Re: For Those of Us Who are Mad and Tired

[Guest guest]

excess calcium could be a malfunctioning parathyroid gland. This is separate

from the thyroid.

>

>

>

> How do you know how much vitamin D? I had mine checked and the doc of

> course said it was fine, but I started taking two thousand mg a day and I

> feel so much better, and when I remember to take it, I have fewer hot

> flashes, which I have been fighting for FIVE long years now. I also started

> taking Adrenergize, and that is helping as well.

>

> I have Ethan on all the recommended supps for AC chelation, and adrenal

> support has made a world of difference for him.

>

> HIlda, I cannot believe that person would write such a thing! Was that a

> church member? If people would truly live their faith -- ah, how the world

> would change.

>

> I am the " crazy " lady in our town who thinks that nutrition is important. I

> am crazy because I have always talked about how children with autism can

> improve. I've had " educators " actually roll their eyes in front of me.

> When they would have parties when Ethan was in public, you wouldn't believe

> the crap that was laid out on the table --every kind of sugary, bad

> carbohydrate you can think of. I always brought an organic fruit tray and a

> dip made with coconut yogurt and organic no sugar added fruit spread. I

> made sure to fix Ethan's plate first because the kids went for it, and that

> was the only thing I would let him have.

>

> One mom said to me as she watched Ethan eat his fruit, " My son should be

> eating that. " But people just don't want to change. If this had not

> happened to us, I still wouldn't have let my son be a junk food junkie, but

> I know we would have had pizza night! I have to confess that.

>

> One more thing abut vitamin D and magnesium. I was having horrible lower

> back pain for quite some time. Training horses and riding all kinds of

> horses over the last thirty years has taken its toll. I thought this was it

> and I would just have to live with it because I was not going to take

> NSAIDS. since starting the vitamin D and magnesium, I have no lower back

> pain! I think vitmain D is even more important than calcium but that's JMO.

>

> Haven

>

[Guest guest]

http://www.vitamindcouncil.org/dr-hollis-resigns-from-vitamin-d-councils-board/Malfunctioning parathyroid gland appears to be caused by lack of vitamin D.

" Some scientists say 20 ng/ml (50 nmol/L) is good enough because parathyroid hormone (PTH) is pretty much suppressed with levels of 20, other scientists say levels should be 30 because calcium absorption is maximized with that level. That is, PTH suppression and calcium absorption are biomarkers for adequate vitamin D blood levels. "

 

excess calcium could be a malfunctioning parathyroid gland. This is separate from the thyroid.

>

>

>

> How do you know how much vitamin D? I had mine checked and the doc of

> course said it was fine, but I started taking two thousand mg a day and I

> feel so much better, and when I remember to take it, I have fewer hot

> flashes, which I have been fighting for FIVE long years now. I also started

> taking Adrenergize, and that is helping as well.

>

> I have Ethan on all the recommended supps for AC chelation, and adrenal

> support has made a world of difference for him.

>

> HIlda, I cannot believe that person would write such a thing! Was that a

> church member? If people would truly live their faith -- ah, how the world

> would change.

>

> I am the " crazy " lady in our town who thinks that nutrition is important. I

> am crazy because I have always talked about how children with autism can

> improve. I've had " educators " actually roll their eyes in front of me.

> When they would have parties when Ethan was in public, you wouldn't believe

> the crap that was laid out on the table --every kind of sugary, bad

> carbohydrate you can think of. I always brought an organic fruit tray and a

> dip made with coconut yogurt and organic no sugar added fruit spread. I

> made sure to fix Ethan's plate first because the kids went for it, and that

> was the only thing I would let him have.

>

> One mom said to me as she watched Ethan eat his fruit, " My son should be

> eating that. " But people just don't want to change. If this had not

> happened to us, I still wouldn't have let my son be a junk food junkie, but

> I know we would have had pizza night! I have to confess that.

>

> One more thing abut vitamin D and magnesium. I was having horrible lower

> back pain for quite some time. Training horses and riding all kinds of

> horses over the last thirty years has taken its toll. I thought this was it

> and I would just have to live with it because I was not going to take

> NSAIDS. since starting the vitamin D and magnesium, I have no lower back

> pain! I think vitmain D is even more important than calcium but that's JMO.

>

> Haven

>

[Guest guest]

Regarding vitamin D, I have tried to take it myself in the past and it caused my heart to race. In researching that, I found it can be a common side effect. My grandson with autism is 15. What would be the proper dose for him, and can someone recommend a certain brand. Thanks.

C.

