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I have heard that even tho a kiddo is gf that if you dont remove the processed gf foods you may not see improvements. i would suggest working on reducing the processed gf foods and introducing more whole foods like meat, veggies, fruits, good oils and mineral salts, probiotics, etc. its hard but it can be done and can be part of his aba i would think. i would think getting him eating healthier foods would result in more gains than just removing sugars. those processed gf foods can be just as bad as regular processed foods. good luck!Sent from my iPhone

Hi there. My son has been casein free (which he'll always be because of multiple issues with milk) for 18 months, gluten free for 14 months, and soy free for 8 months. I've also eliminated most (if not all) of the artificial colors.

I'm VERY close to waiving the white flag with the gluten & soy. was tested for issues with gluten and had none (before we went gf). He was also tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no improvement in the past year, and actually saw a huge regression the first month of the diet which we are still reeling from. I don't think that it was due to the diet, but it's impossible to know.

It's become so difficult (not to mention expensive) to feed my kiddo, who also has texture (no mushy, no cold, only drinks water) issues that limit many foods, that it's breaking the bank and testing my sanity.

Anyway, before we slowly add the gluten and soy back into the diet, I wanted to take what I considered to be the next step in the diet and try to reduce/eliminate sugar. I have a few questions and a few concerns. First, how much sugar is "normal" and "acceptable" for a three year old, and what does reduction/elimination of that normal amount mean? I'm not talking normal as in the fattest state in the nation kind of normal, but I need to figure out what is realistic and safe. Also, eliminating sugar will eliminate the very last of the good edible motivators for ABA, and at a time where he doesn't seem to want to work at all, losing good motivators is a bummer.

For those who are reducing sugar AND who are seeing great results, what is your child's daily sugar intake? How long after the reduction did you see a result? I would happily stay on a diet that I saw ANY good outcome from, but at this point, if something doesn't give, we'll be waving that flag and restoring a little normalcy and ease around the O'Malley abode.

For informational purposes, my son's diet consists of eggs, Ian's fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies, kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal, Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf french fries, corn, peas, Immaculate baking company cookies. The cookies are used for therapy only. Oh, and he does eat the chewable calcium & multivitamin gummies from Target. I would LOVE any help anyone who's done this can offer. Thanks!!

Serena O'Malley

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i forgot to add that you can make very tastey homemade chicken nuggets, fish sticks, mac and cheese, pizza, etc for much less money than the processed frozen stuff. i have some recipes if you are interestes. Sent from my iPhone

Hi there. My son has been casein free (which he'll always be because of multiple issues with milk) for 18 months, gluten free for 14 months, and soy free for 8 months. I've also eliminated most (if not all) of the artificial colors.

I'm VERY close to waiving the white flag with the gluten & soy. was tested for issues with gluten and had none (before we went gf). He was also tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no improvement in the past year, and actually saw a huge regression the first month of the diet which we are still reeling from. I don't think that it was due to the diet, but it's impossible to know.

It's become so difficult (not to mention expensive) to feed my kiddo, who also has texture (no mushy, no cold, only drinks water) issues that limit many foods, that it's breaking the bank and testing my sanity.

Anyway, before we slowly add the gluten and soy back into the diet, I wanted to take what I considered to be the next step in the diet and try to reduce/eliminate sugar. I have a few questions and a few concerns. First, how much sugar is "normal" and "acceptable" for a three year old, and what does reduction/elimination of that normal amount mean? I'm not talking normal as in the fattest state in the nation kind of normal, but I need to figure out what is realistic and safe. Also, eliminating sugar will eliminate the very last of the good edible motivators for ABA, and at a time where he doesn't seem to want to work at all, losing good motivators is a bummer.

For those who are reducing sugar AND who are seeing great results, what is your child's daily sugar intake? How long after the reduction did you see a result? I would happily stay on a diet that I saw ANY good outcome from, but at this point, if something doesn't give, we'll be waving that flag and restoring a little normalcy and ease around the O'Malley abode.

For informational purposes, my son's diet consists of eggs, Ian's fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies, kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal, Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf french fries, corn, peas, Immaculate baking company cookies. The cookies are used for therapy only. Oh, and he does eat the chewable calcium & multivitamin gummies from Target. I would LOVE any help anyone who's done this can offer. Thanks!!

Serena O'Malley

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I guess I need to say that I'm REALLY not a cook, as in....I become distracted

and nearly set the kitchen on fire every morning as I " cook " 's scrambled

eggs. I have no talent, no interest, and a shocking inability to stay focused in

the kitchen (I've burned a few pots while boiling water because I completely

forgot I was cooking, and only noticed after the smoke alarm went off). I'm not

going to be able to convince my husband (who is the family cook) to take on that

kind of a task, as he's so stressed out that he's barely treading water as it

is.

We DO provide with unbreaded meats (chicken, turkey, ham, beef) as well

as the freeze dried fruits (organic, all natural). He will not eat regular

fruits because of his texture issues. It took me nearly a year to remove the

breading from the chicken, as he has a pretty significant texture issue, but I'm

thrilled that he's eating it now. The chicken nuggets and Mac and No cheese are

occasional (once a week), but the fish sticks are daily (lunch/ABA). I would be

very concerned about making homemade fish sticks, because I'm certain Mike has

never cooked fish before, and I would be uncomfortable not knowing if it were

being cooked properly. Plus, with 's texture issues, there'd be NO

guarantee that he'd actually eat it. I listed everything that he ever eats,

period, because I wanted to get an idea of what would be the first things to go

and how to replace those things, etc.

I don't disagree that offering only whole, non-processed foods would be a better

diet for , but as it stands, texture issues & stress issues for my

sweetheart of a cook are going to keep that from happening. Reducing/eliminating

sugar is my goal here, and I'm sure that we'll be giving up a number of the

packaged foods in order to do that.

Thank you for your thoughts/suggestions.

Serena

>

> > Hi there. My son has been casein free (which he'll always be because

of multiple issues with milk) for 18 months, gluten free for 14 months, and soy

free for 8 months. I've also eliminated most (if not all) of the artificial

colors.

> >

> > I'm VERY close to waiving the white flag with the gluten & soy. was

tested for issues with gluten and had none (before we went gf). He was also

tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no

improvement in the past year, and actually saw a huge regression the first month

of the diet which we are still reeling from. I don't think that it was due to

the diet, but it's impossible to know.

> >

> > It's become so difficult (not to mention expensive) to feed my kiddo, who

also has texture (no mushy, no cold, only drinks water) issues that limit many

foods, that it's breaking the bank and testing my sanity.

> >

> > Anyway, before we slowly add the gluten and soy back into the diet, I wanted

to take what I considered to be the next step in the diet and try to

reduce/eliminate sugar. I have a few questions and a few concerns. First, how

much sugar is " normal " and " acceptable " for a three year old, and what does

reduction/elimination of that normal amount mean? I'm not talking normal as in

the fattest state in the nation kind of normal, but I need to figure out what is

realistic and safe. Also, eliminating sugar will eliminate the very last of the

good edible motivators for ABA, and at a time where he doesn't seem to want to

work at all, losing good motivators is a bummer.

> >

> > For those who are reducing sugar AND who are seeing great results, what is

your child's daily sugar intake? How long after the reduction did you see a

result? I would happily stay on a diet that I saw ANY good outcome from, but at

this point, if something doesn't give, we'll be waving that flag and restoring a

little normalcy and ease around the O'Malley abode.

> >

> > For informational purposes, my son's diet consists of eggs, Ian's fish

sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded

chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf

sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies,

kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal,

Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf

french fries, corn, peas, Immaculate baking company cookies. The cookies are

used for therapy only. Oh, and he does eat the chewable calcium & multivitamin

gummies from Target. I would LOVE any help anyone who's done this can offer.

Thanks!!

> >

> > Serena O'Malley

> >

> >

>

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I would like them!Sent from my iPad

i forgot to add that you can make very tastey homemade chicken nuggets, fish sticks, mac and cheese, pizza, etc for much less money than the processed frozen stuff. i have some recipes if you are interestes. Sent from my iPhone

Hi there. My son has been casein free (which he'll always be because of multiple issues with milk) for 18 months, gluten free for 14 months, and soy free for 8 months. I've also eliminated most (if not all) of the artificial colors.

I'm VERY close to waiving the white flag with the gluten & soy. was tested for issues with gluten and had none (before we went gf). He was also tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no improvement in the past year, and actually saw a huge regression the first month of the diet which we are still reeling from. I don't think that it was due to the diet, but it's impossible to know.

