Looking at things in an entire new light

December 16, 2007

This past week Isabella had been sick. It started out with a runny nose, a

cough and by the end of the week a stomach virus and she could keep nothing

down. Yesterday was to be her birthday party that I had bought all the

decoration and goodies for. Well we ended up spending the day at Children's

Hospital with Isabella hooked up to an IV. It all happened so fast she went

from playing as normal with a little virus to quickly becoming dehydrated and

just hanging like a rag doll. I called all of the guest on our way to the

hospital and canceled the party. Isabella was quickly seen at the hospital.

Her sugar levels were slightly low and she was dehydrating quickly. They gave

her IV's and tried to see if she could keep a bottle down. She kept most of it

down and in a few hours she was back to herself waving and smiling at everyone

that came into the room. She was asking the nurses for books or should I say

boops. We were there for about 5 hours and she was releases. We only

had a few mishaps last night and this morning she is fine.

While I was at the hospital I met so many people going to the vending machines

and in the waiting room. It really put things in perspective for me. I met

parents that had been there with their children for weeks because on baby was a

hemophilic (not sure of spelling), another grandmother who's grand daughter had

a brain tumor. A little boy was screaming and begging for them not to stick him

again with a needle. My husband and I both had tears in our eyes. It made me

feel terrible for wallowing in my self pity for Isabella having MDS and XXX. It

also made me feel grateful that is all she has. I am looking at things in a

whole new light. So what if she missed her first birthday party, she did not

know the difference and could not have cared less. Her birthday is not until

the 21st and I will freeze the cake and have people over then, I thought. I am

just grateful I have my beautiful, healthy baby with me. I am grateful all she

had was a little stomach virus. Things could

be so much worse and I am grateful that they are not worse. So what if Isabella

has MDS and XXX I will just have to work harder with her. I have never been

afraid of hard work. Isabella was not the only person that got healed in the

hospital yesterday, I also got a good dose of medicine that I needed. As far as

am concerned from now on the extra chromosome 21 stands for the extra love she

gives me and the XXX is for all the extra kisses she gives. That trip to the

hospital gave me clarity, hope and the ability to be very thankful.

I just wanted to share this with all of new parents who's children were recently

diagnosised with MDS. I think this is something that all of the other parents

all ready knew.

Sue

Isabella's grateful mom (she's almost 1)

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