Resending Early Message for

[Guest guest]

Resending for

Just add to this Vitamin C...Ester C. .....1....2xdaily

Also, I have resumed excercising..started by joining a walking group...3X's per week (working up to a 1/2 marathon= 21 km's) most walks on average are 10-16 km's.(walking classes have finished)..this past month I've resumed Kickboxing ( my love) l hour classes 3X's per week. Some of these classes I start out with coughing spells & I have to break and drink water. I made arrangements with the instructor (who is desperate for students) about my Health conditions & having Bronch. There is just myself and one of my colleagues so we are getting personal training. I'm truly blessed to have found this Tae kwon do studio. When I finish the morning class, come home, get in the hot shower the mucous clearing is amazing (if I have any).

Making the Best of Internet Help

Thanks again for all the great sharing of information.I'm having great results with the herbs and vitamin regime prescribed by a Naturopath Dr. the relieve is amazing but has been a trial and error process over the last 14 months. What works for one body doesn't necessarily work for another body and with the natural treatment it takes longer for relieve than medications. Although, with my personal experience the Drugs did not work for me at all.....my mucous, coughing and wheezing continued thru all the multiple drug therapies. Steriods added a tremendous weight gain and I was told when I discontinued their use (3 back to back presriptions of 100 tabs...starting with 8 per day and reducing their numbers every 3 days) the weight would come off quickly....Well it hasn't.....Anyway, if anyone would like my regime I'm glad to share it.....and hopefully, it can work a miracle for someone else.....it has reduced my mucous to about 80%.......a MIRACLE and this has been for a month now....I can now excercise again, and regain a semi normal life.Also, a website that I enjoy and find very helpful for general health. There is a medical library included that you can search whatever you want to know and get a direct answer. It is managed by 2 Doctors....hope you enjoy the site......http://www.realage.com/ Dr. Emmet Oz is one of the Dr's.Best of Health to AllENJOY the day

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[Guest guest]

I understand rheumatoid arthritis can be linked to bronch too which would explain the pain and rashes.

MarilynWho's never won? Biggest Grammy Award surprises of all time on AOL Music.

[Guest guest]

I understand rheumatoid arthritis can be linked to bronch too which would explain the pain and rashes.

Marilyn

and you should ask your dr to do some bloods on you..I just did..and I am happy to announce my RA factor is too low to worry about..

Sandie

Never Look Down on SomeoneUnless You're Willing to Help Them UpWho's never won? Biggest Grammy Award surprises of all time on AOL Music.

[Guest guest]

WOW! I feel I have achieved something to walk 5 km! When I was younger I managed longer walks (don’t know, not measured). Just 2 or 3 km feels exhausting more often than not. And yes, the less you exercise the less fit you become. I find that – to start, I’m tired, no energy, if do walk, I have a lot of pain, and rashes within the next 24 hrs, now almost without fail. Not conducive to going for a walk... I used to enjoy so much until the last 12-18 months.

Joy

[Guest guest]

Joy

The walking group I joined is part of a group called "The Running Room", so I guess we are the "Walking Room", I know it was really ambitious of me to join (it's cost is $ 49.00)when I asked my Dr. about joining he just raised his eyebrow and was speechless. It was interesting to watch at the start of the program all walkers wanted to walk in a group, but of course, my deep coughing & wheezing set me apart from the rest. I did explain to the leader that I have a Lung Disease he didn't seem to treat me any differently than the others. I also, had to miss many outings because of the weather here either extreme cold or freezing rain. My goal was not to compete in the 1/2 marathon, but to be outdoors, and to try and loose some of the steriod weight I gained. As the weeks passed, I trailed way behind, and one of the weeks they sent out a possey to find me, I made it that was a 16 km walk!!!!! People in the group were really scared to be close to me, and I can't say I blame them as I certainly don't want to be near anyone hacking up as we do. I'm going to rejoin "The Walking Room" but this time I'm going to be a little more realistic and join the 10 km group. This is less than 1/2 of the other group and is doable for me. This will take me to the Spring then the humidity will sent it and if it is anything like last year I will be stuck whereever there is Air Conditioning. The hot weather and humidity take the breathe right out of my body....so scary.....Thank God for the invention of Central Air without it I know I wouldn't make it.

Here is a little story about one of the Men in my walking group. He is Legally Blind.....!!!!! What an inspiration this man is unbelievable! He does however have some vision (not much) what he has is determination and an amazing sense of humor. He lives in substitized houses and has a disability pension....but raises funds for the Disabled by Running Marathons, Cycling, & Walking.....He has sighted people as guides who are with him......He has been disabled since birth...He is also an inspirational speaker. When you are feeling low about you're own situation God always seems to bring someone or something into your life as a wakeup call. This man got me thinking first about possibly organizing a "Walking Group" with the goal just being able to walk and to build on whatever you can do.....now my thoughts are on how can I organize a walking group to raise Awareness and funds for our Disease...this would certainly put me in touch with Dr's in the No and I may be able to help someone on here..