It's become so difficult (not to mention expensive) to feed my kiddo, who also has texture (no mushy, no cold, only drinks water) issues that limit many foods, that it's breaking the bank and testing my sanity.

Anyway, before we slowly add the gluten and soy back into the diet, I wanted to take what I considered to be the next step in the diet and try to reduce/eliminate sugar. I have a few questions and a few concerns. First, how much sugar is "normal" and "acceptable" for a three year old, and what does reduction/elimination of that normal amount mean? I'm not talking normal as in the fattest state in the nation kind of normal, but I need to figure out what is realistic and safe. Also, eliminating sugar will eliminate the very last of the good edible motivators for ABA, and at a time where he doesn't seem to want to work at all, losing good motivators is a bummer.

For those who are reducing sugar AND who are seeing great results, what is your child's daily sugar intake? How long after the reduction did you see a result? I would happily stay on a diet that I saw ANY good outcome from, but at this point, if something doesn't give, we'll be waving that flag and restoring a little normalcy and ease around the O'Malley abode.

For informational purposes, my son's diet consists of eggs, Ian's fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies, kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal, Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf french fries, corn, peas, Immaculate baking company cookies. The cookies are used for therapy only. Oh, and he does eat the chewable calcium & multivitamin gummies from Target. I would LOVE any help anyone who's done this can offer. Thanks!!

Serena O'Malley

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Well, although I am certainly not happy with the amount of sugar in some of the

gf/cf/sf snacks that I've made available for for ABA, I would never

consider his diet to be a " junk food diet, " nor would I say that he's anywhere

near the standard toddler diet. I guess you and I probably define " junk "

differently, but I don't consider meats, fruits, eggs, the occasional piece of

gf/cf/sf bread and a handful of gf/cf/sf pretzels/cereal a day to be a standard

toddler diet or a junk food diet. I listed everything he EVER eats, just in case

there was something that should be the first to go, etc.

I'd LOVE for him to be eating fewer packaged snacks and more green veggies, but

moving past his texture issues in way that is not traumatic is a slow process,

as you know. We won't ever be on the diet that your family is on, simply because

of the texture issues. It took me a year to get to drink water from a

cup, and he's never had anything else besides water....which he won't even drink

unless it's room temperature. The day after I had to put something in his water

in preparation for his endoscopy/colonoscopy, he refused to drink, and I was

concerned that we were going to have to hospitalize him for dehydration. As a

little guy, he wouldn't even drink breast milk or juice (which I did not offer

him, but he grabbed at play dates on a few occasions and promptly spit out).

Anyway, it's not a goal that I would set for him, because I don't think it's

realistic. If I honestly believed it was going to make all the difference in the

world to him, I'd STILL have to go to CARD or somewhere to pay someone $1500 to

help me convince my kid to eat/drink something he considered to be texturally

repulsive without vomiting or worse.

So with that said, soups, smoothies, crock pot meals.....they're not in our

immediate future. I can remove the vast majority of the sugar in his diet by

removing the cereal bar he eats in the car on the long ride home from Callier

each morning, and the cookies we're using exclusively for ABA. He generally has

one bag of organic, nothing added freeze dried fruit (apples, bananas or pears)

each day, but those can go temporarily while we're testing the sugar waters. It

is just going to make ABA more difficult as we're really limiting snack type

edibles, and it also is going to increase the amount of corn/grains in his diet,

as the snacks (pretzels/fritos) that don't have any sugar do have corn/grains.

I'm going to give the reduced sugar diet (I'm sure that there will be something

hidden somewhere that won't get removed, or I'd say no sugar) for a little while

and see what happens. Hopefully, we'll have good results.

Serena

> >

> > Hi there. My son has been casein free (which he'll always be because

of multiple issues with milk) for 18 months, gluten free for 14 months, and soy

free for 8 months. I've also eliminated most (if not all) of the artificial

colors.

> >

> > I'm VERY close to waiving the white flag with the gluten & soy. was

tested for issues with gluten and had none (before we went gf). He was also

tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no

improvement in the past year, and actually saw a huge regression the first month

of the diet which we are still reeling from. I don't think that it was due to

the diet, but it's impossible to know.

> >

> > It's become so difficult (not to mention expensive) to feed my kiddo, who

also has texture (no mushy, no cold, only drinks water) issues that limit many

foods, that it's breaking the bank and testing my sanity.

> >

> > Anyway, before we slowly add the gluten and soy back into the diet, I wanted

to take what I considered to be the next step in the diet and try to

reduce/eliminate sugar. I have a few questions and a few concerns. First, how

much sugar is " normal " and " acceptable " for a three year old, and what does

reduction/elimination of that normal amount mean? I'm not talking normal as in

the fattest state in the nation kind of normal, but I need to figure out what is

realistic and safe. Also, eliminating sugar will eliminate the very last of the

good edible motivators for ABA, and at a time where he doesn't seem to want to

work at all, losing good motivators is a bummer.

> >

> > For those who are reducing sugar AND who are seeing great results, what is

your child's daily sugar intake? How long after the reduction did you see a

result? I would happily stay on a diet that I saw ANY good outcome from, but at

this point, if something doesn't give, we'll be waving that flag and restoring a

little normalcy and ease around the O'Malley abode.

> >

> > For informational purposes, my son's diet consists of eggs, Ian's fish

sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded

chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf

sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies,

kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal,

Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf

french fries, corn, peas, Immaculate baking company cookies. The cookies are

used for therapy only. Oh, and he does eat the chewable calcium & multivitamin

gummies from Target. I would LOVE any help anyone who's done this can offer.

Thanks!!

> >

> > Serena O'Malley

> >

>

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Serena, it might sound corny....but if you believe he won't do it...he won't.

Recognizing the complexity of the issue is one thing. But deciding that it

isn't possible will limit what you and he can accomplish. It will have to be

broken down into steps and it will take time...years, but step by step he'll be

working towards a lifetime of wellness. I truly do get how he seems light

years away from reaching goals in the area of textures etc...

We didn't eat fruit for a few years due to sugar. HOWEVER, I'd rather see a kid

eating whole fruit(not dehydrated...too much sugar and often sulfites) for an

ABA reinforcer.

If you do serve corn make sure it's NOT genetically modified. Otherwise you are

putting round-up in his intestines. Actually Monsanto is putting round-up in

his intestines.

Do your best and pick your battles.

I'm not here to judge you. I've been in your crazy shoes and if I could make

it easier for you I would. I don't know another way, and only share what we

uncovered here.

As for it being junk food. I meant that it's replicating the standard american

diet...which I view as junk food. fish sticks, chx nuggets, mac/cheese,

fritos, cookies.....that's all junk.

The body was designed to eat protein( not processed or breaded), vegetables,

whole fruits, and healthy fats.

I don't care if a Frito is " gluten free. " It's not food.

Whatever you decide, I certainly support you. I'm not in your house. But if

you believe that " some don't respond. " And you allow yourself to go in that

category...you'll be going in that direction. I'm not saying all kids can and

will recover. But shoot for the stars and get them as far as they can go. I

love the phrase " I'd rather aim for the stars and miss, than aim for shit and

hit. "

I learned a long time ago that EVERY single part takes hundreds of steps. It's

all ridiculous. Not one single part was even close to simple. Each part was a

ridiculous maze. Sometimes after I was done crying, I'd just laugh my ass off

at how freaking ridiculous this all was. I've been through it all and wish

there was another way. To me 6-7 years of insane hell has saved us a lifetime

of pain. I'm not an expert, but I don't believe you can get a kid well on fish

sticks, and fritos.

Our kids are picky, have sensory issues and it's a nightmare. But they can

learn to eat real food. When all the " fake food " is removed from the house and

they see the whole family doing this....they'll do it too.

ABA people will just have to learn how to use a slice of apple or a blue berrie

as a reward. Though I loved ABA as a part of our journey...it was just a part

and that too had to change for our son. We moved to a play/social therapy to

address his core areas of need once we had his health moving in a good direction

and him responding better.

You don't have to make every change at once. I just made a new change each

week and kept going. Year after year....

> > >

> > > Hi there. My son has been casein free (which he'll always be

because of multiple issues with milk) for 18 months, gluten free for 14 months,

and soy free for 8 months. I've also eliminated most (if not all) of the

artificial colors.

