Re: need help

[Guest guest]

My daughter was also born with a heart defect and I fought the Idea

of a tube at first. Her doctor finally conviced me to do it.

rapidly began to put on weight and was more aware of us and her

surrondings because she wasn't so tired from trying to eat. I won't

lie and say we had no problems with it we did. the tube came out

before the mickey button was placed and I had to incert a cathater

tube for the thirty minute drive to the hospital so they could place

a micky button sooner than they would have. I had to replace her tube

myself which wasn't hard but a bit scary the first time. skin can

grow up aroungd the button and has to be taken off by applying a

silver nitrate or the site becomes red and sore. This never bothered

unless I waited to long and it got red and sore before I

applied the stuff. there will be a scar after it is removed which for

lauren was six months after her heart repair. The scar looks like a

second belly button. had a hard time learning to take a bottle

again after surgery but there are things to do to help with that. I

would definatly place a tube again it made s life so much

easier while we were waiting for surgery. If YOu like you can give

your friend my Email Or you could email me and I would be happy to

anwser any questions she has. If you like you can email me and I will

give you my Phone number so she could call.

Jo Ann

>

> I know everyone is a big fan of breast feeding. I was 44 when I

had my daughter (mds) and my milk never came in. She went straight

to formula and has done great. I think it also helped me in knowing

exactly how much she was getting. She was small and they had me wake

her up ever two hours to feed her. At first it was one ounce and the

two and before long she was taking 4 ounces at each feeding. She

steadily gained weight and now is 14 months old and weighs almost 22

pounds.

>

> Sue

>

>

>

>

> Need help

>

>

> I have a friend that was actually my sons teaching therapist until

she had her son. He is DS and they are really struggling with

feedings. He does have a heart defect and as a result struggles with

feedings. She asked for advice and told it was ok to pass her

question to you guys. So this is what she wrote to us:

>

>

> The little guy just gets so tired when its time to eat that he is

not getting in enough calories even with the supplements we are

adding to the breast milk. He has gained only an ounce since we

brought him home almost three weeks ago. The dietician we saw at

Swedish last week changed his supplement recipe yet again. The

cardiologist put him on heart medication that is supposed to help his

heart to beat more efficiently so that its using less energy in hopes

that the energy would be used to eat and gain weight. These two

changes just started Friday afternoon/Saturday morning. So when we

went into the docs office for our weekly weigh in I expected to hear

that they would give him another week to adjust to the new recipe and

heart medication before making any decisions about putting in an NG

tube. Not so. The doc is giving Lincoln until Friday to either gain

weight or increase his intake to meet the minimum calorie amount.

>

> I am so torn. I hate the idea of a tube. I really don¢t want to

do this unless it is absolutely necessary. But I also want my son to

grow. He needs to grow as healthy and strong as possible in the next

few months before his surgery.

>

>

> Thank you for any help, and just so you are aware I will be

forwarding any advice I get on to her.

>

> Thank you so much!

> Angie

> _________________________________________________________________

> Connect and share in new ways with Windows Live.

> http://www.windowslive.com/share.html?

ocid=TXT_TAGHM_Wave2_sharelife_012008

>

>

[Guest guest]

Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it. Take care and let us know how you're doing.To: asthma Sent: Sat, July 24, 2010 7:50:14 AMSubject: need help

I am having a hard time, every morning I wake up I gasping for air. Not sure how much more of this i can take. I just did three treatments (xopenx) it made no relief. I have more meds at the pharmacy but have no strength to even get there now.Honestly, I just feel like closing my eyes and let the asthma have me. This is just too hard to fight.I am so miserable right now."Two like souls will inevitably attract themselves

like magnets"

[Guest guest]

   Don't you have someone to go and bring you your meds, hun? or perhaps a pharmacy who can deliver the meds at your home for free?? or consider maybe calling the ER or perhaps 911? DON'T LET GO!!!DON'T LET GO!! Life is a wonderful gift and we have to fight for it!... with nails and teeth if that's needed!.

 

Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it.

Take care and let us know how you're doing.

To: asthma

Sent: Sat, July 24, 2010 7:50:14 AMSubject: need help

 

I am having a hard time, every morning I wake up I gasping for air.  Not sure how much more of this i can take.  

I just did three treatments (xopenx) it made no relief.  I have more meds at the pharmacy but have no strength to even get there now.Honestly, I just feel like closing my eyes and let the asthma have me.  This is just too hard to fight.

