Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 To anyone who is interested-I've been reading the discussions on " Acetylcysteine " so thought I'd throw in my two-cents worth. I've been on this drug for one and a half years. I'm on 600 mg. 3 times a day. I get mine from the UWMC pharmacy. My doctor does not want me to go to a health food store as he says they are not regulated by the same guidelines as the pharmacies and he needs to know exactly what is in the medicenes I am taking. I pay $23.50 for each bottle and receive it in the mail about 2 days after I call in my order. It's really simple and I've never had a delay in getting it. I am also on 10 mg. of prednisone, and 50 mg. of " Azathioprine " . I don't know which one is helping however I have very little mucus and hardly ever cough any up. When first diagnosed I was coughing a lot! My PLF tests show that my breathing is exactly the same as it was last summer when I was tested. I do exercise at the Pulmonary Rehab. facility here 3 times a week and try to walk for at least a half hour on the other days. I know the exercise is part of the reason I have stayed stabilized but also think the medicenes are helping. I hope to reduce the prednisone to 5 mg. every other day if I can get my doctor to agree. Hope this helps someone. (My disease is a little different from most of you - " Hypersensitivity Pneumonitits) but I do have severe pulmonary fibrosis and am ox. 24 hours a day). I also found out that changing to a lower altitude helps me so am considering moving to the coast!! Ronnie --- Breathe-Support wrote: > There are 25 messages in this issue. > > Topics in this digest: > > 1. Re: wedge > From: " Peggy " pac1773@... > 2. Re: wedge > From: " Peggy " pac1773@... > 3. oxygen meter > From: " singletary1934 " > singletary1934@... > 4. Re: wedge > From: " Peggy " pac1773@... > 5. Re: wedge > From: " linda arnold " lovepuppy49@... > 6. Re: wedge > From: " Peggy " pac1773@... > 7. Re: NAC > From: " Sheila Strong " > strongs_gifts@... > 8. Re: wedge > From: " Sheila Strong " > strongs_gifts@... > 9. Re: NAC~ Sheila**** > From: " Sheila Strong " > strongs_gifts@... > 10. Re: wedge > From: " linda arnold " lovepuppy49@... > 11. Re: wedge > From: " Barbara Soice " babs594@... > 12. Re: oxygen meter > From: " Barbara Soice " babs594@... > 13. Re: wedge > From: " linda arnold " lovepuppy49@... > 14. Re: wedge > From: " linda arnold " lovepuppy49@... > 15. Re: wedge > From: " Barbara Soice " babs594@... > 16. Re: oxygen meter > From: " denise randel " dnsrndl@... > 17. Re: oxygen meter > From: " Carol Santi " > carolsanti@... > 18. Barb Got your PJ > From: " " kpoooh9@... > 19. Re: New diagnosis > From: " jose singletary " > jsingletary@... > 20. Re: wedge > From: " TongueDancer2U@... " > TongueDancer2U@... > 21. Re: For those over the age of 40!! > From: " TongueDancer2U@... " > TongueDancer2U@... > 22. Re: wedge > From: " TongueDancer2U@... " > TongueDancer2U@... > 23. Re: New diagnosis > From: " TongueDancer2U@... " > TongueDancer2U@... > 24. Re: wedge > From: " janne5303 " joycedalton29@... > 25. Re: NAC > From: " janne5303 " joycedalton29@... > > ________________________________________________________________________ > ________________________________________________________________________ > > Message 1 > From: " Peggy " pac1773@... > Date: Mon Apr 24, 2006 8:16pm(PDT) > Subject: Re: wedge > > Joyce, I had graves disease ( inward growing thyroid > ) had surgery. That was > 30 years ago. Now I have nodules on my thyroid found > last year. I'm afraid > they may be getting bigger. I'm going to check it > out soon. > I like the velcro idea but my skin is pretty > sensitive. lol But I wouldn't > have to pester my hubby to scratch my back.. God > Bless Peggy > > > > on 4/24/06 9:56 PM, janne5303 at > joycedalton29@... wrote: > > > Peggy, > > My wedge is as wide across as a hospital bed and > come down about 1/2 way the > length of the bed. I put a pillow on that. > Sometimes I just use pillows > piled up. I slide down in the night and that is > when I get into trouble. > My sleep panic is because I get into a position > where I am too flat and can > not breathe. I thought of velcro jammies..ha! > > I am worried about your neck discomfort. Did you > ask the doc? > > Love, > > Joyce > > > > > Hi Group, Question.... AGAIN... When I lay down I > feel like something is > > laying on my neck preventing me from getting air.. > Is this part of it ? I'm > > thinking it may be my thyroid growing again. I > know this sounds crazy but > > It's me..LOL > > Do any of you sleep on a wedge? I am trying to > stay on one, not very > > successfully. It's a 12 " one maybe a smaller one > would do. > > God Bless Peggy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Hi Ronnie, Good to hear from you again. I'm glad your getting along well. Just be careful reducing your prednisone.. God BLESS Peggy on 4/27/06 1:58 PM, Jerome Tuss at runningred3@... wrote: To anyone who is interested-I've been reading the discussions on " Acetylcysteine " so thought I'd throw in my two-cents worth. I've been on this drug for one and a half years. I'm on 600 mg. 3 times a day. I get mine from the UWMC pharmacy. My doctor does not want me to go to a health food store as he says they are not regulated by the same guidelines as the pharmacies and he needs to know