Re: For Those of Us Who are Mad and Tired

[Guest guest]

what do the cultured veggies taste like? do u eat it too?we are still plugging away here and i get down on myself too but then remind myself that i do the best i can. its hard but we have to give ouselves credit for what we do and accomplish each day. without u girls here i wouldnt have started helping my son with a better diet other than going gf. so thank you!Sent from my iPhone

Don't be silly Haven, I don't judge you...you are judging yourself. You have always done your best and your best has been awesome. So stop explaining everything. I think it's awesome that you are so open. And I just keep plugging away here too. Honestly I'm almost always "too full" for the next step. But year by year I keep adding steps that help my kids. It's nice to revisit and get a friendly reminder on things that you've been meaning to try.

I use cabbage, beets, carrots, and garlic to make my blend.

I suppose you can use coconut water in cans, but fresh is best. I drain it from a fresh coconut. I don't have experience with boxed or canned water. I cut the flat bottom off of the young thai coconut, then knock a screw driver into two of the three revealed holes.

As for cvs, basically you shred all the vegetables while your culture sits in filtered water with a sugar to get it going. I use raw local honey as my feeder. Then you toss the "brine" into the veggies using tongs. Then shove it all into glass jars. I get mine from IKEA. I let them sit 4-7 days. I make several liters at a time. I make them about every 6 weeks.

Many used to think that we needed to remove gluten and casein and now more recently soy because the kids were allergic or sensitive. But the issue of dietary changes and autism are deeper than this. The children have infections and a poor functioning immune system. So diet is exactly the place to start. It's the most challenging because the kids are like addicts and will do anything for their fix.

Basically using body ecology diet you create an inner ecosystem where the infections can no longer thrive. Along with biomed or homeopathy you bring down infections/strengthen the immune system.

in this video is a mommy friend of mine. We recovered our kids together.

>

> ,

>

> Your advice has always intrigued me, and then I get so busy I forget to get

> it going. this summer can be the perfect time. I am finally getting a

> "break." I am laughing as I say this. Everything has just gone to hell

> since I started home schooling house and farm wise, but this week I am

> planning on going room to room and getting rid of clutter. I need to get

> organized!

>

> We weren't sure we were going to be able to home school, and so it started

> rather abruptly, and I feel like I have been playing catch up ever since.

> Between prepareing lessons, teaching, going to therapies and tutoring,

> cooking ethan's meals and all the other stuff we wives and moms do...

>

> On top of that a couple of years ago before I had to start taking care of my

> mother, I was teaching riding lessons part time, and we needed that extra

> money. that went away due to the added mom duties. She has moved now, so I

> am supposed to start teaching again in June. I have a lot to do around the

> farm too. it is going to be a busy week. But I know if I can catch up and

> clutter down and have a sense of organization, this next year is going to go

> better.

>

> I found 100% coconut water in cans at WF. Can i use this to make the

> Kefir? Do I go on the BE website to learn how to culture the veggies? I

> hope I can culture squash because we are going to have a bumper crop of

> those. Does it do any good to culture potatoes? bumper crop of those too.

> The only other things I was able to get in the garden are lettuce and

> tomatoes. But we buy organic veggies at WF. I used to never be able to get

> veggies into him, but this past year he has really taken off and likes

> spinach, Brussels sprouts, green beans, peas, cauliflower. He broke out in

> hives the last time he got broccoli so I am leery of that.

>

> I do believe you that diet plays a consummate role in healing our children.

> I have seen in these last five months an absolute and noticeable improvement

> in his immune system with the AC Protocol (using ALA only). After a long

> plateau, I know we are on the right track again, so I want to move the diet

> forward to an even healthier level.

>

> What meats to you use? We buy organic, but sometimes I think we should wean

> off beef and pork and stick with chicken, turkey, and lamb.

>

> Thanks for not giving up on me .

>

> Haven

>

[Guest guest]

,I loved the show.  Makes me want to get going.  But I have the same question.  What does this taste like?  My son loves coconut yogurt and the commercial coconut kefir, though I know these have some type of sugar in them.  With the wirte starter, would I be able to make our own yogurts, as well --without any of the bad sugars in tehm.  I mean, then could I make it with Stevia or Xylotol?  Or perhaps kids finally learn to appreciate the taste without any sweetness to it?

On a happier note, Ethan received a three wheeled bicycle yesterday from an organization, and at first he was scared.  Though we worked with him when he was younger, he was never able to get the hang of riding a tricycle.  Anyway, like he always does when he gets frustrated learning something new, he started to cry and say he couldn't do it and he didn't want to.  I told the volunteers he always says that when learning something new.  I thought it was going to take some time -- it took over a week of shining and reassurance to teach him to hold his breath under water and to swallow capsules.

Well, he got home and worked on it and within a couple of hours he was riding the bicycle and beaming!  In another year, I think he will graduate up to a two wheeled bike.  But for now it is good to have something to get him more active.  The years of steroids he was on reallyput the pounds on him.  However he is growing by leaps and pounds and last time we checked he was 5'3 " !  I think by the end of this year, he will be taller than me! 

Thanks for all your help.Haven

[Guest guest]

/Haven: I was called a baby killer on my church friend's Facebook page. My church friend did not even step in to tell that person not to resort to name calling when we were discussing an issue. I was disappointed in him. Guess not so much of a friend. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of CarlsonSent: Saturday, May 28, 2011 2:51 PMTo: Texas-Autism-Advocacy Subject: Re: For Those of Us Who are Mad and Tired Haven, I appreciate your candor and I am sure that many of us feel exactly as you do. I do most of the time. You mentioned that if someone had told you about vaccines.....I did tell everyone I know, young and old. These were family and friends who had known me through church and the Christian school our children attended. No one listened. I couldn't believe the disrespect I was shown, still am, when I mention vaccines. It brings out an ugly side to people. They want to trust the medical profession of which I am not a part. They say the Tristan is the only child they know of that was harmed by vaccines, IF he really was they imply. You might have been one of the few who would listen to that information, but my experience is most don't. C.

[Guest guest]

Make sure kids (and adults) get enough vitamin D. Of all many things I've tried, Vitamin D at proper dosage made HUGE difference as far as boosting immune system function by far as long as kids get enough magnesium which is a very important co-factor to help support vitamin D's metabolism. Vitamin D is very unique. It is a  prohormone that body converts into powerful steroid-like hormone that acts as gene regulators to keep organ system function properly. Not really a vitamin that we get from food. It is mostly from the sun but who tells us to avoid the sun at all times? Why is it that we produce so much more vitamin D in the sun when exposed to the sun compared to food?  http://www.vitamindcouncil.org/health-conditions/ CDC and others are keeping us sick that way....

Google vitamin D with flu, cold, allergies, asthma, autism and it goes on forever. We have a major wide spread vitamin D deficiency now and CDC is pretending to act like it's nothing by recommending that we significantly lower minimal blood level considered to be healthy. That alone will cost us TRILLIONS of dollars in medical expense each decade if we do nothing about it.

http://www.naturalnews.com/032202_vitamin_D_deficiency_disease.htmlI absolutely hate CDC and other triple letters organizations. They seem to protect special interests for profits.

The interesting thing about coconut is that it has high amount of saturated fat that significantly raises HDL cholesterol level. Something low fat diet cannot do at all. They got it backward no thanks to AHA (american heart association) which has been wrong about cholesterol and saturated fat consumption causing heart disease for 50 years...

 

Don't be silly Haven, I don't judge you...you are judging yourself. You have always done your best and your best has been awesome. So stop explaining everything. I think it's awesome that you are so open. And I just keep plugging away here too. Honestly I'm almost always " too full " for the next step. But year by year I keep adding steps that help my kids. It's nice to revisit and get a friendly reminder on things that you've been meaning to try.

I use cabbage, beets, carrots, and garlic to make my blend.

I suppose you can use coconut water in cans, but fresh is best. I drain it from a fresh coconut. I don't have experience with boxed or canned water. I cut the flat bottom off of the young thai coconut, then knock a screw driver into two of the three revealed holes.

As for cvs, basically you shred all the vegetables while your culture sits in filtered water with a sugar to get it going. I use raw local honey as my feeder. Then you toss the " brine " into the veggies using tongs. Then shove it all into glass jars. I get mine from IKEA. I let them sit 4-7 days. I make several liters at a time. I make them about every 6 weeks.

Many used to think that we needed to remove gluten and casein and now more recently soy because the kids were allergic or sensitive. But the issue of dietary changes and autism are deeper than this. The children have infections and a poor functioning immune system. So diet is exactly the place to start. It's the most challenging because the kids are like addicts and will do anything for their fix.

Basically using body ecology diet you create an inner ecosystem where the infections can no longer thrive. Along with biomed or homeopathy you bring down infections/strengthen the immune system.

in this video is a mommy friend of mine. We recovered our kids together.

>

> ,

>

> Your advice has always intrigued me, and then I get so busy I forget to get

> it going. this summer can be the perfect time. I am finally getting a

> " break. " I am laughing as I say this. Everything has just gone to hell

> since I started home schooling house and farm wise, but this week I am

> planning on going room to room and getting rid of clutter. I need to get

> organized!

>

> We weren't sure we were going to be able to home school, and so it started

> rather abruptly, and I feel like I have been playing catch up ever since.

> Between prepareing lessons, teaching, going to therapies and tutoring,

> cooking ethan's meals and all the other stuff we wives and moms do...

>

> On top of that a couple of years ago before I had to start taking care of my

> mother, I was teaching riding lessons part time, and we needed that extra

> money. that went away due to the added mom duties. She has moved now, so I

> am supposed to start teaching again in June. I have a lot to do around the

> farm too. it is going to be a busy week. But I know if I can catch up and

> clutter down and have a sense of organization, this next year is going to go

> better.

>

> I found 100% coconut water in cans at WF. Can i use this to make the

> Kefir? Do I go on the BE website to learn how to culture the veggies? I

> hope I can culture squash because we are going to have a bumper crop of

> those. Does it do any good to culture potatoes? bumper crop of those too.

> The only other things I was able to get in the garden are lettuce and

> tomatoes. But we buy organic veggies at WF. I used to never be able to get

> veggies into him, but this past year he has really taken off and likes

> spinach, Brussels sprouts, green beans, peas, cauliflower. He broke out in

> hives the last time he got broccoli so I am leery of that.

