Re: Medications - Intuniv

July 18, 2012

We tried our son on Intuniv last Fall after he was having extreme behavioral issues that were affecting his learning. Diet changes, biomedical approaches, & behavioral approaches had no effect on his behavior. We were initially reluctant & had never medicated our son before but felt like the other approaches we'd tried weren't working. The 1st 3 months he was on Intuniv were wonderful for him- he was more attentive, calmer, more social, & was learning again. Then, he started having accidents at night. Our son's psychiatrist insisted it had nothing to do with the medication but lowered the dosage (seemingly to placate us). Then, he started having toileting accidents during the day at home & at school. It took us an entire Summer of intense toilet training to get him potty-trained 5 years before so we didn't take it lightly that he was having regression from what we felt was clearly effects from the Intuniv as no other changes had taken place with him except the medication. I knew once we had resorted to waking him up in the middle of the night to go to the bathroom thereby interrupting his sleep & ours that the "honeymoon period" was over & that it wasn't worth it so we took him off the medication. Although Intuniv was a non-stimulant, he exhibited withdrawal symptoms & the 1st day after he had been gradually titrated down to 0 mg, he stayed awake for over 30 hours & was very aggressive which was very atypical behavior for him. He threw 1 of his trophies against the wall & had our family dog in a chokehold during that awful time frame. We haven't tried any other medications with him since then. I realize that all children react differently to different medications but other than the 3 months of bliss, the few weeks after that didn't make it at all worthwhile for our son.Best of luck to your son & your family,Dolly

Has anyone had any experience with Intuniv. My son has been taking it for about 6 months now. At first it really seemed to help bridge the gap between when his adderall ER was kicking in and when he is coming off of his adderall ER in the evening. Now he is having some really bad behavior - flashing, screaming at people, tantruming. Behavior we have not seen in a long while. It is the behavor that had disappearred plus way more. We have tried other medications that really did well in the beginning but long term became a nightmare. Any help would be appreciated.

I am against prescription medications unless they are absolutely warranted. That would mean that the child absolutely cannot function or the parent cannot control the child. If the medication is need in order to keep the child in the home with the family as opposed to being institutionalized, then by all means....

I made up my mind not to do psychotropics (unless it came that my son became self injurious or seriously agressive to the point of not being able to be in the home) when he was three and his dev ped said he would never get any better and that I should institutionalze him immediatly and just "get on with your life."

Of course I refused, and then she said, "Well, then...if you can just hold on until he is a little older, I have drugs I can put him on that willmake your life easier." Of course this angered me, and I told her I was not interested in making my life easier but making the quality of my son's life better and I stormed out. Every thing this doctor said my son was NEVER going to be able to do, he can already do at the age of 12.5. the only exceptions to date are drive a car, go to college, live on his own, and get married.

For these we have time. Christ didn't leave home until he was thirty.

I made up my mind not to put my son on these meds for many reasons. One is that I beleive it was the drug companies who damaged my son. I beleive they are notorious for giving a drug which then causes another condition or state of being so that they can then prescribe another drug and so on -- so there is a wealth of profit for them there. It sickens me to have to give a nickle to those who poisoned my child, and so I don't do this unless absolutely it becomes necessary. He had to be on steroids for a considerable time thanks to the damage done to immune system from vaccines. I had no choice as my son has to be able to breathe.

But since the institution of the AC Protocol and including adrenal support, my son has not had to take a steroid. He has needed Xopanex from time to time, but usually this is a sign he needs more adrenal support. The AC Protocol has improved his immune function beyond our wildest dreams.

In the early years of his regression, my son could be aggressive and self injurious. He would throw himself up against the wall so hard he would fall down. He was given to tantrums where he hit, bit, and kicked me. I dealt with these using an ABA type approach to change the behavior. For us it worked. I learned that food intolerances had a direct effect on his behavior, kept a food diary, and eliminated the offeding foods. Still accidents can happen, and about three years ago he got an offending food and changed into Dr. Hyde, had a tantrum and tried to choke me.

