Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Vitt, I always cough EVERY morning until the phlegm is removed. This can last anywhere from 1-2 hours. If I had a good night, I cough less. If I had a bad night, I cough more. I always cough AFTER I eat...regardless of what I eat. This is more annoying to me than the morning cough! In the beginning, I would have coughing spasms that were painful and prevented sleep. I found that the Lortab (for pain) was more useful for the coughing. I checked with the pharmacist who explained that Lortab acts on the part of the brain that impacts spasms! I was lucky to have a pulmonologist that allowed me to take Lortab for the coughing spasms even after I did not need it for pain. I needed it for the coughing spasms for about 18 mos as the spasms gradually subsided. I still have Lortab on hand for those few occasions when coughing spasm will come in the middle of the night. maryvelwhh472003 wrote: Hi, I would very much like anyones input and feelings about daily coughing both dry and loose. This has been an on going thing for over 18 months in as much my prognosis of having PF has only been two months. I have started NAC and found that it does break up the phlegm and feels much better than what it was 'dry cough'.There are some things that trigger coughing episodes like bending at the waist for some reason and at night cant lay on either side, but that hardly matters, the cough comes and goes even then so to say I get a decent night sleep would be a fallicy. I feel if I can get over the coughing thats half the battle not forgetting te shortnss of breath, (in any activity) or the pain in my lower ribs. Am starting Pulmonary Rehab in a week so we'll see how that will effect the the situation at hand. Once I left the pulmonologist office last week and said Ill see you in six months, didnt really leave me much faith in him as though he's saying you're on your own, which in reality is no lie. I am also thinking about seeking other means of healing moving from the western methods and looking into chinese and natural healing.This has been suggested to me and am thinking about it seriously.Thanks for listening and your input is greatly appreciated.Vitt marymassung Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Vitt, As my disease progressed the coughing became worse and worse. I had lots of mucus. Some days I only have to bend like you said and it comes out. Yuk! The pulmonogist did another CT and found that I had Bronchiectasis, a rare disease. But, it is somewhat common to end stage pulmonary fibrosis. I have to do nebulizers, 4 meds each time, 4 times a day and it brings up the gunk. I also had been doing physiotherapy (clapping) until I had 3 broken ribs and the reflux became so bad. Now I am getting a Vest ($16,000 insurance is supposed to cover) which will bring the mucus up without postural drainage and physio. When you lie on your side and it causes you to cough it is because the fluid is draining out of your lung. Try the postural drainage. Link: http://connection.lww.com/Products/timby-fundamentals8e/documents/Ch36/jpg/36_004.jpg It makes the coughing productive and you need that stuff out of there. When it stays it gets infected, hence more inflamation and scar tissue. Six months is too long to go without seeing your doc. Call him with questions....it is free! The rehab therapists will help you with this and with physiotherapy. Take care of you Joyce >> Hi, I would very much like anyones input and feelings about daily > coughing both dry and loose. This has been an on going thing for over > 18 months in as much my prognosis of having PF has only been two > months. I have started NAC and found that it does break up the phlegm > and feels much better than what it was 'dry cough'.> There are some things that trigger coughing episodes like bending at > the waist for some reason and at night cant lay on either side, but > that hardly matters, the cough comes and goes even then so to say I > get a decent night sleep would be a fallicy. I feel if I can get over > the coughing thats half the battle not forgetting te shortnss of > breath, (in any activity) or the pain in my lower ribs. Am starting > Pulmonary Rehab in a week so we'll see how that will effect the the > situation at hand. Once I left the pulmonologist office last week and > said Ill see you in six months, didnt really leave me much faith in > him as though he's saying you're on your own, which in reality is no > lie. I am also thinking about seeking other means of healing moving > from the western methods and looking into chinese and natural healing.> This has been suggested to me and am thinking about it seriously.> Thanks for listening and your input is greatly appreciated.