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I have waited 11 months for social security to rule on my benefits. They

have decided that I can work. I was never even sent to a state doctor. I

am very upset. Has anyone applied and actually recieved benefits? The

doctors I have seen do not know what ACM really is. So what gives these

state doctors the right to make these descion. I am 22, I would work if

I could. Please give me some encourgement and write in your own

experiences. I plan on sending these things with my appeal. So the more

stories I have the better. Thank so much,

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At 2:17 PM -0500 3/11/99, Read wrote:

>I have waited 11 months for social security to rule on my benefits. They

>have decided that I can work.Hi Jenn,

I applied in July for social sec.

after my first determination and I was turned down and told that I was able

to work, I got a lawyer. A good friend of mine, who is a federal judge in

disability told me tthat this is what I needed to do.

I asked him if (hypothetical) he saw my application ........would he give

it to me. He said NO.......based on what you have told me and what you have

written on your app. I would have to get some specialists opinions on the

fact of if I could work or not. I would have to prove the fact. The burden

is on the applicant......

So.......I hired a lawyer and plan on appealing every wrong determination I

may recieve.

Be prepared for many form letters to be sent to you. It is really a pain

but get a good lawter and let them do the worrying.

And to answer your question " Yes " there are many people with chiari who are

now drawing it.

Hugs,

Judy

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>At 2:17 PM -0500 3/11/99, Read wrote:

>>I have waited 11 months for social security to rule on my benefits. They

>>have decided that I can work.

When I applied for social security. I just had to fill out a form, get my

doctor to fill in his part.

take it to my local office wait about 3 days. then I had my 'pension'

The social security system in the USA must be a lot harder then in

Australia........

Hugs

Mitch

ACM2

Dandy walker syndrome

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At 6:47 AM +1100 3/13/99, Mitch wrote:

>>At 2:17 PM -0500 3/11/99, Read wrote:

>>>I have waited 11 months for social security to rule on my benefits. They

>>>have decided that I can work.

>

>

>When I applied for social security. I just had to fill out a form, get my

>doctor to fill in his part.

>take it to my local office wait about 3 days. then I had my 'pension'

>

>The social security system in the USA must be a lot harder then in

>Australia........

>

>Hugs

>Mitch

Hi Mitch,

Yes I believe that SS in USA has to be the toughest for sure. I am

told that only about 1% get it the first go-round. It is very frustrating

but, if people hang in there.........they usually come through.

Hugs,

Judy Marie

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wrote:

Original Article: /list/chiari/?start=13837

> I have waited 11 months for social security to rule on my benefits. They

> have decided that I can work. I was never even sent to a state doctor. I

> am very upset. Has anyone applied and actually recieved benefits? The

> doctors I have seen do not know what ACM really is. So what gives these

> state doctors the right to make these descion. I am 22, I would work if

> I could. Please give me some encourgement and write in your own

> experiences. I plan on sending these things with my appeal. So the more

> stories I have the better. Thank so much,

>

Hi ,

I have been receiving SS for 8 years. It took two years. I was refused twice

and an advocate handled my appeal. The third go round was actually with a judge

and there were " neutral " experts to determine my ability to work. It is

important that they know that even tho' you can sit, you can't sit long, you can

walk, but not for long, etc. any details help their determination. At the time

I received disability, I didn't even have a diagnosis of SM. But I had had back

surgery and while I knew (and so did they) that it was not causing all my

problems, they used it as a diagnosis and I was classified as disabled. I told

the judge it was hard to win a race when you had to prove you couldn't. He got

it! Don't give up. they are hoping you will do just that. That's why they make

it difficult. Survival of the fittest, I guess. Hang in there and get help if

you need it. They will come through in the end.

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All I had to do was the same as Mitch. My pension was even backdated to the day

that I enquired about it. I find it difficult to imagine that any one from

Social Security could say that most of us with acm and all the extras can hold

down a job. I shall never complain about Social Services here again. Keep your

fingers crossed and your chin up and hopefully it will turn out in the end

Regards Ann Brisbane Australia

Mitch wrote:

> >At 2:17 PM -0500 3/11/99, Read wrote:

> >>I have waited 11 months for social security to rule on my benefits. They

> >>have decided that I can work.

>

> When I applied for social security. I just had to fill out a form, get my

> doctor to fill in his part.

> take it to my local office wait about 3 days. then I had my 'pension'

>

> The social security system in the USA must be a lot harder then in

> Australia........

>

> Hugs

> Mitch

>

> ACM2

> Dandy walker syndrome

>

> ------------------------------------------------------------------------

>

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Good morning Ann, Seems I stirred up a few people over that multiple

surgery post........

We may bitch about the health system over here but thank god we live in

Australia..

Countries that have a better economy then us and much larger population seem

to have

a faulty health care system..... I hope they never completely privatise

health care

in Australia. Cos I fear if they do, Over servicing will occur... quality

of care will faulter.

Maybe the Doctors could be made to work in the public system.

now and then. so they dont lose touch with thier humanity.

*hugs* and love

.

(registed stirrer #343254344AU)

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