Guest guest Posted May 28, 2006 Report Share Posted May 28, 2006 http://ajrccm.atsjournals.org/cgi/content/full/161/2/646#SEC11 A history of "current" cigarette smoking at the time of diagnosis has been associated with improved survival- This finding remains unexplained Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Hi Gordon, Welcome home. I hope your trip was as wonderful as just saying Hawaii sounds.. I would love to go back. I ask my Dr when I was diagnosed if I have killed myself smoking, she said No they have no proof smoking has anything to do with ipf/pf BUT the chances of lung cancer is so much greater that I needed to quit. I thought about it and knew she was right. I however was very upset because I was sooo addicted . I did LOVE my ciggies..I surly don't need any other problems. So I don't think it is helping anything to continue. I think my God is pleased also. I know he helped me keep my mind while quitting the cigs, Just diagnosed with a fatal disease, moved out of my home of 40 yrs. can you say STRESS... I have prayed so much for everyone in this group. Gordon you take care of you. We all care...God Bless... Peggy 9/04 ipf spookandbeauPeggy 09/04 ipf My wife and I just returned from Hawaii. It's taken me two days to go through the postings since we left. My you folks are prolific!! I've just added my contact information. To all of you anti-smokers; there is significant evidence that smoking is " good " for people with IPF. It is becoming apparent that people with IPF that smoke tend to live longer than non-smokers. The Drs. don't understand why this is so and are extremely reluctant to admit it. Even Drs. can't think outside the box. They have been trained to believe that smoking is bad and that's all there is to it, hogwash. I don't believe that any doctor would HONESTLY say that cigarette smoke is responsible for ipf/pf. If this were true three quarters of the world would have this disease. Think back, it hasn't been that long since most people smoked. I was diagnosed 12/03, I am not on o2 My saturation levels have never gone below 93% even during rehab. Maybe the smoking is helping, maybe not. Sorry I just had to add some facts. Speculation isn't always a good thing. Gordon IPF 12/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 My theory on this is that smokers inhale very deeply taking in deep breaths. We all know the importance of deep breathing.. Sounds right to me.. -- cacklecathy@... 09/04 ipf http://ajrccm.atsjournals.org/cgi/content/full/161/2/646#SEC11 A history of " current " cigarette smoking at the time of diagnosis has been associated with improved survival- This finding remains unexplained Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Gordon...I guess there is one in every crowd and I'm it. I do not agree with your info on smoking and I refer back to your quote, "speculation isn't always a good thing". No need for us to debate it, just wanted to add my opinion. Sher ipf 5-06 Back from vacation My wife and I just returned from Hawaii. It's taken me two days to go through the postings since we left. My you folks are prolific!! I've just added my contact information. To all of you anti-smokers; there is significant evidence that smoking is "good" for people with IPF. It is becoming apparent that people with IPF that smoke tend to live longer than non-smokers. The Drs. don't understand why this is so and are extremely reluctant to admit it. Even Drs. can't think outside the box. They have been trained to believe that smoking is bad and that's all there is to it, hogwash. I don't believe that any doctor would HONESTLY say that cigarette smoke is responsible for ipf/pf. If this were true three quarters of the world would have this disease. Think back, it hasn't been that long since most people smoked. I was diagnosed 12/03, I am not on o2 My saturation levels have never gone below 93% even during rehab. Maybe the smoking is helping, maybe not. Sorry I just had to add some facts. Speculation isn't always a good thing.Gordon IPF 12/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 I would love to see this information....can you send it to the list? --Diane Quinlan dianequinlan@... scoliosis/PF/2004 To all of you anti-smokers; there is significant evidence that smoking is "good" for people with IPF. It is becoming apparent that people with IPF that smoke tend to live longer than non-smokers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Peggy; It could be the deep breathes. I believe it's the warm dry air, not neccisarily the smoke and all it's contents. Gordon ipf 12/03 Re: Back from vacation My theory on this is that smokers inhale very deeply taking in deep breaths. We all know the importance of deep breathing.. Sounds right to me..-- cacklecathy@... 