Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Hi Leanne, Boy I do understand dragging your feet. I've had about 10 surgeries one being a total hip at age 26 several other scary ones but this one I'm not looking forward to. And I think that is CRAZY. Oh well, I am off prednisone for a month now. still trying to get my body to understand NO MORE.. I hope this RA Dr can do something for the body and bone pain. It only hurts when I move. But ya gotta keep pushing. My tx Dr said he has had people on 10 to 14 L so try not to let it panic you. I'll be praying. God Bless and Keep you, Leanne, Peggy PS The lady is on the way here now with my new Inogen concentrator. I'm so excited. on 3/13/06 12:39 PM, Leanne at ls_pulmonaryfibrosis@... wrote: I've already gone through the testing process (over a year ago), but I had to lose 40 lbs. I've lost 10 so far but it is very slow going. I don't think my heart was into the whole transplant thing. I'm not sure it is yet or ever will be. My lung tx doc said he could get me listed now if I wanted. I freaked out. Said I want to try and wait until June or even September to get listed. (Can you tell I'm dragging my feet?) The funny thing is I've started to get worse. I've been holding my own for over a year at 4 litres now all of a sudden I'm pusing 5-6 litres and it's scaring me. I know that I'm grateful that this is even an option for me because I know so many people that it isn't. Peggy keep us posted on whether or not you have fibromyalgia and where you are in your journey. Prednisone sure makes losing weight extremely difficult. Are you weaned off of it yet? Joyce, what hospital are you going through for your eval? When my doc decided to get me tested, I was pretty much done in 2 days (total). Have you gone through pulmonary rehab yet? Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Leanne, sorry one more thing, what did you do in pulmonary rehab ? Peggy on 3/13/06 12:39 PM, Leanne at ls_pulmonaryfibrosis@... wrote: I've already gone through the testing process (over a year ago), but I had to lose 40 lbs. I've lost 10 so far but it is very slow going. I don't think my heart was into the whole transplant thing. I'm not sure it is yet or ever will be. My lung tx doc said he could get me listed now if I wanted. I freaked out. Said I want to try and wait until June or even September to get listed. (Can you tell I'm dragging my feet?) The funny thing is I've started to get worse. I've been holding my own for over a year at 4 litres now all of a sudden I'm pusing 5-6 litres and it's scaring me. I know that I'm grateful that this is even an option for me because I know so many people that it isn't. Peggy keep us posted on whether or not you have fibromyalgia and where you are in your journey. Prednisone sure makes losing weight extremely difficult. Are you weaned off of it yet? Joyce, what hospital are you going through for your eval? When my doc decided to get me tested, I was pretty much done in 2 days (total). Have you gone through pulmonary rehab yet? Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Yes, Leanne, I have been through rehab. Because my fibrosis is caused by Lupus .... therefore not IPF, it has been controlled somewhat by immunosuppresant drugs. It has been 8 years since diagnosis. I remained fairly stable until a couple of years ago. There has been gradual deterioration since then. I am in end stage. Like you, I am not ready to lay my life down right now for a chance at transplant. But, the evaluation will give us much more information. If I am accepted to the program, I will consider my options then. This is such an emotional roller coaster. Some days I have that exact feeling as when you crest that first big hill and speed downwards at breakneck speed. Then some days I am at peace knowing that God is in complete control and my worrying is doing no good at all. Hospital is Jewish in St. Louis. >> > I've already gone through the testing process (over a year ago), but > I had to lose 40 lbs. I've lost 10 so far but it is very slow > going. I don't think my heart was into the whole transplant thing. > I'm not sure it is yet or ever will be. My lung tx doc said he > could get me listed now if I wanted. I freaked out. Said I want to > try and wait until June or even September to get listed. (Can you > tell I'm dragging my feet?) The funny thing is I've started to get > worse. I've been holding my own for over a year at 4 litres now all > of a sudden I'm pusing 5-6 litres and it's scaring me. I know that > I'm grateful that this is even an option for me because I know so > many people that it isn't. > > Peggy keep us posted on whether or not you have fibromyalgia and > where you are in your journey. Prednisone sure makes losing weight > extremely difficult. Are you weaned off of it yet?