I am so miserable right now. " Two like souls will inevitably attract themselves

like magnets "

[Guest guest]

Call the pharmacy and see if they have a suggestion. So many asthma

meds now have to be signed for by the patient that I don't know if a

friend or relative could pick up for you. In the " good old days, "

people who were too ill and alone to get their meds could have them

delivered by the pharmacy --and if the pharmacy didn't deliver, people

used to call for a taxi and the taxi would deliver them (of course,

you'd have to be well enough to pay for them). Being an asthmatic and

alone is scary. But don't let it get you down. Remember: asthma will

sap your strength and deprive you of sleep--and that's what wears you

down. --marty

On Saturday, July 24, 2010, at 12:52 PM, Ishia Alma Ruiz wrote:

>  

>    Don't you have someone to go and bring you your meds, hun? or

> perhaps a pharmacy who can deliver the meds at your home for free?? or

> consider maybe calling the ER or perhaps 911? DON'T LET GO!!!

> DON'T LET GO!! Life is a wonderful gift and we have to fight for

> it!... with nails and teeth if that's needed!.

>

>

>

> On Sat, Jul 24, 2010 at 8:18 AM, Canter

> wrote:

>

>  

>

>

> Kay, It sounds like you need to see your doctor or something. God love

> you, I'm having trouble with this heat so I can feel for you. I go out

> in the heated air for very long and it's like breathing through a

> straw. Today it's around 90 with humidity down some but it's just hot

> air and not much breeze. Oh well, trying to manage. Oh and my hubby's

> car ac doesn't work so it's hard to go in it.

> Take care and let us know how you're doing.

>

>

>

<image.tiff>

>

>

> To: asthma

> Sent: Sat, July 24, 2010 7:50:14 AM

> Subject: need help

>

>  

>

>

<image.tiff>

>

>

>

>

>

>

[Guest guest]

Marty!...   I live also alone, I can relate to that..

Call the pharmacy and see if they have a suggestion.  So many asthma meds now have to be signed for by the patient that I don't know if a friend or relative could pick up for you.  In the " good old days, " people who were too ill and alone to get their meds could have them delivered by the pharmacy --and if the pharmacy didn't deliver, people used to call for a taxi and the taxi would deliver them (of course, you'd have to be well enough to pay for them).  Being an asthmatic and alone is scary.  But don't let it get you down.  Remember:  asthma will sap your strength and deprive you of sleep--and that's what wears you down.  --marty

On Saturday, July 24, 2010, at 12:52  PM, Ishia Alma Ruiz wrote:

 

   Don't you have someone to go and bring you your meds, hun? or perhaps a pharmacy who can deliver the meds at your home for free?? or consider maybe calling the ER or perhaps 911? DON'T LET GO!!!

DON'T LET GO!! Life is a wonderful gift and we have to fight for it!... with nails and teeth if that's needed!.

 

Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it.

Take care and let us know how you're doing.

<image.tiff>

To: asthma

Sent: Sat, July 24, 2010 7:50:14 AM

Subject: need help

 

<image.tiff>

[Guest guest]

One of the symptoms of asthma is heartburn or other stomach problem

See the article at

http://www.webmd.com/news/20000726/stomachs-role-asthma

Or go our website and do a search for

stomach

You could be having stomach prolems which can have the same symptoms

as an asthma attack.

Sometimes I think I am having an asthma attack and I use my inhaler

but it does not work. But if I take an antacid I burp a lot and it

gets rid of the problem.

Or you may have sleep apnea which can wake you up and make you think

you are having an asthma attack.

Ora

On Sat, 24 Jul 2010 04:50:14 -0700 (PDT), Kay

wrote:

>I am having a hard time, every morning I wake up I gasping for air.  

>Not sure how much more of this i can take.  

>I just did three treatments (xopenx) it made no relief.  I have more meds at

the pharmacy but have no strength to even get there now.

>Honestly, I just feel like closing my eyes and let the asthma have me.  This is

just too hard to fight.

>I am so miserable right now.

>

>

> " Two like souls will inevitably attract themselves like magnets "

>

>

>

[Guest guest]

I've always been able to go pick up my Albuterol. And I sign a book at

the pharmacy. But there's no place to sign for the meds on the

doctor's written prescription. I'm intending on having my refills

shipped to me (I changed pharmacies, but it's a 70-mile round trip

drive to go get them)--so I wonder how they handle the patient's

signature. Maybe I won't be permitted to get them shipped to me. But

I intend to find out. This has been an enlightening group of posts.