09/04 ipf http://ajrccm.atsjournals.org/cgi/content/full/161/2/646#SEC11A history of "current" cigarette smoking at the time of diagnosis has been associated with improved survival- This finding remains unexplained Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Sher; I was trying to present another position that seems to have some credence. Gordon ipf 12/03 Back from vacation My wife and I just returned from Hawaii. It's taken me two days to go through the postings since we left. My you folks are prolific!! I've just added my contact information. To all of you anti-smokers; there is significant evidence that smoking is "good" for people with IPF. It is becoming apparent that people with IPF that smoke tend to live longer than non-smokers. The Drs. don't understand why this is so and are extremely reluctant to admit it. Even Drs. can't think outside the box. They have been trained to believe that smoking is bad and that's all there is to it, hogwash. I don't believe that any doctor would HONESTLY say that cigarette smoke is responsible for ipf/pf. If this were true three quarters of the world would have this disease. Think back, it hasn't been that long since most people smoked. I was diagnosed 12/03, I am not on o2 My saturation levels have never gone below 93% even during rehab. Maybe the smoking is helping, maybe not. Sorry I just had to add some facts. Speculation isn't always a good thing.Gordon IPF 12/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Gordon, It may be good for you.....but not for me. You see, I have developed Bronchiectasis in the end stage of this disease. Bronch causes your cilia to be ineffective or to collapse altogether. The walls of the bronchia become weak and mucus pools there. It becomes infected. I do 4 sets of 4 nebulizers a day and two sessions with a percussion vest. I am on antibiotics nearly all the time. I have coughed and sputtered until I have lost my voice and broken ribs. If I get within 50 feet of smoke, I go into spasms. I get asthmatic and loose my breath. I can not seem to get into a medical building without walking through smoke....this happened Saturday when I went to the hospital for bloodwork. A hospital employee in uniform and tagged sat on a bench which said 'no smoking' just puffing away. Had to walk right past her. It is not good for me in any way, yet I have to breathe it no matter what I do to avoid it. The doc told me that breathing second hand smoke as a child attributed to my lungs being receptive to fibrosis in the first place. So, I do not buy the theory or studies that say it is a good thing. If it is, it is at the expense of everybody around you. There, no more opinions from me. Joyce PF 1997 >> I would love to see this information....can you send it to the list?> > --> Diane Quinlan > dianequinlan@... > scoliosis/PF/2004> > To all of you anti-smokers; there > is significant evidence that smoking is "good" for people with IPF. It > is becoming apparent that people with IPF that smoke tend to live > longer than non-smokers.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 That well could be. But I don't really want to fight cancer. I am so PROUD of myself for being able to quit. It's been a year and 7 months now.. I'm lovin the smell of me. HA HA HA LOL Hubby does too. He quit about 15 years ago. He was a deep sea diver in the FAR past and they say smokers make good divers because of the deep breaths.. I don't know. I just feel sorry for anyone that smokes and wants so badly to quit but that monkey just won't get off your back.. My prayers are with Barb.. she's trying. God Bless, ...Peggy ipf 9/04 debra beckPeggy 09/04 ipf Peggy; It could be the deep breathes. I believe it's the warm dry air, not neccisarily the smoke and all it's contents. Gordon ipf 12/03 Re: Back from vacation My theory on this is that smokers inhale very deeply taking in deep breaths. We all know the importance of deep breathing.. Sounds right to me.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Well said Joyce, even when I smoked I could not stand the smell outside business buildings. janne5303Peggy 09/04 ipf Gordon, It may be good for you.....but not for me. You see, I have developed Bronchiectasis in the end stage of this disease. Bronch causes your cilia to be ineffective or to collapse altogether. The walls of the bronchia become weak and mucus pools there. It becomes infected. I do 4 sets of 4 nebulizers a day and two sessions with a percussion vest. I am on antibiotics nearly all the time. I have coughed and sputtered until I have lost my voice and broken ribs. If I get within 50 feet of smoke, I go into spasms. I get asthmatic and loose my breath. I can not seem to get into a medical building without walking through smoke....this happened Saturday