> > >

> > > I'm VERY close to waiving the white flag with the gluten & soy.

was tested for issues with gluten and had none (before we went gf). He was also

tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no

improvement in the past year, and actually saw a huge regression the first month

of the diet which we are still reeling from. I don't think that it was due to

the diet, but it's impossible to know.

> > >

> > > It's become so difficult (not to mention expensive) to feed my kiddo, who

also has texture (no mushy, no cold, only drinks water) issues that limit many

foods, that it's breaking the bank and testing my sanity.

> > >

> > > Anyway, before we slowly add the gluten and soy back into the diet, I

wanted to take what I considered to be the next step in the diet and try to

reduce/eliminate sugar. I have a few questions and a few concerns. First, how

much sugar is " normal " and " acceptable " for a three year old, and what does

reduction/elimination of that normal amount mean? I'm not talking normal as in

the fattest state in the nation kind of normal, but I need to figure out what is

realistic and safe. Also, eliminating sugar will eliminate the very last of the

good edible motivators for ABA, and at a time where he doesn't seem to want to

work at all, losing good motivators is a bummer.

> > >

> > > For those who are reducing sugar AND who are seeing great results, what is

your child's daily sugar intake? How long after the reduction did you see a

result? I would happily stay on a diet that I saw ANY good outcome from, but at

this point, if something doesn't give, we'll be waving that flag and restoring a

little normalcy and ease around the O'Malley abode.

> > >

> > > For informational purposes, my son's diet consists of eggs, Ian's fish

sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded

chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf

sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies,

kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal,

Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf

french fries, corn, peas, Immaculate baking company cookies. The cookies are

used for therapy only. Oh, and he does eat the chewable calcium & multivitamin

gummies from Target. I would LOVE any help anyone who's done this can offer.

Thanks!!

> > >

> > > Serena O'Malley

> > >

> >

>

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I guess I should clarify that I'm not going to head in the direction of a diet

made of soups, stews and smoothies because it would take me years and years to

get there, and I don't believe that a great diet needs to be a diet of soups,

stews and smoothies. If it wouldn't take years and years to get to a point where

he'd eat all of those things that break all of his sensory rules, I would be

likely to try it, as I have heard you say over and over again how much it did to

help heal your family.

I suppose that it comes down to priorities right now for us. We are struggling

so much with ABA right now, as is just shutting down, with very little

motivating him to work these days. Pushing him through those sessions is tough,

but traumatizing him at every meal while he's struggling through therapy....I'm

not going to choose to do both of those things at the same time. So for now,

we're going to work on elimination of " bad " foods, and not addition of " good "

foods that he hates because of texture. I'd love to do both, but I'm

prioritizing.

I'm going to go ahead and eliminate the fruit for a couple of weeks while

eliminating the rest of the sugar to see what kind of an effect. I would prefer

whole fruits to the freeze dried fruits that he eats, but given that he won't

eat whole fruits right now, I'm very comfortable with the quality of the fruits

he's eating with this particular company.

We'd really have to get to the point where we've added the good, quality snacks

(veggies) before we'll be able to remove corn. Again, I don't disagree that it's

not a quality food, and I'd never say that Fritos weren't junk food, but without

a few handfuls of corn/rice snacks a day, we're currently left with protein,

protein and more protein.

We'll figure it out. Next step is to reduce sugar. Hopefully, we'll see an

effect from our efforts.

Serena

> > > >

> > > > Hi there. My son has been casein free (which he'll always be

because of multiple issues with milk) for 18 months, gluten free for 14 months,

and soy free for 8 months. I've also eliminated most (if not all) of the

artificial colors.

> > > >

> > > > I'm VERY close to waiving the white flag with the gluten & soy.

was tested for issues with gluten and had none (before we went gf). He was also

tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no

improvement in the past year, and actually saw a huge regression the first month

of the diet which we are still reeling from. I don't think that it was due to

the diet, but it's impossible to know.

> > > >

> > > > It's become so difficult (not to mention expensive) to feed my kiddo,

who also has texture (no mushy, no cold, only drinks water) issues that limit

many foods, that it's breaking the bank and testing my sanity.

> > > >

> > > > Anyway, before we slowly add the gluten and soy back into the diet, I

wanted to take what I considered to be the next step in the diet and try to

reduce/eliminate sugar. I have a few questions and a few concerns. First, how

much sugar is " normal " and " acceptable " for a three year old, and what does

reduction/elimination of that normal amount mean? I'm not talking normal as in

the fattest state in the nation kind of normal, but I need to figure out what is

realistic and safe. Also, eliminating sugar will eliminate the very last of the

good edible motivators for ABA, and at a time where he doesn't seem to want to

work at all, losing good motivators is a bummer.

> > > >

> > > > For those who are reducing sugar AND who are seeing great results, what

is your child's daily sugar intake? How long after the reduction did you see a

result? I would happily stay on a diet that I saw ANY good outcome from, but at

this point, if something doesn't give, we'll be waving that flag and restoring a

little normalcy and ease around the O'Malley abode.

> > > >

> > > > For informational purposes, my son's diet consists of eggs, Ian's fish

sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded

chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf

sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies,

kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal,

Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf

french fries, corn, peas, Immaculate baking company cookies. The cookies are

used for therapy only. Oh, and he does eat the chewable calcium & multivitamin

gummies from Target. I would LOVE any help anyone who's done this can offer.

Thanks!!

> > > >

> > > > Serena O'Malley

> > > >

> > >

> >

>

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Posted

what is your sons diagnosis and behaviors and temperment? how old is he? when you say he shuts down at aba what does that look like? is he refusing to do something he used to do or not doing a new task? Sent from my iPhone

I guess I should clarify that I'm not going to head in the direction of a diet made of soups, stews and smoothies because it would take me years and years to get there, and I don't believe that a great diet needs to be a diet of soups, stews and smoothies. If it wouldn't take years and years to get to a point where he'd eat all of those things that break all of his sensory rules, I would be likely to try it, as I have heard you say over and over again how much it did to help heal your family.

I suppose that it comes down to priorities right now for us. We are struggling so much with ABA right now, as is just shutting down, with very little motivating him to work these days. Pushing him through those sessions is tough, but traumatizing him at every meal while he's struggling through therapy....I'm not going to choose to do both of those things at the same time. So for now, we're going to work on elimination of "bad" foods, and not addition of "good" foods that he hates because of texture. I'd love to do both, but I'm prioritizing.

I'm going to go ahead and eliminate the fruit for a couple of weeks while eliminating the rest of the sugar to see what kind of an effect. I would prefer whole fruits to the freeze dried fruits that he eats, but given that he won't eat whole fruits right now, I'm very comfortable with the quality of the fruits he's eating with this particular company.

We'd really have to get to the point where we've added the good, quality snacks (veggies) before we'll be able to remove corn. Again, I don't disagree that it's not a quality food, and I'd never say that Fritos weren't junk food, but without a few handfuls of corn/rice snacks a day, we're currently left with protein, protein and more protein.

We'll figure it out. Next step is to reduce sugar. Hopefully, we'll see an effect from our efforts.

Serena

> > > >

> > > > Hi there. My son has been casein free (which he'll always be because of multiple issues with milk) for 18 months, gluten free for 14 months, and soy free for 8 months. I've also eliminated most (if not all) of the artificial colors.

> > > >

> > > > I'm VERY close to waiving the white flag with the gluten & soy. was tested for issues with gluten and had none (before we went gf). He was also tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no improvement in the past year, and actually saw a huge regression the first month of the diet which we are still reeling from. I don't think that it was due to the diet, but it's impossible to know.

> > > >

> > > > It's become so difficult (not to mention expensive) to feed my kiddo, who also has texture (no mushy, no cold, only drinks water) issues that limit many foods, that it's breaking the bank and testing my sanity.

> > > >

> > > > Anyway, before we slowly add the gluten and soy back into the diet, I wanted to take what I considered to be the next step in the diet and try to reduce/eliminate sugar. I have a few questions and a few concerns. First, how much sugar is "normal" and "acceptable" for a three year old, and what does reduction/elimination of that normal amount mean? I'm not talking normal as in the fattest state in the nation kind of normal, but I need to figure out what is realistic and safe. Also, eliminating sugar will eliminate the very last of the good edible motivators for ABA, and at a time where he doesn't seem to want to work at all, losing good motivators is a bummer.

> > > >

> > > > For those who are reducing sugar AND who are seeing great results, what is your child's daily sugar intake? How long after the reduction did you see a result? I would happily stay on a diet that I saw ANY good outcome from, but at this point, if something doesn't give, we'll be waving that flag and restoring a little normalcy and ease around the O'Malley abode.