Re: Resending Early Message for

WOW! I feel I have achieved something to walk 5 km! When I was younger I managed longer walks (don’t know, not measured). Just 2 or 3 km feels exhausting more often than not. And yes, the less you exercise the less fit you become. I find that – to start, I’m tired, no energy, if do walk, I have a lot of pain, and rashes within the next 24 hrs, now almost without fail. Not conducive to going for a walk... I used to enjoy so much until the last 12-18 months.Joy

[Guest guest]

Joy I am unable to walk more than 200 metres at best of times- spinal tumor etc.AND SOB=shortness of breath.

BUT if I walk slow can manage ok, with lots of stops.

Any walking is good, even just for mind,

can alter a bad day, a depressed mood etc.

So much of these conditions is depression and or anxiety.

I love to just stop an look at the sea, the waves, the trees billowing in breezes etc, certainly grounds me.

Keeping in touch with the real things , nature -touching base with ground roots.

I am lucky to live near the sea. however of late don,t get to go to it much.

BUT I drive the long way around, etc so can see the water, sand and often stop and just walk to the side of esplanade to remind me of how lucky we are.

I have always lived by sea or countryside.

If you are not so lucky, a good way to surrounding self with nature is pets, indoor and out door tubs of vegies or herbs etc.

ANYTHING live.

Even a vase with a few branches of a tree( allergy to pollens).A table with a few gardening magazines etc.

I also feed the birds- have 3 birdbaths, so I can sit and watch the birds, relaxing too.

I use relaxation music- birds, waves, etc and lutes.

all help to relax.

Relaxation and gentle excersise clears the mind a bit.( a good time to practise breathing techs or to do a bit of getting to know self).

We get so stuck in keeping well, always have mind on what's next to do etc.

We forget who we are-- really we think of others all the time. We worry for others, we engross selves in our illnesses, so much so we need to remember we can feel that much better, just by taking 15 mins to self once or twice a day at least.

OR set aside the time of day that no phone calls, no one there to chat to etc.-- make it your time.

Amazing how well you can feel for that time, and an entire mood or day can be made new.

Like so many here , being unwell all through life, many do forget the childhood days-- probably best we do too.

Very depressing to think we laid in bed, for weeks and months on end, home, hospital etc mums having to watch over everything we wore, ate, breathed etc.

Days in specialists, having tests, xrays- off school-- no wonder families lost track either.

Still managed to have 4 children, foster 3 and volunteered lots of jobs. ,Been a cook, a dietician, a dressmaker, a childcare manager, a palliative care nurse, an aged care carer, a teachers aide, a tutor, a restaurateur , owned and ran take away health eating foods, oh and the list goes on.

Went back to school at 38 to get qualified in all, still study and learn, now in mental health and housing-- at 61 still learning.-- run a group twice a week for adults with mental illnes. Run a program on the ward at MHU.- still love to dance-- cannot any more, so just sit and sing along- but I do make sure I go to watch others , still love to feel whole.

Making up for the lost childhood, has been my life- making sure to fill every day with love and people-- family do everything together--

I am blessed with whatever it is that just makes me see its not all bad.-- feel lousy most days, pain excruciating every day, asthma every minute, stiffness and swelling all the time.

Like many have what I call my tool kit-- all my appliances to keep reasonably well, epi pen, ventolin puffer, heart spray, paper bag, tea bags a few oils, a spoon for youghurt when out, a bottle of water- a container with garlic , nob of ginger, a pen, a post stick pad, a small writing pad a , magazine, a cushion, a walking stick, a cardigan, oops my glasses and a pkt of gum or mints.- and I am right to go shopping, visiting, work, docs, driving anywhere at all.-- oops and my ID- with allergies, and so on-- cannot wear anymore allergy to all metals too now.

Just remember we all must make our lives worth living, its really up to us, do we give in, or do we want to enjoy life as it is and make it the happiest, the lovliest it can be.

Cos we do have to live within our body somehow, so might as well be smiling and coughing etc than crying angry upset all the time, cos doing all of those just makes breathing etc a whole lot harder- and we sure won,t be happy then either.

Smile every day-- even if its in the mirror to self. have a chuckle too.

HUGS all and promise to be short next post.

Sandy

Ran several businesses, was at birth of 13 of my 14 grandkiddies

[Guest guest]

From: sandy taylor

Sent: Sunday, February 03, 2008 12:03 PM

To: bronchiectasis

Subject: Re: Resending Early Message for

Joy I am unable to walk more than 200 metres at best of times- spinal tumor etc.AND SOB=shortness of breath.

BUT if I walk slow can manage ok, with lots of stops.

