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Re: Memorial Hermann Southeast Hostpital NOT special needs friendly

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Sasha,

I live up near Conroe and we NEVER go to the Conroe Hospital - has a similar

reputation and we were treated badly there several times ( my son has severe

asthma). I doubt you will get much from them based upon your report. My husband

was at Conroe all night once, when my son was a toddler and having an asthma

attack. They both fell asleep in the room. At 8am, when my husband woke up, he

picked up our son and went to another hospital. About 2 that afternoon, he got a

call from the Conroe ER doc, wondering where they were? Fortunately, my son was

ok.

>

> Last weekend my son suffered from an allergic reaction to invega. While

traveling in the car his neck contorted he stuck his tongue out, could not close

his mouth and started screaming. I stopped by a girlfriends house and gave him

benedryl. However he got worse so I drove him to the ER.

>

> I left my car running at the entrance rushed him in and encountered a nurse

named Lori who proceeded to treat us as if we were at a regular doctors appt.

She sat him down and asked me his height weight and allergies at that point my

son started screaming help me and fell onto the floor in pain I told her to put

him in a room immediately because he needed a shot. She told me there werent any

rooms available. I picked him up and ran him past Lori to the back where I

shouted he needed help. Two staff members jumped up when Lori came up behind us

stating she was putting him in a room. My son, who is 13 105lbs and extremely

verbal was leaning on me for support and still screaming help me. Once we were

in the room I told Lori to get out and I yelled for another nurse to help us.

The second nurse came in and acted extremely nonchalant. When I made the mistake

in saying he was autistic her reaction was 'Ohhhhh' and began to downplay his

pain. She spoke to him like his was dumb as he was writhing in pain and turning

bright red. She addressed me as if I was overly concerned. I told her I

understood that he was not going to die, however I wanted his pain to go away!

When she left the room to find a doctor I jotted down the information posted at

the door of the room of who to complain to if your visit wasnt 'very good'. The

info sheet showed pictures of the Medical Director and several managers of the

ER. The first doctor showed up 10 minutes later saying he was busy with another

patient. I told him to help my son, damn the other patient. He looked in my sons

mouth and said his airway was clear and proceeded to walk out. Over his shoulder

he instructed the nurse to give my son a steroid shot....a steroid shot???? I am

not a physician however my son had another reaction to zypreza with different

symptoms and thats not what was given to him...It took 30 minutes for them to

give the shot citing they were waiting on formal orders from the doctor. I had

to keep going to the nurses station every 10 minutes asking for help. No one

came in the room to check on my son.

>

> The steroid shot didnt work. My son was screaming for an entire hour at that

point. I asked for another doctor. The second doctor came in who happened to be

the Medical Director (I recognized her picture) I asked her where they got their

staff from. I told her about Lori and the second nurse who then came in the room

and then acted concerned. I wanted to know where to send my complaint in

writing. The Director informed me she would be on vacation for the next 3

weeks!!!!! Like no big deal. In the meantime my son was still screaming.

>

> They gave him a steroid shot, Cogentin shot, and finally ran an IV of

benedryl. After 2.5hrs of screaming my son was able to close his mouth and sit

up. The steroid shot made him have several accidents however.

>

> The staff was ridiculous, treated me poorly and treated my son worse. He had

NO business in that amount of pain for that long. They had NO business to ignore

his screams, telling me to hold on every time I went to the nurses station

asking for help, and finally when I did complain looking at me like I was on

another planet and informing me she would be on vacation. Absolutly ridiculous.

>

> All of last week I phoned friends telling them what happened who live in the

neighborhood. All four of them informed me they do not take their children (all

on the spectrum) to that hospital. They go out of their way to travel way to

Galveston, Texas Childrens, or St Lukes in Pasadena. Yesterday I was in Macys

where I live and the cashier asked me about my son. I told her about our

experience, a customer overheard me and say she never takes her daughter, who is

special needs and has asthma, to that hospital.

>

> I placed a call the CEOs office, Asprec, and spoke at length to her

assistant Jan . Jan sounded empathetic and voiced apologies for my

experience. She said they would investigate after receiving my letter.