> > > >

> > > > For informational purposes, my son's diet consists of eggs, Ian's fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies, kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal, Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf french fries, corn, peas, Immaculate baking company cookies. The cookies are used for therapy only. Oh, and he does eat the chewable calcium & multivitamin gummies from Target. I would LOVE any help anyone who's done this can offer. Thanks!!

> > > >

> > > > Serena O'Malley

> > > >

> > >

> >

>

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One thing I hear you observing and I fully agree is recognizing how much stress

he is under. That is the WORST for the body. The whole dietary issue has to

be done at a pace that is steady, but not even more damaging to the immune

system. If you feel like you're jumping off a cliff, you are moving too fast.

I love the sound of your goals.

At some point into a few years of hell, I realized that this was going to take

much longer than I had hoped. That is why I don't mind a family working

towards a goal even if it takes many months-years. Because I'm sure many

families felt as you do. That it couldn't possibly be worth it. But their

kids are older now, it's very hard to go back and change habits and seeing how

it does take so long and autism isn't just going away....that maybe the work

taking " years " is worth it.

I don't think any learning is taking place when it's a struggle. Have you

considered other approaches to therapy?

I like Son-Rise and then Montessori because they are based on the child's

motivation (any good educational practice should be based on the child's

motivation). They don't try to stop the child from doing what they like to do.

And I'm not saying they let the child be a nut. These two philosophies are

also SENSORY based and help to integrate the brain. ABA works on isolated

skills, often strengthening the already strong parts of the brain. I'm not

saying it's awful....it can be good for some. It was good for us for a time.

But to truly get normal and integrated function ABA wasn't the final piece for

our story.

I know one thing, when you and your child are stressed...little good with come.

Son-Rise wasn't just for my child. It was for our whole family. We have

beautiful children and it shouldn't be hell. This is a precious time and we

should get to enjoy it. Before Son-Rise I felt like I was dying everyday.

Now I feel peace and excitement. None of it was easy. Taking a child to ABA

was much easier than running a Son-Rise program. But in the end, we have a

playful and adorable child. We have a great life.

I think there is a Son-Rise start-up in August. But also I know an in-home

child facilitator who can come to your home to help you understand how Son-Rise

can work for your child. Ideally you should go and get the training.

I'm proud of you Serena, and really recognize how wise you are at breaking this

all down and going for it. Follow your instincts, it's really all we have and I

trust myself very much.

A couple links you may enjoy!

http://www.relatetoautism.com/

http://www.autismtreatmentcenter.org/contents/programs_and_services/index.php

> > > > >

> > > > > Hi there. My son has been casein free (which he'll always be

because of multiple issues with milk) for 18 months, gluten free for 14 months,

and soy free for 8 months. I've also eliminated most (if not all) of the

artificial colors.

> > > > >

> > > > > I'm VERY close to waiving the white flag with the gluten & soy.

was tested for issues with gluten and had none (before we went gf). He

was also tested for yeast issues by a DAN! doctor and had none. We've seen

absolutely no improvement in the past year, and actually saw a huge regression

the first month of the diet which we are still reeling from. I don't think that

it was due to the diet, but it's impossible to know.

> > > > >

> > > > > It's become so difficult (not to mention expensive) to feed my kiddo,

who also has texture (no mushy, no cold, only drinks water) issues that limit

many foods, that it's breaking the bank and testing my sanity.

> > > > >

> > > > > Anyway, before we slowly add the gluten and soy back into the diet, I

wanted to take what I considered to be the next step in the diet and try to

reduce/eliminate sugar. I have a few questions and a few concerns. First, how

much sugar is " normal " and " acceptable " for a three year old, and what does

reduction/elimination of that normal amount mean? I'm not talking normal as in

the fattest state in the nation kind of normal, but I need to figure out what is

realistic and safe. Also, eliminating sugar will eliminate the very last of the

good edible motivators for ABA, and at a time where he doesn't seem to want to

work at all, losing good motivators is a bummer.

> > > > >

> > > > > For those who are reducing sugar AND who are seeing great results,

what is your child's daily sugar intake? How long after the reduction did you

see a result? I would happily stay on a diet that I saw ANY good outcome from,

but at this point, if something doesn't give, we'll be waving that flag and

restoring a little normalcy and ease around the O'Malley abode.

> > > > >

> > > > > For informational purposes, my son's diet consists of eggs, Ian's fish

sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded

chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf

sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies,

kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal,

Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf

french fries, corn, peas, Immaculate baking company cookies. The cookies are

used for therapy only. Oh, and he does eat the chewable calcium & multivitamin

gummies from Target. I would LOVE any help anyone who's done this can offer.

Thanks!!

> > > > >

> > > > > Serena O'Malley

> > > > >

> > > >

> > >

> >

>

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We removed fruit/highly limit sugar and carbs and give fruit supplements and veggie protein smoothy. We gave up on aba after eight years and do RPM. Never did Sonrise or Floortime. My son also sees Dr . We are mostly gluten free but he does get some from time to time. He eats nothing fried but the occasional french fry or chips. His diet is basic, meat, veggie, rice or starch and one or two glasses of milk and lots if water. My son now interacts with us and others and is less hyper and has improved his sensory issues by 80 percent. I can count on one hand the things he cannot tolerate. He's also fully included with an aide. This took several years I am still working on a more organic diet and less sneaking of gluten and chocolate because his reactions are obvious even to him. Sugar makes him monkey boy hyper and raises yeast which causes irritability and fingers in his ears. Each child has triggers but if aba causes shut down it's time to change your approach.Sent from my iPhone

One thing I hear you observing and I fully agree is recognizing how much stress he is under. That is the WORST for the body. The whole dietary issue has to be done at a pace that is steady, but not even more damaging to the immune system. If you feel like you're jumping off a cliff, you are moving too fast.

I love the sound of your goals.

At some point into a few years of hell, I realized that this was going to take much longer than I had hoped. That is why I don't mind a family working towards a goal even if it takes many months-years. Because I'm sure many families felt as you do. That it couldn't possibly be worth it. But their kids are older now, it's very hard to go back and change habits and seeing how it does take so long and autism isn't just going away....that maybe the work taking "years" is worth it.

I don't think any learning is taking place when it's a struggle. Have you considered other approaches to therapy?

I like Son-Rise and then Montessori because they are based on the child's motivation (any good educational practice should be based on the child's motivation). They don't try to stop the child from doing what they like to do. And I'm not saying they let the child be a nut. These two philosophies are also SENSORY based and help to integrate the brain. ABA works on isolated skills, often strengthening the already strong parts of the brain. I'm not saying it's awful....it can be good for some. It was good for us for a time. But to truly get normal and integrated function ABA wasn't the final piece for our story.

I know one thing, when you and your child are stressed...little good with come. Son-Rise wasn't just for my child. It was for our whole family. We have beautiful children and it shouldn't be hell. This is a precious time and we should get to enjoy it. Before Son-Rise I felt like I was dying everyday. Now I feel peace and excitement. None of it was easy. Taking a child to ABA was much easier than running a Son-Rise program. But in the end, we have a playful and adorable child. We have a great life.

I think there is a Son-Rise start-up in August. But also I know an in-home child facilitator who can come to your home to help you understand how Son-Rise can work for your child. Ideally you should go and get the training.

I'm proud of you Serena, and really recognize how wise you are at breaking this all down and going for it. Follow your instincts, it's really all we have and I trust myself very much.

A couple links you may enjoy!

http://www.relatetoautism.com/

http://www.autismtreatmentcenter.org/contents/programs_and_services/index.php

> > > > >

> > > > > Hi there. My son has been casein free (which he'll always be because of multiple issues with milk) for 18 months, gluten free for 14 months, and soy free for 8 months. I've also eliminated most (if not all) of the artificial colors.

> > > > >

> > > > > I'm VERY close to waiving the white flag with the gluten & soy. was tested for issues with gluten and had none (before we went gf). He was also tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no improvement in the past year, and actually saw a huge regression the first month of the diet which we are still reeling from. I don't think that it was due to the diet, but it's impossible t

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Posted

I should clarify that ABA doesn't cause shut down, " work " causes shut down. What

is a fruit supplement, and is it chewable? Do you remember how long it was

before you noticed that removing sugar had made a difference in your son's

demeanor/behaviors?

Serena

> > > > > > >

> > > > > > > Hi there. My son has been casein free (which he'll always

be because of multiple issues with milk) for 18 months, gluten free for 14

months, and soy free for 8 months. I've also eliminated most (if not all) of the

artificial colors.

