Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Hi in Boston, Welcome to the sleepy heads. Yes, this has been clearly one of my symptoms. For a while, I thought my drowsiness was a result of the anti-depressants, anti-inflams, and cough meds I was taking. But since being finally diagnosed w/ Chiari 1, I stopped taking all the meds and am still drowsy. I seem to have good mornings but by mid afternoon I am going down hill, become sluggish, and if I get the chance I can nap instantly. If, as on week-ends, I get a chance for one or two naps a day, I can keep my strength and energy levels much higher and feel fewer neck aches or head aches. Here is another symptom that I am curious about that I call chronic yawning. I yawn all day long, sometimes four or five in a row. Anybody with that condition out there? , have you noticed the yawning at all? Willis in the Northwoods of Minnesota > ---------- > From: Schapiro[sMTP:lschapiro@...] > Sent: Thursday, April 15, 1999 1:27 PM > To: chiari@... > Subject: fatigue? > > Hello friends, > > I usually have a pretty low profile on this list, preferring to > lurk unless I have a question. Well, now I have a question, so I > hope someone can help! > > Since this past weekend, I have been battling fatigue -- I am > visibly sleepy by the early afternoon and exhausted by the evening. > I have been averaging 8-10 hours of sleep a night in response > to this. > > I mentioned this to my boyfriend and his first response was > " too much sleep. " I responded that my body usually seeks sleep > when it needs it, and I don't usually sleep more than 8 hours > if I don't need the extra sleep. In addition to having trouble > staying awake in the evening, I have had trouble waking up > for the past few days (except yesterday, when I'd had a lot of > sleep the night before). > > I do have a very busy schedule - school and work, both > full-time - which could be a factor, although I'm very > used to this schedule. This morning, however, I again > had trouble getting up -- I was extremely sleepy -- and > my boyfriend told me he was worried that I'm depressed. > While I do know that depression can cause symptoms like this, > I have been depressed before and this doesn't feel like that. > Depression felt like an overwhelming desire to sleep -- this > feels like overwhelming sleepiness. > > Has anyone had a similar problem? Is this Chiari > related, or is there something else I might be overlooking? > I am rather young and not highly symptomatic, but just > the same, I don't want to rule it out. Again, I am reluctant > to think it's a sign of depression, because I am not having > any of the mental or physical symptoms that I know are > part of depression. > > Also, sleep and headaches seem to be related -- I think the > more I get the more headachy I tend to be -- and yet my > body seems to really want the sleep. > > Ideas? > > Thanks, > > in Boston > > (age 25, ACM I, herniation of 12-18mm, > depending on the MRI... No surgery yet...) > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Hi Northwoods Willis, ;-) Wouldn't you know that now that I've sent this I have yet to feel the fatigue this afternoon? Could have something to do with the 10 hours of sleep I got last night... Anyway, thanks for your response on the fatigue. About the yawning issue: yes, at times I feel like I can't stop yawning. It usually happens with the extreme tiredness. I will just keep yawning, over and over again, and I can't seem to help it. Maybe we're onto something here. RE: the headaches, etc. It's funny, when I don't get enough sleep (anything under 7 hours, it seems) I get achy all day, mostly in my neck and arms and shoulders. My head is sometimes a problem on those days. But then, if I get a lot of sleep (like last night, when I got about 10 hours) I tend to wake up not achy in my neck or arms or shoulders, but headachy. It's weird. It's like there's no middle ground. To satisfy one condition I have to aggravate another. Hmmmph. Any other sleepyheads out there? ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 1999 Report Share Posted April 15, 1999 Hi All, I thought I would put my input into this for a change. Fatigue seems to be a problem with me too. At times its very frustrating. Lately at work by noon I can barely keep my eyes open.. My body feels achy and just wants to do nothing. I visualize coming home and sleeping. I have not been able to put the hours in that I used to. I can sympathize with anyone who has the same problem. It has to be chiari related. (Guelph) Re: fatigue? >Hi Northwoods Willis, ;-) > >Wouldn't you know that now that I've sent this I have yet to feel the >fatigue this afternoon? Could have something to do with the 10 hours >of sleep I got last night... > >Anyway, thanks for your response on the fatigue. About the yawning >issue: yes, at times I feel like I can't stop yawning. It usually happens >with the extreme tiredness. I will just keep yawning, over and over >again, and I can't seem to help it. Maybe we're onto something here. > >RE: the headaches, etc. >It's funny, when I don't get enough sleep (anything under 7 hours, it >seems) I get achy all day, mostly in my neck and arms and shoulders. >My head is sometimes a problem on those days. But then, if I get a >lot of sleep (like last night, when I got about 10 hours) I tend to >wake up not achy in my neck or arms or shoulders, but headachy. >It's weird. It's like there's no middle ground. To satisfy one >condition I have to aggravate another. Hmmmph. > >Any other sleepyheads out there? > > > > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 it is 3:36 a.m. and my mind is still going....my body is very fatigued though. very achy and muscle spasms. I have major insomnia...I,ve been up now for 22 1/2 hours..........I usually only get 2 to 3 hours of sleep a night. I try to sleep as my body is very exhausted but i can't shut off my brain!!!!! I also yawn excessively. I used to want to sleep all the time but for the last month i " ve been doing this........my sleeping patterns are all screwed up. Does anybody know why???? Sam ACM/Klippel Feil sm.cervical syrinx, no surgery.....yet At 02:27 PM 4/15/99 -0500, you wrote: >Hi in Boston, > Welcome to the sleepy heads. Yes, this has been clearly one of my >symptoms. For a while, I thought my drowsiness was a result of the >anti-depressants, anti-inflams, and