>

> My son is well now and I am grateful for that.

>

> As a parent you never want to go through what I did that night not being able

to help him and not getting medical staff to care enough to help him in a

timely, concerned manner.

>

> Never again.

>

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Apparently the leadership isn't bothered by your compliant or others. You may

write a note to all of the board members, Greg.Groogan@... with Fox News

and the Houston Chronicle. If nothing else other parents will be informed.

I am reminded many hospitals will call 911 even when the patient is in the

hospital considering they do a better job of saying lives in a crisis.

Thank you for sharing the information and hope it never happens again.

Jimmy Kilpatrick

>

> Last weekend my son suffered from an allergic reaction to invega. While

traveling in the car his neck contorted he stuck his tongue out, could not close

his mouth and started screaming. I stopped by a girlfriends house and gave him

benedryl. However he got worse so I drove him to the ER.

>

> I left my car running at the entrance rushed him in and encountered a nurse

named Lori who proceeded to treat us as if we were at a regular doctors appt.

She sat him down and asked me his height weight and allergies at that point my

son started screaming help me and fell onto the floor in pain I told her to put

him in a room immediately because he needed a shot. She told me there werent any

rooms available. I picked him up and ran him past Lori to the back where I

shouted he needed help. Two staff members jumped up when Lori came up behind us

stating she was putting him in a room. My son, who is 13 105lbs and extremely

verbal was leaning on me for support and still screaming help me. Once we were

in the room I told Lori to get out and I yelled for another nurse to help us.

The second nurse came in and acted extremely nonchalant. When I made the mistake

in saying he was autistic her reaction was 'Ohhhhh' and began to downplay his

pain. She spoke to him like his was dumb as he was writhing in pain and turning

bright red. She addressed me as if I was overly concerned. I told her I

understood that he was not going to die, however I wanted his pain to go away!

When she left the room to find a doctor I jotted down the information posted at

the door of the room of who to complain to if your visit wasnt 'very good'. The

info sheet showed pictures of the Medical Director and several managers of the

ER. The first doctor showed up 10 minutes later saying he was busy with another

patient. I told him to help my son, damn the other patient. He looked in my sons

mouth and said his airway was clear and proceeded to walk out. Over his shoulder

he instructed the nurse to give my son a steroid shot....a steroid shot???? I am

not a physician however my son had another reaction to zypreza with different

symptoms and thats not what was given to him...It took 30 minutes for them to

give the shot citing they were waiting on formal orders from the doctor. I had

to keep going to the nurses station every 10 minutes asking for help. No one

came in the room to check on my son.

>

> The steroid shot didnt work. My son was screaming for an entire hour at that

point. I asked for another doctor. The second doctor came in who happened to be

the Medical Director (I recognized her picture) I asked her where they got their

staff from. I told her about Lori and the second nurse who then came in the room

and then acted concerned. I wanted to know where to send my complaint in

writing. The Director informed me she would be on vacation for the next 3

weeks!!!!! Like no big deal. In the meantime my son was still screaming.

>

> They gave him a steroid shot, Cogentin shot, and finally ran an IV of

benedryl. After 2.5hrs of screaming my son was able to close his mouth and sit

up. The steroid shot made him have several accidents however.

>

> The staff was ridiculous, treated me poorly and treated my son worse. He had

NO business in that amount of pain for that long. They had NO business to ignore

his screams, telling me to hold on every time I went to the nurses station

asking for help, and finally when I did complain looking at me like I was on

another planet and informing me she would be on vacation. Absolutly ridiculous.

>

> All of last week I phoned friends telling them what happened who live in the

neighborhood. All four of them informed me they do not take their children (all

on the spectrum) to that hospital. They go out of their way to travel way to

Galveston, Texas Childrens, or St Lukes in Pasadena. Yesterday I was in Macys

where I live and the cashier asked me about my son. I told her about our

experience, a customer overheard me and say she never takes her daughter, who is

special needs and has asthma, to that hospital.

