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For about 2 years, I regularly experienced nausea. I took the homeopathic Ipecac 6x (health food store) as soon as nausea began. It solved my problem. I still use it occasionally. marymuffinsmokeychamp wrote: I've been experiencing nausea for about 5 days and it's effecting my appetite and energy level. Has anyone else experienced severe naussea? what have you done about it? do you have the same side effect and how long does it last? I have IPF and my ox is 94 without use of oxygen and 97 with.thanks

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Jim.

You are not pregnant are you????

Just trying to interject some humor. I am in end stage but I have never had nausea unless I was infected or from antibiotics, etc. An infection would cause nausea....have you been taking your temperature or has the color of mucus changed?

If it persists, you should call your doc. With this stuff, you cannot ignore anything.

Joyce>> Thanks for the info. Went out yesterday and purchased it in a > Health food Store. My nausea is apparently a side effect from IPF and > I'm taking Prednisone 20mg per day. The pred helped me big time in the > beginning and I've slowly been reduced in dosage but for the last 6 > days I've been experiencing nausea from morning t'ill late afternoon.> > Has anyone else experienced this?? what did you do for it? My ox is 94 > without the help of ox, with ox assistance 97%. Any physical exertion > will drop my ox to 87-88% (without ox assistance).> > Thanks> Jim>

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I know because the pulmonary docs told me recently. I don't know what exactly that means time wise. I know I have developed Bronchiectasis which is horrible and the CT showed extensive honeycombing. My pulmonary function test was much worse this time.

But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing.

I am especially happy to meet you and others on this site. It helps so much to share. I have already learned so much.

Hugs to you, friend.

Joyce >> > > > I am in end stage > > > Please, tell me, in your opinion, what the end stage is and is symotoms. > Thank you....kiss kiss> ~Ginger~>

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Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you feeling?" will be "fine." So, that is why it is so easy to talk to this group. I know that people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have.

--Diane Quinlan dianequinlan@...

But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing.

I am especially happy to meet you and others on this site. It helps so much to share. I have already learned so much.

Hugs to you, friend.

Joyce

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When you are dealing with chronic illness, especially one that is life threatening, it is on your mind constantly. The curiosity, the fear, worry and the surprise every morning when you wake to remember that you have this dreadful disease. People do ask nicely, "How are you doing?".... then they are gone before you can respond. Even when they listen, they don't really get it. Well, WE DO GET IT...don't have to do any explaining here. We are comrades in this struggle. I for one am so relieved to have found all of you. Hugs to you all.

Joyce>> Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you feeling?" will be "fine." So, that is why it is so easy to talk to this group. I know that people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have. > > > --> Diane Quinlan > dianequinlan@... > > > But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing. > I am especially happy to meet you and others on this site. It helps so much to share. I have already learned so much. > Hugs to you, friend.> Joyce>

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I really have injoyed everyones preciouse words! I don't always have a response ,but so many times one of you written the words I felt thankyou all. Dorisdianequinlan@... wrote: Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you feeling?" will be "fine." So, that is why it is so easy to talk to this group. I know that

people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have. --Diane Quinlan dianequinlan@... But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to

tomorrow. I have some little faces that I look forward to seeing. I am especially happy to meet you and others on this site. It helps so much to share. I have already learned so much. Hugs to you, friend. Joyce

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My biggest frustration is the attitude of the pulmonologists in my new location. They see me as I am now....after 2.5 years of struggle, backslides, and personal refusal to give up. They try and tell me that, even with my 52% diffusion, I am healthy and should not be concerned about lung disease or right ventricular heart failure! I now understand why my pulmologist and cardiologist in SLC took such great pains to insure I understood the severity of PF....the probably knew that I would not get the info or support I needed (until I have to be hospitalized) once I moved to sea level. I realize that I am on my own. I cannot rely upon their 'expertise'. The only reason I even go to the pulmonologist now is because I need the approval of a pulmonologist to have 02 on a plane! When the first pulmonologist felt I did not need it (his 'educated' opinion based upon my physical