Any walking is good, even just for mind,

can alter a bad day, a depressed mood etc.

So much of these conditions is depression and or anxiety.

I love to just stop an look at the sea, the waves, the trees billowing in breezes etc, certainly grounds me.

Keeping in touch with the real things , nature -touching base with ground roots.

I am lucky to live near the sea. however of late don,t get to go to it much.

BUT I drive the long way around, etc so can see the water, sand and often stop and just walk to the side of esplanade to remind me of how lucky we are.

I have always lived by sea or countryside.

If you are not so lucky, a good way to surrounding self with nature is pets, indoor and out door tubs of vegies or herbs etc.

ANYTHING live.

Even a vase with a few branches of a tree( allergy to pollens).A table with a few gardening magazines etc.

I also feed the birds- have 3 birdbaths, so I can sit and watch the birds, relaxing too.

I use relaxation music- birds, waves, etc and lutes.

all help to relax.

Relaxation and gentle excersise clears the mind a bit.( a good time to practise breathing techs or to do a bit of getting to know self).

We get so stuck in keeping well, always have mind on what's next to do etc.

We forget who we are-- really we think of others all the time. We worry for others, we engross selves in our illnesses, so much so we need to remember we can feel that much better, just by taking 15 mins to self once or twice a day at least.

OR set aside the time of day that no phone calls, no one there to chat to etc.-- make it your time.

Amazing how well you can feel for that time, and an entire mood or day can be made new.

Like so many here , being unwell all through life, many do forget the childhood days-- probably best we do too.

Very depressing to think we laid in bed, for weeks and months on end, home, hospital etc mums having to watch over everything we wore, ate, breathed etc.

Days in specialists, having tests, xrays- off school-- no wonder families lost track either.

Still managed to have 4 children, foster 3 and volunteered lots of jobs. ,Been a cook, a dietician, a dressmaker, a childcare manager, a palliative care nurse, an aged care carer, a teachers aide, a tutor, a restaurateur , owned and ran take away health eating foods, oh and the list goes on.

Went back to school at 38 to get qualified in all, still study and learn, now in mental health and housing-- at 61 still learning.-- run a group twice a week for adults with mental illnes. Run a program on the ward at MHU.- still love to dance-- cannot any more, so just sit and sing along- but I do make sure I go to watch others , still love to feel whole.

Making up for the lost childhood, has been my life- making sure to fill every day with love and people-- family do everything together--

I am blessed with whatever it is that just makes me see its not all bad.-- feel lousy most days, pain excruciating every day, asthma every minute, stiffness and swelling all the time.

Like many have what I call my tool kit-- all my appliances to keep reasonably well, epi pen, ventolin puffer, heart spray, paper bag, tea bags a few oils, a spoon for youghurt when out, a bottle of water- a container with garlic , nob of ginger, a pen, a post stick pad, a small writing pad a , magazine, a cushion, a walking stick, a cardigan, oops my glasses and a pkt of gum or mints.- and I am right to go shopping, visiting, work, docs, driving anywhere at all.-- oops and my ID- with allergies, and so on-- cannot wear anymore allergy to all metals too now.

Just remember we all must make our lives worth living, its really up to us, do we give in, or do we want to enjoy life as it is and make it the happiest, the lovliest it can be.

Cos we do have to live within our body somehow, so might as well be smiling and coughing etc than crying angry upset all the time, cos doing all of those just makes breathing etc a whole lot harder- and we sure won,t be happy then either.

Smile every day-- even if its in the mirror to self. have a chuckle too.

HUGS all and promise to be short next post.

Sandy

Ran several businesses, was at birth of 13 of my 14 grandkiddies

[Guest guest]

Dear Sandy,

That was a most precious email, thankyou so much ( you made me ‘fill up’!). We need to hear this from each other, I found your words so encouraging. All my life I have wondered how do other people manage w their condition, how much does it affect their life, how do they cope with the results of too much exposure to invasive medical contacts, all these things... So much a part of a bronch’s life!

You are so right about continuing the things you love – and discover new ones. My love – apart from painting – is anything to do with plants esp our native plants (Australian), and I began working w volunteer groups about 17 yrs ago so I could do something physical and outdoors because at the time I worked in an office doing desktop publishing magazines. I also did studies in botany (basic level) and plant ID etc, and had some employment as supervisor/tutor in bush regeneration. I went to Thailand for a year and taught English, but that was hard, I was unwell much of the time – I think around then abx had stopped working effectively, but it took another 5 years more before a GP did tests for resistance.

We belong to a local naturalist club (no, not the one where you take your kit off, the one that goes walks to find birds, critters etc!), and go with friends to a seedling nursery every week; I do Tai Chi classes (and sometimes I practise at home!), and I’m fortunate to live in a place near rainforest, and adore doing walks in the foothills or Atherton Tablelands, or sometimes, when not too hot, a walk along a beach. Being at the foot of the Kuranda range we are within easy reach of either... I have learnt a number of meditation breathing techniques which do help, even if can’t do as well as those w ‘normal’ lungs...