Thanks everybody. --marty

On Saturday, July 24, 2010, at 02:38 PM, A Hill wrote:

> Over here, pharmacies will deliver, though usually to old people who

> cna't get to the pharmacy and who have absolutely no-one to  go for

> them (so, for example, they wouldn't deliver for my nanna, as she has

> my parents and sister, my uncle (her other son) and his wife, and my

> cousin and her hubby and kids, one of whom is 18 in less than 2 weeks,

> so always someone around to do it for her if she couldn't get out)

>

> As long as the slip has been signed by you, they will allow anyone to

> collect it - at uni once, the pharmacy had had to order in my

> inhalers, and I knew I'd not be home from work in time to go get them,

> so my flatmate took the prescription that I'd signed and got them for

> me

>

> Jenn

>

> Tha can tek t'lass outta Yorkshire...!

>  

> Don't brand me, don't classify me, don't tell me what to wear. I'll be

> who I want to be, and I'm proud to be me.

>

>

>

>

>

>

> Subject: Re: need help

> To: asthma

> Date: Saturday, 24 July, 2010, 19:32

>

> Call the pharmacy and see if they have a suggestion.  So many asthma

> meds now have to be signed for by the patient that I don't know if a

> friend or relative could pick up for you.  In the " good old days, "

> people who were too ill and alone to get their meds could have them

> delivered by the pharmacy --and if the pharmacy didn't deliver, people

> used to call for a taxi and the taxi would deliver them (of course,

> you'd have to be well enough to pay for them).  Being an asthmatic and

> alone is scary.  But don't let it get you down.  Remember:  asthma

> will sap your strength and deprive you of sleep--and that's what wears

> you down.  --marty

[Guest guest]

My mom and sister are here now. They went to CVS and picked up the albuterol solutions for me.I'm starting to feel better however this scary.I see the thoracic surgeon next week. About the lung biopsy.I haven't been out the house all day.I went to the front door and turned right back around.I'm trying to keep it together.Sent from my Verizon Wireless BlackBerrySender: asthma Date: Sat, 24 Jul 2010 09:52:08 -0700To: <asthma >ReplyTo: asthma Subject: Re: need help    Don't you have someone to go and bring you your meds, hun? or perhaps a pharmacy who can deliver the meds at your home for free?? or consider maybe calling the ER or perhaps 911? DON'T LET GO!!!DON'T LET GO!! Life is a wonderful gift and we have to fight for it!... with nails and teeth if that's needed!.On Sat, Jul 24, 2010 at 8:18 AM, Canter <cindyj503> wrote: Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it. Take care and let us know how you're doing.From: Kay <hottrinbago72_99>To: asthma Sent: Sat, July 24, 2010 7:50:14 AMSubject: need help I am having a hard time, every morning I wake up I gasping for air.  Not sure how much more of this i can take.  I just did three treatments (xopenx) it made no relief.  I have more meds at the pharmacy but have no strength to even get there now.Honestly, I just feel like closing my eyes and let the asthma have me.  This is just too hard to fight.I am so miserable right now. " Two like souls will inevitably attract themselveslike magnets "

[Guest guest]

Kay I know how hard this is for you right now. Have faith. Get the testing done. It will get better. Madeline http://health.groups.yahoo.com/group/Lungs_on_Vacation/

To: asthma Sent: Sat, July 24, 2010 7:50:14 AMSubject: need help

I am having a hard time, every morning I wake up I gasping for air.

Not sure how much more of this i can take.

I just did three treatments (xopenx) it made no relief. I have more meds at the pharmacy but have no strength to even get there now.

Honestly, I just feel like closing my eyes and let the asthma have me. This is just too hard to fight.

I am so miserable right now.

"Two like souls will inevitably attract themselves like magnets"

[Guest guest]

That's exactly what I fight with Ishia, nails and teeth, latch on and hold on tight. Kay I hope you're doing some better.To: asthma Sent: Sat, July 24, 2010 12:52:08 PMSubject: Re: need help

Don't you have someone to go and bring you your meds, hun? or perhaps a pharmacy who can deliver the meds at your home for free?? or consider maybe calling the ER or perhaps 911? DON'T LET GO!!!DON'T LET GO!! Life is a wonderful gift and we have to fight for it!... with nails and teeth if that's needed!.

On Sat, Jul 24, 2010 at 8:18 AM, Canter <cindyj503yahoo (DOT) com> wrote:

Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it.

Take care and let us know how you're doing.

From: Kay <hottrinbago72_ 99yahoo (DOT) com>To: asthmayahoogroups (DOT) com

Sent: Sat, July 24, 2010 7:50:14 AMSubject: need help

I am having a hard time, every morning I wake up I gasping for air. Not sure how much more of this i can take.

I just did three treatments (xopenx) it made no relief. I have more meds at the pharmacy but have no strength to even get there now.Honestly, I just feel like closing my eyes and let the asthma have me. This is just too hard to fight.