>

> I placed a call the CEOs office, Asprec, and spoke at length to her

assistant Jan . Jan sounded empathetic and voiced apologies for my

experience. She said they would investigate after receiving my letter.

>

> My son is well now and I am grateful for that.

>

> As a parent you never want to go through what I did that night not being able

to help him and not getting medical staff to care enough to help him in a

timely, concerned manner.

>

> Never again.

>

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Sasha: We have had 3 ER visits this year. Prior to that only 1 in 16 years of 's life. One was for a seizure he had at an airport and they transported him to the hospital ER. They did not start an IV and he was out of it. I did ask for a Phenergan suppository for him so he would not be barfing all the way home (a 45-minute drive). This was Memorial Hermann Northeast. We waited, and waited, and waited. About an hour later, I asked about it, and the nurse told me the pharmacy had not sent it up yet. Another hour later I went out to go to the bathroom, and the doctor saw me and had this look on his face like " why are you still here " not in a bad way but more like in a way of " why had a simple Phenergan suppository not been given to him yet. " We had been up since 4 a.m. eastern time, had traveled all day, had our air travel disrupted, rearranged, and arrived into Houston at 5 p.m. central time, at which time he had the seizure. Houston PD, TSA, and Houston FD at the airport were phenomenal. And really, we were just taking up bed space, but had to call an ambulance because he had this at the gate behind the lines of security. There was no way to get him to baggage claim, get our bags, wait for the economy lot bus, get to the car, etc. Finally at 10 p.m. when the Phenergan still wasn't there, I told her that we were very tired and honestly the doctor could have written me a prescription and I could have gone down the street to Walgreens, gotten it filled, and come back to the ER and administered it myself 3 hours ago. We would just take our chances. We needed to go home. She was happy to discharge us, asked us if we would need a wheelchair for him (which we said yes), and then made us wheel him out while he was still semi-unconscious. (Remember when they used to insist to take you from the wheelchair to your car--those days are gone). Fortunately, he did not throw up on the way home. The next time just happened recently. The details are long. But it was St. Luke's The Woodlands (and the CEO of this hospital has 2 special needs kids of her own, and her husband is a doctor on staff at the same hospital). My pediatrician was very upset to hear how we were treated. When he deteriorated again I called to one minor ER that I heard good things about from the adult children with autism, and I talked to Memorial Hermann The Woodlands who were both honest with me about the possibilities. We decided to take him to Texas Children's in the Medical Center. We also decided to get up at 3 a.m. and got there by 4 a.m. and we were taken right in. I pretty much insisted that we were not leaving this time without blood work being done and 1 bag (at least) of IV fluids given and they did sedate him, but did so in a gradual manner so they could find the least amount of dose. With sedation, it took my husband and me laying across him, 1 nurse to hold his arm and another to start the IV, but he was mellow enough he did not fight being held. They popped the IV right in him. He was like a different child once the fluid got in him. Of course by Friday he was worse again, but 12 days of fever later, it finally went away. If he ever needs to go to the emergency room again, I'll take him to TCH. But be warned. When I was talking to Memorial Hermann The Woodlands and I asked if I wound up having to call an ambulance (because, let's say my husband had left for vacation, deteriorates and I cannot get him to the car and wound up needing to call an ambulance, they said I could ask them to take him to TCH but they doubt they would. They only go within a certain radius and sometimes will drive-by 1 hospital for another, so we could wind up back at St. Luke's (I told them what a bad experience I had there). She said you could, however, call a private ambulance company to see if they would transport to TCH. I told her then we'd get into all sorts of insurance problems and I know the ambulance charges are pretty steep if you just even go locally. But yes, I laughed when you talked about " if you are not happy with the care you are receiving, call the nursing supervisor. " Jeff and I also saw this in our room & joked that we should call it, but it is likely what happens in restaurants when you complain--someone will spit in your food. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of SashaSent: Monday, July 09, 2012 1:36 AMTo: Texas-Autism-Advocacy Subject: Memorial Hermann Southeast Hostpital NOT special needs friendly Last weekend my son suffered from an allergic reaction to invega. While traveling in the car his neck contorted he stuck his tongue out, could not close his mouth and started screaming. I stopped by a girlfriends house and gave him benedryl. However he got worse so I drove him to the ER. I left my car running at the entrance rushed him in and encountered a nurse named Lori who proceeded to treat us as if we were at a regular doctors appt. She sat him down and asked me his height weight and allergies at that point my son started screaming help me and fell onto the floor in pain I told her to put him in a room immediately because he needed a shot. She told me there werent any rooms available. I picked him up and ran him past Lori to the back where I shouted he needed help. Two staff members jumped up when Lori came up behind us stating she was putting him in a room. My son, who is 13 105lbs and extremely verbal was leaning on me for support and still screaming help me. Once we were in the room I told Lori to get out and I yelled for another nurse to help us. The second nurse came in and acted extremely nonchalant. When I made the mistake in saying he was autistic her reaction was 'Ohhhhh' and began to downplay his pain. She spoke to him like his was dumb as he was writhing in pain and turning bright red. She addressed me as if I was overly concerned. I told her I understood that he was not going to die, however I wanted his pain to go away! When she left the room to find a doctor I jotted down the information posted at the door of the room of who to complain to if your visit wasnt 'very good'. The info sheet showed pictures of the Medical Director and several managers of the ER. The first doctor showed up 10 minutes later saying he was busy with another patient. I told him to help my son, damn the other patient. He looked in my sons mouth and said his airway was clear and proceeded to walk out. Over his shoulder he instructed the nurse to give my son a steroid shot....a steroid shot???? I am not a physician however my son had another reaction to zypreza with different symptoms and thats not what was given to him...It took 30 minutes for them to give the shot citing they were waiting on formal orders from the doctor. I had to keep going to the nurses station every 10 minutes asking for help. No one came in the room to check on my son. The steroid shot didnt work. My son was screaming for an entire hour at that point. I asked for another doctor. The second doctor came in who happened to be the Medical Director (I recognized her picture) I asked her where they got their staff from. I told her about Lori and the second nurse who then came in the room and then acted concerned. I wanted to know where to send my complaint in writing. The Director informed me she would be on vacation for the next 3 weeks!!!!! Like no big deal. In the meantime my son was still screaming.They gave him a steroid shot, Cogentin shot, and finally ran an IV of benedryl. After 2.5hrs of screaming my son was able to close his mouth and sit up. The steroid shot made him have several accidents however.The staff was ridiculous, treated me poorly and treated my son worse. He had NO business in that amount of pain for that long. They had NO business to ignore his screams, telling me to hold on every time I went to the nurses station asking for help, and finally when I did complain looking at me like I was on another planet and informing me she would be on vacation. Absolutly ridiculous.All of last week I phoned friends telling them what happened who live in the neighborhood. All four of them informed me they do not take their children (all on the spectrum) to that hospital. They go out of their way to travel way to Galveston, Texas Childrens, or St Lukes in Pasadena. Yesterday I was in Macys where I live and the cashier asked me about my son. I told her about our experience, a customer overheard me and say she never takes her daughter, who is special needs and has asthma, to that hospital.I placed a call the CEOs office, Asprec, and spoke at length to her assistant Jan . Jan sounded empathetic and voiced apologies for my experience. She said they would investigate after receiving my letter.My son is well now and I am grateful for that. As a parent you never want to go through what I did that night not being able to help him and not getting medical staff to care enough to help him in a timely, concerned manner.Never again.