> > Joyce, what hospital are you going through for your eval? When my > doc decided to get me tested, I was pretty much done in 2 days > (total). Have you gone through pulmonary rehab yet?> > Leanne> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Peggy, My prayers are with you as well. This is a tough disease, but we gotta hang strong and trust that God has a plan for all of us. LeannePeggy wrote: Hi Leanne, Boy I do understand dragging your feet. I've had about 10 surgeries one being a total hip at age 26several other scary ones but this one I'm not looking forward to. And I think that is CRAZY. Oh well, I am off prednisone for a month now. still trying to get my body to understand NO MORE.. I hope this RA Dr can do something for the body and bone pain. It only hurts when I move. But ya gotta keep pushing. My tx Dr said he has had people on 10 to 14 L so try not to let it panic you. I'll be praying. God Bless and Keep you, Leanne, Peggy PS The lady is on the way here now with my new Inogen concentrator. I'm so excited.on 3/13/06 12:39 PM, Leanne at ls_pulmonaryfibrosis@... wrote: I've already gone through the testing process (over a year ago), but I had to lose 40 lbs. I've lost 10 so far but it is very slow going. I don't think my heart was into the whole transplant thing. I'm not sure it is yet or ever will be. My lung tx doc said he could get me listed now if I wanted. I freaked out. Said I want to try and wait until June or even September to get listed. (Can you tell I'm dragging my feet?) The funny thing is I've started to get worse. I've been holding my own for over a year at 4 litres now all of a sudden I'm pusing 5-6 litres and it's scaring me. I know that I'm grateful that this is even an option for me because I know so many people that it isn't. Peggy keep us posted on whether or not you have fibromyalgia and where you are in your journey. Prednisone sure makes losing weight extremely difficult. Are you weaned off of it yet?Joyce, what hospital are you going through for your eval? When my doc decided to get me tested, I was pretty much done in 2 days (total). Have you gone through pulmonary rehab yet?Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Peggy, Are you buying your Inogen or is your insurance paying for it? How did you hear of it? I have never heard of it except on this site. Will you still have your old concentrator and tanks? Does it only pulse? Is that o.k. for everyday use? I am full of questions. I have pulled up some info but.....when you have gotten over your excitement... tell me all about it. I am glad you are seeing a rheumatologist. Mine works closely with my pulmonary doctor and together they have helped me realize more years than I was expecting. Eager to hear about your new toy! Joyce> > > I've already gone through the testing process (over a year ago), but > I had to lose 40 lbs. I've lost 10 so far but it is very slow > going. I don't think my heart was into the whole transplant thing. > I'm not sure it is yet or ever will be. My lung tx doc said he > could get me listed now if I wanted. I freaked out. Said I want to > try and wait until June or even September to get listed. (Can you > tell I'm dragging my feet?) The funny thing is I've started to get > worse. I've been holding my own for over a year at 4 litres now all > of a sudden I'm pusing 5-6 litres and it's scaring me. I know that > I'm grateful that this is even an option for me because I know so > many people that it isn't. > > Peggy keep us posted on whether or not you have fibromyalgia and > where you are in your journey. Prednisone sure makes losing weight > extremely difficult. Are you weaned off of it yet?> > Joyce, what hospital are you going through for your eval? When my > doc decided to get me tested, I was pretty much done in 2 days > (total). Have you gone through pulmonary rehab yet?