This taught me that with him I have to be extremely careful about food. It has never happened since. He has bad days like any other kid but he has not been self-injurious or physically aggressive since.

However that day did scare me, and so I know if it were a common occurrence and I could not find a way to change these things, I would give my son a drug if it would keep him at home. I cannot bear the thought of my son winding up in an institution. So each parent has to make that decision based on their circumstances.

I am happy and do feel blessed that I never had to put my son on psychotropics. Doctors did suggest it for the hyperactivity and the stimming, but I rejected it. For us we felt these should be considered only when not doing them would put our son or us at risk (or others at risk) of bodily harm. I would exhaust every natural means of finding the root cause of what is going on before resorting to a drug that will merely cover up the problem and not heal it. That is just our thinking, but no one can judge another parent for deciding to do so. Each parent knows his own limits and what their child may need and what the parent can handle.

My own opinion is to try every natural thing that can bring about an actual healing process. For me, I just cant give another nickle to people I believe are inherently evil if I can find a better way and bring about actual healing.

These drugs carry with them myriad side effects, and some are dangerous, so simply be fully informed before making a decision.

July 19, 2012

Lori,

iâ€™m so sorry, I didnâ€™t mean anything against you or any parents who use medication when I said I liked Havenâ€™s post. Again, Iâ€™m sorry.

I do understand the need for them and have almost used them for my son. There have been several periods of time where my son was so out of control that I would have put him on meds had the situation not been resolved relatively quickly.

Marilyn

From: Lori and Weldon Glidden

Sent: Thursday, July 19, 2012 7:13 AM

To: Texas-Autism-Advocacy

Subject: Re: Medications - Intuniv

I have come to this group regarding an issue very few times and received very helpful information each time. I have also recommended this group to many others. In light of our current situation and the reason for my initial post, I don't find this information helpful or funny especially after the night I just experienced with my son.

July 19, 2012

Thanks Marilyn for your comments. My son has been on meds for years and had it not been for his meds for hyperactivity I do not believe he would have responded to the various therapist so positively. I consider them a tool of sorts not a cure all. Every individual is different and will respond differently to everything from meds and diets to various therapies. We just have to figure out what works best. We choose our drugs carefully and always have and we have also chosen not to medicate for some issues.

Thanks again.

Subject: Re: Medications - IntunivTo: Texas-Autism-Advocacy Date: Thursday, July 19, 2012, 7:55 AM

Lori,

iâ€™m so sorry, I didnâ€™t mean anything against you or any parents who use medication when I said I liked Havenâ€™s post. Again, Iâ€™m sorry.

I do understand the need for them and have almost used them for my son. There have been several periods of time where my son was so out of control that I would have put him on meds had the situation not been resolved relatively quickly.

Marilyn

From: Lori and Weldon Glidden

Sent: Thursday, July 19, 2012 7:13 AM

To: Texas-Autism-Advocacy

Subject: Re: Medications - Intuniv

I have come to this group regarding an issue very few times and received very helpful information each time. I have also recommended this group to many others. In light of our current situation and the reason for my initial post, I don't find this information helpful or funny especially after the night I just experienced with my son.

July 19, 2012

Haven,

Like you I decided early on not to do psychotropics. We have worked endlessly

with my son on behavior issues, been blessed with a school system who worked

with him informally in the classroom, and worked to improve his overall health.

Today, he is a fairly well behaved 13 yr old who has learned how to adapt to the

world most of the time. He does well in school and wants to try and get all A's

this next year. It has not been easy on my family, but we are all so proud of

him.

As we have communicated before, my son also has moderate asthma and cannot take

steroids due to severe adverse events. He has done much better since I started

him on oral IgG - very few colds and his bloodwork is showing normal neutrophil

levels now. Not getting sick all the time has reduced the incidence of asthma

attacks, although he still uses the Xopenex inhaler daily. Can you tell me

specifically what you are doing for adrenal support?

> >

> >>

> >> I am against prescription medications unless they are absolutely warranted.

That would mean that the child absolutely cannot function or the parent cannot

control the child. If the medication is need in order to keep the child in the

home with the family as opposed to being institutionalized, then by all

means....