> > > > > > >

> > > > > > > I'm VERY close to waiving the white flag with the gluten & soy.

was tested for issues with gluten and had none (before we went gf). He

was also tested for yeast issues by a DAN! doctor and had none. We've seen

absolutely no improvement in the past year, and actually saw a huge regression

the first month of the diet which we are still reeling from. I don't think that

it was due to the diet, but it's impossible t

>

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Posted
Posted

You know, , in theory, I really like Sonrise. We had Machuga come

out for a month last May, but then lost touch with her. Our two major roadblocks

were (1) at its base, it contradicts with ABA, and we had a 12 hr/wk in home ABA

program going at the time, and (2) I couldn't get fully invested in the joining

of behaviors that made me so sad as a mother. The stimming was all fairly new at

that point, and was devastating to me as a parent, as I saw it as a significant

regression in behaviors for my son. I'm fairly certain that I'm over #2 at this

point. I no longer care what kind of quirky movements he feels that he needs to

do to make himself feel better. I just want him to have a better quality of

life, and that will include communication and social skills. Number 1 is still

an issue though. I believe that ABA can make a difference for . He made

such huge strides last summer and then regressed again and now we're starting

all over again. ABA certainly isn't causing the regressions, and we did make

great progress, but it sucks to be back at square one. I'm not giving up on ABA

at this point, and I'm not sure that we can successfully run both programs at

once.

Still, I'd pay an arm and a leg to do the kind of intensive two week sessions

that they used to there at the center. I'd have a much easier time getting the

entire family on board if we were instantly in the right environment for

Sonrise, and everyone could get that hands on training there at the center. Kind

of forces you to go all in.....and gives you the opportunity to see what your

child could/would do in ideal circumstances.

We won't ever be in the position to do the Start-up, though. Mike's a teacher

with a crazy work ethic, and he wouldn't take a week off of work to make that

work. Plus, only one of us would be able to attend, and it would put me back in

the position to try and convince/teach the rest of the family about the program.

> > > > > >

> > > > > > Hi there. My son has been casein free (which he'll always be

because of multiple issues with milk) for 18 months, gluten free for 14 months,

and soy free for 8 months. I've also eliminated most (if not all) of the

artificial colors.

> > > > > >

> > > > > > I'm VERY close to waiving the white flag with the gluten & soy.

was tested for issues with gluten and had none (before we went gf). He

was also tested for yeast issues by a DAN! doctor and had none. We've seen

absolutely no improvement in the past year, and actually saw a huge regression

the first month of the diet which we are still reeling from. I don't think that

it was due to the diet, but it's impossible to know.

> > > > > >

> > > > > > It's become so difficult (not to mention expensive) to feed my

kiddo, who also has texture (no mushy, no cold, only drinks water) issues that

limit many foods, that it's breaking the bank and testing my sanity.

> > > > > >

> > > > > > Anyway, before we slowly add the gluten and soy back into the diet,

I wanted to take what I considered to be the next step in the diet and try to

reduce/eliminate sugar. I have a few questions and a few concerns. First, how

much sugar is " normal " and " acceptable " for a three year old, and what does

reduction/elimination of that normal amount mean? I'm not talking normal as in

the fattest state in the nation kind of normal, but I need to figure out what is

realistic and safe. Also, eliminating sugar will eliminate the very last of the

good edible motivators for ABA, and at a time where he doesn't seem to want to

work at all, losing good motivators is a bummer.

> > > > > >

> > > > > > For those who are reducing sugar AND who are seeing great results,

what is your child's daily sugar intake? How long after the reduction did you

see a result? I would happily stay on a diet that I saw ANY good outcome from,

but at this point, if something doesn't give, we'll be waving that flag and

restoring a little normalcy and ease around the O'Malley abode.

> > > > > >

> > > > > > For informational purposes, my son's diet consists of eggs, Ian's

fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded

chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf

sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies,

kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal,

Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf

french fries, corn, peas, Immaculate baking company cookies. The cookies are

used for therapy only. Oh, and he does eat the chewable calcium & multivitamin

gummies from Target. I would LOVE any help anyone who's done this can offer.

Thanks!!

> > > > > >

> > > > > > Serena O'Malley

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Loree, he's 3 1/2, and has moderate to severe regressive-type, classic autism.

He's completely nonverbal, is fairly laid back and sweet, and a shut down looks

like an apathetic teenager, laying on the ground, refusing to get up and do

chores. He is refusing to do tasks that he used to do, and stopped doing months

ago, as well as many new tasks, which is why we're revamping the program and

starting fresh.

Serena

> > > > > >

> > > > > > Hi there. My son has been casein free (which he'll always be

because of multiple issues with milk) for 18 months, gluten free for 14 months,

and soy free for 8 months. I've also eliminated most (if not all) of the

artificial colors.

> > > > > >

> > > > > > I'm VERY close to waiving the white flag with the gluten & soy.

was tested for issues with gluten and had none (before we went gf). He

was also tested for yeast issues by a DAN! doctor and had none. We've seen

absolutely no improvement in the past year, and actually saw a huge regression

the first month of the diet which we are still reeling from. I don't think that

it was due to the diet, but it's impossible to know.

> > > > > >

> > > > > > It's become so difficult (not to mention expensive) to feed my

kiddo, who also has texture (no mushy, no cold, only drinks water) issues that

limit many foods, that it's breaking the bank and testing my sanity.

> > > > > >

> > > > > > Anyway, before we slowly add the gluten and soy back into the diet,

I wanted to take what I considered to be the next step in the diet and try to

reduce/eliminate sugar. I have a few questions and a few concerns. First, how

much sugar is " normal " and " acceptable " for a three year old, and what does

reduction/elimination of that normal amount mean? I'm not talking normal as in

the fattest state in the nation kind of normal, but I need to figure out what is

realistic and safe. Also, eliminating sugar will eliminate the very last of the

good edible motivators for ABA, and at a time where he doesn't seem to want to

work at all, losing good motivators is a bummer.

> > > > > >

> > > > > > For those who are reducing sugar AND who are seeing great results,

what is your child's daily sugar intake? How long after the reduction did you

see a result? I would happily stay on a diet that I saw ANY good outcome from,

but at this point, if something doesn't give, we'll be waving that flag and

restoring a little normalcy and ease around the O'Malley abode.

> > > > > >

> > > > > > For informational purposes, my son's diet consists of eggs, Ian's

fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded

chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf

sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies,

kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal,

Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf

french fries, corn, peas, Immaculate baking company cookies. The cookies are

used for therapy only. Oh, and he does eat the chewable calcium & multivitamin

gummies from Target. I would LOVE any help anyone who's done this can offer.

Thanks!!

> > > > > >

> > > > > > Serena O'Malley

> > > > > >

> > > > >

> > > >

> > >

> >

> >

>

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Posted
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I was told to shoot for 40 mg of sugar a day. For example one juice

box has 27 mg. Many of our kids do not break down foods intestinally

like typical children. So what you are looking for is not so much an

allergy but a inability to digest and absorb correctly.

Personally I think there is no edible reinforcer to overcome

frustration and boredom. When we switched to rpm he was actively

engaged, in short spurts and now longer but never given reinforcers

with rpm. At home and in social situations for a time we wrote the

word of a thing he wanted then crossed off letters. For instance

" book " then took it away if he lost all the letters. Now that he has

an iPhone I can just say the word phone and he'll stop the behavior.

But impulse control was also greatly improved with dr stewart as well

with learning to attend to a voice which is the beginning teaching of

rpm.

Back to diet. Gluten free doesn't have to be expensive. Get rid of

cookies cakes chips. Remember pasta and breads also contain sugar.

When we first started eliminating sugar he craved milk. Guess what

milk has? Sugar. Imagine a boy better able to focus without the highs

gluten can cause as well as highs and lows of sugar rush. My sons

nervous system is very sensitive what makes my other kids active makes

him leap out of his skin. My son is not allergic to gluten but he does

not break it down and the results are obvious once you know what to

look for. A good diet is one that is simple. Meat, veggie, starch just

avoid bread sugar and use gluten free crumbs for breading. Some gluten

free pasta is okay but has sugar so not every day. Try this for a few

weeks and change gears on the aba program and see if it helps. Sugar

can be very addictive expect a war. ;) but it can be done, even if you

go at it a little at a time.

