Guest guest Posted May 24, 1999 Report Share Posted May 24, 1999 In a message dated 5/24/99 3:55:58 PM Central Daylight Time, ronny@... writes: << . Alcohol is also ill-advised for chiarians, >> Really? What is the reasoning on that? That is news to me. Alot say they get relief from a few beers. Just wondering! Love, ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 1999 Report Share Posted May 24, 1999 Maybe because it dulls the senses, that's why IM sit-in here sipping on a glass of Riesling! And I want to dull everything for at least an hour. I haven't drank in years!!!!!!!!!!!!!!! but when I did it was only 1 or 2 Max! every now and then, but I always made sure it was a " Good " bottle of wine I bought, so I went and got me a bottle of St. Resiling my favorite, when I could ride a bike (when we lived in Seattle) I used to ride there with my husband to that Winery. All I know is, IM enjoying the hell out of it right at this moment, cant breath,cant eat, cant swallow, cant see, so might as well sip some wine. Dawn ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 1999 Report Share Posted May 25, 1999 Dawn, I do not blame you for wanting to have a couple in your situation! But a word of caution based on my own experience, we with chiari need to remember that alcohol affects the same part of our brain that our chiari does. If you notice alot of people talk about feeling drunk when they haven't even had a drink, for myself alcohol really exagerates my symptoms. I can have two drinks and blackout where someone without chiari can have ten and be fine. This is just how MY body reacts, not saying don't drink, just saying be careful. I am sure that many can drink and not have the problem I do. Randi ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 1999 Report Share Posted May 25, 1999 Dear Dawn, It is not just pain that alchohol helps. For those of us with S/M twitches (muscle spasms), that always set in late at night, just when you are ready for sleep, then a good Cab Sav does the trick.Shiraz is fine too, though I really enjoy a Gewerztraminer, prefably from Alsace. ..75 of a bottle of decent quality is enough, however a full bottle I the Chiari symptons get a bit much.(gently staggering to bed tee hee) White wine does not work quite as well as red, beer works less than any wine and Gin/Tonic keeps twitching all night long. The alternative seems to be sleeping tabs and thats probably worse than drinking. How many S/M twitchers are there out there. Regards from Manchester the one in UK not NH PS riding a bicycle is a great way to get back, whether its otside or indoors on the turbo with the computer, pulse monitor and the Eagles blasting " Take it Easy " ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 1999 Report Share Posted May 25, 1999 randi I have to laugh to your genuine concern(thankyou), but IM talking 1(ONE) glass of wine in 5 YEARS!, OK, I am the most anti-everything person you will probably ever meet, I take less medication than probably 75% of our own members, and drink Carrot juice and protein shakes, but I definitely think if alcohol or even Pot! helps people once in a while then go for it. I do realize you mean well OK, just struck me funny, cause you don't know me and IM the biggest Woos! that ever lived, when it comes to anything alcoholic or Narcotic or otherwise and I live with Massive! Pain from my ACM and SM. and SC, but I do live with it. Just wanted to let you know. Peace Dawn (drunk on life,ha,ha,ha,ha) ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 1999 Report Share Posted May 25, 1999 > > White wine does not work quite as well as red, beer works less than any wine >and Gin/Tonic keeps twitching all night long. > Odd isn't it how we all differ in how we react. I also have increased tone which manifests itself both in severe spasms and the exasperating twitches. Aside from baclofen, which I take 40-60mg a couple of hours before bed when I do choose to have a drink (and I have to admit it is not that common) I usually choose a nice wine or a rum and coke. I occasionally will open the Bushmills with Mark just to be sociable (but I am not yet used to the taste of Irish whiskey). I get sick with vodka, but anything with rum in it I can drink till the cows come home. It tends to calm the twitches down, but of course I never combine the two therapies...if I take the drink, I lay off the pills and vice versa. I guess everyone has to find there own way of dealing with things. Hang in there everyone Darlene " A man is what he thinks about all day long. " World ACM Association... http://www.pressenter.com/~wacma/ ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 1999 Report Share Posted May 25, 1999 At 06:23 PM 5/25/1999 -0400, Darlene Long wrote: >but of course I never combine the two therapies...if I take >the drink, I lay off the pills and vice versa. Well that kinda sucks