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Ron, is there any way for you to arrange a weekly schedule so that you can

get relieved for a couple^f hours at least a few timesw a week? Is there

absolutely no one to relieve you? Alternqatively can you barter with an

aid possibly?

trapped

Does anyone else spend 24/7 with their lo?Cant leave without finding

coverage for them?Not even just a trip around the block with the stereo on

or something?Ive been feeling really trapped in this house and I sure would

like someone that knows the feeling to talk to about it.It seems no matter

what I say when trying to explain these feelings I just alienate more

people.I feel like theres noone in my life who could possibly understand

how I feel or relate to me.If anyone shares this feeling please feel free

to email me directly.Hope all is well. Ron

RON

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Hi Norma,

Ive made scedules in the past but the only one in my family that wants

anything to do with it is my sister and to ask anymore of her Im afraid that all

I will do is push her away like I seem to do with everyone else.Whenever I have

a problem and need to talk it feels like Im looked at like some sort of alien

speaking a language from outer space that noone understands..Nobody in my

everyday life seems to be able to understand how hard it is to be cut off from

the world.

Norma Loeb/CORPHQ/NYTIMES wrote:

Ron, is there any way for you to arrange a weekly schedule so that you

can

get relieved for a couple^f hours at least a few timesw a week? Is there

absolutely no one to relieve you? Alternqatively can you barter with an

aid possibly?

trapped

Does anyone else spend 24/7 with their lo?Cant leave without finding

coverage for them?Not even just a trip around the block with the stereo on

or something?Ive been feeling really trapped in this house and I sure would

like someone that knows the feeling to talk to about it.It seems no matter

what I say when trying to explain these feelings I just alienate more

people.I feel like theres noone in my life who could possibly understand

how I feel or relate to me.If anyone shares this feeling please feel free

to email me directly.Hope all is well. Ron

RON

---------------------------------

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now.

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Ron, you old dog, you are not alone. I was just playing about the old dog

bit.

But please do know that I share your experience 100%. Most of the time it

doesn't bother me too much to have my shadow on my back all the time, but once

in awhile I need to be alone. I will want to run to the store for a minute

and get him a surprise. There are no surprised for him. If I am cooking and

making a surprise dish, he'll walk in and look over my shoulder and the

surprise

is gone.

If I need to take time to look in a fabric store, I can't. He is right

there, and telling me he is tired, or his feet hurt. I already have to pretty

well

stay house bound because of my severe allergies, but I am Always shadowed.

Go to the bathroom and he is looking for me. Wash clothes and he is looking

for me.

I know why he is doing this. It's because he is scared and I am his security

blanket, but it does wear a person down. I didn't use to talk that way, but

once in a while now, I find myself wishing for a few moments that are not

controlled by the time clock of a hired sitter, if I had one.

I took care of a baby once for several months. The woman really loved the

way I pulled the baby out of a very poor condition, nearly starved to death.

She would have kept me at nearly all cost, except allowing me to drive the baby

up the street to Cloth-World to get some thread. When she got home the store

was closed. I was stuck with that baby from 6:30Am to 7:pm at night. Every

cotton pickin' day. I had no freedom at all. Before I got angry I just told

her no more. Oh but she pleaded with me. " NO " I told her. I was so trapped I

was going stir crazy. And that wasn't 24/7

Find a way out, Ron. For your own peace and normalcy. Find her a home and

visit once in a while. You will have the freedom to move around and visit her

too. That is not showing a lack of love. It is showing common sense. Save your

own sanity before you want to bring harm to your mother, by scolding etc.

Love you dear,

Imogene

In a message dated 12/29/2007 1:49:43 PM Central Standard Time,

dawgg4456@... writes:

Does anyone else spend 24/7 with their lo?Cant leave without finding

coverage for them?Not even just a trip around the block with the stereo on or

something?Ive been feeling really trapped in this house and I sure would like

someone that knows the feeling to talk to about it.It seems no matter what I

say

when trying to explain these feelings I just alienate more people.I feel like

theres noone in my life who could possibly understand how I feel or relate to

me.If anyone shares this feeling please feel free to email me directly.Hope

all is well. Ron

RON

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

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Hi Ron,

Reading your posts made me sad because I know that your siblings could be doing

so much more to help you yet they won't.

I couldn't help but think that one doesn't have to be a caregiver to get that

" trapped " feeling. Just ask the majority of moms who stay home caring for their

children for any length of time and they'll tell you they feel the same thing

every now and again - if they're honest.

Since no one is coming around to help you get out of the house then maybe its

time for you and your mom to go out? I used to make a point of walking around

the block with mom nearly everyday - for her sanity and mine. When mom began

getting unsteady on her feet I got her a collapsible wheel-chair at the Goodwill

and off we went. The good thing with the wheelchair was that we could go for

longer periods and for greater distances. If I remember correctly, you

mentioned that you had a car. How about getting a collapsible wheelchair,

putting it in the truck and taking mom to the mall, the library, the museum, art

galleries, historical sites (a lot of these places have " free " days/hours).

Even if you don't need to buy anything at the mall it helps to just get out and

about among other people and will do you good. Lots of malls have food courts

and you could enjoy a coffee/tea/drink with you mom or a little snack - mom and

I hit the bakery every chance we got. It isn't much of an outing but its

something.

Courage

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Ron,

One of the things I use to do with people is tell them I just needed to vent.

They don't have to do anything but listen. That way they don't feel so helpless

and won't go away because they don't know what to do.

Cuz you just know everyone wants to save the world and they feel like failures

when they can't save you.

Sometimes that helps.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: trapped

Hi Norma,

Ive made scedules in the past but the only one in my family that wants

anything to do with it is my sister and to ask anymore of her Im afraid that all

I will do is push her away like I seem to do with everyone else.Whenever I have

a problem and need to talk it feels like Im looked at like some sort of alien

speaking a language from outer space that noone understands..Nobody in my

everyday life seems to be able to understand how hard it is to be cut off from

the world.

Norma Loeb/CORPHQ/NYTIMES wrote:

Ron, is there any way for you to arrange a weekly schedule so that you

can

get relieved for a couple^f hours at least a few timesw a week? Is there

absolutely no one to relieve you? Alternqatively can you barter with an

aid possibly?

trapped

Does anyone else spend 24/7 with their lo?Cant leave without finding

coverage for them?Not even just a trip around the block with the stereo on

or something?Ive been feeling really trapped in this house and I sure would

like someone that knows the feeling to talk to about it.It seems no matter

what I say when trying to explain these feelings I just alienate more

people.I feel like theres noone in my life who could possibly understand

how I feel or relate to me.If anyone shares this feeling please feel free

to email me directly.Hope all is well. Ron

RON

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it

now.

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<snip> Alternatively can you barter with an aid possibly?<snip>

I really like this idea. Ron, are you still in contact w/ those other

CNAs you worked with in the past? If so, could you barter something

with one of them to help you out. If anything, they KNOW what you're

going through and you may be surprised by someone offering their

assistance (maybe w/out a barter.)

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