>

> I do believe you that diet plays a consummate role in healing our children.

> I have seen in these last five months an absolute and noticeable improvement

> in his immune system with the AC Protocol (using ALA only). After a long

> plateau, I know we are on the right track again, so I want to move the diet

> forward to an even healthier level.

>

> What meats to you use? We buy organic, but sometimes I think we should wean

> off beef and pork and stick with chicken, turkey, and lamb.

>

> Thanks for not giving up on me .

>

> Haven

>

[Guest guest]

I have been supplementing my son with Vitamin D and I am seeing much improvment in his behavior. Is vitamin D deficiency linked to behavior also? My son has ADHD and aspergers. I am also giving probiotics and omega oils. But he is much more calm and listens and follows directions better. Any link?

Re: Re: For Those of Us Who are Mad and Tired

Make sure kids (and adults) get enough vitamin D. Of all many things I've tried, Vitamin D at proper dosage made HUGE difference as far as boosting immune system function by far as long as kids get enough magnesium which is a very important co-factor to help support vitamin D's metabolism. Vitamin D is very unique. It is a prohormone that body converts into powerful steroid-like hormone that acts as gene regulators to keep organ system function properly. Not really a vitamin that we get from food. It is mostly from the sun but who tells us to avoid the sun at all times? Why is it that we produce so much more vitamin D in the sun when exposed to the sun compared to food? http://www.vitamindcouncil.org/health-conditions/ CDC and others are keeping us sick that way....

Google vitamin D with flu, cold, allergies, asthma, autism and it goes on forever. We have a major wide spread vitamin D deficiency now and CDC is pretending to act like it's nothing by recommending that we significantly lower minimal blood level considered to be healthy. That alone will cost us TRILLIONS of dollars in medical expense each decade if we do nothing about it.

http://www.naturalnews.com/032202_vitamin_D_deficiency_disease.html

I absolutely hate CDC and other triple letters organizations. They seem to protect special interests for profits.

The interesting thing about coconut is that it has high amount of saturated fat that significantly raises HDL cholesterol level. Something low fat diet cannot do at all. They got it backward no thanks to AHA (american heart association) which has been wrong about cholesterol and saturated fat consumption causing heart disease for 50 years...

Don't be silly Haven, I don't judge you...you are judging yourself. You have always done your best and your best has been awesome. So stop explaining everything. I think it's awesome that you are so open. And I just keep plugging away here too. Honestly I'm almost always "too full" for the next step. But year by year I keep adding steps that help my kids. It's nice to revisit and get a friendly reminder on things that you've been meaning to try. I use cabbage, beets, carrots, and garlic to make my blend. I suppose you can use coconut water in cans, but fresh is best. I drain it from a fresh coconut. I don't have experience with boxed or canned water. I cut the flat bottom off of the young thai coconut, then knock a screw driver into two of the three revealed holes. As for cvs, basically you shred all the vegetables while your culture sits in filtered water with a sugar to get it going. I use raw local honey as my feeder. Then you toss the "brine" into the veggies using tongs. Then shove it all into glass jars. I get mine from IKEA. I let them sit 4-7 days. I make several liters at a time. I make them about every 6 weeks. Many used to think that we needed to remove gluten and casein and now more recently soy because the kids were allergic or sensitive. But the issue of dietary changes and autism are deeper than this. The children have infections and a poor functioning immune system. So diet is exactly the place to start. It's the most challenging because the kids are like addicts and will do anything for their fix. Basically using body ecology diet you create an inner ecosystem where the infections can no longer thrive. Along with biomed or homeopathy you bring down infections/strengthen the immune system.

in this video is a mommy friend of mine. We recovered our kids together.

>

> ,> > Your advice has always intrigued me, and then I get so busy I forget to get> it going. this summer can be the perfect time. I am finally getting a> "break." I am laughing as I say this. Everything has just gone to hell> since I started home schooling house and farm wise, but this week I am> planning on going room to room and getting rid of clutter. I need to get> organized!> > We weren't sure we were going to be able to home school, and so it started> rather abruptly, and I feel like I have been playing catch up ever since.> Between prepareing lessons, teaching, going to therapies and tutoring,> cooking ethan's meals and all the other stuff we wives and moms do...> > On top of that a couple of years ago before I had to start taking care of my> mother, I was teaching riding lessons part time, and we needed that extra> money. that went away due to the added mom duties. She has moved now, so I> am supposed to start teaching again in June. I have a lot to do around the> farm too. it is going to be a busy week. But I know if I can catch up and> clutter down and have a sense of organization, this next year is going to go> better.> > I found 100% coconut water in cans at WF. Can i use this to make the> Kefir? Do I go on the BE website to learn how to culture the veggies? I> hope I can culture squash because we are going to have a bumper crop of> those. Does it do any good to culture potatoes? bumper crop of those too.> The only other things I was able to get in the garden are lettuce and> tomatoes. But we buy organic veggies at WF. I used to never be able to get> veggies into him, but this past year he has really taken off and likes> spinach, Brussels sprouts, green beans, peas, cauliflower. He broke out in> hives the last time he got broccoli so I am leery of that.> > I do believe you that diet plays a consummate role in healing our children.> I have seen in these last five months an absolute and noticeable improvement> in his immune system with the AC Protocol (using ALA only). After a long> plateau, I know we are on the right track again, so I want to move the diet> forward to an even healthier level.> > What meats to you use? We buy organic, but sometimes I think we should wean> off beef and pork and stick with chicken, turkey, and lamb.> > Thanks for not giving up on me .> > Haven>

[Guest guest]

Yes it appears to be so. Dr. Cannell from Vitamin D Council saw the same thing over and over when autistic kids get enough vitamin D. Fortunately, a clinical study in California will oversee that that will " officially " prove that it is an effective cheap treatment . It is supposed to be very well rounded study that skeptics would have hard time trying to disprove it (paid by big pharma).

http://www.vitamindcouncil.org/health-conditions/neurological-conditions/http://www.vitamindcouncil.org/health-conditions/mental-health-and-learning-disorders/

Vitamin D is extremely crucial to proper brain development and function. Google autism and childhood Schizophrenia. They seem to be so similar to each other.

http://www.drhoffman.com/downloads/vitdmentalillness.pdfVitamin D virtually affect everything in the body from head to toes. It is much more important than anyone realizes.

 

I have been supplementing my son with Vitamin D and I am seeing much improvment in his behavior.  Is vitamin D deficiency linked to behavior also?  My son has ADHD and aspergers.  I am also giving probiotics and omega oils.  But he is much more calm and listens and follows directions better. Any link?

Re: Re: For Those of Us Who are Mad and Tired

 

Make sure kids (and adults) get enough vitamin D. Of all many things I've tried, Vitamin D at proper dosage made HUGE difference as far as boosting immune system function by far as long as kids get enough magnesium which is a very important co-factor to help support vitamin D's metabolism. Vitamin D is very unique. It is a  prohormone that body converts into powerful steroid-like hormone that acts as gene regulators to keep organ system function properly. Not really a vitamin that we get from food. It is mostly from the sun but who tells us to avoid the sun at all times? Why is it that we produce so much more vitamin D in the sun when exposed to the sun compared to food?  http://www.vitamindcouncil.org/health-conditions/ CDC and others are keeping us sick that way....

Google vitamin D with flu, cold, allergies, asthma, autism and it goes on forever. We have a major wide spread vitamin D deficiency now and CDC is pretending to act like it's nothing by recommending that we significantly lower minimal blood level considered to be healthy. That alone will cost us TRILLIONS of dollars in medical expense each decade if we do nothing about it.

http://www.naturalnews.com/032202_vitamin_D_deficiency_disease.html

I absolutely hate CDC and other triple letters organizations. They seem to protect special interests for profits.

The interesting thing about coconut is that it has high amount of saturated fat that significantly raises HDL cholesterol level. Something low fat diet cannot do at all. They got it backward no thanks to AHA (american heart association) which has been wrong about cholesterol and saturated fat consumption causing heart disease for 50 years...

 

Don't be silly Haven, I don't judge you...you are judging yourself. You have always done your best and your best has been awesome. So stop explaining everything. I think it's awesome that you are so open. And I just keep plugging away here too. Honestly I'm almost always " too full " for the next step. But year by year I keep adding steps that help my kids. It's nice to revisit and get a friendly reminder on things that you've been meaning to try. I use cabbage, beets, carrots, and garlic to make my blend. I suppose you can use coconut water in cans, but fresh is best. I drain it from a fresh coconut. I don't have experience with boxed or canned water. I cut the flat bottom off of the young thai coconut, then knock a screw driver into two of the three revealed holes. As for cvs, basically you shred all the vegetables while your culture sits in filtered water with a sugar to get it going. I use raw local honey as my feeder. Then you toss the " brine " into the veggies using tongs. Then shove it all into glass jars. I get mine from IKEA. I let them sit 4-7 days. I make several liters at a time. I make them about every 6 weeks. Many used to think that we needed to remove gluten and casein and now more recently soy because the kids were allergic or sensitive. But the issue of dietary changes and autism are deeper than this. The children have infections and a poor functioning immune system. So diet is exactly the place to start. It's the most challenging because the kids are like addicts and will do anything for their fix. Basically using body ecology diet you create an inner ecosystem where the infections can no longer thrive. Along with biomed or homeopathy you bring down infections/strengthen the immune system.

in this video is a mommy friend of mine. We recovered our kids together.

