Re: pseudomonas and antibiotics

[Guest guest]

I need help please. I now have been diagnosed with pseudomonas, my pc, pulmo, and infec disease dr are trying to decide among them how to treat it. Infec dr wants body to try to heal it self (my 1st time seeing him) not running temp and no white blood cell build up, said antibiotics had killed off the good flora and bad flora had taken over. my pc put me on lactinex to try to build up good flora to fight it (100 times stronger than yogurt) 10 days so far. has anyone tried this method? I'm also on pred burst again as breathing gets bad right after the burst ends. I see pc on tue. and pulmo on thur. Could those of you who are on alternating antibotics for pseudo tell me about it and how it helps you? I've been so weak and sob. Also what do they do to treat you for your bronchiectasis?I'm on all the usual copd meds and o2 24/7.Thanks for any help you may be able to give.

Sonny..I'm on continual antibiotics myself..but not because I've developed pseudomonas..however I have continual flareups as a result of my bronchiectasis..and the reason I'm on prophylatic treatment.

I'm very interested to read the responses..as I too need help in this area. I'm concerned about destroying my good flora too..I've been told yogurt just isnt enough..

Anticipating responses..

Sandie in MD

My Tears don't comprimise my Strength...They never have...

[Guest guest]

I need help please. I now have been diagnosed with pseudomonas, my pc, pulmo, and infec disease dr are trying to decide among them how to treat it. Infec dr wants body to try to heal it self (my 1st time seeing him) not running temp and no white blood cell build up, said antibiotics had killed off the good flora and bad flora had taken over. my pc put me on lactinex to try to build up good flora to fight it (100 times stronger than yogurt) 10 days so far. has anyone tried this method? I'm also on pred burst again as breathing gets bad right after the burst ends. I see pc on tue. and pulmo on thur. Could those of you who are on alternating antibotics for pseudo tell me about it and how it helps you? I've been so weak and sob. Also what do they do to treat you for your bronchiectasis?I'm on all the usual copd meds and o2 24/7.Thanks for any help you may be able to give.Sonny

[Guest guest]

Dear Sonny, The following is about what works for me.: I’m sorry that you are not feeling well. My ID specialist will change my antibiotics according to what is rowing in my sputum. You may need to go into hospital for a clean out. I find that my doctors generally won’t put me on antibiotics unless my symptoms are worsening. For me this may include running high fevers (sometimes I only run low grade during infections), an increase in my already high sputum production, increase in high rate, increase in joint pain, and feeling more tired than my norm. My doctors look at how I’m breathing. Being more short of breath than my norm is not good sign and can indicate infection (in my case). Also coughing up blood can indicate infection. Sometimes my infections start in my sinuses and a week or less they are in my lungs. You may need to go into hospital (if possible) for observation and until they can figure out for

certain if this is an infection or not. I have severe asthma, too and sometimes its my asthma that needs treatment and not an infection. Generally, I need prednisone or in hospital solu-medrol to get my asthma under better control. During exacerbations of my bronchiectasis my doctors prescribe IV antibiotics, sometimes also place me on oral antibiotics, and nebulised antibiotics, prescribe additional chestphysio, sputum tests done before antibiotics are started and about a week or two after they are ended, increase my regular bronchodilator nebs, and sometimes they increase my pulmozyme to twice per day, I also take Advair, and various other meds. My 02 is at 4-5 L with activity and 2.5-3 while sitting and during sleep. Do use a concentrator? Hope this Helps:0) Liz Sonny

wrote: I need help please. I now have been diagnosed with pseudomonas, my pc, pulmo, and infec disease dr are trying to decide among them how to treat it. Infec dr wants body to try to heal it self (my 1st time seeing him) not running temp and no white blood cell build up, said antibiotics had killed off the good flora and bad flora had taken over. my pc put me on lactinex to try to build up good flora to fight it (100 times stronger than yogurt) 10 days so far. has anyone tried this method?

I'm also on pred burst again as breathing gets bad right after the burst ends. I see pc on tue. and pulmo on thur. Could those of you who are on alternating antibotics for pseudo tell me about it and how it helps you? I've been so weak and sob. Also what do they do to treat you for your bronchiectasis? I'm on all the usual copd meds and o2 24/7.Thanks for any help you may be able to give.Sonny Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here."

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[Guest guest]

Acidophilus is one good supplement. Also, many yogurts list the bacteria

they contain, however, there is so little of it that it is not sufficient.

My doctor told me the clear liquid on top when you open a yogurt is where

all the good bacteria is. So if you eat yogurt that doesn't have that

water-like liquid, you are not getting what you think you are getting. You

just stir that in when you open it and that's that. The only yogurt I have

found with the liquid on the top is Dannon's Fruit on the Bottom and their

plain yogurt, so that's what I eat. And I only eat the other kinds, as a

treat, not expecting to get the bacteria out of them.

Marsha

[Guest guest]

I use Culterelle for my kiddos when they are on antibiotics

My youngest is on IVs currently for pseudomonas...Tobramycin and

Ceftazidime. Usually if it shows sensitivity we start with TOBI and

Cipro for 28 days then reculture and go from there. TOBI is usually

continued 28 days on/28 days off until atleast until we get 2 clear

cultures. If they get worse then its IV time and they change the TOBI

to inhaled colymycin for 28 days. Has worked well for my kids.