> > Vitt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Dear Vitt, Your post is well done and encouraged me to write about coughs, throat tickles, urge to throw up and so forth. These posts are very helpful and perhaps there is something out there that will help all of us, maybe......... I have been taking NAC (3X600 mg) for about three months now, maybe a bit longer, and generally feel it is helping to loosen up the stuff. I do sleep well every night, and find that sleep helps me handle this disease better. I do from time to time have a very annoying tickle or urge to cough and generally the coughs are productive. I find that losing my appetite, especially in the evening, is becoming very common made worse by the coughing. Control the cough, eat better? Seems like it. I do not have any pain when I cough which I suppose will change in the future. I was diagnosed in October 05 with this disease but have since lost track of time. We do live at 5500 feet but when I can get into Pasadena, Ca., I have problems at about 1600 feet elevation. I use a device called the Breather which is sold over the Internet. This device is suppose to strengthen the lungs and encourage better lung function and while I can do three or four hundred of these a day without any problems, it is sometimes hard to walk up the stairs so I am trying to understand the relationship between the device and PF. One would think that the Breather would help lung function but sure does not appear to be so. I am hoping that posts discussing coughing and what helps/doesn't help will continue. Sometimes I am so quiet, other times all hell breaks loose. BTW, my pulmonologist in Bakersfield says to me, , just let me know what you need etc. (because he knows that he has no fix for IPF). Take care, --- velwhh472003 wrote: > Hi, I would very much like anyones input and > feelings about daily > coughing both dry and loose. This has been an on > going thing for over > 18 months in as much my prognosis of having PF has > only been two > months. I have started NAC and found that it does > break up the phlegm > and feels much better than what it was 'dry cough'. > There are some things that trigger coughing episodes > like bending at > the waist for some reason and at night cant lay on > either side, but > that hardly matters, the cough comes and goes even > then so to say I > get a decent night sleep would be a fallicy. I feel > if I can get over > the coughing thats half the battle not forgetting > te shortnss of > breath, (in any activity) or the pain in my lower > ribs. Am starting > Pulmonary Rehab in a week so we'll see how that will > effect the the > situation at hand. Once I left the pulmonologist > office last week and > said Ill see you in six months, didnt really leave > me much faith in > him as though he's saying you're on your own, which > in reality is no > lie. I am also thinking about seeking other means > of healing moving > from the western methods and looking into chinese > and natural healing. > This has been suggested to me and am thinking about > it seriously. > Thanks for listening and your input is greatly > appreciated. > > Vitt > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 My cough was quite for a while but it has come back maybe due to family stress,cold weather [michigan] tired not sleeping through the night ? all I can say is yoga has taught me to breath from my chi lower ab. this I am trying to do all the time my coughs are dry and that jelly gunk doris ps. who mention a ride on a roadster? . some days I just want to soar and never look back of course my kids right along side of me. Robbins wrote: Dear Vitt, Your post is well done and encouraged me to writeabout coughs, throat tickles, urge to throw up and soforth. These posts are very helpful and perhaps thereis something out there that will help all of us,maybe.........I have been taking NAC (3X600 mg) for about threemonths now, maybe a bit longer, and generally feel itis helping to loosen up the stuff. I do sleep wellevery night, and find that sleep helps me handle thisdisease better. I do from time to time have a veryannoying tickle or urge to cough and generally thecoughs are productive. I find that losing myappetite, especially in the evening, is becoming verycommon made worse by the coughing. Control the cough,eat better? Seems like it. I do not have any pain when I cough which I supposewill change in the future. I was diagnosed in October05 with this disease but have since lost track oftime. We do live at 5500 feet but when I can get intoPasadena, Ca., I have problems at about 1600 feetelevation. I use a device called the Breather which is sold overthe Internet. This device is suppose to strengthenthe lungs and encourage better lung function and whileI can do three or four hundred of these a day