tests. I know one thing I'm too sick right now to even think of it. If your getting close God Speed. Peggy on 3/13/06 11:12 AM, janne5303 at joycedalton29@... wrote: Hello, to those who are involved with transplant, How long did it take you to get scheduled for the evaluation. It has been weeks since the process started. I have gotten new papers a couple of times to release information. Then a call saying I was " in the computer. " I just want to get it over with so that I will know where I am. It is so dark and stormy here in the Midwest. Constant rain for days. Makes me blue. I need some sunshine!! And daisies would be nice. Joyce Quote Link to comment Share on other sites More sharing options...
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