thanx :)

[Guest guest]

Hi guys!

Thanx for all your caring, supportive notes. Seems everyone had the same

idea (afterall, great minds think alike, right?) -- however it's easier said

than done (darn). Last year, when Nina first had this problem (which led to

getting her tonsils & adenoids out) I had taken her into the ER & she was

admitted (didn't have O2 or the O2 sat monitor at home then). They tried to

send her home without having done anything to wait until they could do the

" T & A " , but I refused to take her home at that point (she was alot worse than

she is now and my hubby was out of the country and 2 days later she ended up

in PICU because they had to " bag " her a couple times every night to get her

to breathe).

Anyway, they asked if I would take her home if I had nursing at night & I

said yes, I would. BUT they couldn't GET a nurse!! There is a high demand

for home nurses and not very many out there. So, she stayed (they tried a

couple other things to try helping like CPAP, but nothing helped (she held

her breath against the CPAP!!!)).

Now, I do get some respite, but the people I have to draw from either have

other jobs as well (do respite on the side), or have other families they do

respite for, or have kids themselves -- so getting someone for the night is

not really a possibility. Nina's home visit nurse did suggest I lay her on

her tummy and for the last 2 nights it's helped (she sounds terrible, but her

O2 sats are acceptable most of the time). Her monitor is having fewer

" false " alarms from movement cuz she can't move her hand quite as much, but

she still alarms a couple times during the night needing O2.

It's times like this that I wish we were still in CA where the rest of our

family & friends are -- and times like this I wish my mom was still alive,

and that my mother-in-law were still alive too. <SIGH>

Well, thanx again for your understanding and caring -- it means alot!

TTYL

Kris

Nina's mom (still trying to catch up on sleep!)

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