> > Leanne> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Hi Joyce, Yes have my new toy. It is sitting right here beside me and I can't hear it. My Insurance Co. is paying for it--renting it. I saw a post that Leanne put on the site talking about it so I called my O2 co and sure enough with a RX from my Dr. I got it today. They left me a large bottle in case of a power outage or emergency. Yes it only pulses, as far as I know right now I have to read my booklet.I haven't used it enough to tell you much about it but so far I love it. God Bless. Peggy on 3/13/06 3:15 PM, janne5303 at joycedalton29@... wrote: Peggy, Are you buying your Inogen or is your insurance paying for it? How did you hear of it? I have never heard of it except on this site. Will you still have your old concentrator and tanks? Does it only pulse? Is that o.k. for everyday use? I am full of questions. I have pulled up some info but.....when you have gotten over your excitement... tell me all about it. I am glad you are seeing a rheumatologist. Mine works closely with my pulmonary doctor and together they have helped me realize more years than I was expecting. Eager to hear about your new toy! Joyce > Hi Leanne, Boy I do understand dragging your feet. I've had about 10 surgeries one being a total hip at age 26 > several other scary ones but this one I'm not looking forward to. And I think that is CRAZY. Oh well, I am off prednisone for a month now. still trying to get my body to understand NO MORE.. I hope this RA Dr can do something for the body and bone pain. It only hurts when I move. But ya gotta keep pushing. My tx Dr said he has had people on 10 to 14 L so try not to let it panic you. I'll be praying. God Bless and Keep you, Leanne, Peggy PS The lady is on the way here now wi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Hi Peggy this is and are you getting my emails? Just wondering. Hugs -- Re: lung transplant eval Leanne I have lost my ever lovin' mind. I was 46 when I had my hip surgery. Not that it makes a difference but that's correct. LOL old timers! Peggyon 3/13/06 2:51 PM, Leanne Storch at ls_pulmonaryfibrosis@... wrote: Peggy, My prayers are with you as well. This is a tough disease, but we gotta hang strong and trust that God has a plan for all of us. LeannePeggy wrote: Hi Leanne, Boy I do understand dragging your feet. I've had about 10 surgeries one being a total hip at age 26several other scary ones but this one I'm not looking forward to. And I think that is CRAZY. Oh well, I am off prednisone for a month now. still trying to get my body to understand NO MORE.. I hope this RA Dr can do something for the body and bone pain. It only hurts when I move. But ya gotta keep pushing. My tx Dr said he has had people on 10 to 14 L so try not to let it panic you. I'll be praying. God Bless and Keep you, Leanne, Peggy PS The lady is on the way here now with my new Inogen concentrator. I'm so excited.on 3/13/06 12:39 PM, Leanne at ls_pulmonaryfibrosis@... wrote: I've already gone through the testing process (over a year ago), but I had to lose 40 lbs. I've lost 10 so far but it is very slow going. I don't think my heart was into the whole transplant thing. I'm not sure it is yet or ever will be. My lung tx doc said he could get me listed now if I wanted. I freaked out. Said I want to try and wait until June or even September to get listed. (Can you tell I'm dragging my feet?) The funny thing is I've started to get worse. I've been holding my own for over a year at 4 litres now all of a sudden I'm pusing 5-6 litres and it's scaring me. I know that I'm grateful that this is even an option for me because I know so many people that it isn't. Peggy keep us posted on whether or not you have fibromyalgia and where you are in your journey. Prednisone sure makes losing weight extremely difficult. Are you weaned off of it yet?Joyce, what hospital are you going through for your eval? When my doc decided to get me tested, I was pretty much done in 2 days (total). Have you gone through pulmonary rehab yet?Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Hi , Yes I did get mail from you this afternoon. So pretty. Thank You. I didn't mean to be rude but I got my new toy today (Inogen ) so I've been trying to learn how to keep it from alarming. Thanks again, God Bless. Peggy P.S. your e-mail seems to be really really wide. can you format your mail to fit a little better ? on 3/13/06 5:33 PM, at punki53@... wrote: Hi Peggy this is and are you getting my emails? Just wondering. Hugs -- Re: lung transplant eval Leanne I have lost my ever lovin' mind. I was 46 when I had my hip surgery. Not that it makes a difference but that's correct. LOL old timers! Peggy on 3/13/06 2:51 PM, Leanne Storch at ls_pulmonaryfibrosis@... wrote: Peggy, My prayers are with you as well. This is a tough disease, but we gotta hang strong and trust that God has a plan for all of us. Leanne Peggy wrote: Hi Leanne, Boy I do understand dragging your feet. I've had about 10 surgeries one being a total hip at age 26 several other scary ones but this one I'm not looking forward to. And I think that is CRAZY. Oh well, I am off prednisone for a month now. still trying to get my body to understand NO MORE.. I hope this RA Dr can do something for the body and bone pain. It only hurts when I move. But ya gotta keep pushing. My tx Dr said he has had people on 10 to 14 L so try not to let it panic you. I'll be praying. God Bless and Keep you, Leanne, Peggy PS The lady is on the way here now with my new Inogen concentrator. I'm so excited. on 3/13/06 12:39 PM, Leanne at ls_pulmonaryfibrosis@... wrote: I've already gone through the testing process (over a year ago), but I had to lose 40 lbs. I've lost 10 so far but it is very slow going. I don't think my heart was into the whole transplant thing. I'm not sure it is yet or ever will be. My lung tx doc said he could get me listed now if I wanted. I freaked out. Said I want to try and wait until June or even September to get listed. (Can you tell I'm dragging my feet?) The funny thing is I've started to get worse. I've been holding my own for over a year at 4 litres now all of a sudden I'm pusing 5-6 litres and it's scaring me. I know that I'm grateful that this is even an option for me because I know so many people that it isn't. Peggy keep us posted on whether or not you have fibromyalgia and where you are in your journey. Prednisone sure makes losing weight extremely difficult. Are yo! u weaned off of it yet? Joyce, what hospital are you going through for your eval? When my doc decided to get me tested, I was pretty much done in 2 days (total). Have you gone through pulmonary rehab yet? Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Hi Peggy, I don't know how to do that, can you tell me, Hugs -- Re: lung transplant eval Hi , Yes I did get mail from you this afternoon. So pretty. Thank You. I didn't mean to be rude but I got my new toy today (Inogen ) so I've been trying to learn how to keep it from alarming. Thanks again, God Bless. Peggy P.S. your e-mail seems to be really really wide. can you format your mail to fit a little better ?on 3/13/06 5:33 PM, at punki53@... wrote: Hi Peggy this is and are you getting my emails? Just wondering.Hugs -------Original Message------- Date: 03/13/06 13:58:02To: Breathe-Support Subject: Re: lung transplant evalLeanne I have lost my ever lovin' mind. I was 46 when I had my hip surgery. Not that it makes a difference but that's correct. LOL old timers! Peggyon 3/13/06 2:51 PM, Leanne Storch at ls_pulmonaryfibrosis@... wrote:Peggy,My prayers are with you as well. This is a tough disease, but we gotta hang strong and trust that God has a plan for all of us.LeannePeggy wrote:Hi Leanne, Boy I do understand dragging your feet. I've had about 10 surgeries one being a total hip at age 26several other scary ones but this one I'm not looking forward to. And I think that is CRAZY. Oh well, I am off prednisone for a month now. still trying to get my body to understand NO MORE.. I hope this RA Dr can do something for the body and bone pain. It only hurts when I move. But ya gotta keep pushing. My tx Dr said he has had people on 10 to 14 L so try not to let it panic you. I'll be praying. God Bless and Keep you, Leanne, Peggy PS The lady is on the way here now with my new Inogen concentrator. I'm so excited.on 3/13/06 12:39 PM, Leanne at ls_pulmonaryfibrosis@... wrote:I've already gone through the testing process (over a year ago), but I had to lose 40 lbs. I've lost 10 so far but it is very slow going. I don't think my heart was into the whole transplant thing. I'm not sure it is yet or ever will be. My lung tx doc said he could get me listed now if I wanted. I freaked out. Said I want to try and wait until June or even September to get listed. (Can you tell I'm dragging my feet?) The funny thing is I've started to get worse. I've been holding my own for over a year at 4 litres now all of a sudden I'm pusing 5-6 litres and it's scaring me. I know that I'm grateful that this is even an option for me because I know so many people that it isn't. Peggy keep us posted on whether or not you have fibromyalgia and where you are in your journey. Prednisone sure makes losing weight extremely difficult. Are yo! u weaned off of it yet?Joyce, what hospital are you going through for your eval? When my doc decided to get me tested, I was pretty much done in 2 days (total). Have you gone through pulmonary rehab yet?Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Peggy, Your posts are always really wide. Why is that? Some members posts are wide and some are not. Does anyone know? Joyce > > > > I've already gone through the testing process (over a year ago), but > I had to lose 40 lbs. I've lost 10 so far but it is very slow > going. I don't think my heart was into the whole transplant thing. > I'm not sure it is yet or ever will be. My lung tx doc said he > could get me listed now if I wanted. I freaked out. Said I want to > try and wait until June or even September to get listed. (Can you > tell I'm dragging my feet?) The funny thing is I've started to get > worse. I've been holding my own for over a year at 4 litres now all > of a sudden I'm pusing 5-6 litres and it's scaring me. I know that > I'm grateful that this is even an option for me because I know so > many people that it isn't. > > Peggy keep us posted on whether or not you have fibromyalgia and > where you are in your journey. Prednisone sure makes losing weight > extremely difficult. Are yo! u weaned off of it yet? > > Joyce, what hospital are you going through for your eval? When my > doc decided to get me tested, I was pretty much done in 2 days > (total). Have you gone through pulmonary rehab yet? > > Leanne > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Wow, I didn't know that, hope someone can help me out, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 Hi again , Sorry I'm not sure how to fix the problem. I mess with mine but don't know how to help you. Peggy on 3/13/06 7:53 PM, at punki53@... wrote: Hi Peggy, I don't know how to do that, can you tell me, Hugs -- Re: lung transplant eval Leanne I have lost my ever lovin' mind. I was 46 when I had my hip surgery. Not that it makes a difference but that's correct. LOL old timers! Peggy on 3/13/06 2:51 PM, Leanne Storch at ls_pulmonaryfibrosis@... wrote: Peggy, My prayers are with you as well. This is a tough disease, but we gotta hang strong and trust that God has a plan for all of us. Leanne Peggy wrote: Hi Leanne, Boy I do understand dragging your feet. I've had about 10 surgeries one being a tot! al hip at age 26 several other scary ones but this one I'm not looking forward to. And I think that is CRAZY. Oh well, I am off prednisone for a month now. still trying to get my body to understand NO MORE.. I hope this RA Dr can do something for the body and bone pain. It only hurts when I move. But ya gotta keep pushing. My tx Dr said he has had people on 10 to 14 L so try not to let it panic you. I'll be praying. God Bless and Keep you, Leanne, Peggy PS The lady is on the way here now with my new Inogen concentrator. I'm so excited. on 3/13/06 12:39 PM, Leanne at ls_pulmonaryfibrosis@... wrote: I've already gone through the testing process (over a year ago), but I had to lose 40 lbs. I've lost 10 so far but it is very slow going. I don't think my heart was into the whole transplant thing. I'm not sure it is yet or ever will be. My lung tx doc said he could get me listed now! if I wanted. I freaked out. Said I want to try and wa it until June or even September to get listed. (Can you tell I'm dragging my feet?) The funny thing is I've started to get worse. I've been holding my own for over a year at 4 litres now all of a sudden I'm pusing 5-6 litres and it's scaring me. I know that I'm grateful that this is even an option for me because I know so many people that it isn't. Peggy keep us posted on whether or not you have fibromyalgia and where you are in your journey. Prednisone sure makes losing weight extremely difficult. Are yo! u weaned off of it yet? Joyce, what hospital are you going through for your eval? When my doc decided to get me tested, I was pretty much done in 2 days (total). Have you gone through pulmonary rehab yet? Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 OOPS, I don't know but I bet I'll find out. Peggy on 3/13/06 8:10 PM, janne5303 at joycedalton29@... wrote: Peggy, Your posts are always really wide. Why is that? Some members posts are wide and some are not. Does anyone know? Joyce > > > > > > > > > > > > Hi Peggy this is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Here are some things I found out about the Inogen. Some of the hoses will not stay on the unit or the satellite. My air people called Inogen to found out which type fit and ordered me some new kind. I found out that it is easier to use a 4 foot cannula when I have the satellite attached to my belt, It doesn't get in the way as much. Use the 7 foot with the cart. Can't wait for spring and the 100 foot hose out in the yard. P So the Inogen has to have its own special tubing? And if so, why did'nt it come with the unit? What is the belt attatched satelite? I wa under the inpression it was just one unit. Correct me, please. ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Here are some things I found out about the Inogen. Some of the hoses will not stay on the unit or the satellite. My air people called Inogen to found out which type fit and ordered me some new kind. I found out that it is easier to use a 4 foot cannula when I have the satellite attached to my belt, It doesn't get in the way as much. Use the 7 foot with the cart. Can't wait for spring and the 100 foot hose out in the yard. PPeggy wrote: Hi , Yes I did get mail from you this afternoon. So pretty. Thank You. I didn't mean to be rude but I got my new toy today (Inogen ) so I've been trying to learn how to keep it from alarming. Thanks again, God Bless. Peggy P.S. your e-mail seems to be really really wide. can you format your mail to fit a little better ?on 3/13/06 5:33 PM, at punki53@... wrote: Hi Peggy this is and are you getting my emails? Just wondering.Hugs -------Original Message------- Date: 03/13/06 13:58:02To: Breathe-Support Subject: Re: lung transplant evalLeanne I have lost my ever lovin' mind. I was 46 when I had my hip surgery. Not that it makes a difference but that's correct. LOL old timers! Peggyon 3/13/06 2:51 PM, Leanne Storch at ls_pulmonaryfibrosis@... wrote:Peggy,My prayers are with you as well. This is a tough disease, but we gotta hang strong and trust that God has a plan for all of us.LeannePeggy wrote:Hi Leanne, Boy I do understand dragging your feet. I've had about 10 surgeries one being a total hip at age 26several other scary ones but this one I'm not looking forward to. And I think that is CRAZY. Oh well, I am off prednisone for a month now. still trying to get my body to understand NO MORE.. I hope this RA Dr can do something for the body and bone pain. It only hurts when I move. But ya gotta keep pushing. My tx Dr said he has had people on 10 to 14 L so try not to let it panic you. I'll be praying. God Bless and Keep you, Leanne, Peggy PS The lady is on the way here now with my new Inogen concentrator. I'm so excited.on 3/13/06 12:39 PM, Leanne at ls_pulmonaryfibrosis@... wrote:I've already gone through the testing process (over a year ago), but I had to lose 40 lbs. I've lost 10 so far but it is very slow going. I don't think my heart was into the whole transplant thing. I'm not sure it is yet or ever will be. My lung tx doc said he could get me listed now if I wanted. I freaked out. Said I want to try and wait until June or even September to get listed. (Can you tell I'm dragging my feet?) The funny thing is I've started to get worse. I've been holding my own for over a year at 4 litres now all of a sudden I'm pusing 5-6 litres and it's scaring me. I know that I'm grateful that this is even an option for me because I know so many people that it isn't. Peggy keep us posted on whether or not you have fibromyalgia and where you are in your journey. Prednisone sure makes losing weight extremely difficult. Are yo! u weaned off of it yet?Joyce, what hospital are you going through for your eval? When my doc decided to get me tested, I was pretty much done in 2 days (total). Have you gone through pulmonary rehab yet?Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2006 Report Share Posted March 14, 2006 Hi again The satellite is a small C cell battery unit about the size of two packs of cigarettes. It is used to convert the long tubes (25', 50' 100') into storage of the air. The main unit on the wheel cart has settings 2 to 5 pulse with the 7ft cannula. When the main unit is set to satellite, you attach long tubes to it that go to the satellite unit which has setting of 2 to 5 pulse on your waist, then a cannula to you nose. The tubing problem is when you use the satellite because a large pressure is built up in the hose as a storage area, causing some types of tubing to pop off. Bad design but if you find the right hoses it works OK TongueDancer2U@... wrote: Here are some things I found out about the Inogen. Some of the hoses will not stay on the unit or the satellite. My air people called Inogen to found out which type fit and ordered me some new kind. I found out that it is easier to use a 4 foot cannula when I have the satellite attached to my belt, It doesn't get in the way as much. Use the 7 foot with the cart. Can't wait for spring and the 100 foot hose out in the yard. P So the Inogen has to have its own special tubing? And if so, why did'nt it come with the unit? What is the belt attatched satelite? I wa under the inpression it was just one unit. Correct me, please. ~Ginger~ Yahoo! Mail Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 I haven't had a hose pop off yet. I did order 4' cannula hoses this morning. I'm LOVIN IT ! My house is sooooo quite. I could hardly sleep the first night we had it. LOL God Bless you all. Peggy on 3/14/06 11:43 PM, at kpoooh9@... wrote: Hi again The satellite is a small C cell battery unit about the size of two packs of cigarettes. It is used to convert the long tubes (25', 50' 100') into storage of the air. The main unit on the wheel cart has settings 2 to 5 pulse with the 7ft cannula. When the main unit is set to satellite, you attach long tubes to it that go to the satellite unit which has setting of 2 to 5 pulse on your waist, then a cannula to you nose. The tubing problem is when you use the satellite because a large pressure is built up in the hose as a storage area, causing some types of tubing to pop off. Bad design but if you find the right hoses it works OK TongueDancer2U@... wrote: Here are some things I found out about the Inogen. Some of the hoses will not stay on the unit or the satellite. My air people called Inogen to found out which type fit and ordered me some new kind. I found out that it is easier to use a 4 foot cannula when I have the satellite attached to my belt, It doesn't get in the way as much. Use the 7 foot with the cart. Can't wait for spring and the 100 foot hose out in the yard. P So the Inogen has to have its own special tubing? And if so, why did'nt it come with the unit? What is the belt attatched satelite? I wa under the inpression it was just one unit. Correct me, please. ~Ginger~ Yahoo! Mail Use Photomail <http://pa.yahoo.com/*http://us.rd.yahoo.com/evt=38867/*http://photomail.mail.yahoo.com> to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Hi , One more thing with the Inogen satellite when you go outside like I just did ( to catch up on group ) you MUST turn the satellite ON. Just thought I would pass it along. It was getting a little hard to breath. DUH ! Peggy on 3/14/06 11:43 PM, at kpoooh9@... wrote: Hi again The satellite is a small C cell battery unit about the size of two packs of cigarettes. It is used to convert the long tubes (25', 50' 100') into storage of the air. The main unit on the wheel cart has settings 2 to 5 pulse with the 7ft cannula. When the main unit is set to satellite, you attach long tubes to it that go to the satellite unit which has setting of 2 to 5 pulse on your waist, then a cannula to you nose. The tubing problem is when you use the satellite because a large pressure is built up in the hose as a storage area, causing some types of tubing to pop off. Bad design but if you find the right hoses it works OK TongueDancer2U@... wrote: Here are some things I found out about the Inogen. Some of the hoses will not stay on the unit or the satellite. My air people called Inogen to found out which type fit and ordered me some new kind. I found out that it is easier to use a 4 foot cannula when I have the satellite attached to my belt, It doesn't get in the way as much. Use the 7 foot with the cart. Can't wait for spring and the 100 foot hose out in the yard. P So the Inogen has to have its own special tubing? And if so, why did'nt it come with the unit? What is the belt attatched satelite? I wa under the inpression it was just one unit. Correct me, please. ~Ginger~ Yahoo! Mail Use Photomail <http://pa.yahoo.com/*http://us.rd.yahoo.com/evt=38867/*http://photomail.mail.yahoo.com> to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
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