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Maddy update

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Maddy's pain is continuing. He thinks she might be overdraining again,but he

wants to wait and see.Her nsg would like her to go to Stanford Pain Clinic,so we

are waiting for the referal for that. He also wants her to see a psychiatrist

which I talked to yesterday who wants to try and put her on a different seizure

med because it would calm Maddy down or put her on an ADD/ADHD meds. I told him

she doesnt need to be calmed down she needs some pain meds and someone to get to

the root of her her pain. So I dont know about that. I cant get any of her docs

to give her some pain meds.We finally got an appointment for urology-urodynamic

study and doc appt on 3/31 and vcug on 3/18. They are gonna put her on the

cancellation list. I left a message with her pcp to get her in sooner,as I am

very concerned that this will get worse for Maddy. I am praying they get her in

soon. I am looking into to other docs as well.

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