cough meds I was taking. But since >being finally diagnosed w/ Chiari 1, I stopped taking all the meds and am >still drowsy. I seem to have good mornings but by mid afternoon I am going >down hill, become sluggish, and if I get the chance I can nap instantly. >If, as on week-ends, I get a chance for one or two naps a day, I can keep my >strength and energy levels much higher and feel fewer neck aches or head aches. > >Here is another symptom that I am curious about that I call chronic yawning. > I yawn all day long, sometimes four or five in a row. Anybody with that >condition out there? , have you noticed the yawning at all? > > Willis in the Northwoods of Minnesota > >> ---------- >> From: Schapiro[sMTP:lschapiro@...] >> Sent: Thursday, April 15, 1999 1:27 PM >> To: chiari@... >> Subject: fatigue? >> >> Hello friends, >> >> I usually have a pretty low profile on this list, preferring to >> lurk unless I have a question. Well, now I have a question, so I >> hope someone can help! >> >> Since this past weekend, I have been battling fatigue -- I am >> visibly sleepy by the early afternoon and exhausted by the evening. >> I have been averaging 8-10 hours of sleep a night in response >> to this. >> >> I mentioned this to my boyfriend and his first response was >> " too much sleep. " I responded that my body usually seeks sleep >> when it needs it, and I don't usually sleep more than 8 hours >> if I don't need the extra sleep. In addition to having trouble >> staying awake in the evening, I have had trouble waking up >> for the past few days (except yesterday, when I'd had a lot of >> sleep the night before). >> >> I do have a very busy schedule - school and work, both >> full-time - which could be a factor, although I'm very >> used to this schedule. This morning, however, I again >> had trouble getting up -- I was extremely sleepy -- and >> my boyfriend told me he was worried that I'm depressed. >> While I do know that depression can cause symptoms like this, >> I have been depressed before and this doesn't feel like that. >> Depression felt like an overwhelming desire to sleep -- this >> feels like overwhelming sleepiness. >> >> Has anyone had a similar problem? Is this Chiari >> related, or is there something else I might be overlooking? >> I am rather young and not highly symptomatic, but just >> the same, I don't want to rule it out. Again, I am reluctant >> to think it's a sign of depression, because I am not having >> any of the mental or physical symptoms that I know are >> part of depression. >> >> Also, sleep and headaches seem to be related -- I think the >> more I get the more headachy I tend to be -- and yet my >> body seems to really want the sleep. >> >> Ideas? >> >> Thanks, >> >> in Boston >> >> (age 25, ACM I, herniation of 12-18mm, >> depending on the MRI... No surgery yet...) >> >> >> >> ------------------------------------------------------------------------ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 In a message dated 99-04-15 15:35:58 EDT, lschapiro@... writes: << I will just keep yawning, over and over again, and I can't seem to help it. >> <<I seem to have good mornings but by mid afternoon I am going down hill, become sluggish, and if I get the chance I can nap instantly.>> <<I have been averaging 8-10 hours of sleep a night in response to this. Hi all, Yup, I'm this way too at times. All of the sudden I'll feel exausted and I'll lay down and fall asleep right away. Sometimes for hours. And I am getting around 9hrs of sleep at night as it is. I am not on any meds. either, so there is nothing to contribute this to except chiari, or the theroy that I am getting too much sleep. But I can't function, so I have to sleep. It's like all my energy is zapped out of me, in an instant. And I do yawn alot too, but usually this happens more when I sleep less. And to Sam, It wasn't but a month ago that I went through just what you said. I was getting about 4hrs a night. Now I can't get enough. Weird huh? Maybe I'm still adjusting to the lack of sleep for so long. Oh well, such is the chiari lifestyle. Hope you get some rest soon. Take care all, Melinda 29, ACM 1-5mm, no sryinx, no surgery, but a bunch of symptoms ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 One of my worst symptoms is fatigue. Before I stopped working in Nov. 98, I would come home from school( I am a teacher) and go to bed at 4:00 in the afternoon, sleep till dinner time and go back to bed. I had to do this to be able to get up and go again the next morning. If you stop and think about the theory that fibromyalgia/chrinic fatigue are caused by chiari 1, then it all makes sense. I believe that this theory will be proved eventually. In the meantime all we can do is get lots of rest. If I do anything out of the ordinary I pay for it the next couple of days with unrelenting, disabling fatigue. Cherry Re: fatigue? >Hi Northwoods Willis, ;-) > >Wouldn't you know that now that I've sent this I have yet to feel the >fatigue this afternoon? Could have something to do with the 10 hours >of sleep I got last night... > >Anyway, thanks for your response on the fatigue. About the yawning >issue: yes, at times I feel like I can't stop yawning. It usually happens >with the extreme tiredness. I will just keep yawning, over and over >again, and I can't seem to help it. Maybe we're onto something here. > >RE: the headaches, etc. >It's funny, when I don't get enough sleep (anything under 7 hours, it >seems) I get achy all day, mostly in my neck and arms and shoulders. >My head is sometimes a problem on those days. But then, if I get a >lot of sleep (like last night, when I got about 10 hours) I tend to >wake up not achy in my neck or arms or shoulders, but headachy. >It's weird. It's like there's no middle ground. To satisfy one >condition I have to aggravate another. Hmmmph. > >Any other sleepyheads out there? > > > > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 1999 Report Share Posted April 16, 1999 Sam, Same here, I go on for days like the Energizer Bunny. I'm lucky if I get a solid 2 hours sleep a night. Between the pain and the mind working overtime I feel very fatigue but can't sleep. Like they say life must go so I have learned to except the lack of sleep and to live around it. June ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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