>

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>

> Hi there. My son has been casein free (which he'll always be

because of multiple issues with milk) for 18 months, gluten free for 14 months,

and soy free for 8 months. I've also eliminated most (if not all) of the

artificial colors.

>

> I'm VERY close to waiving the white flag with the gluten & soy. was

tested for issues with gluten and had none (before we went gf). He was also

tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no

improvement in the past year, and actually saw a huge regression the first month

of the diet which we are still reeling from. I don't think that it was due to

the diet, but it's impossible to know.

>

> It's become so difficult (not to mention expensive) to feed my kiddo, who also

has texture (no mushy, no cold, only drinks water) issues that limit many foods,

that it's breaking the bank and testing my sanity.

>

> Anyway, before we slowly add the gluten and soy back into the diet, I wanted

to take what I considered to be the next step in the diet and try to

reduce/eliminate sugar. I have a few questions and a few concerns. First, how

much sugar is " normal " and " acceptable " for a three year old, and what does

reduction/elimination of that normal amount mean? I'm not talking normal as in

the fattest state in the nation kind of normal, but I need to figure out what is

realistic and safe. Also, eliminating sugar will eliminate the very last of the

good edible motivators for ABA, and at a time where he doesn't seem to want to

work at all, losing good motivators is a bummer.

>

> For those who are reducing sugar AND who are seeing great results, what is

your child's daily sugar intake? How long after the reduction did you see a

result? I would happily stay on a diet that I saw ANY good outcome from, but at

this point, if something doesn't give, we'll be waving that flag and restoring a

little normalcy and ease around the O'Malley abode.

>

> For informational purposes, my son's diet consists of eggs, Ian's fish sticks,

Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded chicken/turkey/ham,

rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf sauce, glutino

pretzels, fritos, enjoy life cereal bars, enjoy life cookies, kinnikinnik

cookies, the occasional udi's bread/bagel, kix/rice chex cereal, Brother's All

Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf french fries,

corn, peas, Immaculate baking company cookies. The cookies are used for therapy

only. Oh, and he does eat the chewable calcium & multivitamin gummies from

Target. I would LOVE any help anyone who's done this can offer. Thanks!!

>

> Serena O'Malley

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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>

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>

>

>

>

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Posted
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I have the same problem. Not allergic per se but has been on GFCF,low sugar and

red dyes since Nov 2010. Looking for substitutes. Also since school is under

obligation to provide special diet then would it hurt anything to let them

provide lunches that are GFCF?

Sent from my Verizon Wireless BlackBerry

Re: Looking for help with sugar

reduction/elimination

I was told to shoot for 40 mg of sugar a day. For example one juice

box has 27 mg. Many of our kids do not break down foods intestinally

like typical children. So what you are looking for is not so much an

allergy but a inability to digest and absorb correctly.

Personally I think there is no edible reinforcer to overcome

frustration and boredom. When we switched to rpm he was actively

engaged, in short spurts and now longer but never given reinforcers

with rpm. At home and in social situations for a time we wrote the

word of a thing he wanted then crossed off letters. For instance

" book " then took it away if he lost all the letters. Now that he has

an iPhone I can just say the word phone and he'll stop the behavior.

But impulse control was also greatly improved with dr stewart as well

with learning to attend to a voice which is the beginning teaching of

rpm.

Back to diet. Gluten free doesn't have to be expensive. Get rid of

cookies cakes chips. Remember pasta and breads also contain sugar.

When we first started eliminating sugar he craved milk. Guess what

milk has? Sugar. Imagine a boy better able to focus without the highs

gluten can cause as well as highs and lows of sugar rush. My sons

nervous system is very sensitive what makes my other kids active makes

him leap out of his skin. My son is not allergic to gluten but he does

not break it down and the results are obvious once you know what to

look for. A good diet is one that is simple. Meat, veggie, starch just

avoid bread sugar and use gluten free crumbs for breading. Some gluten

free pasta is okay but has sugar so not every day. Try this for a few

weeks and change gears on the aba program and see if it helps. Sugar

can be very addictive expect a war. ;) but it can be done, even if you

go at it a little at a time.

>

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>

>

> Hi there. My son has been casein free (which he'll always be

because of multiple issues with milk) for 18 months, gluten free for 14 months,

and soy free for 8 months. I've also eliminated most (if not all) of the

artificial colors.

>

> I'm VERY close to waiving the white flag with the gluten & soy. was

tested for issues with gluten and had none (before we went gf). He was also

tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no

improvement in the past year, and actually saw a huge regression the first month

of the diet which we are still reeling from. I don't think that it was due to

the diet, but it's impossible to know.

>

> It's become so difficult (not to mention expensive) to feed my kiddo, who also

has texture (no mushy, no cold, only drinks water) issues that limit many foods,

that it's breaking the bank and testing my sanity.

>

> Anyway, before we slowly add the gluten and soy back into the diet, I wanted

to take what I considered to be the next step in the diet and try to

reduce/eliminate sugar. I have a few questions and a few concerns. First, how

much sugar is " normal " and " acceptable " for a three year old, and what does

reduction/elimination of that normal amount mean? I'm not talking normal as in

the fattest state in the nation kind of normal, but I need to figure out what is

realistic and safe. Also, eliminating sugar will eliminate the very last of the

good edible motivators for ABA, and at a time where he doesn't seem to want to

work at all, losing good motivators is a bummer.

>

> For those who are reducing sugar AND who are seeing great results, what is

your child's daily sugar intake? How long after the reduction did you see a

result? I would happily stay on a diet that I saw ANY good outcome from, but at

this point, if something doesn't give, we'll be waving that flag and restoring a

little normalcy and ease around the O'Malley abode.

>

> For informational purposes, my son's diet consists of eggs, Ian's fish sticks,

Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded chicken/turkey/ham,

rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf sauce, glutino

pretzels, fritos, enjoy life cereal bars, enjoy life cookies, kinnikinnik

cookies, the occasional udi's bread/bagel, kix/rice chex cereal, Brother's All

Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf french fries,

corn, peas, Immaculate baking company cookies. The cookies are used for therapy

only. Oh, and he does eat the chewable calcium & multivitamin gummies from

Target. I would LOVE any help anyone who's done this can offer. Thanks!!

>

> Serena O'Malley

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------------------------------------

Texas Autism Advocacy

www.TexasAutismAdvocacy.org

Houston Autism Disability Network

www.HADN.org

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Posted
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Serena, a young child shouldn't be working. They should be developing, which

involves sensory exploration. With wonderful intention we believe that we have

to intervene with ABA and control the child's development. I agree that they

aren't developing properly so intervention is vital. And don't get me wrong, we

used Spectrum of Hope and they SAVED US!!! It was vital....but there is so

much avail and it seems the world isn't sharing all that's available so that

parents can make decisions depending on where the child is as to what to choose

next. Texas in particular seems to be an ABA state.

Understanding how the human develops should play a factor in what therapy you

choose.

Typical kids get to play, choose, and explore. Yes our kids can't (yet), but

they are still human. Just because they are inflammed and not taking in

sensory info properly doesn't mean we shouldn't still consider how a human

develops.

We worked intensively and hard with Tyler. But we also followed his cues.

When a person is shutting down or being turned off. Nothing is being

accomplished. I found that a balance of both approaches was very good for our

family. I was a force of nature....but I also learned to join my son, listen

to him, and build upon where he was....rather than approaching him with what I

HAD determined or a BCBA had determined should be his next step. We'd all be

PISSED if someone approached us in this way.

Proably too much to explain over an email.

> > > > > > > >

> > > > > > > > Hi there. My son has been casein free (which he'll

always be because of multiple issues with milk) for 18 months, gluten free for

14 months, and soy free for 8 months. I've also eliminated most (if not all) of

the artificial colors.

> > > > > > > >

> > > > > > > > I'm VERY close to waiving the white flag with the gluten & soy.

was tested for issues with gluten and had none (before we went gf). He

was also tested for yeast issues by a DAN! doctor and had none. We've seen

absolutely no improvement in the past year, and actually saw a huge regression

the first month of the diet which we are still reeling from. I don't think that

it was due to the diet, but it's impossible t

> >

>

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Posted
Posted

I couldn't agree with you more, . We're not removing/reducing sugar because

of his current attitude toward therapy, but because we are hoping it'll actually

make a good impact on his digestive system, and hopefully his entire well-being.

