Re: Intro newly diagnosed and Michigan Docs

[Guest guest]

Thanks to all of you who have written informative, honest and

heartfelt responses to my many questions. I'm seeing a rehab dr. on

Monday and don't really know what to expect or ask. Any ideas? I

did try PT already: e-stim, myofascial massage, daily

exercises/stretches, and water therapy. None of that helped and

exercise seems to hurt me more, unfortunately. I'm not thrilled with

the idea of drugs for the rest of my life, but will do what I must.

I have huge back, leg, knee and hip pain and numbness and tingling

down my legs to my toes. I've had a nonstop UTI for 5 months and

much frequency and urgency. Antibiotics take it away for a bit, then

a yeast infection comes and giives the symptoms again. I saw a

urologist who has me on a low dose antibiotic for a few months.

Guess I'll be eating lots of yogurt.

My main puzzle is why now at 44? I'm very active with my 3 young

kids and always on the go. I had migraines for years and did not let

that stop me (finally found the trigger and they are rare now!). I

am the type of person who stays going and busy for fun and to forget

about pain. This TC/urinary symptoms has stopped me more than I like

for the last months. I can only get up and do my normal activities

(limited) with the aid of meds, which I'm not thrilled about. I

cannot avoid lifting or running because I have a very active

preschooler to chase all over, plus 2 school-aged kids to play with.

For that I'm lucky because it certainly keeps me going and laughing,

but I worry that my future may not be so mobile.

I always strive to be positive thinking. Obviously, in the grand

scheme of troubles and illnesses, this is not horrible. As I said,

my main thought is for my kids and keeping their quality of life

intact.

Thanks for listening and any ideas or thoughts, Patti

>

> I think explained the situation very well. Probably the thing

I've noticed the most over the last couple of years, is that, no

matter how much a lot of us have in common, there is a wide variation

of symptoms and problems. My problems started showing up at age 56. I

really was digressing rather quickly. The NS thought I would be in a

wheel chair within a year, and with my problems getting worse I had

no reason to doubt him. I asked him why now, and he said as we age

our backs start curving naturally. This starts putting stress on the

TC.

> Three years after my surgery I am still walking. Some issues like

pain did not change, however I do not regret having the surgery done.

And I do consider it a success.

> Another thing I've learned from the group and my own experience is

that TC may change the way a person is living, but there is a lot of

living left and we shouldn't let it get us down.

> Woody

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