Guest guest Posted February 4, 2010 Report Share Posted February 4, 2010 My son who is eleven is having tethered cord release surgery next week. He had his first one at six months and has not had one since then. He is quickly losing mobility in his left leg so it is time to go in again. He had the ACE procedure done about five years ago and it has been working wonderfully since then. It really changed his whole quality of life. He does the procedure on a nightly basis. My question is his NSG does not him doing this while in the hospital. My concern is if the stoma site starts to close. I was also wondering what any experience has been with the ACE post surgery. This part concerns me because it has worked so wonderfully. I would really appreciate any any advice. This is quite different with an older child now who get's everything that is going on. Any other wonderful tips you all may have for TCS post-op would be much appreciated! Thanks so much, Anne Quote Link to comment Share on other sites More sharing options...
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