I am so miserable right now."Two like souls will inevitably attract themselves

like magnets"

[Guest guest]

I do understand. Not being able to breathe is scary. I had a mild scare yesterday at school. I was walking to class from my car in the warm air. I was running late and was walking pretty fast. By the time I got to class I was a bit winded. Then I got cologne. I had to go back out of the classroom and deal with it. When I can't breathe well and start coughing like that I get a bit of anxiety on top of it which sometimes makes the asthma worse. Try to keep as calm as possible even when you feel like totally freaking out.To: "asthma " <asthma >Sent: Sat, July 24, 2010 5:28:26 PMSubject: Re: need help

My mom and sister are here now. They went to CVS and picked up the albuterol solutions for me.I'm starting to feel better however this scary.I see the thoracic surgeon next week. About the lung biopsy.I haven't been out the house all day.I went to the front door and turned right back around.I'm trying to keep it together.Sent from my Verizon Wireless BlackBerryFrom: Ishia Alma Ruiz <paulbanks.chick@ gmail.com>

Sender: asthmayahoogroups (DOT) com

Date: Sat, 24 Jul 2010 09:52:08 -0700To: <asthmayahoogroups (DOT) com>ReplyTo: asthmayahoogroups (DOT) com

Subject: Re: need help

Don't you have someone to go and bring you your meds, hun? or perhaps a pharmacy who can deliver the meds at your home for free?? or consider maybe calling the ER or perhaps 911? DON'T LET GO!!!DON'T LET GO!! Life is a wonderful gift and we have to fight for it!... with nails and teeth if that's needed!.

On Sat, Jul 24, 2010 at 8:18 AM, Canter <cindyj503yahoo (DOT) com> wrote:

Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it.

Take care and let us know how you're doing.

From: Kay <hottrinbago72_ 99yahoo (DOT) com>To: asthmayahoogroups (DOT) com

Sent: Sat, July 24, 2010 7:50:14 AMSubject: need help

I am having a hard time, every morning I wake up I gasping for air. Not sure how much more of this i can take.

I just did three treatments (xopenx) it made no relief. I have more meds at the pharmacy but have no strength to even get there now.Honestly, I just feel like closing my eyes and let the asthma have me. This is just too hard to fight.

I am so miserable right now."Two like souls will inevitably attract themselves

like magnets"

[Guest guest]

Thank u all for the encouragement!I'm even more frustrated right now after not being able to go out all day and my cable tv (comcast) is not working.But I'm starting to feel the little wheezies LOL coming on again!Maybe because I'm so mad with the comcast folks! Been trying to get cable for a MONTH now. Between verizon and comcast I could scream! (If I had wind to scream I would)May not be a big deal but without the cable u can't get any darn regular channels (Sorry to vent)Just everything is aggravating me; guess if I could breath like a normal person I wouldn't feel like this.Thank u all again! And for letting me vent.Sent from my Verizon Wireless BlackBerrySender: asthma Date: Sat, 24 Jul 2010 18:43:05 -0700 (PDT)To: <asthma >ReplyTo: asthma Subject: Re: need help That's exactly what I fight with Ishia, nails and teeth, latch on and hold on tight. Kay I hope you're doing some better.From: Ishia Alma Ruiz <paulbanks.chickgmail>To: asthma Sent: Sat, July 24, 2010 12:52:08 PMSubject: Re: need help Don't you have someone to go and bring you your meds, hun? or perhaps a pharmacy who can deliver the meds at your home for free?? or consider maybe calling the ER or perhaps 911? DON'T LET GO!!!DON'T LET GO!! Life is a wonderful gift and we have to fight for it!... with nails and teeth if that's needed!.On Sat, Jul 24, 2010 at 8:18 AM, Canter <cindyj503yahoo (DOT) com> wrote: Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it. Take care and let us know how you're doing.From: Kay <hottrinbago72_ 99yahoo (DOT) com>To: asthmayahoogroups (DOT) comSent: Sat, July 24, 2010 7:50:14 AMSubject: need help I am having a hard time, every morning I wake up I gasping for air. Not sure how much more of this i can take. I just did three treatments (xopenx) it made no relief. I have more meds at the pharmacy but have no strength to even get there now.Honestly, I just feel like closing my eyes and let the asthma have me. This is just too hard to fight.I am so miserable right now."Two like souls will inevitably attract themselveslike magnets"

[Guest guest]