>

> ,> > Your advice has always intrigued me, and then I get so busy I forget to get> it going. this summer can be the perfect time. I am finally getting a> " break. " I am laughing as I say this. Everything has just gone to hell> since I started home schooling house and farm wise, but this week I am> planning on going room to room and getting rid of clutter. I need to get> organized!> > We weren't sure we were going to be able to home school, and so it started> rather abruptly, and I feel like I have been playing catch up ever since.> Between prepareing lessons, teaching, going to therapies and tutoring,> cooking ethan's meals and all the other stuff we wives and moms do...> > On top of that a couple of years ago before I had to start taking care of my> mother, I was teaching riding lessons part time, and we needed that extra> money. that went away due to the added mom duties. She has moved now, so I> am supposed to start teaching again in June. I have a lot to do around the> farm too. it is going to be a busy week. But I know if I can catch up and> clutter down and have a sense of organization, this next year is going to go> better.> > I found 100% coconut water in cans at WF. Can i use this to make the> Kefir? Do I go on the BE website to learn how to culture the veggies? I> hope I can culture squash because we are going to have a bumper crop of> those. Does it do any good to culture potatoes? bumper crop of those too.> The only other things I was able to get in the garden are lettuce and> tomatoes. But we buy organic veggies at WF. I used to never be able to get> veggies into him, but this past year he has really taken off and likes> spinach, Brussels sprouts, green beans, peas, cauliflower. He broke out in> hives the last time he got broccoli so I am leery of that.> > I do believe you that diet plays a consummate role in healing our children.> I have seen in these last five months an absolute and noticeable improvement> in his immune system with the AC Protocol (using ALA only). After a long> plateau, I know we are on the right track again, so I want to move the diet> forward to an even healthier level.> > What meats to you use? We buy organic, but sometimes I think we should wean> off beef and pork and stick with chicken, turkey, and lamb.> > Thanks for not giving up on me .> > Haven>

[Guest guest]

http://www.lapislight.com/wp/2010/10/13/vitamin-d-considerations-for-childhood-disorders-of-learning-behavior-and-development/

Yes it appears to be so. Dr. Cannell from Vitamin D Council saw the same thing over and over when autistic kids get enough vitamin D. Fortunately, a clinical study in California will oversee that that will " officially " prove that it is an effective cheap treatment . It is supposed to be very well rounded study that skeptics would have hard time trying to disprove it (paid by big pharma).

http://www.vitamindcouncil.org/health-conditions/neurological-conditions/http://www.vitamindcouncil.org/health-conditions/mental-health-and-learning-disorders/

Vitamin D is extremely crucial to proper brain development and function. Google autism and childhood Schizophrenia. They seem to be so similar to each other.

http://www.drhoffman.com/downloads/vitdmentalillness.pdfVitamin D virtually affect everything in the body from head to toes. It is much more important than anyone realizes.

 

I have been supplementing my son with Vitamin D and I am seeing much improvment in his behavior.  Is vitamin D deficiency linked to behavior also?  My son has ADHD and aspergers.  I am also giving probiotics and omega oils.  But he is much more calm and listens and follows directions better. Any link?

Re: Re: For Those of Us Who are Mad and Tired

 

Make sure kids (and adults) get enough vitamin D. Of all many things I've tried, Vitamin D at proper dosage made HUGE difference as far as boosting immune system function by far as long as kids get enough magnesium which is a very important co-factor to help support vitamin D's metabolism. Vitamin D is very unique. It is a  prohormone that body converts into powerful steroid-like hormone that acts as gene regulators to keep organ system function properly. Not really a vitamin that we get from food. It is mostly from the sun but who tells us to avoid the sun at all times? Why is it that we produce so much more vitamin D in the sun when exposed to the sun compared to food?  http://www.vitamindcouncil.org/health-conditions/ CDC and others are keeping us sick that way....

Google vitamin D with flu, cold, allergies, asthma, autism and it goes on forever. We have a major wide spread vitamin D deficiency now and CDC is pretending to act like it's nothing by recommending that we significantly lower minimal blood level considered to be healthy. That alone will cost us TRILLIONS of dollars in medical expense each decade if we do nothing about it.

http://www.naturalnews.com/032202_vitamin_D_deficiency_disease.html

I absolutely hate CDC and other triple letters organizations. They seem to protect special interests for profits.

The interesting thing about coconut is that it has high amount of saturated fat that significantly raises HDL cholesterol level. Something low fat diet cannot do at all. They got it backward no thanks to AHA (american heart association) which has been wrong about cholesterol and saturated fat consumption causing heart disease for 50 years...

 

Don't be silly Haven, I don't judge you...you are judging yourself. You have always done your best and your best has been awesome. So stop explaining everything. I think it's awesome that you are so open. And I just keep plugging away here too. Honestly I'm almost always " too full " for the next step. But year by year I keep adding steps that help my kids. It's nice to revisit and get a friendly reminder on things that you've been meaning to try. I use cabbage, beets, carrots, and garlic to make my blend. I suppose you can use coconut water in cans, but fresh is best. I drain it from a fresh coconut. I don't have experience with boxed or canned water. I cut the flat bottom off of the young thai coconut, then knock a screw driver into two of the three revealed holes. As for cvs, basically you shred all the vegetables while your culture sits in filtered water with a sugar to get it going. I use raw local honey as my feeder. Then you toss the " brine " into the veggies using tongs. Then shove it all into glass jars. I get mine from IKEA. I let them sit 4-7 days. I make several liters at a time. I make them about every 6 weeks. Many used to think that we needed to remove gluten and casein and now more recently soy because the kids were allergic or sensitive. But the issue of dietary changes and autism are deeper than this. The children have infections and a poor functioning immune system. So diet is exactly the place to start. It's the most challenging because the kids are like addicts and will do anything for their fix. Basically using body ecology diet you create an inner ecosystem where the infections can no longer thrive. Along with biomed or homeopathy you bring down infections/strengthen the immune system.

in this video is a mommy friend of mine. We recovered our kids together.

>

> ,> > Your advice has always intrigued me, and then I get so busy I forget to get> it going. this summer can be the perfect time. I am finally getting a> " break. " I am laughing as I say this. Everything has just gone to hell> since I started home schooling house and farm wise, but this week I am> planning on going room to room and getting rid of clutter. I need to get> organized!> > We weren't sure we were going to be able to home school, and so it started> rather abruptly, and I feel like I have been playing catch up ever since.> Between prepareing lessons, teaching, going to therapies and tutoring,> cooking ethan's meals and all the other stuff we wives and moms do...> > On top of that a couple of years ago before I had to start taking care of my> mother, I was teaching riding lessons part time, and we needed that extra> money. that went away due to the added mom duties. She has moved now, so I> am supposed to start teaching again in June. I have a lot to do around the> farm too. it is going to be a busy week. But I know if I can catch up and> clutter down and have a sense of organization, this next year is going to go> better.> > I found 100% coconut water in cans at WF. Can i use this to make the> Kefir? Do I go on the BE website to learn how to culture the veggies? I> hope I can culture squash because we are going to have a bumper crop of> those. Does it do any good to culture potatoes? bumper crop of those too.> The only other things I was able to get in the garden are lettuce and> tomatoes. But we buy organic veggies at WF. I used to never be able to get> veggies into him, but this past year he has really taken off and likes> spinach, Brussels sprouts, green beans, peas, cauliflower. He broke out in> hives the last time he got broccoli so I am leery of that.> > I do believe you that diet plays a consummate role in healing our children.> I have seen in these last five months an absolute and noticeable improvement> in his immune system with the AC Protocol (using ALA only). After a long> plateau, I know we are on the right track again, so I want to move the diet> forward to an even healthier level.> > What meats to you use? We buy organic, but sometimes I think we should wean> off beef and pork and stick with chicken, turkey, and lamb.> > Thanks for not giving up on me .> > Haven>

[Guest guest]

Wow Hilda. I'm going to say the same thing you did....he isn't much of a friend.

A friend would be respectful even when they didn't agree with you, and they

certainly wouldn't let someone else attack you like that without so much as a

word.

>

> /Haven:

>

>

>

> I was called a baby killer on my church friend's Facebook page. My church

> friend did not even step in to tell that person not to resort to name

> calling when we were discussing an issue. I was disappointed in him. Guess

> not so much of a friend.

>

>

>

> Hilda

>

>

>

> From: Texas-Autism-Advocacy

> [mailto:Texas-Autism-Advocacy ] On Behalf Of Carlson

> Sent: Saturday, May 28, 2011 2:51 PM

> To: Texas-Autism-Advocacy

> Subject: Re: For Those of Us Who are Mad and Tired

>

>

>

>

>

> Haven,

>

>

>

> I appreciate your candor and I am sure that many of us feel exactly as you

> do. I do most of the time. You mentioned that if someone had told you

> about vaccines.....I did tell everyone I know, young and old. These were

> family and friends who had known me through church and the Christian school

> our children attended. No one listened. I couldn't believe the disrespect I

> was shown, still am, when I mention vaccines. It brings out an ugly side to

> people. They want to trust the medical profession of which I am not a part.

> They say the Tristan is the only child they know of that was harmed by

> vaccines, IF he really was they imply. You might have been one of the few

> who would listen to that information, but my experience is most don't.

>

>

>

> C.

>

[Guest guest]

How do you know how much vitamin D?  I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now.  I also started taking Adrenergize, and that is helping as well.

I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.HIlda, I cannot believe that person would write such a thing!  Was that a church member?  If people would truly live their faith -- ah, how the world would change.

I am the " crazy " lady in our town who thinks that nutrition is important.  I am crazy because I have always talked about how children with autism can improve.  I've had " educators " actually roll their eyes in front of me.  When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of.  I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread.  I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.

One mom said to me as she watched Ethan eat his fruit, " My son should be eating that. "   But people just don't want to change.  If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night!  I have to confess that.

One more thing abut vitamin D and magnesium.  I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll.  I thought this was it and I would just have to live with it because I was not going to take NSAIDS.  since starting the vitamin D and magnesium, I have no lower back pain!  I think vitmain D is even more important than calcium but that's JMO.

Haven

[Guest guest]

Hi Haven,What was your vitamin D level? Optimal level for healthy people is 50-80 ng/ml. For people with chronic disease should be within 80-100 ng/ml to begin healing process before moving to 50-80 ng/ml. Rule of thumb is 1000 IU for every 25 lbs of body weight for healthy people. 2000 IU for every 25 lbs of bodyweight for people with chronic illness such as asthma, allergies, autism, diabetes, etc.  According to CDC, 97% of USA population is within 20-30 ng/ml range and CDC calls that normal which is pure BS. Problems begin when you fall below 32 ng/ml so that makes no sense why CDC even suggests that that level is fine.

I did some checking on adrenal fatigue and vitamin D definitely plays a big part of it along with magnesium (400mg a day for adults) and vitamin C (3 grams a day).Believe it or not, with vitamin D level at 50-80 ng/ml, calcium absorption is much greatly absorbed.  We can cut recommendation in half and still absorb enough calcium for bone health! You should go to vitamin D council website and sign up for membership (50 dollars a year). You will learn a great deal about vitamin D. In the last newsletter, Dr. Cannell wrote about hip fractures and how they tend to have complications from surgeries. Turns out that they had very low vitamin D level and was often slow to heal and sometimes get infection. Vitamin D plays a huge part of keeping infection under control (basically universal antibiotic) and keeping bones strong and heal broken bones much faster. Not only that, surgeries tend to take up enormous amount of vitamin D as part of healing process but when you already have vitamin D deficiency, it makes a serious situation much worse.

