Guest guest Posted May 19, 1999 Report Share Posted May 19, 1999 Kathy Wow... that's not the way it has ever worked for me. I could lay down...and after a few minutes be sitting straight up in bed..because the pressure was so bad in my head I thought it would explode. Oh well. When it comes to exceptions to the rule I'm usually one. That's interesting though. Is that the way it is for you? just curious. Donna ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 1999 Report Share Posted May 19, 1999 At 05:26 PM 5/19/1999 -0400, Moulton wrote: >He said with Chiari symptoms people get relief from laying down and feel >worse (arm/shoulder/neck pain) when standing. That is true for some. It was for me when my headaches were bad (it's a simple matter of gravity) - but there's a few hundred folks here who may tend to disagree. I think this doctor is a little out of date. You need to see someone who is more up to date on the current state of chiari research - or is at least willing to learn. ronny World ACM Association http://www.pressenter.com/~wacma ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 1999 Report Share Posted May 19, 1999 Hi Kathy, Just want you to know that my Chiari headache worsens significantly when I lie down... have been sleeping at 45 to 90 degree angle from horizontal to avoid this, for 2 years. Sandy ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 1999 Report Share Posted May 19, 1999 <004001bea23e$7a658c20$2853ded-@default> wrote: Original Article: /list/chiari/?start=17190 > I just wanted to add one more thing that he said today and if it's true, > then I'm probably out of the woods as far as ever needing to consult someone > else for my symptoms... > > He said with Chiari symptoms people get relief from laying down and feel > worse (arm/shoulder/neck pain) when standing. > > Kathy in Southern Maine (again.) Hi Kathy, I am pretty new to this chiari thing but I have a 7-8 mm herniation and this " is " my problem. I am not trying to tell you to go against your husband but you are the one having these problems and you know your body better than anyone else. YOU have to make the decision whether or not you want to go to another nsg, my recommendation is that you do. I personally could not sit with the first dx that my 1st neuro gave me and that was, " it was all psychological " . I know I couldn't make these symptoms up in my HEAD that they were there and nsg just didn't know enough about " CHIARI " so he gaffed it off as a psychological problem becoz' he has the " I am God " syndrome and couldn't figure it out on his own!!! If I sound a little crabby about this I am. I have heard from so many people the same story and it really upsets me that the NSG's can get by with this sort of thing. You, I and all of us here are PEOPLE and they need to treat us like PEOPLE. I sure hope that you do go to another nsg that is familiar with Chiari and I wish you the best of luck. Remember it is your body and you know it best!! Tina Albrecht > > > ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 1999 Report Share Posted May 19, 1999 I would like to say that with my son he is actually in more pain laying down than he is standing up. He cannot go to sleep without waking up with a headache, because he has been lying down. Just thought I'd let you know that I don't think that it is necessarily true about when relief comes. According to there is no relief. Moulton wrote: > I just wanted to add one more thing that he said today and if it's true, > then I'm probably out of the woods as far as ever needing to consult someone > else for my symptoms... > > He said with Chiari symptoms people get relief from laying down and feel > worse (arm/shoulder/neck pain) when standing. > > Kathy in Southern Maine (again.) > > ------------------------------------------------------------------------ > > eGroups.com home: /group/chiari > - Simplifying group communications ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 1999 Report Share Posted May 19, 1999 > He said with Chiari symptoms people get relief from laying down and feel > worse (arm/shoulder/neck pain) when standing. > > Kathy in Southern Maine (again.) I'm going to throw a wrench into the doctors theory. If I an in pain and I lie down, my symptoms do not get better. I do not get relief. And if I am in pain and my symptoms are kicking my butt, standing will do no good either. The only way I get relief after I lie down, is when I have taken my drugs and they are taking effect ;-) lololol Connie ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 1999 Report Share Posted May 19, 1999 Rick has always felt better sleeping sitting up, in his easy chair. When he tries to sleep in bed, he usually ends of back in the chair by 2 a.m. Wendi wrote: Original Article: /list/chiari/?start=17194 > Kathy > Wow... that's not the way it has ever worked for me. I could lay down...and > after a few minutes be sitting straight up in bed..because the pressure was > so bad in my head I thought it would explode. Oh well. When it comes to > exceptions to the rule I'm usually one. That's interesting though. Is that > the way it is for you? just curious. > Donna > ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 1999 Report Share Posted May 20, 1999 In a message dated 5/19/99 8:09:47 PM Eastern Daylight Time, sleckel@... writes: << Just want you to know that my Chiari headache worsens significantly when I lie down... have been sleeping at 45 to 90 degree angle from horizontal to avoid this, for 2 years. >> Mine usally get worse too.....BUT that's IF i'm sleeping on a pillow! I've found that if I lay perfectly flat on the mattress with NO pillow then I can get to sleep in bed!! Atleast its worth a try...oh and I usually lay my head on the side that hurts too. And believe me I'm NOT one to sleep on my stomach but this has worked to atleast to get to sleep!!!!! Just my 2 cents worth Amy Jo ------------------------------------------------------------------------ eGroups.com home: /group/chiari - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
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