appearance), I went to another (1 hour away) who at least is willing to 'pat me on the head' and approve it...although he doesn't feel I need it...even after I tested myself on a flight last October and found that my sat dropped to 86! Since the airlines had the approval of my pulmonologist in SLC, I was able to then begin using the 02. I do not know how low it would have dropped. mary janne5303 wrote: When you are dealing with chronic illness, especially one that is life threatening, it is on your mind constantly. The curiosity, the fear, worry and the surprise every morning when you wake to remember that you have this dreadful disease. People do ask nicely, "How are you doing?".... then they are gone

before you can respond. Even when they listen, they don't really get it. Well, WE DO GET IT...don't have to do any explaining here. We are comrades in this struggle. I for one am so relieved to have found all of you. Hugs to you all. Joyce>> Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you feeling?"

will be "fine." So, that is why it is so easy to talk to this group. I know that people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have. > > > --> Diane Quinlan > dianequinlan@... > > > But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing. > I am especially happy to meet you and others on this site. It helps so

much to share. I have already learned so much. > Hugs to you, friend.> Joyce>

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Thursday, February 16, 2006

Hi!

Can someone tell me what sensation they're describing as nausea? I get

a pain/gas/burning/hurting sensation that seems to be getting more

frequent. My doctor prescribed – and I take Nexium – and I guess

that's what that's for. I often have kind-of-a stomach-y/yucky stomach

feeling. And now that I think about it, I've been getting this feeling

more and more recently – lots more!

Nelda

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Oh ,

I am so sorry about your doctor situation. It is difficult enough to deal with serious illness without having an insensitive doctor treating you like you are worrying about nothing. I have been there. I would leave the office, get into the elevator and cry. When I had my lung biopsy I actually felt validated. Finally, I could prove that I was in pain and actually sick. It was a cruel victory, however.

I found myself a top notch pulmonologist and a top notch rheumatologist and have had good treatment since.

I know it hard when you are so sick to shop for doctors. But you are fighting for your life. I wonder why these guys who have no heart even go into the business of caring for the sick??

I pray that God will lead you to the very best. You are worth it!

Hugs,

Joyce> >> > Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you feeling?" will be "fine." So, that is why it is so easy to talk to this group. I know that people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much> longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have. > > > > > > --> > Diane Quinlan > > dianequinlan@ > > > > > > But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing. > > I am especially happy to meet you and others on this site. It helps so much to share. I have already learned so much. > > Hugs to you, friend.> > Joyce> >> > > >

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Actually, I also would like to know what to expect. maryTongueDancer2U@... wrote: I am in end stage Please, tell me, in your opinion, what the end stage is and is symotoms. Thank you....kiss kiss ~Ginger~

marymassung

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Hi Nelda,

My pulmonary doctor is really strong about the necessity of taking reflux medications like Nexium. Evidently reflux/indigestion is common to lung disease. Mine got really bad when I developed Bronchiectasis. When you have reflux the stomach contents can come back into your throat and the bacteria go into your lungs. If you have not developed Bronchiectasis it will cause it....and if you have it....the bacteria can kill you. So, my answer from reading, reading, reading is that yes, you need to take it. The symptoms that you are describing are why.

I haven't had much if any nausea.....but all the other symptoms you mention are very familiar.

My husband who is a former reflux patient, drinks about 3 oz. of grape juice (purple) two or three times a day. He got off the medication and is doing well. He has a remedy for everything. HA!

Take care and hope your poor tummy feels better.

Joyce>> Thursday, February 16, 2006> > Hi!> > Can someone tell me what sensation they're describing as nausea? I get > a pain/gas/burning/hurting sensation that seems to be getting more > frequent. My doctor prescribed – and I take Nexium – and I guess > that's what that's for. I often have kind-of-a stomach-y/yucky stomach > feeling. And now that I think about it, I've been getting this feeling > more and more recently – lots more!> > Nelda>