 

How do you know how much vitamin D?  I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now.  I also started taking Adrenergize, and that is helping as well.

I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.HIlda, I cannot believe that person would write such a thing!  Was that a church member?  If people would truly live their faith -- ah, how the world would change.

I am the " crazy " lady in our town who thinks that nutrition is important.  I am crazy because I have always talked about how children with autism can improve.  I've had " educators " actually roll their eyes in front of me.  When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of.  I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread.  I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.

One mom said to me as she watched Ethan eat his fruit, " My son should be eating that. "   But people just don't want to change.  If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night!  I have to confess that.

One more thing abut vitamin D and magnesium.  I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll.  I thought this was it and I would just have to live with it because I was not going to take NSAIDS.  since starting the vitamin D and magnesium, I have no lower back pain!  I think vitmain D is even more important than calcium but that's JMO.

Haven

[Guest guest]

I read somewhere that the test to check for D levels is very expensive and insurance wont cover it. True?

I am giving my son 800 IU per day but plan to up. I think up to 10-20 IU is safe before you see toxicity issues. I need to increase his calcium, mag, and C. Thanks for the info!

Re: Re: For Those of Us Who are Mad and Tired

Hi Haven,

What was your vitamin D level? Optimal level for healthy people is 50-80 ng/ml. For people with chronic disease should be within 80-100 ng/ml to begin healing process before moving to 50-80 ng/ml. Rule of thumb is 1000 IU for every 25 lbs of body weight for healthy people. 2000 IU for every 25 lbs of bodyweight for people with chronic illness such as asthma, allergies, autism, diabetes, etc. According to CDC, 97% of USA population is within 20-30 ng/ml range and CDC calls that normal which is pure BS. Problems begin when you fall below 32 ng/ml so that makes no sense why CDC even suggests that that level is fine.

I did some checking on adrenal fatigue and vitamin D definitely plays a big part of it along with magnesium (400mg a day for adults) and vitamin C (3 grams a day).

Believe it or not, with vitamin D level at 50-80 ng/ml, calcium absorption is much greatly absorbed. We can cut recommendation in half and still absorb enough calcium for bone health! You should go to vitamin D council website and sign up for membership (50 dollars a year). You will learn a great deal about vitamin D. In the last newsletter, Dr. Cannell wrote about hip fractures and how they tend to have complications from surgeries. Turns out that they had very low vitamin D level and was often slow to heal and sometimes get infection. Vitamin D plays a huge part of keeping infection under control (basically universal antibiotic) and keeping bones strong and heal broken bones much faster. Not only that, surgeries tend to take up enormous amount of vitamin D as part of healing process but when you already have vitamin D deficiency, it makes a serious situation much worse.

How do you know how much vitamin D? I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now. I also started taking Adrenergize, and that is helping as well.I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.HIlda, I cannot believe that person would write such a thing! Was that a church member? If people would truly live their faith -- ah, how the world would change.I am the "crazy" lady in our town who thinks that nutrition is important. I am crazy because I have always talked about how children with autism can improve. I've had "educators" actually roll their eyes in front of me. When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of. I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread. I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.One mom said to me as she watched Ethan eat his fruit, "My son should be eating that." But people just don't want to change. If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night! I have to confess that.One more thing abut vitamin D and magnesium. I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll. I thought this was it and I would just have to live with it because I was not going to take NSAIDS. since starting the vitamin D and magnesium, I have no lower back pain! I think vitmain D is even more important than calcium but that's JMO.Haven

[Guest guest]

Sadly most insurance won't cover it. It is relatively cheap to order kits from vitamin D council and do them yourself. ( Grassroots health website is another option as well).800 IU isn't much. You must go with 2000 IU per 25lbs of bodyweight to see maximum effect in autistic kids and others with chronic diseases. 

For toxicity - read this - http://www.vitamindcouncil.org/about-vitamin-d/what-is-vitamin-d/vitamin-d-toxicity/ - it takes much higher than you think. For Caucasian adults, they get 10,000-20,000 IU after 30 minutes in the sun during summer between 10 am and 2 pm without a shirt and sunblock. Unfortunately, air pollution in large cities can block UVB sunlight so you may end up not producing enough vitamin D in the skin. It's much easier to pop vitamin D supplement. I can't imagine having to try and get some sun in Texas during summer. Just too hot and humid esp in Houston... when you have to work, etc.

For black people, it takes much longer to produce same amount of vitamin D as Caucasians. That's why they tend to have more health problems and die earlier. Even CDC acknowledged it but apparently is not doing a thing about it.

 

I read somewhere that the test to check for D levels is very expensive and insurance wont cover it.  True?

 

I am giving my son 800 IU per day but plan to up.  I think up to 10-20 IU is safe before you see toxicity issues.  I need to increase his calcium, mag, and C.  Thanks for the info!

 

Re: Re: For Those of Us Who are Mad and Tired

 

Hi Haven,

What was your vitamin D level? Optimal level for healthy people is 50-80 ng/ml. For people with chronic disease should be within 80-100 ng/ml to begin healing process before moving to 50-80 ng/ml. Rule of thumb is 1000 IU for every 25 lbs of body weight for healthy people. 2000 IU for every 25 lbs of bodyweight for people with chronic illness such as asthma, allergies, autism, diabetes, etc.  According to CDC, 97% of USA population is within 20-30 ng/ml range and CDC calls that normal which is pure BS. Problems begin when you fall below 32 ng/ml so that makes no sense why CDC even suggests that that level is fine.

I did some checking on adrenal fatigue and vitamin D definitely plays a big part of it along with magnesium (400mg a day for adults) and vitamin C (3 grams a day).

Believe it or not, with vitamin D level at 50-80 ng/ml, calcium absorption is much greatly absorbed.  We can cut recommendation in half and still absorb enough calcium for bone health! You should go to vitamin D council website and sign up for membership (50 dollars a year). You will learn a great deal about vitamin D. In the last newsletter, Dr. Cannell wrote about hip fractures and how they tend to have complications from surgeries. Turns out that they had very low vitamin D level and was often slow to heal and sometimes get infection. Vitamin D plays a huge part of keeping infection under control (basically universal antibiotic) and keeping bones strong and heal broken bones much faster. Not only that, surgeries tend to take up enormous amount of vitamin D as part of healing process but when you already have vitamin D deficiency, it makes a serious situation much worse.

 

How do you know how much vitamin D?  I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now.  I also started taking Adrenergize, and that is helping as well.I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.HIlda, I cannot believe that person would write such a thing!  Was that a church member?  If people would truly live their faith -- ah, how the world would change.I am the " crazy " lady in our town who thinks that nutrition is important.  I am crazy because I have always talked about how children with autism can improve.  I've had " educators " actually roll their eyes in front of me.  When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of.  I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread.  I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.One mom said to me as she watched Ethan eat his fruit, " My son should be eating that. "   But people just don't want to change.  If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night!  I have to confess that.One more thing abut vitamin D and magnesium.  I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll.  I thought this was it and I would just have to live with it because I was not going to take NSAIDS.  since starting the vitamin D and magnesium, I have no lower back pain!  I think vitmain D is even more important than calcium but that's JMO.Haven

[Guest guest]

I give my kids 4000 units D3 a day.

>

>

> How do you know how much vitamin D? I had mine checked and the doc of

course said it was fine, but I started taking two thousand mg a day and I feel

so much better, and when I remember to take it, I have fewer hot flashes, which

I have been fighting for FIVE long years now. I also started taking

Adrenergize, and that is helping as well.

>

> I have Ethan on all the recommended supps for AC chelation, and adrenal

support has made a world of difference for him.

>

> HIlda, I cannot believe that person would write such a thing! Was that a

church member? If people would truly live their faith -- ah, how the world

would change.

>

> I am the " crazy " lady in our town who thinks that nutrition is important.

I am crazy because I have always talked about how children with autism can

improve. I've had " educators " actually roll their eyes in front of me. When

they would have parties when Ethan was in public, you wouldn't believe the crap

that was laid out on the table --every kind of sugary, bad carbohydrate you can

think of. I always brought an organic fruit tray and a dip made with coconut

yogurt and organic no sugar added fruit spread. I made sure to fix Ethan's

plate first because the kids went for it, and that was the only thing I would

let him have.

>

> One mom said to me as she watched Ethan eat his fruit, " My son should be

eating that. " But people just don't want to change. If this had not happened

to us, I still wouldn't have let my son be a junk food junkie, but I know we

would have had pizza night! I have to confess that.

>

> One more thing abut vitamin D and magnesium. I was having horrible lower

back pain for quite some time. Training horses and riding all kinds of horses

over the last thirty years has taken its toll. I thought this was it and I

would just have to live with it because I was not going to take NSAIDS. since

starting the vitamin D and magnesium, I have no lower back pain! I think

vitmain D is even more important than calcium but that's JMO.

>

> Haven

>

[Guest guest]

How is that working out? For how long?

 

I give my kids 4000 units D3 a day.

>

>

> How do you know how much vitamin D? I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now. I also started taking Adrenergize, and that is helping as well.

>

> I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.

>

> HIlda, I cannot believe that person would write such a thing! Was that a church member? If people would truly live their faith -- ah, how the world would change.

>

> I am the " crazy " lady in our town who thinks that nutrition is important. I am crazy because I have always talked about how children with autism can improve. I've had " educators " actually roll their eyes in front of me. When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of. I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread. I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.

>

> One mom said to me as she watched Ethan eat his fruit, " My son should be eating that. " But people just don't want to change. If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night! I have to confess that.

>

> One more thing abut vitamin D and magnesium. I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll. I thought this was it and I would just have to live with it because I was not going to take NSAIDS. since starting the vitamin D and magnesium, I have no lower back pain! I think vitmain D is even more important than calcium but that's JMO.

>

> Haven

>

[Guest guest]

People always say regardless of the dietary intervention " does it taste good. "

If I had waited for my kids to " like " what I served we would never have made it.

Does it taste good? Yes after your body is well. Most of us are so addicted

to bread, sugar, yeast etc....that these healing foods will make you sick at

first.