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Hilda, unless your son is unstable (CPR, breathing problems) you can request a hospital and the ambulance has to listen to you. If not you can make a complaint for them not listening to your preference. I am an RN. In a hospital and Have to stick to certain facilities. When I requested my husband be taken to my hospital, he was completely stable, they did it even though we live 35+ mins away......CarolynSent from my iPhone

Sasha: We have had 3 ER visits this year. Prior to that only 1 in 16 years of 's life. One was for a seizure he had at an airport and they transported him to the hospital ER. They did not start an IV and he was out of it. I did ask for a Phenergan suppository for him so he would not be barfing all the way home (a 45-minute drive). This was Memorial Hermann Northeast. We waited, and waited, and waited. About an hour later, I asked about it, and the nurse told me the pharmacy had not sent it up yet. Another hour later I went out to go to the bathroom, and the doctor saw me and had this look on his face like "why are you still here" not in a bad way but more like in a way of " why had a simple Phenergan suppository not been given to him yet." We had been up since 4 a.m. eastern time, had traveled all day, had our air travel disrupted, rearranged, and arrived into Houston at 5 p.m. central time, at which time he had the seizure. Houston PD, TSA, and Houston FD at the airport were phenomenal. And really, we were just taking up bed space, but had to call an ambulance because he had this at the gate behind the lines of security. There was no way to get him to baggage claim, get our bags, wait for the economy lot bus, get to the car, etc. Finally at 10 p.m. when the Phenergan still wasn't there, I told her that we were very tired and honestly the doctor could have written me a prescription and I could have gone down the street to Walgreens, gotten it filled, and come back to the ER and administered it myself 3 hours ago. We would just take our chances. We needed to go home. She was happy to discharge us, asked us if we would need a wheelchair for him (which we said yes), and then made us wheel him out while he was still semi-unconscious. (Remember when they used to insist to take you from the wheelchair to your car--those days are gone). Fortunately, he did not throw up on the way home. The next time just happened recently. The details are long. But it was St. Luke's The Woodlands (and the CEO of this hospital has 2 special needs kids of her own, and her husband is a doctor on staff at the same hospital). My pediatrician was very upset to hear how we were treated. When he deteriorated again I called to one minor ER that I heard good things about from the adult children with autism, and I talked to Memorial Hermann The Woodlands who were both honest with me about the possibilities. We decided to take him to Texas Children's in the Medical Center. We also decided to get up at 3 a.m. and got there by 4 a.m. and we were taken right in. I pretty much insisted that we were not leaving this time without blood work being done and 1 bag (at least) of IV fluids given and they did sedate him, but did so in a gradual manner so they could find the least amount of dose. With sedation, it took my husband and me laying across him, 1 nurse to hold his arm and another to start the IV, but he was mellow enough he did not fight being held. They popped the IV right in him. He was like a different child once the fluid got in him. Of course by Friday he was worse again, but 12 days of fever later, it finally went away. If he ever needs to go to the emergency room again, I'll take him to TCH. But be warned. When I was talking to Memorial Hermann The Woodlands and I asked if I wound up having to call an ambulance (because, let's say my husband had left for vacation, deteriorates and I cannot get him to the car and wound up needing to call an ambulance, they said I could ask them to take him to TCH but they doubt they would. They only go within a certain radius and sometimes will drive-by 1 hospital for another, so we could wind up back at St. Luke's (I told them what a bad experience I had there). She said you could, however, call a private ambulance company to see if they would transport to TCH. I told her then we'd get into all sorts of insurance problems and I know the ambulance charges are pretty steep if you just even go locally. But yes, I laughed when you talked about "if you are not happy with the care you are receiving, call the nursing supervisor." Jeff and I also saw this in our room & joked that we should call it, but it is likely what happens in restaurants when you complain--someone will spit in your food. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of SashaSent: Monday, July 09, 2012 1:36 AMTo: Texas-Autism-Advocacy Subject: Memorial Hermann Southeast Hostpital NOT special needs friendly Last weekend my son suffered from an allergic reaction to invega. While traveling in the car his neck contorted he stuck his tongue out, could not close his mouth and started screaming. I stopped by a girlfriends house and gave him benedryl. However he got worse so I drove him to the ER. I left my car running at the entrance rushed him in and encountered a nurse named Lori who proceeded to treat us as if we were at a regular doctors appt. She sat him down and asked me his height weight and allergies at that point my son started screaming help me and fell onto the floor in pain I told her to put him in a room immediately because he needed a shot. She told me there werent any rooms available. I picked him up and ran him past Lori to the back where I shouted he needed help. Two staff members jumped up when Lori came up behind us stating she was putting him in a room. My son, who is 13 105lbs and extremely verbal was leaning on me for support and still screaming help me. Once we were in the room I told Lori to get out and I yelled for another nurse to help us. The second nurse came in and acted extremely nonchalant. When I made the mistake in saying he was autistic her reaction was 'Ohhhhh' and began to downplay his pain. She spoke to him like his was dumb as he was writhing in pain and turning bright red. She addressed me as if I was overly concerned. I told her I understood that he was not going to die, however I wanted his pain to go away! When she left the room to find a doctor I jotted down the information posted at the door of the room of who to complain to if your visit wasnt 'very good'. The info sheet showed pictures of the Medical Director and several managers of the ER. The first doctor showed up 10 minutes later saying he was busy with another patient. I told him to help my son, damn the other patient. He looked in my sons mouth and said his airway was clear and proceeded to walk out. Over his shoulder he instructed the nurse to give my son a steroid shot....a steroid shot???? I am not a physician however my son had another reaction to zypreza with different symptoms and thats not what was given to him...It took 30 minutes for them to give the shot citing they were waiting on formal orders from the doctor. I had to keep going to the nurses station every 10 minutes asking for help. No one came in the room to check on my son. The steroid shot didnt work. My son was screaming for an entire hour at that point. I asked for another doctor. The second doctor came in who happened to be the Medical Director (I recognized her picture) I asked her where they got their staff from. I told her about Lori and the second nurse who then came in the room and then acted concerned. I wanted to know where to send my complaint in writing. The Director informed me she would be on vacation for the next 3 weeks!!!!! Like no big deal. In the meantime my son was still screaming.They gave him a steroid shot, Cogentin shot, and finally ran an IV of benedryl. After 2.5hrs of screaming my son was able to close his mouth and sit up. The steroid shot made him have several accidents however.The staff was ridiculous, treated me poorly and treated my son worse. He had NO business in that amount of pain for that long. They had NO business to ignore his screams, telling me to hold on every time I went to the nurses station asking for help, and finally when I did complain looking at me like I was on another planet and informing me she would be on vacation. Absolutly ridiculous.All of last week I phoned friends telling them what happened who live in the neighborhood. All four of them informed me they do not take their children (all on the spectrum) to that hospital. They go out of their way to travel way to Galveston, Texas Childrens, or St Lukes in Pasadena. Yesterday I was in Macys where I live and the cashier asked me about my son. I told her about our experience, a customer overheard me and say she never takes her daughter, who is special needs and has asthma, to that hospital.I placed a call the CEOs office, Asprec, and spoke at length to her assistant Jan . Jan sounded empathetic and voiced apologies for my experience. She said they would investigate after receiving my letter.My son is well now and I am grateful for that. As a parent you never want to go through what I did that night not being able to help him and not getting medical staff to care enough to help him in a timely, concerned manner.Never again.