all the fun out of it, don'cha think? Where's your sense of adventure, Dar? btw - None of that wine and fancy drugs for me. I guess I'm not as sophisticated as the rest of you (if you haven't figured that out yet). I'm perfectly content with a case of beer and a bag o' pot. And some anti-depressants just for a lark. bt other w - WACMA certainly DOES NOT condone these actions under any circumstances!!!! This sort of relaxation is not recommended whatsoever (said the bloody hypocrate). Use a little pot, OR a little alcohol, OR your doctor's prescribed meds taken as directed, whatever works best to help alleviate your symptoms, but, as Darlene says, not all of the above :-) ronny World ACM Association http://www.pressenter.com/~wacma ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 1999 Report Share Posted May 26, 1999 << but I have found some of them little brown mushrooms out back makes me feel real happy. Sometimes I am a king and somtimes I am dragon and sometimes an eagle. But they sure do make your belly hurt, and as big as I am that is a lot of pain :-) >> oh scott (shivers ) ....do you think those tiny ones with purple gills (and bruse purple when i cut em up) , will do the same thing ( maybe even without the stomache upsets ??) i found bunches on the golf course last week, and the kids have all be running around town with huge grins on their faces.... ever since they talked me out of using em in the quiche , they did say they had something better in mind for em !! could that be why they made me tear the closet apart for the litmus paper ?? by the way , i cant find my wild patch of ginsing now either , do you think it grows in these western piney forests ?? sarah in paradise ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 1999 Report Share Posted May 26, 1999 Here in the hills we don't have the opportunity to go to the doctor and get medicine like you'all in the cities. I never was one to smoke so that leaves out any of them left-handed ciggeretts, but I have found some of them little brown mushrooms out back makes me feel real happy. Sometimes I am a king and somtimes I am dragon and sometimes an eagle. But they sure do make your belly hurt, and as big as I am that is a lot of pain :-) Here in the hills not really eating mushrooms, Hillbilly ---------- > > To: chiariegroups > Subject: Re: Alchohol and pain > Date: Wednesday, May 26, 1999 12:04 AM > > At 06:23 PM 5/25/1999 -0400, Darlene Long wrote: > > >but of course I never combine the two therapies...if I take > >the drink, I lay off the pills and vice versa. > > Well that kinda sucks all the fun out of it, don'cha think? Where's your > sense of adventure, Dar? > > btw - None of that wine and fancy drugs for me. I guess I'm not as > sophisticated as the rest of you (if you haven't figured that out yet). I'm > perfectly content with a case of beer and a bag o' pot. And some > anti-depressants just for a lark. > > bt other w - WACMA certainly DOES NOT condone these actions under any > circumstances!!!! This sort of relaxation is not recommended whatsoever > (said the bloody hypocrate). > > Use a little pot, OR a little alcohol, OR your doctor's prescribed meds > taken as directed, whatever works best to help alleviate your symptoms, > but, as Darlene says, not all of the above :-) > > > ronny > World ACM Association http://www.pressenter.com/~wacma > > ------------------------------------------------------------------------ > > eGroups.com home: /group/chiari > - Simplifying group communications > > > > ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 1999 Report Share Posted May 26, 1999 Hi , How are ya feeling? We had our surgeries at around the same time, just want to compare notes. I am having some headaches and panic stuff, which is more due to my goofy family than chiari, but I do remind myself every day how bad it was pre surgery so I don't get too caught up in being upset over not feelin ALL BETTER now. I've been thinkin about ya and just wanted to wish you well!!! Careful with those mushrooms, now! :} lol Love, Randi ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 1999 Report Share Posted May 28, 1999 Hi Everybody, How are you? , I want to know that too. News to me too......and my doctors do know that I go out and drink....they are not Fly by Night doctors either. lol Personally, I would think, off the top of my head, that the only people that Alcohol would be Ill Advised for would be Alcoholics. I am sure there is more though. Take Care, Brande ><< . Alcohol is also > ill-advised for chiarians, >> > >Really? What is the reasoning on that? That is news to me. Alot say they get >relief from a few beers. Just wondering! > >Love, > --== Sent via Deja.com http://www.deja.com/ ==-- Share what you know. Learn what you don't. ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
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