The kids have infections and they want junk or any starch they can get their

hands on.

I love cultured vegetables and green drinks etc....but I've been at this for 6+

years. My kids love them too. We eat them everyday for many years now. One

of my son's favorite meals is a bowl of cultured vegetables, avacado, celtic

salt and blue corn tortilla chips.

I taught my kids step by step to take shot glasses and bites of these healing

foods. Eventually their inner ecosystems changed and they wanted these foods.

The autism going away too (over years of work).

> > >

> > > ,

> > >

> > > Your advice has always intrigued me, and then I get so busy I forget to

get

> > > it going. this summer can be the perfect time. I am finally getting a

> > > " break. " I am laughing as I say this. Everything has just gone to hell

> > > since I started home schooling house and farm wise, but this week I am

> > > planning on going room to room and getting rid of clutter. I need to get

> > > organized!

> > >

> > > We weren't sure we were going to be able to home school, and so it started

> > > rather abruptly, and I feel like I have been playing catch up ever since.

> > > Between prepareing lessons, teaching, going to therapies and tutoring,

> > > cooking ethan's meals and all the other stuff we wives and moms do...

> > >

> > > On top of that a couple of years ago before I had to start taking care of

my

> > > mother, I was teaching riding lessons part time, and we needed that extra

> > > money. that went away due to the added mom duties. She has moved now, so I

> > > am supposed to start teaching again in June. I have a lot to do around the

> > > farm too. it is going to be a busy week. But I know if I can catch up and

> > > clutter down and have a sense of organization, this next year is going to

go

> > > better.

> > >

> > > I found 100% coconut water in cans at WF. Can i use this to make the

> > > Kefir? Do I go on the BE website to learn how to culture the veggies? I

> > > hope I can culture squash because we are going to have a bumper crop of

> > > those. Does it do any good to culture potatoes? bumper crop of those too.

> > > The only other things I was able to get in the garden are lettuce and

> > > tomatoes. But we buy organic veggies at WF. I used to never be able to get

> > > veggies into him, but this past year he has really taken off and likes

> > > spinach, Brussels sprouts, green beans, peas, cauliflower. He broke out in

> > > hives the last time he got broccoli so I am leery of that.

> > >

> > > I do believe you that diet plays a consummate role in healing our

children.

> > > I have seen in these last five months an absolute and noticeable

improvement

> > > in his immune system with the AC Protocol (using ALA only). After a long

> > > plateau, I know we are on the right track again, so I want to move the

diet

> > > forward to an even healthier level.

> > >

> > > What meats to you use? We buy organic, but sometimes I think we should

wean

> > > off beef and pork and stick with chicken, turkey, and lamb.

> > >

> > > Thanks for not giving up on me .

> > >

> > > Haven

> > >

> >

> >

>

[Guest guest]

Really? Mine covers it. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Louis TruettSent: Sunday, May 29, 2011 9:52 PMTo: Texas-Autism-Advocacy Subject: Re: Re: For Those of Us Who are Mad and Tired Sadly most insurance won't cover it. It is relatively cheap to order kits from vitamin D council and do them yourself. ( Grassroots health website is another option as well). 800 IU isn't much. You must go with 2000 IU per 25lbs of bodyweight to see maximum effect in autistic kids and others with chronic diseases. For toxicity - read this - http://www.vitamindcouncil.org/about-vitamin-d/what-is-vitamin-d/vitamin-d-toxicity/ - it takes much higher than you think. For Caucasian adults, they get 10,000-20,000 IU after 30 minutes in the sun during summer between 10 am and 2 pm without a shirt and sunblock. Unfortunately, air pollution in large cities can block UVB sunlight so you may end up not producing enough vitamin D in the skin. It's much easier to pop vitamin D supplement. I can't imagine having to try and get some sun in Texas during summer. Just too hot and humid esp in Houston... when you have to work, etc. For black people, it takes much longer to produce same amount of vitamin D as Caucasians. That's why they tend to have more health problems and die earlier. Even CDC acknowledged it but apparently is not doing a thing about it. I read somewhere that the test to check for D levels is very expensive and insurance wont cover it. True? I am giving my son 800 IU per day but plan to up. I think up to 10-20 IU is safe before you see toxicity issues. I need to increase his calcium, mag, and C. Thanks for the info! Re: Re: For Those of Us Who are Mad and Tired Hi Haven, What was your vitamin D level? Optimal level for healthy people is 50-80 ng/ml. For people with chronic disease should be within 80-100 ng/ml to begin healing process before moving to 50-80 ng/ml. Rule of thumb is 1000 IU for every 25 lbs of body weight for healthy people. 2000 IU for every 25 lbs of bodyweight for people with chronic illness such as asthma, allergies, autism, diabetes, etc. According to CDC, 97% of USA population is within 20-30 ng/ml range and CDC calls that normal which is pure BS. Problems begin when you fall below 32 ng/ml so that makes no sense why CDC even suggests that that level is fine. I did some checking on adrenal fatigue and vitamin D definitely plays a big part of it along with magnesium (400mg a day for adults) and vitamin C (3 grams a day). Believe it or not, with vitamin D level at 50-80 ng/ml, calcium absorption is much greatly absorbed. We can cut recommendation in half and still absorb enough calcium for bone health! You should go to vitamin D council website and sign up for membership (50 dollars a year). You will learn a great deal about vitamin D. In the last newsletter, Dr. Cannell wrote about hip fractures and how they tend to have complications from surgeries. Turns out that they had very low vitamin D level and was often slow to heal and sometimes get infection. Vitamin D plays a huge part of keeping infection under control (basically universal antibiotic) and keeping bones strong and heal broken bones much faster. Not only that, surgeries tend to take up enormous amount of vitamin D as part of healing process but when you already have vitamin D deficiency, it makes a serious situation much worse. How do you know how much vitamin D? I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now. I also started taking Adrenergize, and that is helping as well.I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.HIlda, I cannot believe that person would write such a thing! Was that a church member? If people would truly live their faith -- ah, how the world would change.I am the " crazy " lady in our town who thinks that nutrition is important. I am crazy because I have always talked about how children with autism can improve. I've had " educators " actually roll their eyes in front of me. When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of. I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread. I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.One mom said to me as she watched Ethan eat his fruit, " My son should be eating that. " But people just don't want to change. If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night! I have to confess that.One more thing abut vitamin D and magnesium. I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll. I thought this was it and I would just have to live with it because I was not going to take NSAIDS. since starting the vitamin D and magnesium, I have no lower back pain! I think vitmain D is even more important than calcium but that's JMO.Haven

[Guest guest]

I didn't wait for my kids to like the foods. They won't need everything

sweetened once they are healed. The only way I know to do this is to take all

grains, fruits, sugar in every form away and load the body with these cultured

foods. You'll have a grumpy kid, maybe even violent for awhile. My son

FLIPPED OUT for a few weeks! He was a lunatic. My goal wasn't to make my kids

happy. My goal was to heal them.

The commercial yogurt/kefir is sweetened. I don't think it's a good idea. Plus

it's not living food.

I just taught my kids to listen to me and take bites. I went small. 1 shot

glass and you are excused. 1 bite at a time. But eventually increased my

expectations. We went about 2 years without even fruit except for a green

apple with a shot of young coconut kefir to eat the sugar in the apple. A few

years into it all I added blueberries. We were grain free too at times.

Now 6 years into it all my kids can eat fruit, and more of a GFCFSF diet with

cultured foods on the side.

Today we had:

Breakfast: omelet in coconut oil with zuchini and onions/celtic salt and a

side of cultured vegetables

Lunch: bok choy, ghee, onions, celtic salt, and chicken sausage

pool snack: Innergy (body ecology drink), organic purple grapes

Dinner: grassfed beef cubes on a stick with grilled vegetables

Night snack: organic popcorn with ghee/celtic salt

>

> ,

>

> I loved the show. Makes me want to get going. But I have the same

> question. What does this taste like? My son loves coconut yogurt and the

> commercial coconut kefir, though I know these have some type of sugar in

> them. With the wirte starter, would I be able to make our own yogurts, as

> well --without any of the bad sugars in tehm. I mean, then could I make it

> with Stevia or Xylotol? Or perhaps kids finally learn to appreciate the

> taste without any sweetness to it?

>

> On a happier note, Ethan received a three wheeled bicycle yesterday from an

> organization, and at first he was scared. Though we worked with him when he

> was younger, he was never able to get the hang of riding a tricycle.

> Anyway, like he always does when he gets frustrated learning something new,

> he started to cry and say he couldn't do it and he didn't want to. I told

> the volunteers he always says that when learning something new. I thought

> it was going to take some time -- it took over a week of shining and

> reassurance to teach him to hold his breath under water and to swallow

> capsules.

>

> Well, he got home and worked on it and within a couple of hours he was

> riding the bicycle and beaming! In another year, I think he will graduate

> up to a two wheeled bike. But for now it is good to have something to get

> him more active. The years of steroids he was on reallyput the pounds on

> him. However he is growing by leaps and pounds and last time we checked he

> was 5'3 " ! I think by the end of this year, he will be taller than me!

>

> Thanks for all your help.

>

> Haven

>

[Guest guest]

Hmm. Interesting. Then I don't know. Lol. It just seemed like most don't cover it. I haven't personally meet a doctor that knows a thing about vitamin D. The closest one that really wanted to meet me is in Wyoming (my mother's doctor) because of it. Others go " huh? really? " or " that sounds like a lot... " then gives me a lecture over it with badly outdated information coming from 30 years ago. Lol. I don't blame doctors. It's not something they learned in great details in medical schools but it looks like it is changing rapidly from what I googled. Too many information about vitamin D to ignore...

 

Really?  Mine covers it.   

Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Louis Truett

Sent: Sunday, May 29, 2011 9:52 PMTo: Texas-Autism-Advocacy

Subject: Re: Re: For Those of Us Who are Mad and Tired  

Sadly most insurance won't cover it. It is relatively cheap to order kits from vitamin D council and do them yourself. ( Grassroots health website is another option as well).

 800 IU isn't much. You must go with 2000 IU per 25lbs of bodyweight to see maximum effect in autistic kids and others with chronic diseases.  