Sorry cindy u went through that! I HOPE YOU are feeling better.The same thing happens to me with the aniexty! That's the worst feeling. I am trying to keep it together LOLHugs KaySent from my Verizon Wireless BlackBerrySender: asthma Date: Sat, 24 Jul 2010 18:49:36 -0700 (PDT)To: <asthma >ReplyTo: asthma Subject: Re: need help I do understand. Not being able to breathe is scary. I had a mild scare yesterday at school. I was walking to class from my car in the warm air. I was running late and was walking pretty fast. By the time I got to class I was a bit winded. Then I got cologne. I had to go back out of the classroom and deal with it. When I can't breathe well and start coughing like that I get a bit of anxiety on top of it which sometimes makes the asthma worse. Try to keep as calm as possible even when you feel like totally freaking out.From: "hottrinbago72_99" <hottrinbago72_99>To: "asthma " <asthma >Sent: Sat, July 24, 2010 5:28:26 PMSubject: Re: need help My mom and sister are here now. They went to CVS and picked up the albuterol solutions for me.I'm starting to feel better however this scary.I see the thoracic surgeon next week. About the lung biopsy.I haven't been out the house all day.I went to the front door and turned right back around.I'm trying to keep it together.Sent from my Verizon Wireless BlackBerryFrom: Ishia Alma Ruiz <paulbanks.chick@ gmail.com>Sender: asthmayahoogroups (DOT) comDate: Sat, 24 Jul 2010 09:52:08 -0700To: <asthmayahoogroups (DOT) com>ReplyTo: asthmayahoogroups (DOT) comSubject: Re: need help Don't you have someone to go and bring you your meds, hun? or perhaps a pharmacy who can deliver the meds at your home for free?? or consider maybe calling the ER or perhaps 911? DON'T LET GO!!!DON'T LET GO!! Life is a wonderful gift and we have to fight for it!... with nails and teeth if that's needed!.On Sat, Jul 24, 2010 at 8:18 AM, Canter <cindyj503yahoo (DOT) com> wrote: Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it. Take care and let us know how you're doing.From: Kay <hottrinbago72_ 99yahoo (DOT) com>To: asthmayahoogroups (DOT) comSent: Sat, July 24, 2010 7:50:14 AMSubject: need help I am having a hard time, every morning I wake up I gasping for air. Not sure how much more of this i can take. I just did three treatments (xopenx) it made no relief. I have more meds at the pharmacy but have no strength to even get there now.Honestly, I just feel like closing my eyes and let the asthma have me. This is just too hard to fight.I am so miserable right now."Two like souls will inevitably attract themselveslike magnets"

[Guest guest]

Just know you are very much cared for. We all have to fight every day. We are here for you. BIG HUGS! Madeline http://health.groups.yahoo.com/group/Lungs_on_Vacation/

To: "asthma " <asthma >Sent: Sat, July 24, 2010 9:57:24 PMSubject: Re: need help

Sorry cindy u went through that! I HOPE YOU are feeling better.The same thing happens to me with the aniexty! That's the worst feeling. I am trying to keep it together LOLHugs Kay Sent from my Verizon Wireless BlackBerry

From: Canter <cindyj503yahoo (DOT) com>

Sender: asthmayahoogroups (DOT) com

Date: Sat, 24 Jul 2010 18:49:36 -0700 (PDT)

To: <asthmayahoogroups (DOT) com>

ReplyTo: asthmayahoogroups (DOT) com

Subject: Re: need help

I do understand. Not being able to breathe is scary. I had a mild scare yesterday at school. I was walking to class from my car in the warm air. I was running late and was walking pretty fast. By the time I got to class I was a bit winded. Then I got cologne. I had to go back out of the classroom and deal with it. When I can't breathe well and start coughing like that I get a bit of anxiety on top of it which sometimes makes the asthma worse. Try to keep as calm as possible even when you feel like totally freaking out.

From: "hottrinbago72_ 99yahoo (DOT) com" <hottrinbago72_ 99yahoo (DOT) com>To: "asthma@yahoogroups .com" <asthmayahoogroups (DOT) com>Sent: Sat, July 24, 2010 5:28:26 PMSubject: Re: need help

My mom and sister are here now. They went to CVS and picked up the albuterol solutions for me.I'm starting to feel better however this scary.I see the thoracic surgeon next week. About the lung biopsy.I haven't been out the house all day.I went to the front door and turned right back around.I'm trying to keep it together.

Sent from my Verizon Wireless BlackBerry

From: Ishia Alma Ruiz <paulbanks.chick@ gmail.com>

Sender: asthmayahoogroups (DOT) com

Date: Sat, 24 Jul 2010 09:52:08 -0700

To: <asthmayahoogroups (DOT) com>

ReplyTo: asthmayahoogroups (DOT) com

Subject: Re: need help

Don't you have someone to go and bring you your meds, hun? or perhaps a pharmacy who can deliver the meds at your home for free?? or consider maybe calling the ER or perhaps 911? DON'T LET GO!!!DON'T LET GO!! Life is a wonderful gift and we have to fight for it!... with nails and teeth if that's needed!.