At least being on a disability pension has allowed me the chance to look after myself, and actually have some quality of life. I’m just starting to have to get my head around all the bits and pieces I need if I go anywhere, esp if away o’night or two. Apart from the bronch stuff I now need to take things for if I get skin reactions come up (including a ice-pack, which needs to kept in a freezer), and a range of dental cleaning materials and implements (have had much dental work, somewhat problematic due to cleft palate repair so late, and gum disease I just could not fix during the years very unwell).

Hugs to everyone too, for your compassion and bravery

Joy

-- --

" Sentient beings, all our very own mothers, are as limitless as space”

[Guest guest]

Sandy, what at celebration of your life!

What you are sharing with everyone is there is no time for a self induced "Pity Party" especially when you will be the only one attending.

Another great role model for all of us.

Thanks,

Re: Resending Early Message for

Joy I am unable to walk more than 200 metres at best of times- spinal tumor etc.AND SOB=shortness of breath.

BUT if I walk slow can manage ok, with lots of stops.

Any walking is good, even just for mind,

can alter a bad day, a depressed mood etc.

So much of these conditions is depression and or anxiety.

I love to just stop an look at the sea, the waves, the trees billowing in breezes etc, certainly grounds me.

Keeping in touch with the real things , nature -touching base with ground roots.

I am lucky to live near the sea. however of late don,t get to go to it much.

BUT I drive the long way around, etc so can see the water, sand and often stop and just walk to the side of esplanade to remind me of how lucky we are.

I have always lived by sea or countryside.

If you are not so lucky, a good way to surrounding self with nature is pets, indoor and out door tubs of vegies or herbs etc.

ANYTHING live.

Even a vase with a few branches of a tree( allergy to pollens).A table with a few gardening magazines etc.

I also feed the birds- have 3 birdbaths, so I can sit and watch the birds, relaxing too.

I use relaxation music- birds, waves, etc and lutes.

all help to relax.

Relaxation and gentle excersise clears the mind a bit.( a good time to practise breathing techs or to do a bit of getting to know self).

We get so stuck in keeping well, always have mind on what's next to do etc.

We forget who we are-- really we think of others all the time. We worry for others, we engross selves in our illnesses, so much so we need to remember we can feel that much better, just by taking 15 mins to self once or twice a day at least.

OR set aside the time of day that no phone calls, no one there to chat to etc.-- make it your time.

Amazing how well you can feel for that time, and an entire mood or day can be made new.

Like so many here , being unwell all through life, many do forget the childhood days-- probably best we do too.

Very depressing to think we laid in bed, for weeks and months on end, home, hospital etc mums having to watch over everything we wore, ate, breathed etc.

Days in specialists, having tests, xrays- off school-- no wonder families lost track either.

Still managed to have 4 children, foster 3 and volunteered lots of jobs. ,Been a cook, a dietician, a dressmaker, a childcare manager, a palliative care nurse, an aged care carer, a teachers aide, a tutor, a restaurateur , owned and ran take away health eating foods, oh and the list goes on.

Went back to school at 38 to get qualified in all, still study and learn, now in mental health and housing-- at 61 still learning.-- run a group twice a week for adults with mental illnes. Run a program on the ward at MHU.- still love to dance-- cannot any more, so just sit and sing along- but I do make sure I go to watch others , still love to feel whole.

Making up for the lost childhood, has been my life- making sure to fill every day with love and people-- family do everything together--

I am blessed with whatever it is that just makes me see its not all bad.-- feel lousy most days, pain excruciating every day, asthma every minute, stiffness and swelling all the time.

Like many have what I call my tool kit-- all my appliances to keep reasonably well, epi pen, ventolin puffer, heart spray, paper bag, tea bags a few oils, a spoon for youghurt when out, a bottle of water- a container with garlic , nob of ginger, a pen, a post stick pad, a small writing pad a , magazine, a cushion, a walking stick, a cardigan, oops my glasses and a pkt of gum or mints.- and I am right to go shopping, visiting, work, docs, driving anywhere at all.-- oops and my ID- with allergies, and so on-- cannot wear anymore allergy to all metals too now.

Just remember we all must make our lives worth living, its really up to us, do we give in, or do we want to enjoy life as it is and make it the happiest, the lovliest it can be.

Cos we do have to live within our body somehow, so might as well be smiling and coughing etc than crying angry upset all the time, cos doing all of those just makes breathing etc a whole lot harder- and we sure won,t be happy then either.

Smile every day-- even if its in the mirror to self. have a chuckle too.

HUGS all and promise to be short next post.

Sandy

Ran several businesses, was at birth of 13 of my 14 grandkiddies