withoutany problems, it is sometimes hard to walk up thestairs so I am trying to understand the relationshipbetween the device and PF. One would think that theBreather would help lung function but sure does notappear to be so. I am hoping that posts discussing coughing and whathelps/doesn't help will continue. Sometimes I am soquiet, other times all hell breaks loose. BTW, my pulmonologist in Bakersfield says to me, ,just let me know what you need etc. (because he knowsthat he has no fix for IPF). Take care, --- velwhh472003 wrote:> Hi, I would very much like anyones input and> feelings about daily > coughing both dry and loose. This has been an on> going thing for over > 18 months in as much my prognosis of having PF has> only been two > months. I have started NAC and found that it does> break up the phlegm > and feels much better than what it was 'dry cough'.> There are some things that trigger coughing episodes> like bending at > the waist for some reason and at night cant lay on> either side, but > that hardly matters, the cough comes and goes even> then so to say I > get a decent night sleep would be a fallicy. I feel> if I can get over > the coughing thats half the battle not forgetting> te shortnss of > breath, (in any activity) or the pain in my lower> ribs. Am starting > Pulmonary Rehab in a week so we'll see how that will> effect the the > situation at hand. Once I left the pulmonologist> office last week and > said Ill see you in six months, didnt really leave> me much faith in > him as though he's saying you're on your own, which> in reality is no > lie. I am also thinking about seeking other means> of healing moving > from the western methods and looking into chinese> and natural healing.> This has been suggested to me and am thinking about> it seriously.> Thanks for listening and your input is greatly> appreciated.> > Vitt > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 My husband too coughs a LOT--more at times than others. I had to do an " YES " when it was mentioned about certain activities bring some of the coughing on-like bending from the waist as I see this same exact thing with my husband. I also find he coughs when he needs to put his oxygen back on. Several months ago when he would start to cough, he could put the oxygen on and it would almost instantly stop. That's not the case today--he coughs with or without it at times--more in the morning and at night it seems but yet I don't go to work with him so not sure about that. The main thing I have noticed over the last 3 months or so with him, is the fact that walking seems to take a LOT out of him--much more than previously. He seems to be able to just " stand " at times and even stand and rake leaves with his oxygen on, but walking with the oxygen on seems hardest. He uses the oxygen at 4L now constantly but does occasionally turn the machine to " continuous " 4L when doing any activity like walking and that helps more than just getting oxygen when you breath. He has constant sinus problems and " stuffed nose " at night. Does anyone else have this problem and what seems to help? He uses saline nose spray a lot and it helps some but not nearly enough! Thanks for any advice! Judy > >Reply-To: Breathe-Support >To: Breathe-Support >Subject: Re: RE: Coughing >Date: Wed, 1 Mar 2006 18:30:58 -0800 (PST) > >My cough was quite for a while but it has come back maybe due to family >stress,cold weather [michigan] tired not sleeping through the night ? all I >can say is yoga has taught me to breath from my chi lower ab. this I am >trying to do all the time my coughs are dry and that jelly gunk doris ps. >who mention a ride on a roadster? . some days I just want to soar and >never look back of course my kids right along side of me. > > Robbins wrote: Dear Vitt, > >Your post is well done and encouraged me to write >about coughs, throat tickles, urge to throw up and so >forth. These posts are very helpful and perhaps there >is something out there that will help all of us, >maybe......... > >I have been taking NAC (3X600 mg) for about three >months now, maybe a bit longer, and generally feel it >is helping to loosen up the stuff. I do sleep well >every night, and find that sleep helps me handle this >disease better. I do from time to time have a very >annoying tickle or urge to cough and generally the >coughs are productive. I find that losing my >appetite, especially in the evening, is becoming very >common made worse by the coughing. Control the cough, >eat better? Seems like it. > >I do not have any pain when I cough which I suppose >will change in the future. I was diagnosed in October >05 with this disease but have since lost track of >time. We do live at 5500 feet but when I can get into >Pasadena, Ca., I have problems at about 1600 feet >elevation. > >I