For toxicity - read this - http://www.vitamindcouncil.org/about-vitamin-d/what-is-vitamin-d/vitamin-d-toxicity/ - it takes much higher than you think. For Caucasian adults, they get 10,000-20,000 IU after 30 minutes in the sun during summer between 10 am and 2 pm without a shirt and sunblock. Unfortunately, air pollution in large cities can block UVB sunlight so you may end up not producing enough vitamin D in the skin. It's much easier to pop vitamin D supplement. I can't imagine having to try and get some sun in Texas during summer. Just too hot and humid esp in Houston... when you have to work, etc.

 For black people, it takes much longer to produce same amount of vitamin D as Caucasians. That's why they tend to have more health problems and die earlier. Even CDC acknowledged it but apparently is not doing a thing about it.

 

I read somewhere that the test to check for D levels is very expensive and insurance wont cover it.  True?

 I am giving my son 800 IU per day but plan to up.  I think up to 10-20 IU is safe before you see toxicity issues.  I need to increase his calcium, mag, and C.  Thanks for the info!

  Re: Re: For Those of Us Who are Mad and Tired

   Hi Haven,  

What was your vitamin D level? Optimal level for healthy people is 50-80 ng/ml. For people with chronic disease should be within 80-100 ng/ml to begin healing process before moving to 50-80 ng/ml. Rule of thumb is 1000 IU for every 25 lbs of body weight for healthy people. 2000 IU for every 25 lbs of bodyweight for people with chronic illness such as asthma, allergies, autism, diabetes, etc.  According to CDC, 97% of USA population is within 20-30 ng/ml range and CDC calls that normal which is pure BS. Problems begin when you fall below 32 ng/ml so that makes no sense why CDC even suggests that that level is fine.

 I did some checking on adrenal fatigue and vitamin D definitely plays a big part of it along with magnesium (400mg a day for adults) and vitamin C (3 grams a day).

 Believe it or not, with vitamin D level at 50-80 ng/ml, calcium absorption is much greatly absorbed.  We can cut recommendation in half and still absorb enough calcium for bone health! You should go to vitamin D council website and sign up for membership (50 dollars a year). You will learn a great deal about vitamin D. In the last newsletter, Dr. Cannell wrote about hip fractures and how they tend to have complications from surgeries. Turns out that they had very low vitamin D level and was often slow to heal and sometimes get infection. Vitamin D plays a huge part of keeping infection under control (basically universal antibiotic) and keeping bones strong and heal broken bones much faster. Not only that, surgeries tend to take up enormous amount of vitamin D as part of healing process but when you already have vitamin D deficiency, it makes a serious situation much worse.

  How do you know how much vitamin D?  I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now.  I also started taking Adrenergize, and that is helping as well.

I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.HIlda, I cannot believe that person would write such a thing!  Was that a church member?  If people would truly live their faith -- ah, how the world would change.

I am the " crazy " lady in our town who thinks that nutrition is important.  I am crazy because I have always talked about how children with autism can improve.  I've had " educators " actually roll their eyes in front of me.  When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of.  I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread.  I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.

One mom said to me as she watched Ethan eat his fruit, " My son should be eating that. "   But people just don't want to change.  If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night!  I have to confess that.

One more thing abut vitamin D and magnesium.  I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll.  I thought this was it and I would just have to live with it because I was not going to take NSAIDS.  since starting the vitamin D and magnesium, I have no lower back pain!  I think vitmain D is even more important than calcium but that's JMO.

Haven  

[Guest guest]

I worship you! Lol. I'm more of Paleo type but I guess it doesn't matter all that much when you look at the whole thing and understand how human body works. Great job!

 

I didn't wait for my kids to like the foods. They won't need everything sweetened once they are healed. The only way I know to do this is to take all grains, fruits, sugar in every form away and load the body with these cultured foods. You'll have a grumpy kid, maybe even violent for awhile. My son FLIPPED OUT for a few weeks! He was a lunatic. My goal wasn't to make my kids happy. My goal was to heal them.

The commercial yogurt/kefir is sweetened. I don't think it's a good idea. Plus it's not living food.

I just taught my kids to listen to me and take bites. I went small. 1 shot glass and you are excused. 1 bite at a time. But eventually increased my expectations. We went about 2 years without even fruit except for a green apple with a shot of young coconut kefir to eat the sugar in the apple. A few years into it all I added blueberries. We were grain free too at times.

Now 6 years into it all my kids can eat fruit, and more of a GFCFSF diet with cultured foods on the side.

Today we had:

Breakfast: omelet in coconut oil with zuchini and onions/celtic salt and a side of cultured vegetables

Lunch: bok choy, ghee, onions, celtic salt, and chicken sausage

pool snack: Innergy (body ecology drink), organic purple grapes

Dinner: grassfed beef cubes on a stick with grilled vegetables

Night snack: organic popcorn with ghee/celtic salt

>

> ,

>

> I loved the show. Makes me want to get going. But I have the same

> question. What does this taste like? My son loves coconut yogurt and the

> commercial coconut kefir, though I know these have some type of sugar in

> them. With the wirte starter, would I be able to make our own yogurts, as

> well --without any of the bad sugars in tehm. I mean, then could I make it

> with Stevia or Xylotol? Or perhaps kids finally learn to appreciate the

> taste without any sweetness to it?

>

> On a happier note, Ethan received a three wheeled bicycle yesterday from an

> organization, and at first he was scared. Though we worked with him when he

> was younger, he was never able to get the hang of riding a tricycle.

> Anyway, like he always does when he gets frustrated learning something new,

> he started to cry and say he couldn't do it and he didn't want to. I told

> the volunteers he always says that when learning something new. I thought

> it was going to take some time -- it took over a week of shining and

> reassurance to teach him to hold his breath under water and to swallow

> capsules.

>

> Well, he got home and worked on it and within a couple of hours he was

> riding the bicycle and beaming! In another year, I think he will graduate

> up to a two wheeled bike. But for now it is good to have something to get

> him more active. The years of steroids he was on reallyput the pounds on

> him. However he is growing by leaps and pounds and last time we checked he

> was 5'3 " ! I think by the end of this year, he will be taller than me!

>

> Thanks for all your help.

>

> Haven

>

[Guest guest]

I know weve talked about diet befoer and I am still working on it, but not at the extent as you did, but to me I wonder about caloric intake and whether its enough. It is so hard to get a kid to eat something they dont like, as it is for me too! I hate eating food I dont like and being forced to eat it would be torture to me. I need to get back on this with my son, he was doing so well and I kinda slacked off, which is probably a poor excuse for school and private testing for diagnosis and sped services, but I need to get back on it. He is doing better than befoer though eating plain grilled chicken, meatballs, cucumbers, salad, which is an accomplishment in itself. He was eating scrambled eggs but wont anymore so I need to start doing that again along with the kifer which he backed away from too. I think he got burned out. How do you keep them eating the same thing over and over day in and day out without holding protests?

Re: For Those of Us Who are Mad and Tired

I didn't wait for my kids to like the foods. They won't need everything sweetened once they are healed. The only way I know to do this is to take all grains, fruits, sugar in every form away and load the body with these cultured foods. You'll have a grumpy kid, maybe even violent for awhile. My son FLIPPED OUT for a few weeks! He was a lunatic. My goal wasn't to make my kids happy. My goal was to heal them. The commercial yogurt/kefir is sweetened. I don't think it's a good idea. Plus it's not living food.I just taught my kids to listen to me and take bites. I went small. 1 shot glass and you are excused. 1 bite at a time. But eventually increased my expectations. We went about 2 years without even fruit except for a green apple with a shot of young coconut kefir to eat the sugar in the apple. A few years into it all I added blueberries. We were grain free too at times. Now 6 years into it all my kids can eat fruit, and more of a GFCFSF diet with cultured foods on the side. Today we had:Breakfast: omelet in coconut oil with zuchini and onions/celtic salt and a side of cultured vegetablesLunch: bok choy, ghee, onions, celtic salt, and chicken sausagepool snack: Innergy (body ecology drink), organic purple grapesDinner: grassfed beef cubes on a stick with grilled vegetablesNight snack: organic popcorn with ghee/celtic salt>> ,> > I loved the show. Makes me want to get going. But I have the same> question. What does this taste like? My son loves coconut yogurt and the> commercial coconut kefir, though I know these have some type of sugar in> them. With the wirte starter, would I be able to make our own yogurts, as> well --without any of the bad sugars in tehm. I mean, then could I make it> with Stevia or Xylotol? Or perhaps kids finally learn to appreciate the> taste without any sweetness to it?> > On a happier note, Ethan received a three wheeled bicycle yesterday from an> organization, and at first he was scared. Though we worked with him when he> was younger, he was never able to get the hang of riding a tricycle.> Anyway, like he always does when he gets frustrated learning something new,> he started to cry and say he couldn't do it and he didn't want to. I told> the volunteers he always says that when learning something new. I thought> it was going to take some time -- it took over a week of shining and> reassurance to teach him to hold his breath under water and to swallow> capsules.> > Well, he got home and worked on it and within a couple of hours he was> riding the bicycle and beaming! In another year, I think he will graduate> up to a two wheeled bike. But for now it is good to have something to get> him more active. The years of steroids he was on reallyput the pounds on> him. However he is growing by leaps and pounds and last time we checked he> was 5'3"! I think by the end of this year, he will be taller than me!> > Thanks for all your help.> > Haven>

[Guest guest]

Mine covered it for my husband....CarolynSent from my iPad

Hmm. Interesting. Then I don't know. Lol. It just seemed like most don't cover it. I haven't personally meet a doctor that knows a thing about vitamin D. The closest one that really wanted to meet me is in Wyoming (my mother's doctor) because of it. Others go "huh? really?" or " that sounds like a lot..." then gives me a lecture over it with badly outdated information coming from 30 years ago. Lol. I don't blame doctors. It's not something they learned in great details in medical schools but it looks like it is changing rapidly from what I googled. Too many information about vitamin D to ignore...

Really? Mine covers it.

Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Louis Truett

Sent: Sunday, May 29, 2011 9:52 PMTo: Texas-Autism-Advocacy

Subject: Re: Re: For Those of Us Who are Mad and Tired

Sadly most insurance won't cover it. It is relatively cheap to order kits from vitamin D council and do them yourself. ( Grassroots health website is another option as well).

800 IU isn't much. You must go with 2000 IU per 25lbs of bodyweight to see maximum effect in autistic kids and others with chronic diseases.