On Sat, Jul 24, 2010 at 8:18 AM, Canter <cindyj503yahoo (DOT) com> wrote:

Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it. Take care and let us know how you're doing.

From: Kay <hottrinbago72_ 99yahoo (DOT) com>To: asthmayahoogroups (DOT) comSent: Sat, July 24, 2010 7:50:14 AMSubject: need help

I am having a hard time, every morning I wake up I gasping for air.

Not sure how much more of this i can take.

I just did three treatments (xopenx) it made no relief. I have more meds at the pharmacy but have no strength to even get there now.

Honestly, I just feel like closing my eyes and let the asthma have me. This is just too hard to fight.

I am so miserable right now.

"Two like souls will inevitably attract themselves like magnets"

[Guest guest]

I've been thinking about Kay's post because it really struck home with me. I

live by myself and my one near relative works in another state and is out of

state on weekends, so if I have to get somewhere it's up to me, no matter what I

feel like.

I have a couple of times asked a neighbor to pick up prescriptions at the

pharmacy when I was sick (I call the pharmacy in advance to okay this. Maybe

this only works because I knew the pharmacist, who has now left, alas, well so

she recognizes my voice, I dunno.) But the neighbor is often away also.

One thing I do is keep way stocked up on everything. Not only food, Kleenex,

regular prescriptions, OTC stuff, but also my pulmonologist has okayed my

keeping filled prescriptions at home of stuff I might need like Augmentin, just

in case he is out of town or its Christmas Eve or something when I get sick. Of

course, I know some will expire and be wasted.

There is a pharmacy that delivers, but only one day a week. I think I have to

ask my regular pharmacy what people do in a case like this, maybe they have some

provision.

How one gets to the doctor when one is contagious and too sick to drive, other

than calling 911, I don't know. I can't see asking someone to drive me when I'm

contagious.

[Guest guest]

After my lungs got over the initial "shock" of the cologne and got used to it, I was fine. This heat is getting to me though. It's 95 where I am in NE Tennessee. I'm coping ok as long as I stay where it's cool, but going outside in that heated air is rough. When church dismissed earlier, I got to the door and turned around. I said do I have to go out there? Our pastor laughed. He's the best. We'll hang on together.Hugs,From:

"hottrinbago72_99@..." To: "asthma " <asthma >Sent: Sat, July 24, 2010 9:57:24 PMSubject: Re: need help

Sorry cindy u went through that! I HOPE YOU are feeling better.The same thing happens to me with the aniexty! That's the worst feeling. I am trying to keep it together LOLHugs KaySent from my Verizon Wireless BlackBerryFrom: Canter <cindyj503yahoo (DOT) com>

Sender: asthmayahoogroups (DOT) com

Date: Sat, 24 Jul 2010 18:49:36 -0700 (PDT)To: <asthmayahoogroups (DOT) com>ReplyTo: asthmayahoogroups (DOT) com

Subject: Re: need help

I do understand. Not being able to breathe is scary. I had a mild scare yesterday at school. I was walking to class from my car in the warm air. I was running late and was walking pretty fast. By the time I got to class I was a bit winded. Then I got cologne. I had to go back out of the classroom and deal with it. When I can't breathe well and start coughing like that I get a bit of anxiety on top of it which sometimes makes the asthma worse. Try to keep as calm as possible even when you feel like totally freaking out.From: "hottrinbago72_

99yahoo (DOT) com" <hottrinbago72_ 99yahoo (DOT) com>To: "asthma@yahoogroups .com" <asthmayahoogroups (DOT) com>Sent: Sat, July 24, 2010 5:28:26 PMSubject: Re: need help

My mom and sister are here now. They went to CVS and picked up the albuterol solutions for me.I'm starting to feel better however this scary.I see the thoracic surgeon next week. About the lung biopsy.I haven't been out the house all day.I went to the front door and turned right back around.I'm trying to keep it together.Sent from my Verizon Wireless BlackBerryFrom: Ishia Alma Ruiz <paulbanks.chick@ gmail.com>

Sender: asthmayahoogroups (DOT) com

Date: Sat, 24 Jul 2010 09:52:08 -0700To: <asthmayahoogroups (DOT) com>ReplyTo: asthmayahoogroups (DOT) com

Subject: Re: need help

Don't you have someone to go and bring you your meds, hun? or perhaps a pharmacy who can deliver the meds at your home for free?? or consider maybe calling the ER or perhaps 911? DON'T LET GO!!!DON'T LET GO!! Life is a wonderful gift and we have to fight for it!... with nails and teeth if that's needed!.