=

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wow what an awful experience. i live near there too and wouldnt take my son there either. i would go to either clear lake ot TCH or even the urgent care center on 518 and dixie farm road. they have actually always been great there. i hope the respond and take action to your letter. Sent from my iPhone

Last weekend my son suffered from an allergic reaction to invega. While traveling in the car his neck contorted he stuck his tongue out, could not close his mouth and started screaming. I stopped by a girlfriends house and gave him benedryl. However he got worse so I drove him to the ER.

I left my car running at the entrance rushed him in and encountered a nurse named Lori who proceeded to treat us as if we were at a regular doctors appt. She sat him down and asked me his height weight and allergies at that point my son started screaming help me and fell onto the floor in pain I told her to put him in a room immediately because he needed a shot. She told me there werent any rooms available. I picked him up and ran him past Lori to the back where I shouted he needed help. Two staff members jumped up when Lori came up behind us stating she was putting him in a room. My son, who is 13 105lbs and extremely verbal was leaning on me for support and still screaming help me. Once we were in the room I told Lori to get out and I yelled for another nurse to help us. The second nurse came in and acted extremely nonchalant. When I made the mistake in saying he was autistic her reaction was 'Ohhhhh' and began to downplay his pain. She spoke to him like his was dumb as he was writhing in pain and turning bright red. She addressed me as if I was overly concerned. I told her I understood that he was not going to die, however I wanted his pain to go away! When she left the room to find a doctor I jotted down the information posted at the door of the room of who to complain to if your visit wasnt 'very good'. The info sheet showed pictures of the Medical Director and several managers of the ER. The first doctor showed up 10 minutes later saying he was busy with another patient. I told him to help my son, damn the other patient. He looked in my sons mouth and said his airway was clear and proceeded to walk out. Over his shoulder he instructed the nurse to give my son a steroid shot....a steroid shot???? I am not a physician however my son had another reaction to zypreza with different symptoms and thats not what was given to him...It took 30 minutes for them to give the shot citing they were waiting on formal orders from the doctor. I had to keep going to the nurses station every 10 minutes asking for help. No one came in the room to check on my son.

The steroid shot didnt work. My son was screaming for an entire hour at that point. I asked for another doctor. The second doctor came in who happened to be the Medical Director (I recognized her picture) I asked her where they got their staff from. I told her about Lori and the second nurse who then came in the room and then acted concerned. I wanted to know where to send my complaint in writing. The Director informed me she would be on vacation for the next 3 weeks!!!!! Like no big deal. In the meantime my son was still screaming.

They gave him a steroid shot, Cogentin shot, and finally ran an IV of benedryl. After 2.5hrs of screaming my son was able to close his mouth and sit up. The steroid shot made him have several accidents however.

The staff was ridiculous, treated me poorly and treated my son worse. He had NO business in that amount of pain for that long. They had NO business to ignore his screams, telling me to hold on every time I went to the nurses station asking for help, and finally when I did complain looking at me like I was on another planet and informing me she would be on vacation. Absolutly ridiculous.

All of last week I phoned friends telling them what happened who live in the neighborhood. All four of them informed me they do not take their children (all on the spectrum) to that hospital. They go out of their way to travel way to Galveston, Texas Childrens, or St Lukes in Pasadena. Yesterday I was in Macys where I live and the cashier asked me about my son. I told her about our experience, a customer overheard me and say she never takes her daughter, who is special needs and has asthma, to that hospital.

I placed a call the CEOs office, Asprec, and spoke at length to her assistant Jan . Jan sounded empathetic and voiced apologies for my experience. She said they would investigate after receiving my letter.

My son is well now and I am grateful for that.

As a parent you never want to go through what I did that night not being able to help him and not getting medical staff to care enough to help him in a timely, concerned manner.

Never again.

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I'm so sorry that you and your son had to go through such a horrible experience and I'm glad your son is doing better.

In your letter to the CEO be sure to tell them that their facility and staff needs to under go diversity training and special needs training on what to do and how to treat people with an Intellectual Disability/Developmental Disabilities appropriately and with dignity because the possibility of encountering more people with autism is only going to increase because the prevalence of autism is 1 in 88 children. Then direct them to Dennis Debbaudt's website; Autism Risk & Safety Management http://www.autismriskmanagement.com/,

http://www.debbaudtlegacy.com/autism_fire_rescue_emergency_medical_service.cfm. Tell them to step up to the 21st century and get with the program.

R.

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Sorry to hear about your horrible experience. On a few occasions my son has had adverse reactions to medications, and the most expeditious solution is to call the prescribing physician. Of course they will tell you to go to the ER (you will already be on your way!), but they will probably also call the ER to let them know your child's history and what has worked in the past. We've even had the prescribing physician show up in the ER! ly, calling the prescribing physician puts the responsibility back on them. They, of course, don't want anything bad to happen to their patients, so they are great advocates with the ER staff.