use a device called the Breather which is sold over >the Internet. This device is suppose to strengthen >the lungs and encourage better lung function and while >I can do three or four hundred of these a day without >any problems, it is sometimes hard to walk up the >stairs so I am trying to understand the relationship >between the device and PF. One would think that the >Breather would help lung function but sure does not >appear to be so. > >I am hoping that posts discussing coughing and what >helps/doesn't help will continue. Sometimes I am so >quiet, other times all hell breaks loose. > >BTW, my pulmonologist in Bakersfield says to me, , >just let me know what you need etc. (because he knows >that he has no fix for IPF). > >Take care, > > > > > >--- velwhh472003 wrote: > > > Hi, I would very much like anyones input and > > feelings about daily > > coughing both dry and loose. This has been an on > > going thing for over > > 18 months in as much my prognosis of having PF has > > only been two > > months. I have started NAC and found that it does > > break up the phlegm > > and feels much better than what it was 'dry cough'. > > There are some things that trigger coughing episodes > > like bending at > > the waist for some reason and at night cant lay on > > either side, but > > that hardly matters, the cough comes and goes even > > then so to say I > > get a decent night sleep would be a fallicy. I feel > > if I can get over > > the coughing thats half the battle not forgetting > > te shortnss of > > breath, (in any activity) or the pain in my lower > > ribs. Am starting > > Pulmonary Rehab in a week so we'll see how that will > > effect the the > > situation at hand. Once I left the pulmonologist > > office last week and > > said Ill see you in six months, didnt really leave > > me much faith in > > him as though he's saying you're on your own, which > > in reality is no > > lie. I am also thinking about seeking other means > > of healing moving > > from the western methods and looking into chinese > > and natural healing. > > This has been suggested to me and am thinking about > > it seriously. > > Thanks for listening and your input is greatly > > appreciated. > > > > Vitt > > > > > > > > > > > > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Hi Judy, You asked about sinus spray. Do you know about sinus irrigation. Here is one link. There are many. (Most wanting to sell something). You can make this easy recipe found here, get the sea salt at Walmart and use an ear or nose syringe. Just remember to boil it in between to sterilize. Link: http://images.google.com/imgres?imgurl=http://meds.queensu.ca/medicine/otolaryngology/edu/patedu/sinus_files/image002.jpg & imgrefurl=http://meds.queensu.ca/medicine/otolaryngology/edu/patedu/sinus.htm & h=200 & w=191 & sz=8 & tbnid=DNaV1Fd00IAd9M: & tbnh=99 & tbnw=94 & hl=en & start=43 & prev=/images%3Fq%3Dnasal%2Birrigation%26start%3D40%26svnum%3D10%26hl%3Den%26lr%3D%26ie%3DUTF-8%26sa%3DN When there is bacteria in the sinus it is 'easy access' to the lungs. My pulmonologist says that most people with lung disease have sinus infections, etc. Makes me wonder, which came first...? I am a big baby about this. My poor nose is so sore from oxygen, etc. I always use a water bottle on my concentrator and that keeps down the sinus problems somewhat. Try it and see if it helps. Or better yet, ask the doc. Hugs, Joyce > >> > > Hi, I would very much like anyones input and> > > feelings about daily> > > coughing both dry and loose. This has been an on> > > going thing for over> > > 18 months in as much my prognosis of having PF has> > > only been two> > > months. I have started NAC and found that it does> > > break up the phlegm> > > and feels much better than what it was 'dry cough'.> > > There are some things that trigger coughing episodes> > > like bending at> > > the waist for some reason and at night cant lay on> > > either side, but> > > that hardly matters, the cough comes and goes even> > > then so to say I> > > get a decent night sleep would be a fallicy. I feel> > > if I can get over> > > the coughing thats half the battle not forgetting> > > te shortnss of> > > breath, (in any activity) or the pain in my lower> > > ribs. Am starting> > > Pulmonary Rehab in a week so we'll see how that will> > > effect the the> > > situation at hand. Once I left the pulmonologist> > > office last week and> > > said Ill see you in six months, didnt really leave> > > me much faith in> > > him as though he's saying you're on your own, which> > > in reality is no> > > lie. I am also thinking about seeking other means> > > of healing moving> > > from the western methods and looking into chinese> > > and natural healing.> > > This has been suggested to me and am thinking about> > > it seriously.