[Guest guest]

Thank you so much for all the encouragement and info you provide on this board! I have finally bought the body ecology diet book. It is very overwhelming but I am going to implement a few things at a time. After learning about the tremendous benefits of young coconut, I went to my local health food store (I recently moved to Columbia, MO). I asked if they had any young coconuts. They didn't but they had a new product called cocokeifer. The man warned me to NOT start with the recommend serving size. I went to the web site. This company was started by a family that recovered their child from autism and wanted to help other families. This product is WONDERFUL! It is a very powerful probiotic and has many other nutritional qualities. I highly recommend this for those going or thinking of going this route. Next I want to start to culture my own vegetables. Is it best to buy the " starter " from Donna Gates then save some of the juices for the next batch just like you would do when you make yogurt? I do not own a Cusinart. What size is best to grate vegetables to culture them for my whole family?Thanks for all the help! I am sure I will have lots of questions. I am nervous about culturing vegetables but just have to do it!Dione Sent from my HTC on the Now Network from Sprint!Sent from my HTC on the Now Network from Sprint!

[Guest guest]

Carolyn/Louis: My parathyroid hormone is low (correctly so) in response to my calcium level being elevated. My diet is this: Vegetables, nuts with occasional fruit. Basically it is gluten free, casein free, sugar free, anti-inflammatory (no soy), low oxalate, low sodium, low fat. As I said, my diet is excellent and my 24-hr urine confirmed for the doctor that I am indeed sticking to this diet. They thought originally my kidney stones was from the Diamox I have to take because of pseudotumor cerebri. They took me off of it; of course, that has left me with horrible problems related to that since September. We've added lemon-water at a ratio of 1/2 cup lemon juice to 7-1/2 cups of water. He was last checking a magnesium level because he said that sometimes would cause an elevated calcium. Serum protein electrophoresis, PTH-rP have come back negative (gratefully, no multiple myeloma, etc.) He said if the magnesium is okay though, the last thing on this checklist is my vitamin D intake. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Louis TruettSent: Monday, May 30, 2011 6:22 AMTo: Texas-Autism-Advocacy Subject: Re: Re: For Those of Us Who are Mad and Tired Hilda, That is common belief by doctors that it had to do with too much vitamin D. It's likely the other way around. Too much calcium plus diet being not alkaline enough to prevent kidney stone (not enough vegetables, too much refined food like bread, pasta, etc, soda pops, too much sugary stuff). The reality is that we don't really need that much calcium if we get enough vitamin D. If you are taking calcium supplement, you should stop it or cut back if not getting much from the diet. http://www.vitamindcouncil.org/news-archive/2006/vitamin-d-and-kidney-stones/ Hope this helps. Louis: It was my endocrinologist who recommended we get a level several years ago and I was deficient. This was when I was getting respiratory stuff (colds, flu, pneumonia) all the time. She put me on a prescription dosage for 6 weeks and then we started with 1000 IU a day, checked the level after 6-8 weeks, and wound up where we are today, at about 5000 IU units a day which maintains my level at 45 which is in the middle of the normal range for that particular laboratory. My insurance has always paid it, even back then. Now, because my calcium level is elevated and there doesn't appear to be a corresponding reason (they've done a lot of lab), my nephrologist thinks it is my vitamin D intake and suggests that we start removing some of it and get it to the point where my calcium level comes down (because I'm getting kidney stones and all other sources including diet have been ruled out), but not to the point where I'm getting sick. I insist that he talk to the endocrinologist before I even start on this because she said it was not the reason and it was perfect where it was. If he can convince her it is necessary, then I would agree to try it out--only TRY it. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Louis TruettSent: Sunday, May 29, 2011 10:24 PMTo: Texas-Autism-Advocacy Subject: Re: Re: For Those of Us Who are Mad and Tired Hmm. Interesting. Then I don't know. Lol. It just seemed like most don't cover it. I haven't personally meet a doctor that knows a thing about vitamin D. The closest one that really wanted to meet me is in Wyoming (my mother's doctor) because of it. Others go " huh? really? " or " that sounds like a lot... " then gives me a lecture over it with badly outdated information coming from 30 years ago. Lol. I don't blame doctors. It's not something they learned in great details in medical schools but it looks like it is changing rapidly from what I googled. Too many information about vitamin D to ignore... Really? Mine covers it. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Louis TruettSent: Sunday, May 29, 2011 9:52 PMTo: Texas-Autism-Advocacy Subject: Re: Re: For Those of Us Who are Mad and Tired Sadly most insurance won't cover it. It is relatively cheap to order kits from vitamin D council and do them yourself. ( Grassroots health website is another option as well). 800 IU isn't much. You must go with 2000 IU per 25lbs of bodyweight to see maximum effect in autistic kids and others with chronic diseases. For toxicity - read this - http://www.vitamindcouncil.org/about-vitamin-d/what-is-vitamin-d/vitamin-d-toxicity/ - it takes much higher than you think. For Caucasian adults, they get 10,000-20,000 IU after 30 minutes in the sun during summer between 10 am and 2 pm without a shirt and sunblock. Unfortunately, air pollution in large cities can block UVB sunlight so you may end up not producing enough vitamin D in the skin. It's much easier to pop vitamin D supplement. I can't imagine having to try and get some sun in Texas during summer. Just too hot and humid esp in Houston... when you have to work, etc. For black people, it takes much longer to produce same amount of vitamin D as Caucasians. That's why they tend to have more health problems and die earlier. Even CDC acknowledged it but apparently is not doing a thing about it. I read somewhere that the test to check for D levels is very expensive and insurance wont cover it. True? I am giving my son 800 IU per day but plan to up. I think up to 10-20 IU is safe before you see toxicity issues. I need to increase his calcium, mag, and C. Thanks for the info! Re: Re: For Those of Us Who are Mad and Tired Hi Haven, What was your vitamin D level? Optimal level for healthy people is 50-80 ng/ml. For people with chronic disease should be within 80-100 ng/ml to begin healing process before moving to 50-80 ng/ml. Rule of thumb is 1000 IU for every 25 lbs of body weight for healthy people. 2000 IU for every 25 lbs of bodyweight for people with chronic illness such as asthma, allergies, autism, diabetes, etc. According to CDC, 97% of USA population is within 20-30 ng/ml range and CDC calls that normal which is pure BS. Problems begin when you fall below 32 ng/ml so that makes no sense why CDC even suggests that that level is fine. I did some checking on adrenal fatigue and vitamin D definitely plays a big part of it along with magnesium (400mg a day for adults) and vitamin C (3 grams a day). Believe it or not, with vitamin D level at 50-80 ng/ml, calcium absorption is much greatly absorbed. We can cut recommendation in half and still absorb enough calcium for bone health! You should go to vitamin D council website and sign up for membership (50 dollars a year). You will learn a great deal about vitamin D. In the last newsletter, Dr. Cannell wrote about hip fractures and how they tend to have complications from surgeries. Turns out that they had very low vitamin D level and was often slow to heal and sometimes get infection. Vitamin D plays a huge part of keeping infection under control (basically universal antibiotic) and keeping bones strong and heal broken bones much faster. Not only that, surgeries tend to take up enormous amount of vitamin D as part of healing process but when you already have vitamin D deficiency, it makes a serious situation much worse. How do you know how much vitamin D? I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now. I also started taking Adrenergize, and that is helping as well.I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.HIlda, I cannot believe that person would write such a thing! Was that a church member? If people would truly live their faith -- ah, how the world would change.I am the " crazy " lady in our town who thinks that nutrition is important. I am crazy because I have always talked about how children with autism can improve. I've had " educators " actually roll their eyes in front of me. When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of. I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread. I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.One mom said to me as she watched Ethan eat his fruit, " My son should be eating that. " But people just don't want to change. If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night! I have to confess that.One more thing abut vitamin D and magnesium. I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll. I thought this was it and I would just have to live with it because I was not going to take NSAIDS. since starting the vitamin D and magnesium, I have no lower back pain! I think vitmain D is even more important than calcium but that's JMO.Haven