Geraldine

Memorial Hermann Southeast Hostpital NOT special needs friendly

Last weekend my son suffered from an allergic reaction to invega. While traveling in the car his neck contorted he stuck his tongue out, could not close his mouth and started screaming. I stopped by a girlfriends house and gave him benedryl. However he got worse so I drove him to the ER. I left my car running at the entrance rushed him in and encountered a nurse named Lori who proceeded to treat us as if we were at a regular doctors appt. She sat him down and asked me his height weight and allergies at that point my son started screaming help me and fell onto the floor in pain I told her to put him in a room immediately because he needed a shot. She told me there werent any rooms available. I picked him up and ran him past Lori to the back where I shouted he needed help. Two staff members jumped up when Lori came up behind us stating she was putting him in a room. My son, who is 13 105lbs and extremely verbal was leaning on me for support and still screaming help me. Once we were in the room I told Lori to get out and I yelled for another nurse to help us. The second nurse came in and acted extremely nonchalant. When I made the mistake in saying he was autistic her reaction was 'Ohhhhh' and began to downplay his pain. She spoke to him like his was dumb as he was writhing in pain and turning bright red. She addressed me as if I was overly concerned. I told her I understood that he was not going to die, however I wanted his pain to go away! When she left the room to find a doctor I jotted down the information posted at the door of the room of who to complain to if your visit wasnt 'very good'. The info sheet showed pictures of the Medical Director and several managers of the ER. The first doctor showed up 10 minutes later saying he was busy with another patient. I told him to help my son, damn the other patient. He looked in my sons mouth and said his airway was clear and proceeded to walk out. Over his shoulder he instructed the nurse to give my son a steroid shot....a steroid shot???? I am not a physician however my son had another reaction to zypreza with different symptoms and thats not what was given to him...It took 30 minutes for them to give the shot citing they were waiting on formal orders from the doctor. I had to keep going to the nurses station every 10 minutes asking for help. No one came in the room to check on my son. The steroid shot didnt work. My son was screaming for an entire hour at that point. I asked for another doctor. The second doctor came in who happened to be the Medical Director (I recognized her picture) I asked her where they got their staff from. I told her about Lori and the second nurse who then came in the room and then acted concerned. I wanted to know where to send my complaint in writing. The Director informed me she would be on vacation for the next 3 weeks!!!!! Like no big deal. In the meantime my son was still screaming.They gave him a steroid shot, Cogentin shot, and finally ran an IV of benedryl. After 2.5hrs of screaming my son was able to close his mouth and sit up. The steroid shot made him have several accidents however.The staff was ridiculous, treated me poorly and treated my son worse. He had NO business in that amount of pain for that long. They had NO business to ignore his screams, telling me to hold on every time I went to the nurses station asking for help, and finally when I did complain looking at me like I was on another planet and informing me she would be on vacation. Absolutly ridiculous.All of last week I phoned friends telling them what happened who live in the neighborhood. All four of them informed me they do not take their children (all on the spectrum) to that hospital. They go out of their way to travel way to Galveston, Texas Childrens, or St Lukes in Pasadena. Yesterday I was in Macys where I live and the cashier asked me about my son. I told her about our experience, a customer overheard me and say she never takes her daughter, who is special needs and has asthma, to that hospital.I placed a call the CEOs office, Asprec, and spoke at length to her assistant Jan . Jan sounded empathetic and voiced apologies for my experience. She said they would investigate after receiving my letter.My son is well now and I am grateful for that. As a parent you never want to go through what I did that night not being able to help him and not getting medical staff to care enough to help him in a timely, concerned manner.Never again.

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Keep in mind that hospitals are licensed. Seek out the licensing

bureau. I have found that bad hospitals are used to complaints and

send nice little letters of apology, all the while, no changes

made. My opinion is If you don't complain high enough, there will

be no changes.

Heidi N

Apparently the leadership isn't bothered by your compliant or

others. You may write a note to all of the board members, Greg.GrooganFOXTV (DOT) COM

with Fox News and the Houston Chronicle. If nothing else other

parents will be informed.

I am reminded many hospitals will call 911 even when the patient is

in the hospital considering they do a better job of saying lives in

a crisis.

Thank you for sharing the information and hope it never happens

again.

Jimmy Kilpatrick

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