> > > Thanks for listening and your input is greatly> > > appreciated.> > >> > > Vitt> > >> > >> > >> > >> > >> > >> >> >> >__________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 The best thing for sore nose from oxygen is calledAyr Saline Gel. I cannot live without it. I told my lung doctor about it and she said whatever works. Two months later, she is Please tell me about it, what it does, how to apply and where to purchase itnalong with its price. Thank you.... ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 The best thing for sore nose from oxygen is called Ayr Saline Gel. I cannot live without it. I told my lung doctor about it and she said whatever works. Two months later, she is telling me about it. -- In Breathe-Support , " janne5303 " wrote: > > > Hi Judy, > > You asked about sinus spray. Do you know about sinus irrigation. Here > is one link. There are many. (Most wanting to sell something). You > can make this easy recipe found here, get the sea salt at Walmart and > use an ear or nose syringe. Just remember to boil it in between to > sterilize. Link: > > http://images.google.com/imgres? imgurl=http://med'>http://meds.queensu.ca/medicine/o\'>http://med'>http://meds.queensu.ca/medicine/o\ > tolaryngology/edu/patedu/sinus_files/image002.jpg & imgrefurl=http://med'>http://med s.\ > queensu.ca/medicine/otolaryngology/edu/patedu/sinus.htm & h=200 & w=191 & sz =8\ > & tbnid=DNaV1Fd00IAd9M: & tbnh=99 & tbnw=94 & hl=en & start=43 & prev=/images% 3Fq%3\ > Dnasal%2Birrigation%26start%3D40%26svnum%3D10%26hl%3Den%26lr%3D% 26ie%3DU\ > TF-8%26sa%3DN > <http://images.google.com/imgres? imgurl=http://med'>http://meds.queensu.ca/medicine/\ > otolaryngology/edu/patedu/sinus_files/image002.jpg & imgrefurl=http://me ds\ > .queensu.ca/medicine/otolaryngology/edu/patedu/sinus.htm & h=200 & w=191 & sz=\ > 8 & tbnid=DNaV1Fd00IAd9M: & tbnh=99 & tbnw=94 & hl=en & start=43 & prev=/images% 3Fq%\ > 3Dnasal%2Birrigation%26start%3D40%26svnum%3D10%26hl%3Den%26lr%3D% 26ie%3D\ > UTF-8%26sa%3DN> > > When there is bacteria in the sinus it is 'easy access' to the lungs. > My pulmonologist says that most people with lung disease have sinus > infections, etc. Makes me wonder, which came first...? > > I am a big baby about this. My poor nose is so sore from oxygen, etc. > I always use a water bottle on my concentrator and that keeps down the > sinus problems somewhat. > > Try it and see if it helps. Or better yet, ask the doc. > > Hugs, > > Joyce > > > > > > > > Hi, I would very much like anyones input and > > > > feelings about daily > > > > coughing both dry and loose. This has been an on > > > > going thing for over > > > > 18 months in as much my prognosis of having PF has > > > > only been two > > > > months. I have started NAC and found that it does > > > > break up the phlegm > > > > and feels much better than what it was 'dry cough'. > > > > There are some things that trigger coughing episodes > > > > like bending at > > > > the waist for some reason and at night cant lay on > > > > either side, but > > > > that hardly matters, the cough comes and goes even > > > > then so to say I > > > > get a decent night sleep would be a fallicy. I feel > > > > if I can get over > > > > the coughing thats half the battle not forgetting > > > > te shortnss of > > > > breath, (in any activity) or the pain in my lower > > > > ribs. Am starting > > > > Pulmonary Rehab in a week so we'll see how that will > > > > effect the the > > > > situation at hand. Once I left the pulmonologist > > > > office last week and > > > > said Ill see you in six months, didnt really leave > > > > me much faith in > > > > him as though he's saying you're on your own, which > > > > in reality is no > > > > lie. I am also thinking about seeking other means > > > > of healing moving > > > > from the western methods and looking into chinese > > > > and natural healing. > > > > This has been suggested to me and am thinking about > > > > it seriously. > > > > Thanks for listening and your input is greatly > > > > appreciated. > > > > > > > > Vitt > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >__________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 That was one messed up link!!!! It is a mixture of sea salt, soda and distilled water. (warm) There are many sites online. Just search them out. Sorry. > > >> > > > Hi, I would very much like anyones input and> > > > feelings about daily> > > > coughing both dry and loose. This has been an on> > > > going thing for over> > > > 18 months in as much my prognosis of having PF has> > > > only been two> > > > months. I have started NAC and found that it does> > > > break up the phlegm> > > > and feels much better than what it was 'dry cough'.