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Diane and , I don't know off hand what level I am at lansing mich . pretty flat . iam not on any oxegen yet and yes it is denver my daughter goes to UC in Boulder dorismary wrote: Actually, it can make a difference...depending upon the person, what the altitude is. I need supplemental 02 if I am at any elevation greater than 2000'. This is why I have an oximeter. It allows me to know when I need to begin using my portable 02 concentrator. marydianequinlan@... wrote: Do you know what a pulse oximeter is? It clips onto your finger and reads out the percentage of oxygen that is in your blood....one way to check and see how

well you are doing when you exercise is to use the pulse ox....when I went to pulmonary rehab, they checked my number before and after each exercise. It also helped me because now I know when my number is low....I know what it feels like. It's good to exercise, but it's dangerous to push until your oxygenation is too low....your doctor should be able to send you to be evaluated. Going to the mountains shouldn't make any difference unless you are talking about Denver. Are you on oxygen now? Good luck. --Diane Quinlan dianequinlan@... -------------- Original message -------------- Heres a question, for all that are using 02 Iam at 55-56 difussion how do I know if its time to talk about 02 more seriosly

with my doc. marymassung Brings words and photos together (easily) withPhotoMail - it's free and works with Yahoo! Mail.

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Hello its me doris Im a little behind on my readings . I wondered if any of you would mind if I send thids to our breathing friend in Romainia? ps I apoligize for my writing and spelling! dorismary wrote: My biggest frustration is the attitude of the pulmonologists in my new location. They see me as I am now....after 2.5 years of struggle, backslides, and personal refusal to give up. They try and tell me that, even with my 52% diffusion, I am healthy and should not be concerned about lung disease or right ventricular heart failure! I now understand why my pulmologist and cardiologist in SLC took such great pains to insure I understood the severity of PF....the probably knew that I would not get the info or support I needed (until I have to be hospitalized) once I moved to sea

level. I realize that I am on my own. I cannot rely upon their 'expertise'. The only reason I even go to the pulmonologist now is because I need the approval of a pulmonologist to have 02 on a plane! When the first pulmonologist felt I did not need it (his 'educated' opinion based upon my physical appearance), I went to another (1 hour away) who at least is willing to 'pat me on the head' and approve it...although he doesn't feel I need it...even after I tested myself on a flight last October and found that my sat dropped to 86! Since the airlines had the approval of my pulmonologist in SLC, I was able to then begin using the 02. I do not know how low it would have dropped. mary janne5303 wrote: When you are dealing with chronic illness, especially one that is life threatening, it is on your mind constantly. The curiosity, the fear, worry and the surprise every morning when you wake to remember that you have this dreadful disease. People do ask nicely, "How are you doing?".... then they are gone before you can respond. Even when they listen, they don't really get it. Well, WE DO GET IT...don't have to do any explaining here. We are comrades in this struggle. I for one am so relieved to have found all of you. Hugs to you all. Joyce>> Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world

somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you feeling?" will be "fine." So, that is why it is so easy to talk to this group. I know that people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have. > > > --> Diane Quinlan >

dianequinlan@... > > > But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing. > I am especially happy to meet you and others on this site. It helps so much to share. I have already learned so much. > Hugs to you, friend.> Joyce> marymassung Yahoo! MailUse Photomail to share photos without annoying attachments.

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Doris, You are free to send anything I write as long as you remove my name and email address. marydoris soliz-hill wrote: Hello its me doris Im a little behind on my readings . I wondered if any of you would mind if I send thids to our breathing friend in Romainia? ps I apoligize for my writing and spelling! dorismary wrote: My biggest frustration is the attitude of the pulmonologists in my new location. They see me as I am now....after 2.5 years of struggle, backslides, and personal refusal to give up. They try and tell me that, even with my 52% diffusion, I am healthy and should not

be concerned about lung disease or right ventricular heart failure! I now understand why my pulmologist and cardiologist in SLC took such great pains to insure I understood the severity of PF....the probably knew that I would not get the info or support I needed (until I have to be hospitalized) once I moved to sea level. I realize that I am on my own. I cannot rely upon their 'expertise'. The only reason I even go to the pulmonologist now is because I need the approval of a pulmonologist to have 02 on a plane! When the first pulmonologist felt I did not need it (his 'educated' opinion based upon my physical appearance), I went to another (1 hour away) who at least is willing to 'pat me on the head' and approve it...although he doesn't feel I need it...even after I tested myself on a flight last October and found that my sat dropped to 86! Since the airlines had the approval