But I do agree with you, and worry sometimes about parents of autistic children

who are only children, as it could be harder for them to distinguish between

what might be completely typical behavior for that age as opposed to something

that's been triggered by some sort of infraction to their diet, etc. Generally

speaking, because is so low key, I cheer him on when he has a " tantrum. "

I have two older girls, and I'm not sure a week went by when they were three

that there wasn't a temper tantrum being thrown in the O'Malley house.

Serena

>

> I don't usually respond...but did want to add something here. As parents of

children with special needs we often forget/ignore that our children also go

through developmental spurts/plateaus/etc. They have opinions too (something we

also overlook). My 7 yr old typically developing daughter is more of an eating

problem than my 11 yr old son with autism. Also...his interests change, moods

change, etc and don't always have to be attributed to something (food, vitamin

deficiency). Sometimes they lay on the floor because they're bored, tired,

lazy...whatever.

>

> Sent from my iPhone

>

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Serena I understand all your thoughts. The only thing I feel compelled to share

having gone through all of this is to stay open. What might seem like a bad

idea now...may be perfect at a later time.

We too could only send one parent. Many things can get in the way....

All you can do is keep evaluating and stay open. If ABA is working..awesome.

If you hit a wall...you know there is more out there.

Son-Rise was extremely challenging to run. Much harder than taking a child to

an ABA center. But the gift that came back was that we the parents paved a

path for our son. The skills that I acquired in running the whole thing are

truly a gift personally and professionally.

Stay open....lots of surprises come along the way. You'll find yourself

cracking up as you navigate...all the twists and turns. I could never have

predicted our twisted path.

Stay open, and each step of the way you'll make the necessary adjustments.

You've done a beautiful job thus far! Oh and I have a fabulous outreach

facilitator to send your way next if the time arises. She's amazing and we had

her here every 3 months to help me keep my team going in the right direction.

> > > > > > >

> > > > > > > Hi there. My son has been casein free (which he'll always

be because of multiple issues with milk) for 18 months, gluten free for 14

months, and soy free for 8 months. I've also eliminated most (if not all) of the

artificial colors.

> > > > > > >

> > > > > > > I'm VERY close to waiving the white flag with the gluten & soy.

was tested for issues with gluten and had none (before we went gf). He

was also tested for yeast issues by a DAN! doctor and had none. We've seen

absolutely no improvement in the past year, and actually saw a huge regression

the first month of the diet which we are still reeling from. I don't think that

it was due to the diet, but it's impossible to know.

> > > > > > >

> > > > > > > It's become so difficult (not to mention expensive) to feed my

kiddo, who also has texture (no mushy, no cold, only drinks water) issues that

limit many foods, that it's breaking the bank and testing my sanity.

> > > > > > >

> > > > > > > Anyway, before we slowly add the gluten and soy back into the

diet, I wanted to take what I considered to be the next step in the diet and try

to reduce/eliminate sugar. I have a few questions and a few concerns. First, how

much sugar is " normal " and " acceptable " for a three year old, and what does

reduction/elimination of that normal amount mean? I'm not talking normal as in

the fattest state in the nation kind of normal, but I need to figure out what is

realistic and safe. Also, eliminating sugar will eliminate the very last of the

good edible motivators for ABA, and at a time where he doesn't seem to want to

work at all, losing good motivators is a bummer.

> > > > > > >

> > > > > > > For those who are reducing sugar AND who are seeing great results,

what is your child's daily sugar intake? How long after the reduction did you

see a result? I would happily stay on a diet that I saw ANY good outcome from,

but at this point, if something doesn't give, we'll be waving that flag and

restoring a little normalcy and ease around the O'Malley abode.

> > > > > > >

> > > > > > > For informational purposes, my son's diet consists of eggs, Ian's

fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded

chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf

sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies,

kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal,

Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf

french fries, corn, peas, Immaculate baking company cookies. The cookies are

used for therapy only. Oh, and he does eat the chewable calcium & multivitamin

gummies from Target. I would LOVE any help anyone who's done this can offer.

Thanks!!

> > > > > > >

> > > > > > > Serena O'Malley

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Serena: We did Son-Rise, then we did ABA, and then we did a program called Growing Minds. These are people who were at Son-Rise who saw that some kids needed more structure and started their own program down in Florida. Here is a link to their web site. http://www.autism-programs.com/sonrise.htm did well with the combination of both. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Sent: Friday, July 08, 2011 11:12 AMTo: Texas-Autism-Advocacy Subject: Re: Looking for help with sugar reduction/elimination Serena I understand all your thoughts. The only thing I feel compelled to share having gone through all of this is to stay open. What might seem like a bad idea now...may be perfect at a later time. We too could only send one parent. Many things can get in the way....All you can do is keep evaluating and stay open. If ABA is working..awesome. If you hit a wall...you know there is more out there. Son-Rise was extremely challenging to run. Much harder than taking a child to an ABA center. But the gift that came back was that we the parents paved a path for our son. The skills that I acquired in running the whole thing are truly a gift personally and professionally. Stay open....lots of surprises come along the way. You'll find yourself cracking up as you navigate...all the twists and turns. I could never have predicted our twisted path. Stay open, and each step of the way you'll make the necessary adjustments. You've done a beautiful job thus far! Oh and I have a fabulous outreach facilitator to send your way next if the time arises. She's amazing and we had her here every 3 months to help me keep my team going in the right direction.> > > > > > >> > > > > > > Hi there. My son has been casein free (which he'll always be because of multiple issues with milk) for 18 months, gluten free for 14 months, and soy free for 8 months. I've also eliminated most (if not all) of the artificial colors. > > > > > > > > > > > > > > I'm VERY close to waiving the white flag with the gluten & soy. was tested for issues with gluten and had none (before we went gf). He was also tested for yeast issues by a DAN! doctor and had none. We've seen absolutely no improvement in the past year, and actually saw a huge regression the first month of the diet which we are still reeling from. I don't think that it was due to the diet, but it's impossible to know. > > > > > > > > > > > > > > It's become so difficult (not to mention expensive) to feed my kiddo, who also has texture (no mushy, no cold, only drinks water) issues that limit many foods, that it's breaking the bank and testing my sanity. > > > > > > > > > > > > > > Anyway, before we slowly add the gluten and soy back into the diet, I wanted to take what I considered to be the next step in the diet and try to reduce/eliminate sugar. I have a few questions and a few concerns. First, how much sugar is " normal " and " acceptable " for a three year old, and what does reduction/elimination of that normal amount mean? I'm not talking normal as in the fattest state in the nation kind of normal, but I need to figure out what is realistic and safe. Also, eliminating sugar will eliminate the very last of the good edible motivators for ABA, and at a time where he doesn't seem to want to work at all, losing good motivators is a bummer. > > > > > > > > > > > > > > For those who are reducing sugar AND who are seeing great results, what is your child's daily sugar intake? How long after the reduction did you see a result? I would happily stay on a diet that I saw ANY good outcome from, but at this point, if something doesn't give, we'll be waving that flag and restoring a little normalcy and ease around the O'Malley abode. > > > > > > > > > > > > > > For informational purposes, my son's diet consists of eggs, Ian's fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little gf/cf/sf sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life cookies, kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice chex cereal, Brother's All Natural freeze dried fruit (apples, bananas & pears), gf/cf/sf french fries, corn, peas, Immaculate baking company cookies. The cookies are used for therapy only. Oh, and he does eat the chewable calcium & multivitamin gummies from Target. I would LOVE any help anyone who's done this can offer. Thanks!!> > > > > > > > > > > > > > Serena O'Malley> > > > > > >> > > > > >> > > > >> > > >> > >> >>

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Hilda, did you do the 5 day intensive program in Florida with ? Do you

know about how much it costs to do that? Having a Son-Rise type of a program

that could work well with my existing in-home ABA program would certainly be

more ideal than having two conflicting programs.

Serena

> > > > > > > >

> > > > > > > > Hi there. My son has been casein free (which he'll

> always be because of multiple issues with milk) for 18 months, gluten free

> for 14 months, and soy free for 8 months. I've also eliminated most (if not

> all) of the artificial colors.

> > > > > > > >

> > > > > > > > I'm VERY close to waiving the white flag with the gluten &

> soy. was tested for issues with gluten and had none (before we went

> gf). He was also tested for yeast issues by a DAN! doctor and had none.

> We've seen absolutely no improvement in the past year, and actually saw a

> huge regression the first month of the diet which we are still reeling from.

> I don't think that it was due to the diet, but it's impossible to know.

> > > > > > > >

> > > > > > > > It's become so difficult (not to mention expensive) to feed my

> kiddo, who also has texture (no mushy, no cold, only drinks water) issues

> that limit many foods, that it's breaking the bank and testing my sanity.