exactly what is in the medicenes I am taking. I pay $23.50 for each bottle and receive it in the mail about 2 days after I call in my order. It's really simple and I've never had a delay in getting it. I am also on 10 mg. of prednisone, and 50 mg. of " Azathioprine " . I don't know which one is helping however I have very little mucus and hardly ever cough any up. When first diagnosed I was coughing a lot! My PLF tests show that my breathing is exactly the same as it was last summer when I was tested. I do exercise at the Pulmonary Rehab. facility here 3 times a week and try to walk for at least a half hour on the other days. I know the exercise is part of the reason I have stayed stabilized but also think the medicenes are helping. I hope to reduce the prednisone to 5 mg. every other day if I can get my doctor to agree. Hope this helps someone. (My disease is a little different from most of you - " Hypersensitivity Pneumonitits) but I do have severe pulmonary fibrosis and am ox. 24 hours a day). I also found out that changing to a lower altitude helps me so am considering moving to the coast!! Ronnie --- Breathe-Support wrote: > There are 25 messages in this issue. > > Topics in this digest: > > 1. Re: wedge > From: " Peggy " pac1773@... > 2. Re: wedge > From: " Peggy " pac1773@... > 3. oxygen meter > From: " singletary1934 " > singletary1934@... > 4. Re: wedge > From: " Peggy " pac1773@... > 5. Re: wedge > From: " linda arnold " lovepuppy49@... > 6. Re: wedge > From: " Peggy " pac1773@... > 7. Re: NAC > From: " Sheila Strong " > strongs_gifts@... > 8. Re: wedge > From: " Sheila Strong " > strongs_gifts@... > 9. Re: NAC~ Sheila**** > From: " Sheila Strong " > strongs_gifts@... > 10. Re: wedge > From: " linda arnold " lovepuppy49@... > 11. Re: wedge > From: " Barbara Soice " babs594@... > 12. Re: oxygen meter > From: " Barbara Soice " babs594@... > 13. Re: wedge > From: " linda arnold " lovepuppy49@... > 14. Re: wedge > From: " linda arnold " lovepuppy49@... > 15. Re: wedge > From: " Barbara Soice " babs594@... > 16. Re: oxygen meter > From: " denise randel " dnsrndl@... > 17. Re: oxygen meter > From: " Carol Santi " > carolsanti@... > 18. Barb Got your PJ > From: " " kpoooh9@... > 19. Re: New diagnosis > From: " jose singletary " > jsingletary@... > 20. Re: wedge > From: " TongueDancer2U@... " > TongueDancer2U@... > 21. Re: For those over the age of 40!! > From: " TongueDancer2U@... " > TongueDancer2U@... > 22. Re: wedge > From: " TongueDancer2U@... " > TongueDancer2U@... > 23. Re: New diagnosis > From: " TongueDancer2U@... " > TongueDancer2U@... > 24. Re: wedge > From: " janne5303 " joycedalton29@... > 25. Re: NAC > From: " janne5303 " joycedalton29@... > > ________________________________________________________________________ > ________________________________________________________________________ > > Message 1 > From: " Peggy " pac1773@... > Date: Mon Apr 24, 2006 8:16pm(PDT) > Subject: Re: wedge > > Joyce, I had graves disease ( inward growing thyroid > ) had surgery. That was > 30 years ago. Now I have nodules on my thyroid found > last year. I'm afraid > they may be getting bigger. I'm going to check it > out soon. > I like the velcro idea but my skin is pretty > sensitive. lol But I wouldn't > have to pester my hubby to scratch my back.. God > Bless Peggy > > > > on 4/24/06 9:56 PM, janne5303 at > joycedalton29@... wrote: > > > Peggy, > > My wedge is as wide across as a hospital bed and > come down about 1/2 way the > length of the bed. I put a pillow on that. > Sometimes I just use pillows > piled up. I slide down in the night and that is > when I get into trouble. > My sleep panic is because I get into a position > where I am too flat and can > not breathe. I thought of velcro jammies..ha! > > I am worried about your neck discomfort. Did you > ask the doc? > > Love, > > Joyce > > > > > Hi Group, Question.... AGAIN... When I lay down I > feel like something is > > laying on my neck preventing me from getting air.. > Is this part of it ? I'm > > thinking it may be my thyroid growing again. I > know this sounds crazy but > > It's me..LOL > > Do any of you sleep on a wedge? I am trying to > stay on one, not very > > successfully. It's a 12 " one maybe a smaller one > would do. > > God Bless Peggy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 50 mg. of "Azathioprine". Ronnie, any idea what the "Azathioprine" is for exactly? kiss kiss, ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Hi Girls I am on 150 mg Azathioprine. They tell me it is for reducing the amount of presidnisone you need to take Hug Hug P TongueDancer2U@... wrote: 50 mg. of "Azathioprine". Ronnie, any idea what the "Azathioprine" is for exactly? kiss kiss, ~Ginger~ Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Hi Ginger, I was on AZ for 8 weeks but it messed up my liver enzymes whatever..It was to help while coming off prednisone. missed you on the phone chat. God Bless Peggy on 4/28/06 12:40 PM, at kpoooh9@... wrote: Hi Girls I am on 150 mg Azathioprine. They tell me it is for reducing the amount of presidnisone you need to take Hug Hug P TongueDancer2U@... wrote: 50 mg. of " Azathioprine " . Ronnie, any idea what the " Azathioprine " is for exactly? kiss kiss, ~Ginger~ Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
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