of my pulmonologist in SLC, I was able to then begin using the 02. I do not know how low it would have dropped. mary janne5303 wrote: When you are dealing with chronic illness, especially one that is life threatening, it is on your mind constantly. The curiosity, the fear, worry and the surprise every morning when you wake to remember that you have this dreadful disease. People do ask nicely, "How are you doing?".... then they are gone before you can respond. Even when they listen, they don't really get it. Well, WE DO GET IT...don't have to do any explaining here. We are comrades in this struggle. I for one am so relieved to have found all of you. Hugs to you

all. Joyce>> Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you feeling?" will be "fine." So, that is why it is so easy to talk to this group. I know that people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's

another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have. > > > --> Diane Quinlan > dianequinlan@... > > > But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing. > I am especially happy to meet you and others on this site. It helps so much to share. I have already learned so much. > Hugs to you, friend.> Joyce> marymassung Yahoo! MailUse Photomail to share photos without annoying attachments. Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze.

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Thank you I just wanted to double check since there are others on this disscussion I will a;lways remove all e-mail address.dorismary wrote: Doris, You are free to send anything I write as long as you remove my name and email address. marydoris soliz-hill wrote: Hello its me doris Im a little behind on my readings . I wondered if any of you would mind if I send thids to our breathing friend in Romainia? ps I apoligize for my writing and spelling! dorismary wrote: My biggest frustration is the attitude of the pulmonologists in my new location. They see me as I am now....after 2.5 years of struggle, backslides, and personal refusal to give up. They try and tell me that, even with my 52% diffusion, I am healthy and should not be concerned about lung disease or right ventricular heart failure! I now understand why my pulmologist and cardiologist in SLC took such great pains to insure I understood the severity of PF....the probably knew that I would not get the info or support I needed (until I have to be hospitalized) once I moved to sea level. I realize that I am on my own. I cannot rely upon their 'expertise'. The only reason I even go to the pulmonologist now is because I need the approval of a pulmonologist to have 02 on a plane! When the first pulmonologist felt I did not need it (his 'educated' opinion based upon my

physical appearance), I went to another (1 hour away) who at least is willing to 'pat me on the head' and approve it...although he doesn't feel I need it...even after I tested myself on a flight last October and found that my sat dropped to 86! Since the airlines had the approval of my pulmonologist in SLC, I was able to then begin using the 02. I do not know how low it would have dropped. mary janne5303 wrote: When you are dealing with chronic illness, especially one that is life threatening, it is on your mind constantly. The curiosity, the fear, worry and the surprise every morning when you wake to remember that you have this dreadful disease. People do ask nicely, "How are you doing?".... then they are

gone before you can respond. Even when they listen, they don't really get it. Well, WE DO GET IT...don't have to do any explaining here. We are comrades in this struggle. I for one am so relieved to have found all of you. Hugs to you all. Joyce>> Joyce - you do have a wonderful spirit...and that is so important. It's easy to get scared or depressed....it's harder work to get yourself out of bed and ready to face the world somedays. But, I know it helps to talk to others who have the same fears and worries. You need to be able to talk about what is bothering you....I try to explain to my family when I'm having a bad day...but there's a lot of explanation that usually happens just to get them to understand...and then I'm exhausted. If that happens enough, my response to "how are you

feeling?" will be "fine." So, that is why it is so easy to talk to this group. I know that people ask questions because they care and want to really understand. Some days we just don't have the energy for it, you know? I love to write and have thought about keeping a journal....it's another method of working through those feelings we have. As a nurse, I have seen patients die because they lost their spirit....and I saw patients who lived much longer because they had such a will to live. So, you hang onto that positive attitude and outlook you have. > > > --> Diane Quinlan > dianequinlan@... > > > But, you know Ginger....inside where my spirit lives....I don't feel like I am dying. I have days when I feel scared or lonely but most of the time I am just excited to be alive and look forward to tomorrow. I have some little faces that I look forward to seeing. > I am especially happy to meet you and others on this site. It

helps so much to share. I have already learned so much. > Hugs to you, friend.> Joyce> marymassung Yahoo! MailUse Photomail to share photos without annoying attachments. Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze. marymassung Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze.

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