when I went to the hospital for bloodwork. A hospital employee in uniform and tagged sat on a bench which said 'no smoking' just puffing away. Had to walk right past her. It is not good for me in any way, yet I have to breathe it no matter what I do to avoid it. The doc told me that breathing second hand smoke as a child attributed to my lungs being receptive to fibrosis in the first place. So, I do not buy the theory or studies that say it is a good thing. If it is, it is at the expense of everybody around you. There, no more opinions from me. Joyce PF 1997 > > I would love to see this information....can you send it to the list? > > -- > Diane Quinlan > dianequinlan@... > scoliosis/PF/2004 > > To all of you anti-smokers; there > is significant evidence that smoking is " good " for people with IPF. It > is becoming apparent that people with IPF that smoke tend to live > longer than non-smokers. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Gordon...yes I understand. I'm just of a different position. That's ok for all of us. Sher Back from vacation My wife and I just returned from Hawaii. It's taken me two days to go through the postings since we left. My you folks are prolific!! I've just added my contact information. To all of you anti-smokers; there is significant evidence that smoking is "good" for people with IPF. It is becoming apparent that people with IPF that smoke tend to live longer than non-smokers. The Drs. don't understand why this is so and are extremely reluctant to admit it. Even Drs. can't think outside the box. They have been trained to believe that smoking is bad and that's all there is to it, hogwash. I don't believe that any doctor would HONESTLY say that cigarette smoke is responsible for ipf/pf. If this were true three quarters of the world would have this disease. Think back, it hasn't been that long since most people smoked. I was diagnosed 12/03, I am not on o2 My saturation levels have never gone below 93% even during rehab. Maybe the smoking is helping, maybe not. Sorry I just had to add some facts. Speculation isn't always a good thing.Gordon IPF 12/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Diane; There is a message from cacklecathy posted last night that gives a web site from the American Thoracic Society/ European Respiratory Society. This paper has a lot of good info about ipf including the statement that current smokers at the time of diagnosis have longer life expectancy ( not an exact quote). Through the years I've read the same info in the New England Journal of Medicine and other reputible sites. Unfortunately I've given away all my copies of this info and will have to refind those sites. Gordon ipf 12/03 Re: Back from vacation I would love to see this information....can you send it to the list? --Diane Quinlan dianequinlan@... scoliosis/PF/2004 To all of you anti-smokers; there is significant evidence that smoking is "good" for people with IPF. It is becoming apparent that people with IPF that smoke tend to live longer than non-smokers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Joyce; I'm not suggesting that smoking is good for anybody, especially if you don't already smoke. I was merely trying to present information I have found. We shouldn't discount any valid info that may, or may not, be beneficial to some people. The knowledge base that are Drs. work off of is quite limited because of a lack of good research. It seems that there is now more research being done on ipf/pf and more relevant info will be found to help us. We all have to make decisions on the information we have. Gordon ipf 12/03 Re: Back from vacation Gordon, It may be good for you.....but not for me. You see, I have developed Bronchiectasis in the end stage of this disease. Bronch causes your cilia to be ineffective or to collapse altogether. The walls of the bronchia become weak and mucus pools there. It becomes infected. I do 4 sets of 4 nebulizers a day and two sessions with a percussion vest. I am on antibiotics nearly all the time. I have coughed and sputtered until I have lost my voice and broken ribs. If I get within 50 feet of smoke, I go into spasms. I get asthmatic and loose my breath. I can not seem to get into a medical building without walking through smoke....this happened Saturday when I went to the hospital for bloodwork. A hospital employee in uniform and tagged sat on a bench which said 'no smoking' just puffing away. Had to walk right past her. It is not good for me in any way, yet I have to breathe it no matter what I do to avoid it. The doc told me that breathing second hand smoke as a child attributed to my lungs being receptive to fibrosis in the first place. So, I do not buy the theory or studies that say it is a good thing. If it is, it is at the expense of everybody around you. There, no more opinions from me. Joyce PF 1997 >> I would love to see this information....can you send it to the list?