[Guest guest]

Lorree, I don't know really....but I think it has to do with my attitude. I

didn't view the whole process as sucking. I was very thankful to have a way

out. I believed that if I stuck with it, it was a way out of autism. Of

course this wasn't the whole picture, but it was a very large part of our

puzzle. The habits and dilligence alone really helped all the other parts come

together. I mean that we had established the idea that Mommy was in charge.

Not to say that a big part eventually wasn't following my child. I joined him

in a Son-Rise playroom for 3 years.

Once you get them eating, there is lots of variety. After a few years of no

fruit, fruit became amazing. Now a basic GFCFSF diet is a piece of cake and my

kids don't feel deprived. They know that for our family we have to put good

things into our body. Obesity, death, diabetes, and neuroinflammation isn't an

option for us.

I don't pretend to know how it will go in the future. My kids are 5 and 7.

But I do believe we'll be just fine. I think since my husband and I eat this

way this helps a great deal.

Just the other day my daughter was offered a piece of cake at a birthday party.

She declined and aferwards I took her to a store to treat her body in another

way, to buy a new pair of sparkly flip flops.

All the variety in the grocery store isn't variety anyway....it's mostly all

made of corn. Just about the entire standard american diet is dairy and wheat.

Today we went to Schlitterbahn. My kids are healthy. I see illness all

around. It's getting harder to find healthy looking kids. We took GF

pretzels, strawberries, grapes, chicken/vege kabobs, cinamon rice cakes w/almond

butter, and lara bars. To my kids this is heaven! The good part of doing body

ecology is that your kids will appreciate EVERYTHING when it's over.

Lorree, I don't view this diet as something I'll try for a period of time.

We'll live this way forever, so we might as well live joyfully!

All the best!

> >

> > ,

> >

> > I loved the show. Makes me want to get going. But I have the same

> > question. What does this taste like? My son loves coconut yogurt and the

> > commercial coconut kefir, though I know these have some type of sugar in

> > them. With the wirte starter, would I be able to make our own yogurts, as

> > well --without any of the bad sugars in tehm. I mean, then could I make it

> > with Stevia or Xylotol? Or perhaps kids finally learn to appreciate the

> > taste without any sweetness to it?

> >

> > On a happier note, Ethan received a three wheeled bicycle yesterday from

an

> > organization, and at first he was scared. Though we worked with him when

he

> > was younger, he was never able to get the hang of riding a tricycle.

> > Anyway, like he always does when he gets frustrated learning something

new,

> > he started to cry and say he couldn't do it and he didn't want to. I told

> > the volunteers he always says that when learning something new. I thought

> > it was going to take some time -- it took over a week of shining and

> > reassurance to teach him to hold his breath under water and to swallow

> > capsules.

> >

> > Well, he got home and worked on it and within a couple of hours he was

> > riding the bicycle and beaming! In another year, I think he will graduate

> > up to a two wheeled bike. But for now it is good to have something to get

> > him more active. The years of steroids he was on reallyput the pounds on

> > him. However he is growing by leaps and pounds and last time we checked he

> > was 5'3 " ! I think by the end of this year, he will be taller than me!

> >

> > Thanks for all your help.

> >

> > Haven

> >

>

[Guest guest]

Dione when I first started I just had a cheap food processor from Walmart. Now

I have 2 cuisinarts and I run them both on cultured vegetable day. I have the

large size.

I suggest using the BE starters. Yes you could use the fermented juice to

culture other things if you like.

There is something about having something that I could do to help my kids that

really healed my soul. I couldn't stand everyone saying " you have to accept. "

Bullshit! I had to do something. I put many hours into my kitchen and I

have my kids to thank because I know a healthy way to live now. I'm very

thankful for this path. I wish that no children would ever be sick or miss out

on playing and connecting...but having gone down this path, my husband and I are

much more conscious parents. And we are grateful for every single thing.

You can even puree the cultured vegetables and spoon them into a child. All

the best!

>

> Thank you so much for all the encouragement and info you provide on this

board! I have finally bought the body ecology diet book. It is very

overwhelming but I am going to implement a few things at a time.

>

> After learning about the tremendous benefits of young coconut, I went to my

local health food store (I recently moved to Columbia, MO). I asked if they had

any young coconuts.

> They didn't but they had a new product called cocokeifer. The man warned me

to NOT start with the recommend serving size. I went to the web site. This

company was started by a family that recovered their child from autism and

wanted to help other families. This product is WONDERFUL! It is a very powerful

probiotic and has many other nutritional qualities. I highly recommend this for

those going or thinking of going this route.

>

> Next I want to start to culture my own vegetables. Is it best to buy the

" starter " from Donna Gates then save some of the juices for the next batch just

like you would do when you make yogurt?

>

> I do not own a Cusinart. What size is best to grate vegetables to culture

them for my whole family?

>

> Thanks for all the help! I am sure I will have lots of questions. I am

nervous about culturing vegetables but just have to do it!

>

> Dione

> Sent from my HTC on the Now Network from Sprint!

>

> Sent from my HTC on the Now Network from Sprint!

>

[Guest guest]

I totally agree, .  when I move towards changing the diet, it becomes a way of life for us.  I've heard some say that when you are through chelating, then the kids can eat whatever they want, but I want the healthy way to be the way he eats for the rest of his life.

My husband read an article about an athlete who decided to go gluten free, and he talked about how much better he felt.  Husband and I are talking about dong this for ourselves.  The hardest part for me to give up is Fired Chicken!  I don't make it often, but geez it tastes good.  It is hard to change when you have been brought up on junk.  My mother thought a " good " breakfast was a cup of tea with sugar in it and a piece of toast!

We are all just moving in that direction.  But I agree with you, people who want me to just " accept " it P... me off.  I could never see myself as just accepting what happened to my son.  I have to do something and know I have done whatever I can to help him.

Haven