On Sat, Jul 24, 2010 at 8:18 AM, Canter <cindyj503yahoo (DOT) com> wrote:

Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it.

Take care and let us know how you're doing.

From: Kay <hottrinbago72_ 99yahoo (DOT) com>To: asthmayahoogroups (DOT) com

Sent: Sat, July 24, 2010 7:50:14 AMSubject: need help

I am having a hard time, every morning I wake up I gasping for air. Not sure how much more of this i can take.

I just did three treatments (xopenx) it made no relief. I have more meds at the pharmacy but have no strength to even get there now.Honestly, I just feel like closing my eyes and let the asthma have me. This is just too hard to fight.

I am so miserable right now."Two like souls will inevitably attract themselves

like magnets"

[Guest guest]

It's not as hot here, but it's been really humid for over a week now. They often say that we get a diluted form of any extreme weather to hit the east coast of America about 3 weeks later! But this seems to be the same time. Humidity isn't uncommon here with us being an island, but it's rare for it to stay this long, at this level. It's now nearly 8pm here, and still nearly 20 degrees, a temperature that we don't reach that much usually.I have been feeling a bit more tight chested than usual, though not too bad. It's mild hayfever added in that's making it worse. I want to go sailing again - my chest felt great then! (though the boat I was on is currently docked in Central London, so it wouldn't make a difference!)JennTha can tek t'lass outta Yorkshire...! Don't brand me, don't classify me, don't tell me what to wear. I'll be who I want to be, and I'm proud to be me.

Kay, It sounds like you need to see your doctor or something. God love you, I'm having trouble with this heat so I can feel for you. I go out in the heated air for very long and it's like breathing through a straw. Today it's around 90 with humidity down some but it's just hot air and not much breeze. Oh well, trying to manage. Oh and my hubby's car ac doesn't work so it's hard to go in it.

Take care and let us know how you're doing.

From: Kay <hottrinbago72_ 99yahoo (DOT) com>To: asthmayahoogroups (DOT) com

Sent: Sat, July 24, 2010 7:50:14 AMSubject: need help

I am having a hard time, every morning I wake up I gasping for air. Not sure how much more of this i can take.

I just did three treatments (xopenx) it made no relief. I have more meds at the pharmacy but have no strength to even get there now.Honestly, I just feel like closing my eyes and let the asthma have me. This is just too hard to fight.

I am so miserable right now."Two like souls will inevitably attract themselves

like magnets"

[Guest guest]

kay you can get converter boxes that hook up to the tv so you can get digital channels. they cost about 40-60.00 and I think you can still get them at most of the big box stores. The only reason we got cable here was b/c we could get 3 channels downstairs and 3 channels upstairs and not the same 3.

Ann

need help

I am having a hard time, every morning I wake up I gasping for air.

Not sure how much more of this i can take.

I just did three treatments (xopenx) it made no relief. I have more meds at the pharmacy but have no strength to even get there now.

Honestly, I just feel like closing my eyes and let the asthma have me. This is just too hard to fight.

I am so miserable right now.

"Two like souls will inevitably attract themselves

like magnets"

[Guest guest]

>

> kay you can get converter boxes that hook up to the tv so you can get digital

channels. they cost about 40-60.00 and I think you can still get them at most

of the big box stores. The only reason we got cable here was b/c we could get 3

channels downstairs and 3 channels upstairs and not the same 3.

> Ann

Or you can dump your television altogether and save significant bucks that cable

costs. A lot of stuff is available in the web. I dumped my tv a couple of

years ago, and I'm happy saving money every month. There are only 2-3 things I

want to watch - 30 Rock, House, etc., and they're all on the web, usually on

hulu.com.

[Guest guest]

we have cable internet, so it wouldnt save us any money either way. we dont use a landline and dial up wouldnt really support watching tv online anyway from what my friends who have no cable/dsl internet available in their area yet say.

Plus, I like to watch the local news b/c the news websites here dont update their sites very well. On weekends, they dont update them with new news hardly at all...

Ann

Re: need help

>

> kay you can get converter boxes that hook up to the tv so you can get digital channels. they cost about 40-60.00 and I think you can still get them at most of the big box stores. The only reason we got cable here was b/c we could get 3 channels downstairs and 3 channels upstairs and not the same 3.

> Ann

Or you can dump your television altogether and save significant bucks that cable costs. A lot of stuff is available in the web. I dumped my tv a couple of years ago, and I'm happy saving money every month. There are only 2-3 things I want to watch - 30 Rock, House, etc., and they're all on the web, usually on hulu.com.