> > --> Diane Quinlan > dianequinlan@... > scoliosis/PF/2004> > To all of you anti-smokers; there > is significant evidence that smoking is "good" for people with IPF. It > is becoming apparent that people with IPF that smoke tend to live > longer than non-smokers.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Gordon, I am sorry for that hateful sounding post. I am having some anger today. It is a beautiful holiday and I am stuck indoors with a pain and coughing. Just having a down day! No excuse! So, forgive me..o.k.? Joyce PF 1997> >> > I would love to see this information....can you send it to the list?> > > > --> > Diane Quinlan > > dianequinlan@ > > scoliosis/PF/2004> > > > To all of you anti-smokers; there > > is significant evidence that smoking is "good" for people with IPF. It > > is becoming apparent that people with IPF that smoke tend to live > > longer than non-smokers.> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Joyce; I didn't take it as hateful, you were just expressing your opinion. I know that non-smokers, especially former smokers, have a really hard time dealing with second hand smoke. If you don' apologize for not smoking I won't apologize for smoking. I pray that your day stars getting better. Today isn't about us, it's about the people that have given their lives so that we can disagree. God bless you and keep you in His loving embrace. Gordon ipf 12/03 Re: Back from vacation Gordon, I am sorry for that hateful sounding post. I am having some anger today. It is a beautiful holiday and I am stuck indoors with a pain and coughing. Just having a down day! No excuse! So, forgive me..o.k.? Joyce PF 1997> >> > I would love to see this information....can you send it to the list?> > > > --> > Diane Quinlan > > dianequinlan@ > > scoliosis/PF/2004> > > > To all of you anti-smokers; there > > is significant evidence that smoking is "good" for people with IPF. It > > is becoming apparent that people with IPF that smoke tend to live > > longer than non-smokers.> >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Gordon, That was such a sweet reply. God Bless You...Peggy 9/04 ipf debra beckPeggy 09/04 ipf Joyce; I didn't take it as hateful, you were just expressing your opinion. I know that non-smokers, especially former smokers, have a really hard time dealing with second hand smoke. If you don' apologize for not smoking I won't apologize for smoking. I pray that your day stars getting better. Today isn't about us, it's about the people that have given their lives so that we can disagree. God bless you and keep you in His loving embrace. Gordon ipf 12/03 Re: Back from vacation Gordon, I am sorry for that hateful sounding post. I am having some anger today. It is a beautiful holiday and I am stuck indoors with a pain and coughing. Just having a down day! No excuse! So, forgive me..o.k.? Joyce PF 1997 > > > > I would love to see this information....can you send it to the list? > > > > -- > > Diane Quinlan > > dianequinlan@ > > scoliosis/PF/2004 > > > > To all of you anti-smokers; there > > is significant evidence that smoking is " good " for people with IPF. It > > is becoming apparent that people with IPF that smoke tend to live > > longer than non-smokers. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 I can't refrain from dropping in my two cents. The article I read said smokers at the time of diag have a longer life expectancy IF THEY QUIT. Poss for the same reason pf with a known cause can lead to a longer life expect. Once again conflicting stories because they really don't know. Tom ipf 01-06 > > Diane; > There is a message from cacklecathy posted last night that gives a web site from the American Thoracic Society/ European Respiratory Society. This paper has a lot of good info about ipf including the statement that current smokers at the time of diagnosis have longer life expectancy ( not an exact quote). Through the years I've read the same info in the New England Journal of Medicine and other reputible sites. Unfortunately I've given away all my copies of this info and will have to refind those sites. > Gordon ipf 12/03 > Re: Back from vacation > > > I would love to see this information....can you send it to the list? > > -- > Diane Quinlan > dianequinlan@... > scoliosis/PF/2004 > > To all of you anti-smokers; there > is significant evidence that smoking is " good " for people with IPF. It > is becoming apparent that people with IPF that smoke tend to live > longer than non-smokers. > > > Quote Link to comment Share on other sites More sharing options...
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