For toxicity - read this - http://www.vitamindcouncil.org/about-vitamin-d/what-is-vitamin-d/vitamin-d-toxicity/ - it takes much higher than you think. For Caucasian adults, they get 10,000-20,000 IU after 30 minutes in the sun during summer between 10 am and 2 pm without a shirt and sunblock. Unfortunately, air pollution in large cities can block UVB sunlight so you may end up not producing enough vitamin D in the skin. It's much easier to pop vitamin D supplement. I can't imagine having to try and get some sun in Texas during summer. Just too hot and humid esp in Houston... when you have to work, etc.

For black people, it takes much longer to produce same amount of vitamin D as Caucasians. That's why they tend to have more health problems and die earlier. Even CDC acknowledged it but apparently is not doing a thing about it.

I read somewhere that the test to check for D levels is very expensive and insurance wont cover it. True?

I am giving my son 800 IU per day but plan to up. I think up to 10-20 IU is safe before you see toxicity issues. I need to increase his calcium, mag, and C. Thanks for the info!

Re: Re: For Those of Us Who are Mad and Tired

Hi Haven,

What was your vitamin D level? Optimal level for healthy people is 50-80 ng/ml. For people with chronic disease should be within 80-100 ng/ml to begin healing process before moving to 50-80 ng/ml. Rule of thumb is 1000 IU for every 25 lbs of body weight for healthy people. 2000 IU for every 25 lbs of bodyweight for people with chronic illness such as asthma, allergies, autism, diabetes, etc. According to CDC, 97% of USA population is within 20-30 ng/ml range and CDC calls that normal which is pure BS. Problems begin when you fall below 32 ng/ml so that makes no sense why CDC even suggests that that level is fine.

I did some checking on adrenal fatigue and vitamin D definitely plays a big part of it along with magnesium (400mg a day for adults) and vitamin C (3 grams a day).

Believe it or not, with vitamin D level at 50-80 ng/ml, calcium absorption is much greatly absorbed. We can cut recommendation in half and still absorb enough calcium for bone health! You should go to vitamin D council website and sign up for membership (50 dollars a year). You will learn a great deal about vitamin D. In the last newsletter, Dr. Cannell wrote about hip fractures and how they tend to have complications from surgeries. Turns out that they had very low vitamin D level and was often slow to heal and sometimes get infection. Vitamin D plays a huge part of keeping infection under control (basically universal antibiotic) and keeping bones strong and heal broken bones much faster. Not only that, surgeries tend to take up enormous amount of vitamin D as part of healing process but when you already have vitamin D deficiency, it makes a serious situation much worse.

How do you know how much vitamin D? I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now. I also started taking Adrenergize, and that is helping as well.

I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.HIlda, I cannot believe that person would write such a thing! Was that a church member? If people would truly live their faith -- ah, how the world would change.

I am the "crazy" lady in our town who thinks that nutrition is important. I am crazy because I have always talked about how children with autism can improve. I've had "educators" actually roll their eyes in front of me. When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of. I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread. I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.

One mom said to me as she watched Ethan eat his fruit, "My son should be eating that." But people just don't want to change. If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night! I have to confess that.

One more thing abut vitamin D and magnesium. I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll. I thought this was it and I would just have to live with it because I was not going to take NSAIDS. since starting the vitamin D and magnesium, I have no lower back pain! I think vitmain D is even more important than calcium but that's JMO.

Haven

[Guest guest]

Just have to make it tasty like butter or olive oil. I don't really believe in low fat, high carbs foods. Go opposite. I haven't looked at Paleo Diet recipe book but it may be useful??? You could go to bookstore and look through it. I mainly cook steak, buttered rice and avocado. Sometimes salad with olive oil based dressing that I make myself because pretty much all are soybean oil based from the stores that I dont want. Sometimes replace rice with sweet potatoes with lots of butter. That is so good! I alternate steak, chicken, and pork. Steamed brocolli covered in butter is very yummy. Basically, the opposite of gov't's recommendation....

 

I know weve talked about diet befoer and I am still working on it, but not at the extent as you did, but to me I wonder about caloric intake and whether its enough.  It is so hard to get a kid to eat something they dont like, as it is for me too!  I hate eating food I dont like and being forced to eat it would be torture to me.  I need to get back on this with my son, he was doing so well and I kinda slacked off, which is probably a poor excuse for school and private testing for diagnosis and sped services, but I need to get back on it.  He is doing better than befoer though eating plain grilled chicken, meatballs, cucumbers, salad, which is an accomplishment in itself.  He was eating scrambled eggs but wont anymore so I need to start doing that again along with the kifer which he backed away from too.  I think he got burned out.  How do you keep them eating the same thing over and over day in and day out without holding protests?

 

Re: For Those of Us Who are Mad and Tired

 

I didn't wait for my kids to like the foods. They won't need everything sweetened once they are healed. The only way I know to do this is to take all grains, fruits, sugar in every form away and load the body with these cultured foods. You'll have a grumpy kid, maybe even violent for awhile. My son FLIPPED OUT for a few weeks! He was a lunatic. My goal wasn't to make my kids happy. My goal was to heal them. The commercial yogurt/kefir is sweetened. I don't think it's a good idea. Plus it's not living food.I just taught my kids to listen to me and take bites. I went small. 1 shot glass and you are excused. 1 bite at a time. But eventually increased my expectations. We went about 2 years without even fruit except for a green apple with a shot of young coconut kefir to eat the sugar in the apple. A few years into it all I added blueberries. We were grain free too at times. Now 6 years into it all my kids can eat fruit, and more of a GFCFSF diet with cultured foods on the side. Today we had:Breakfast: omelet in coconut oil with zuchini and onions/celtic salt and a side of cultured vegetablesLunch: bok choy, ghee, onions, celtic salt, and chicken sausagepool snack: Innergy (body ecology drink), organic purple grapesDinner: grassfed beef cubes on a stick with grilled vegetablesNight snack: organic popcorn with ghee/celtic salt>> ,> > I loved the show. Makes me want to get going. But I have the same> question. What does this taste like? My son loves coconut yogurt and the> commercial coconut kefir, though I know these have some type of sugar in> them. With the wirte starter, would I be able to make our own yogurts, as> well --without any of the bad sugars in tehm. I mean, then could I make it> with Stevia or Xylotol? Or perhaps kids finally learn to appreciate the> taste without any sweetness to it?> > On a happier note, Ethan received a three wheeled bicycle yesterday from an> organization, and at first he was scared. Though we worked with him when he> was younger, he was never able to get the hang of riding a tricycle.> Anyway, like he always does when he gets frustrated learning something new,> he started to cry and say he couldn't do it and he didn't want to. I told> the volunteers he always says that when learning something new. I thought> it was going to take some time -- it took over a week of shining and> reassurance to teach him to hold his breath under water and to swallow> capsules.> > Well, he got home and worked on it and within a couple of hours he was> riding the bicycle and beaming! In another year, I think he will graduate> up to a two wheeled bike. But for now it is good to have something to get> him more active. The years of steroids he was on reallyput the pounds on> him. However he is growing by leaps and pounds and last time we checked he> was 5'3 " ! I think by the end of this year, he will be taller than me!> > Thanks for all your help.> > Haven>

[Guest guest]

Louis: It was my endocrinologist who recommended we get a level several years ago and I was deficient. This was when I was getting respiratory stuff (colds, flu, pneumonia) all the time. She put me on a prescription dosage for 6 weeks and then we started with 1000 IU a day, checked the level after 6-8 weeks, and wound up where we are today, at about 5000 IU units a day which maintains my level at 45 which is in the middle of the normal range for that particular laboratory. My insurance has always paid it, even back then. Now, because my calcium level is elevated and there doesn't appear to be a corresponding reason (they've done a lot of lab), my nephrologist thinks it is my vitamin D intake and suggests that we start removing some of it and get it to the point where my calcium level comes down (because I'm getting kidney stones and all other sources including diet have been ruled out), but not to the point where I'm getting sick. I insist that he talk to the endocrinologist before I even start on this because she said it was not the reason and it was perfect where it was. If he can convince her it is necessary, then I would agree to try it out--only TRY it. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Louis TruettSent: Sunday, May 29, 2011 10:24 PMTo: Texas-Autism-Advocacy Subject: Re: Re: For Those of Us Who are Mad and Tired Hmm. Interesting. Then I don't know. Lol. It just seemed like most don't cover it. I haven't personally meet a doctor that knows a thing about vitamin D. The closest one that really wanted to meet me is in Wyoming (my mother's doctor) because of it. Others go " huh? really? " or " that sounds like a lot... " then gives me a lecture over it with badly outdated information coming from 30 years ago. Lol. I don't blame doctors. It's not something they learned in great details in medical schools but it looks like it is changing rapidly from what I googled. Too many information about vitamin D to ignore... Really? Mine covers it. Hilda From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Louis TruettSent: Sunday, May 29, 2011 9:52 PMTo: Texas-Autism-Advocacy Subject: Re: Re: For Those of Us Who are Mad and Tired Sadly most insurance won't cover it. It is relatively cheap to order kits from vitamin D council and do them yourself. ( Grassroots health website is another option as well). 800 IU isn't much. You must go with 2000 IU per 25lbs of bodyweight to see maximum effect in autistic kids and others with chronic diseases. For toxicity - read this - http://www.vitamindcouncil.org/about-vitamin-d/what-is-vitamin-d/vitamin-d-toxicity/ - it takes much higher than you think. For Caucasian adults, they get 10,000-20,000 IU after 30 minutes in the sun during summer between 10 am and 2 pm without a shirt and sunblock. Unfortunately, air pollution in large cities can block UVB sunlight so you may end up not producing enough vitamin D in the skin. It's much easier to pop vitamin D supplement. I can't imagine having to try and get some sun in Texas during summer. Just too hot and humid esp in Houston... when you have to work, etc. For black people, it takes much longer to produce same amount of vitamin D as Caucasians. That's why they tend to have more health problems and die earlier. Even CDC acknowledged it but apparently is not doing a thing about it. I read somewhere that the test to check for D levels is very expensive and insurance wont cover it. True? I am giving my son 800 IU per day but plan to up. I think up to 10-20 IU is safe before you see toxicity issues. I need to increase his calcium, mag, and C. Thanks for the info! Re: Re: For Those of Us Who are Mad and Tired Hi Haven, What was your vitamin D level? Optimal level for healthy people is 50-80 ng/ml. For people with chronic disease should be within 80-100 ng/ml to begin healing process before moving to 50-80 ng/ml. Rule of thumb is 1000 IU for every 25 lbs of body weight for healthy people. 2000 IU for every 25 lbs of bodyweight for people with chronic illness such as asthma, allergies, autism, diabetes, etc. According to CDC, 97% of USA population is within 20-30 ng/ml range and CDC calls that normal which is pure BS. Problems begin when you fall below 32 ng/ml so that makes no sense why CDC even suggests that that level is fine. I did some checking on adrenal fatigue and vitamin D definitely plays a big part of it along with magnesium (400mg a day for adults) and vitamin C (3 grams a day). Believe it or not, with vitamin D level at 50-80 ng/ml, calcium absorption is much greatly absorbed. We can cut recommendation in half and still absorb enough calcium for bone health! You should go to vitamin D council website and sign up for membership (50 dollars a year). You will learn a great deal about vitamin D. In the last newsletter, Dr. Cannell wrote about hip fractures and how they tend to have complications from surgeries. Turns out that they had very low vitamin D level and was often slow to heal and sometimes get infection. Vitamin D plays a huge part of keeping infection under control (basically universal antibiotic) and keeping bones strong and heal broken bones much faster. Not only that, surgeries tend to take up enormous amount of vitamin D as part of healing process but when you already have vitamin D deficiency, it makes a serious situation much worse. How do you know how much vitamin D? I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now. I also started taking Adrenergize, and that is helping as well.I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.HIlda, I cannot believe that person would write such a thing! Was that a church member? If people would truly live their faith -- ah, how the world would change.I am the " crazy " lady in our town who thinks that nutrition is important. I am crazy because I have always talked about how children with autism can improve. I've had " educators " actually roll their eyes in front of me. When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of. I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread. I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.One mom said to me as she watched Ethan eat his fruit, " My son should be eating that. " But people just don't want to change. If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night! I have to confess that.One more thing abut vitamin D and magnesium. I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll. I thought this was it and I would just have to live with it because I was not going to take NSAIDS. since starting the vitamin D and magnesium, I have no lower back pain! I think vitmain D is even more important than calcium but that's JMO.Haven