Cassidy mom to Ashleigh(17, CF,diabetes), Skylar (almost 12 CF, CFRA),

Kaden (14 months, CF)

[Guest guest]

Hi Cassidy, This sounds similar to my antibiotic plan. Do any of your children have a port-a-cath? I'm getting a new port-a-cath on Tuesday. Its port number four. Looking forward to getting my new port, because my veins aren't good candidates for picc lines, and my picc is starting to come out now about 3.5 cm out which may not seem like much, but given no flash back (there had been flash back previous to this) last Thursday it provides reassurance to get it checked out and get a go ahead to use the picc. Anesthetists even experience difficulties when accessing my veins due to what my interventional radiologist feels as congental ("from birth") vein issues and also on going use of IV antibiotics. Monday morning will mean a trip into radiology to get the picc line just in case to ensure this line can safely be used by the anesthetist on Tuesday. Ceftazidime lowers my white blood cell count (wbc) too much to the point I have to be put in reverse isolation in hospital. Its a great med though for many with CF and bronchiectasis, and I wish that I were able to have it as part of my antibiotic arsenal. Hugs,:0) Liz Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here."

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[Guest guest]

,

This is a real dumb question. When I access medical sites to do a

search re bronchiectasis, I come across this term * exacerbation * In

this case mentioned it in one or maybe a few postings.

What does *During exacerbations of my bronchiectasis* mean?

Karin

>

> Dear Sonny,

>

> The following is about what works for me.:

>

> I'm sorry that you are not feeling well. My ID specialist will

change my antibiotics according to what is rowing in my sputum. You

may need to go into hospital for a clean out. I find that my doctors

generally won't put me on antibiotics unless my symptoms are

worsening. For me this may include running high fevers (sometimes I

only run low grade during infections), an increase in my already high

sputum production, increase in high rate, increase in joint pain, and

feeling more tired than my norm. My doctors look at how I'm breathing.

Being more short of breath than my norm is not good sign and can

indicate infection (in my case). Also coughing up blood can indicate

infection. Sometimes my infections start in my sinuses and a week or

less they are in my lungs. You may need to go into hospital (if

possible) for observation and until they can figure out for certain if

this is an infection or not. I have severe asthma, too and sometimes

its my asthma that needs treatment and

> not an infection. Generally, I need prednisone or in hospital

solu-medrol to get my asthma under better control.

>

> During exacerbations of my bronchiectasis

[Guest guest]

Marsha, that's interesting-about the yoghurt liquid. I make my own

yoghurt. There's plenty of liquid floating on top.

I pour it into a little dish and let my dog slurp it up. Mikki loves it.

Good for the dog, she'll never have any ITU, LOL.

karin

>

> Acidophilus is one good supplement. Also, many yogurts list the

bacteria

> they contain, however, there is so little of it that it is not

sufficient.

> My doctor told me the clear liquid on top when you open a yogurt is

where

> all the good bacteria is.

[Guest guest]

o.k. I will use the word in the future. Maybe then my doctor will

believe me when I don't feel right due to elevated temp, sore throat, SOB

Karin

>

>

>

> In a message dated 2/19/2007 4:30:32 A.M. Eastern Standard Time,

> karin_44@... writes:

>

> What does *During exacerbations of my bronchiectasis* mean?

>

>

>

> for one to exacerbate simply means to develop an infection..

> Sandie

>

>

> My Tears don't comprimise my Strength...

> They never have...

>

[Guest guest]

Thank you for answering my question. I figured that this is what

exacerbation means, I thought it may mean something different.

Karin

>

> It means when it becomes particularly problematic, perhaps an infection,

> lots of coughing, feeling lousy, i.e., gets worse for a time.

>

> Marsha

>

[Guest guest]

The dog is healthier than I am, 8-)

Karin

>

> That's funny, but stop giving it to the dog and give it to yourself!

>

[Guest guest]

Yes, it means developing an infection and worsening of symptoms during this time. For me this generally means running a high fever (but not always), achy joints, fatigued more than the norm and sleeping more, increase in shortness of breathing, increase in wheezing, and other lung sounds - rhonchi, rales, crackles, decrease in air entry, although, this is already compromised and often poor, looking more "blue" - finger nails and lips than my norm, increase in mucous production, and already thick mucous feeling thicker and being harder to raise, change in mucous from my norm of yellow - light green to dark brown or ugly army green and tasting much more foul than the norm, coughing up blood or brining up bloody mucous (actually looks like blobs of blood) ... Just some gross, but true facts about my lungs during exacerbations. Hugs:0) LizPre-Lung Transplant Journey - For updates please visit my carepage

and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here."

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[Guest guest]

Thanks for your input. My Dr put me on Tobi yesterday. He said he has had really good luck with another patient with much the same symptoms. Reading what everyone else is going through is like therapy for me. I'll let you know. Ron in Clearwaterskyesmommy_6 wrote: I use Culterelle for my kiddos when they are on antibioticsMy youngest is on IVs currently for pseudomonas...Tobramycin and Ceftazidime. Usually if it shows sensitivity we start with TOBI and

Cipro for 28 days then reculture and go from there. TOBI is usually continued 28 days on/28 days off until atleast until we get 2 clear cultures. If they get worse then its IV time and they change the TOBI to inhaled colymycin for 28 days. Has worked well for my kids.Cassidy mom to Ashleigh(17, CF,diabetes), Skylar (almost 12 CF, CFRA), Kaden (14 months, CF)