> > > > > > > >

> > > > > > > > Anyway, before we slowly add the gluten and soy back into the

> diet, I wanted to take what I considered to be the next step in the diet and

> try to reduce/eliminate sugar. I have a few questions and a few concerns.

> First, how much sugar is " normal " and " acceptable " for a three year old, and

> what does reduction/elimination of that normal amount mean? I'm not talking

> normal as in the fattest state in the nation kind of normal, but I need to

> figure out what is realistic and safe. Also, eliminating sugar will

> eliminate the very last of the good edible motivators for ABA, and at a time

> where he doesn't seem to want to work at all, losing good motivators is a

> bummer.

> > > > > > > >

> > > > > > > > For those who are reducing sugar AND who are seeing great

> results, what is your child's daily sugar intake? How long after the

> reduction did you see a result? I would happily stay on a diet that I saw

> ANY good outcome from, but at this point, if something doesn't give, we'll

> be waving that flag and restoring a little normalcy and ease around the

> O'Malley abode.

> > > > > > > >

> > > > > > > > For informational purposes, my son's diet consists of eggs,

> Ian's fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded

> chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little

> gf/cf/sf sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life

> cookies, kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice

> chex cereal, Brother's All Natural freeze dried fruit (apples, bananas &

> pears), gf/cf/sf french fries, corn, peas, Immaculate baking company

> cookies. The cookies are used for therapy only. Oh, and he does eat the

> chewable calcium & multivitamin gummies from Target. I would LOVE any help

> anyone who's done this can offer. Thanks!!

> > > > > > > >

> > > > > > > > Serena O'Malley

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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Serena:Because we had our Son-Rise intensive, we got to skip that step and just do the long distance training. They have the fees on their site. who worked there (hopefully she still does) actually worked with at the intensive program at Son-Rise. They are wonderful people to work with. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of omalleyfamily1Sent: Friday, July 08, 2011 5:38 PMTo: Texas-Autism-Advocacy Subject: Re: Looking for help with sugar reduction/elimination Hilda, did you do the 5 day intensive program in Florida with ? Do you know about how much it costs to do that? Having a Son-Rise type of a program that could work well with my existing in-home ABA program would certainly be more ideal than having two conflicting programs.Serena> > > > > > > >> > > > > > > > Hi there. My son has been casein free (which he'll> always be because of multiple issues with milk) for 18 months, gluten free> for 14 months, and soy free for 8 months. I've also eliminated most (if not> all) of the artificial colors. > > > > > > > > > > > > > > > > I'm VERY close to waiving the white flag with the gluten & > soy. was tested for issues with gluten and had none (before we went> gf). He was also tested for yeast issues by a DAN! doctor and had none.> We've seen absolutely no improvement in the past year, and actually saw a> huge regression the first month of the diet which we are still reeling from.> I don't think that it was due to the diet, but it's impossible to know. > > > > > > > > > > > > > > > > It's become so difficult (not to mention expensive) to feed my> kiddo, who also has texture (no mushy, no cold, only drinks water) issues> that limit many foods, that it's breaking the bank and testing my sanity. > > > > > > > > > > > > > > > > Anyway, before we slowly add the gluten and soy back into the> diet, I wanted to take what I considered to be the next step in the diet and> try to reduce/eliminate sugar. I have a few questions and a few concerns.> First, how much sugar is " normal " and " acceptable " for a three year old, and> what does reduction/elimination of that normal amount mean? I'm not talking> normal as in the fattest state in the nation kind of normal, but I need to> figure out what is realistic and safe. Also, eliminating sugar will> eliminate the very last of the good edible motivators for ABA, and at a time> where he doesn't seem to want to work at all, losing good motivators is a> bummer. > > > > > > > > > > > > > > > > For those who are reducing sugar AND who are seeing great> results, what is your child's daily sugar intake? How long after the> reduction did you see a result? I would happily stay on a diet that I saw> ANY good outcome from, but at this point, if something doesn't give, we'll> be waving that flag and restoring a little normalcy and ease around the> O'Malley abode. > > > > > > > > > > > > > > > > For informational purposes, my son's diet consists of eggs,> Ian's fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded> chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little> gf/cf/sf sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy life> cookies, kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice> chex cereal, Brother's All Natural freeze dried fruit (apples, bananas & > pears), gf/cf/sf french fries, corn, peas, Immaculate baking company> cookies. The cookies are used for therapy only. Oh, and he does eat the> chewable calcium & multivitamin gummies from Target. I would LOVE any help> anyone who's done this can offer. Thanks!!> > > > > > > > > > > > > > > > Serena O'Malley> > > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >>

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Serena/Hilda, we kinda did the same thing. We had a strong ABA background and

never lost that part of things. When we were in the room we did Son-Rise.

When out of the room, we had more of an ABA structure to function as a family.

I mean you can't go around joining all the time. Once we knew more, we started

doing a lot of non verbal, higher social stuff in and out of the room.

Once I took a video of what we were doing to Massachusettes to get video

critique. I was doing " it alllllll wrong. " I guess I never did fully loose

my ABA background. Who cares....what matters is what worked for my son.

Serena, you know it's ok to do ABA for awhile to get habits in place that you

need to help his healing/biomedical. Then drop it for awhile and join him and

see if this helps his immune system and gives time for his brain to fire

differently.

There is no right way. But it might be confusing for you and your child to try

and do both at the same time.

Homeopathy people say that you can't do biomed with homeopathy....well I broke

that rule too.

I basically combined many things together in the way that worked for our family.

> > > > > > > > >

> > > > > > > > > Hi there. My son has been casein free (which he'll

> > always be because of multiple issues with milk) for 18 months, gluten free

> > for 14 months, and soy free for 8 months. I've also eliminated most (if

> not

> > all) of the artificial colors.

> > > > > > > > >

> > > > > > > > > I'm VERY close to waiving the white flag with the gluten &

> > soy. was tested for issues with gluten and had none (before we

> went

> > gf). He was also tested for yeast issues by a DAN! doctor and had none.

> > We've seen absolutely no improvement in the past year, and actually saw a

> > huge regression the first month of the diet which we are still reeling

> from.

> > I don't think that it was due to the diet, but it's impossible to know.

> > > > > > > > >

> > > > > > > > > It's become so difficult (not to mention expensive) to feed

> my

> > kiddo, who also has texture (no mushy, no cold, only drinks water) issues

> > that limit many foods, that it's breaking the bank and testing my sanity.

> > > > > > > > >

> > > > > > > > > Anyway, before we slowly add the gluten and soy back into

> the

> > diet, I wanted to take what I considered to be the next step in the diet

> and

> > try to reduce/eliminate sugar. I have a few questions and a few concerns.

> > First, how much sugar is " normal " and " acceptable " for a three year old,

> and

> > what does reduction/elimination of that normal amount mean? I'm not

> talking

> > normal as in the fattest state in the nation kind of normal, but I need to

> > figure out what is realistic and safe. Also, eliminating sugar will

> > eliminate the very last of the good edible motivators for ABA, and at a

> time

> > where he doesn't seem to want to work at all, losing good motivators is a

> > bummer.

> > > > > > > > >

> > > > > > > > > For those who are reducing sugar AND who are seeing great

> > results, what is your child's daily sugar intake? How long after the

> > reduction did you see a result? I would happily stay on a diet that I saw

> > ANY good outcome from, but at this point, if something doesn't give, we'll

> > be waving that flag and restoring a little normalcy and ease around the

> > O'Malley abode.

> > > > > > > > >

> > > > > > > > > For informational purposes, my son's diet consists of eggs,

> > Ian's fish sticks, Ian's chicken nuggets, Ian's Mac & no cheese, unbreaded

> > chicken/turkey/ham, rice, gf/cf/sf pasta with hamburger meat & a little

> > gf/cf/sf sauce, glutino pretzels, fritos, enjoy life cereal bars, enjoy

> life

> > cookies, kinnikinnik cookies, the occasional udi's bread/bagel, kix/rice

> > chex cereal, Brother's All Natural freeze dried fruit (apples, bananas &

> > pears), gf/cf/sf french fries, corn, peas, Immaculate baking company

> > cookies. The cookies are used for therapy only. Oh, and he does eat the

> > chewable calcium & multivitamin gummies from Target. I would LOVE any help

> > anyone who's done this can offer. Thanks!!

> > > > > > > > >

> > > > > > > > > Serena O'Malley

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

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