> > > > There are some things that trigger coughing episodes> > > > like bending at> > > > the waist for some reason and at night cant lay on> > > > either side, but> > > > that hardly matters, the cough comes and goes even> > > > then so to say I> > > > get a decent night sleep would be a fallicy. I feel> > > > if I can get over> > > > the coughing thats half the battle not forgetting> > > > te shortnss of> > > > breath, (in any activity) or the pain in my lower> > > > ribs. Am starting> > > > Pulmonary Rehab in a week so we'll see how that will> > > > effect the the> > > > situation at hand. Once I left the pulmonologist> > > > office last week and> > > > said Ill see you in six months, didnt really leave> > > > me much faith in> > > > him as though he's saying you're on your own, which> > > > in reality is no> > > > lie. I am also thinking about seeking other means> > > > of healing moving> > > > from the western methods and looking into chinese> > > > and natural healing.> > > > This has been suggested to me and am thinking about> > > > it seriously.> > > > Thanks for listening and your input is greatly> > > > appreciated.> > > >> > > > Vitt> > > >> > > >> > > >> > > >> > > >> > > >> > >> > >> > >__________________________________________________> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 I use KY Jelly. Cheaper. Also when I get infection or sores, I use Neosporin cream....not the gel. I have used the Ayr Saline Gel and it is great. I have had so many occasions when someone tripped on my tubing and pulled my nose right off my face. Ears, too. Noses get sore!! I find myself saying, "Sorry"......as if it is my fault that I have to drag this lifeline around with me. Hugs, Joyce > > > >> > > > > Hi, I would very much like anyones input and> > > > > feelings about daily> > > > > coughing both dry and loose. This has been an on> > > > > going thing for over> > > > > 18 months in as much my prognosis of having PF has> > > > > only been two> > > > > months. I have started NAC and found that it does> > > > > break up the phlegm> > > > > and feels much better than what it was 'dry cough'.> > > > > There are some things that trigger coughing episodes> > > > > like bending at> > > > > the waist for some reason and at night cant lay on> > > > > either side, but> > > > > that hardly matters, the cough comes and goes even> > > > > then so to say I> > > > > get a decent night sleep would be a fallicy. I feel> > > > > if I can get over> > > > > the coughing thats half the battle not forgetting> > > > > te shortnss of> > > > > breath, (in any activity) or the pain in my lower> > > > > ribs. Am starting> > > > > Pulmonary Rehab in a week so we'll see how that will> > > > > effect the the> > > > > situation at hand. Once I left the pulmonologist> > > > > office last week and> > > > > said Ill see you in six months, didnt really leave> > > > > me much faith in> > > > > him as though he's saying you're on your own, which> > > > > in reality is no> > > > > lie. I am also thinking about seeking other means> > > > > of healing moving> > > > > from the western methods and looking into chinese> > > > > and natural healing.> > > > > This has been suggested to me and am thinking about> > > > > it seriously.> > > > > Thanks for listening and your input is greatly> > > > > appreciated.> > > > >> > > > > Vitt> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > >> > > >> > > >__________________________________________________> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Hi All: I used to cough and choke frequently. At first the doctor thought it might be exercised induced asthma, but it could happen when I was just sitting around. Menthol cough drops helped a lot and still do. Eventually I was put on Previcid and that has stopped all that kind of coughing and choking. Having said that, I've had several coughing spells that scare me because of how they take my breath away and leave me totally exhausted for ages. Today I was on the freeway, and I had to pull over to cough. That's the first time. Certain foods seem to make me choke and cough now, like coarse ground pepper and red-hot cinnamon. ----- I've only seen my doctor three times, but I have a clear impression that since I'm "not that sick" then nothing needs to be done for me now. I looked at a few clinical trials, and they all seem to require people who have more serious illness, and had to have had an invasive test to qualify. I'd like to be in a study that looks at preventing further destruction of the lungs. --- The two articles in the last digest are great, especially the one about when we first learn of our disease and the reaction we get from others. Rita See if you've won, play MSN Search and Win Quote Link to comment Share on other sites More sharing options...
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