[Guest guest]

I used to pick up for residents of the assisted living I ran and relatives all the time. They used my drivers license instead of the person's that is all.

Re: need help

Call the pharmacy and see if they have a suggestion. So many asthma meds now have to be signed for by the patient that I don't know if a friend or relative could pick up for you. In the "good old days," people who were too ill and alone to get their meds could have them delivered by the pharmacy --and if the pharmacy didn't deliver, people used to call for a taxi and the taxi would deliver them (of course, you'd have to be well enough to pay for them). Being an asthmatic and alone is scary. But don't let it get you down. Remember: asthma will sap your strength and deprive you of sleep--and that's what wears you down. --marty

[Guest guest]

Thanks, . I only raised the point because it seems the pharmas

and/or new laws have us signing for so many 'scripts, now. I never

used to sign for my Albuterol and I've been on it for 24 yrs. Not only

that, but I used to be able to pick up all my refills at one time.

That saved me time and gasoline and gave me some security in case one

of them didn't work properly or was accidentally ruined. Now I can't

get a refill until 30 days have elapsed since I got my last one. That

causes me stress not to have another rescue inhaler if I need it.

--marty

>  

> I used to pick up for residents of the assisted living I ran and

> relatives all the time.  They used my drivers license instead of the

> person's that is all. 

>

>  

>  

> Re: need help

>

> Call the pharmacy and see if they have a suggestion. So many asthma

> meds now have to be signed for by the patient that I don't know if a

> friend or relative could pick up for you. In the " good old days, "

> people who were too ill and alone to get their meds could have them

> delivered by the pharmacy --and if the pharmacy didn't deliver, people

> used to call for a taxi and the taxi would deliver them (of course,

> you'd have to be well enough to pay for them). Being an asthmatic and

> alone is scary. But don't let it get you down. Remember: asthma will

> sap your strength and deprive you of sleep--and that's what wears you

> down. --marty

>

>

[Guest guest]

-- In asthma , Martha wrote:

>

> Thanks, . I only raised the point because it seems the pharmas

> and/or new laws have us signing for so many 'scripts, now. I never

> used to sign for my Albuterol and I've been on it for 24 yrs. Not only

> that, but I used to be able to pick up all my refills at one time.

> That saved me time and gasoline and gave me some security in case one

> of them didn't work properly or was accidentally ruined. Now I can't

> get a refill until 30 days have elapsed since I got my last one. That

> causes me stress not to have another rescue inhaler if I need it.

> --marty

I don't know if it's the law, but for some years the various insurance companies

I've had have refused to cover a refill of any med unless 25 days or something

like that) have elapsed since the last refill.

I try to refill them at 25 days for awhile, so I can wind up with one or two as

backup. I recently shelled out of my own pocket for a refill early to have a

backup.

[Guest guest]

I think this is a pretty standard practice of insurance companies. Mine has

always stated they will not honor a refill request until the date on which you

would have used up 75% of the present supply. That's true whether you get a

30-day or a 90-day supply at a time. If you have some kind of mishap, dropping

your med in a sinkful of water or leaving it behind when you vacate your hotel

or whatever, you can buy a replacement at your own expense and then negotiate

with customer service to see whether they will reimburse you for the

replacement.

I once had a half full Symbicort inhaler fly right out of my hand and into the

toilet while I was shaking it prior to use. Argggh!

Slats

> >

> > Thanks, . I only raised the point because it seems the pharmas

> > and/or new laws have us signing for so many 'scripts, now. I never

> > used to sign for my Albuterol and I've been on it for 24 yrs. Not only

> > that, but I used to be able to pick up all my refills at one time.

> > That saved me time and gasoline and gave me some security in case one

> > of them didn't work properly or was accidentally ruined. Now I can't

> > get a refill until 30 days have elapsed since I got my last one. That

> > causes me stress not to have another rescue inhaler if I need it.

> > --marty

>

>

> I don't know if it's the law, but for some years the various insurance

companies I've had have refused to cover a refill of any med unless 25 days or

something like that) have elapsed since the last refill.

>

> I try to refill them at 25 days for awhile, so I can wind up with one or two

as backup. I recently shelled out of my own pocket for a refill early to have a

backup.

>

[Guest guest]

> If you have some kind of mishap, dropping your med in a sinkful of water or

leaving it behind when you vacate your hotel or whatever, you can buy a

replacement at your own expense and then negotiate with customer service to see

whether they will reimburse you for the replacement.

>

> I once had a half full Symbicort inhaler fly right out of my hand and into the

toilet while I was shaking it prior to use. Argggh!

>

> Slats

Ha, ha, ha, ha. Okay, sorry. I've done the sink thing tho.