[Guest guest]

Have your endocrinologist look at your parathyroid levels, my mom had the exact same issues and when they ended up taking out her parathyroid it stopped the kidney stones and the calcium issues......Carolyn Sent: Monday, May 30, 2011 2:09 AMTo: Texas-Autism-Advocacy Subject: RE: Re: For Those of Us Who are Mad and Tired Louis: It was my endocrinologist who recommended we get a level several years ago and I was deficient. This was when I was getting respiratory stuff (colds, flu, pneumonia) all the time. She put me on a prescription dosage for 6 weeks and then we started with 1000 IU a day, checked the level after 6-8 weeks, and wound up where we are today, at about 5000 IU units a day which maintains my level at 45 which is in the middle of the normal range for that particular laboratory. My insurance has always paid it, even back then. Now, because my calcium level is elevated and there doesn't appear to be a corresponding reason (they've done a lot of lab), my nephrologist thinks it is my vitamin D intake and suggests that we start removing some of it and get it to the point where my calcium level comes down (because I'm getting kidney stones and all other sources including diet have been ruled out), but not to the point where I'm getting sick. I insist that he talk to the endocrinologist before I even start on this because she said it was not the reason and it was perfect where it was. If he can convince her it is necessary[The entire original message is not included]

[Guest guest]

Hilda,That is common belief by doctors that it had to do with too much vitamin D. It's likely the other way around. Too much calcium plus diet being not alkaline enough to prevent kidney stone (not enough vegetables, too much refined food like bread, pasta, etc, soda pops, too much sugary stuff). The reality is that we don't really need that much calcium if we get enough vitamin D. If you are taking calcium supplement, you should stop it or cut back if not getting much from the diet.

http://www.vitamindcouncil.org/news-archive/2006/vitamin-d-and-kidney-stones/Hope this helps.

 

Louis: It was my endocrinologist who recommended we get a level several years ago and I was deficient.  This was when I was getting respiratory stuff (colds, flu, pneumonia) all the time.  She put me on a prescription dosage for 6 weeks and then we started with 1000 IU a day, checked the level after 6-8 weeks, and wound up where we are today, at about 5000 IU units a day which maintains my level at 45 which is in the middle of the normal range for that particular laboratory.  My insurance has always paid it, even back then. 

 Now, because my calcium level is elevated and there doesn't appear to be a corresponding reason (they've done a lot of lab), my nephrologist thinks it is my vitamin D intake and suggests that we start removing some of it and get it to the point where my calcium level comes down (because I'm getting kidney stones and all other sources including diet have been ruled out), but not to the point where I'm getting sick.  I insist that he talk to the endocrinologist before I even start on this because she said it was not the reason and it was perfect where it was.  If he can convince her it is necessary, then I would agree to try it out--only TRY it. 

 Hilda 

From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Louis Truett

Sent: Sunday, May 29, 2011 10:24 PMTo: Texas-Autism-Advocacy Subject: Re: Re: For Those of Us Who are Mad and Tired

   Hmm. Interesting. Then I don't know. Lol. It just seemed like most don't cover it. I haven't personally meet a doctor that knows a thing about vitamin D. The closest one that really wanted to meet me is in Wyoming (my mother's doctor) because of it. Others go " huh? really? " or " that sounds like a lot... " then gives me a lecture over it with badly outdated information coming from 30 years ago. Lol. I don't blame doctors. It's not something they learned in great details in medical schools but it looks like it is changing rapidly from what I googled. Too many information about vitamin D to ignore...

  Really?  Mine covers it.   

Hilda 

From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Louis Truett

Sent: Sunday, May 29, 2011 9:52 PMTo: Texas-Autism-Advocacy

Subject: Re: Re: For Those of Us Who are Mad and Tired

   Sadly most insurance won't cover it. It is relatively cheap to order kits from vitamin D council and do them yourself. ( Grassroots health website is another option as well).

 800 IU isn't much. You must go with 2000 IU per 25lbs of bodyweight to see maximum effect in autistic kids and others with chronic diseases. 

 For toxicity - read this - http://www.vitamindcouncil.org/about-vitamin-d/what-is-vitamin-d/vitamin-d-toxicity/ - it takes much higher than you think. For Caucasian adults, they get 10,000-20,000 IU after 30 minutes in the sun during summer between 10 am and 2 pm without a shirt and sunblock. Unfortunately, air pollution in large cities can block UVB sunlight so you may end up not producing enough vitamin D in the skin. It's much easier to pop vitamin D supplement. I can't imagine having to try and get some sun in Texas during summer. Just too hot and humid esp in Houston... when you have to work, etc.

 For black people, it takes much longer to produce same amount of vitamin D as Caucasians. That's why they tend to have more health problems and die earlier. Even CDC acknowledged it but apparently is not doing a thing about it.

  I read somewhere that the test to check for D levels is very expensive and insurance wont cover it.  True?

 I am giving my son 800 IU per day but plan to up.  I think up to 10-20 IU is safe before you see toxicity issues.  I need to increase his calcium, mag, and C.  Thanks for the info!

  Re: Re: For Those of Us Who are Mad and Tired

   Hi Haven,  

What was your vitamin D level? Optimal level for healthy people is 50-80 ng/ml. For people with chronic disease should be within 80-100 ng/ml to begin healing process before moving to 50-80 ng/ml. Rule of thumb is 1000 IU for every 25 lbs of body weight for healthy people. 2000 IU for every 25 lbs of bodyweight for people with chronic illness such as asthma, allergies, autism, diabetes, etc.  According to CDC, 97% of USA population is within 20-30 ng/ml range and CDC calls that normal which is pure BS. Problems begin when you fall below 32 ng/ml so that makes no sense why CDC even suggests that that level is fine.

 I did some checking on adrenal fatigue and vitamin D definitely plays a big part of it along with magnesium (400mg a day for adults) and vitamin C (3 grams a day).

 Believe it or not, with vitamin D level at 50-80 ng/ml, calcium absorption is much greatly absorbed.  We can cut recommendation in half and still absorb enough calcium for bone health! You should go to vitamin D council website and sign up for membership (50 dollars a year). You will learn a great deal about vitamin D. In the last newsletter, Dr. Cannell wrote about hip fractures and how they tend to have complications from surgeries. Turns out that they had very low vitamin D level and was often slow to heal and sometimes get infection. Vitamin D plays a huge part of keeping infection under control (basically universal antibiotic) and keeping bones strong and heal broken bones much faster. Not only that, surgeries tend to take up enormous amount of vitamin D as part of healing process but when you already have vitamin D deficiency, it makes a serious situation much worse.

  How do you know how much vitamin D?  I had mine checked and the doc of course said it was fine, but I started taking two thousand mg a day and I feel so much better, and when I remember to take it, I have fewer hot flashes, which I have been fighting for FIVE long years now.  I also started taking Adrenergize, and that is helping as well.

I have Ethan on all the recommended supps for AC chelation, and adrenal support has made a world of difference for him.HIlda, I cannot believe that person would write such a thing!  Was that a church member?  If people would truly live their faith -- ah, how the world would change.

I am the " crazy " lady in our town who thinks that nutrition is important.  I am crazy because I have always talked about how children with autism can improve.  I've had " educators " actually roll their eyes in front of me.  When they would have parties when Ethan was in public, you wouldn't believe the crap that was laid out on the table --every kind of sugary, bad carbohydrate you can think of.  I always brought an organic fruit tray and a dip made with coconut yogurt and organic no sugar added fruit spread.  I made sure to fix Ethan's plate first because the kids went for it, and that was the only thing I would let him have.

One mom said to me as she watched Ethan eat his fruit, " My son should be eating that. "   But people just don't want to change.  If this had not happened to us, I still wouldn't have let my son be a junk food junkie, but I know we would have had pizza night!  I have to confess that.

One more thing abut vitamin D and magnesium.  I was having horrible lower back pain for quite some time. Training horses and riding all kinds of horses over the last thirty years has taken its toll.  I thought this was it and I would just have to live with it because I was not going to take NSAIDS.  since starting the vitamin D and magnesium, I have no lower back pain!  I think vitmain D is even more important than calcium but that's JMO.

Haven