> >>

> >> I made up my mind not to do psychotropics (unless it came that my son

became self injurious or seriously agressive to the point of not being able to

be in the home) when he was three and his dev ped said he would never get any

better and that I should institutionalze him immediatly and just " get on with

your life. "

> >>

> >> Of course I refused, and then she said, " Well, then...if you can just hold

on until he is a little older, I have drugs I can put him on that willmake your

life easier. " Of course this angered me, and I told her I was not interested in

making my life easier but making the quality of my son's life better and I

stormed out. Every thing this doctor said my son was NEVER going to be able to

do, he can already do at the age of 12.5. the only exceptions to date are drive

a car, go to college, live on his own, and get married.

> >>

> >> For these we have time. Christ didn't leave home until he was thirty.

> >> I made up my mind not to put my son on these meds for many reasons. One is

that I beleive it was the drug companies who damaged my son. I beleive they are

notorious for giving a drug which then causes another condition or state of

being so that they can then prescribe another drug and so on -- so there is a

wealth of profit for them there. It sickens me to have to give a nickle to

those who poisoned my child, and so I don't do this unless absolutely it becomes

necessary. He had to be on steroids for a considerable time thanks to the

damage done to immune system from vaccines. I had no choice as my son has to be

able to breathe.

> >>

> >> But since the institution of the AC Protocol and including adrenal support,

my son has not had to take a steroid. He has needed Xopanex from time to time,

but usually this is a sign he needs more adrenal support. The AC Protocol has

improved his immune function beyond our wildest dreams.

> >>

> >> In the early years of his regression, my son could be aggressive and self

injurious. He would throw himself up against the wall so hard he would fall

down. He was given to tantrums where he hit, bit, and kicked me. I dealt with

these using an ABA type approach to change the behavior. For us it worked. I

learned that food intolerances had a direct effect on his behavior, kept a food

diary, and eliminated the offeding foods. Still accidents can happen, and about

three years ago he got an offending food and changed into Dr. Hyde, had a

tantrum and tried to choke me.

> >>

> >> This taught me that with him I have to be extremely careful about food. It

has never happened since. He has bad days like any other kid but he has not

been self-injurious or physically aggressive since.

> >>

> >> However that day did scare me, and so I know if it were a common occurrence

and I could not find a way to change these things, I would give my son a drug if

it would keep him at home. I cannot bear the thought of my son winding up in an

institution. So each parent has to make that decision based on their

circumstances.

> >>

> >> I am happy and do feel blessed that I never had to put my son on

psychotropics. Doctors did suggest it for the hyperactivity and the stimming,

but I rejected it. For us we felt these should be considered only when not

doing them would put our son or us at risk (or others at risk) of bodily harm.

I would exhaust every natural means of finding the root cause of what is going

on before resorting to a drug that will merely cover up the problem and not heal

it. That is just our thinking, but no one can judge another parent for deciding

to do so. Each parent knows his own limits and what their child may need and

what the parent can handle.

> >>

> >> My own opinion is to try every natural thing that can bring about an actual

healing process. For me, I just cant give another nickle to people I believe

are inherently evil if I can find a better way and bring about actual healing.

> >>

> >> These drugs carry with them myriad side effects, and some are dangerous, so

simply be fully informed before making a decision.

> >

>

July 19, 2012

My now 20-year old in managed recovery, was on psych meds for 9 years,

before the Internet had all the recovery information it has now.

Anyhow, it was a nightmare. They did help, but typically, his new med

would work for a while, then not any longer. It was nine years of

changing meds, upping doses, and changing psychiatrists -- since they

were each fixed on which meds they used. I would say that psych meds

can be better than nothing, but if you can do biomed, alternative

(herbal, homeopathy, etc.), diets, etc.; they work 10-fold better. He

was on several different psych meds, and the most they did was allow him

to be able to do special needs schooling. Within 3 days of just adding

digestive aids and some anti-inflammatory herbs, he lost 50% of his

symptoms and was taken off all psych meds. Within a year, he was in all

regular education classes on biomed. I did do lots and lots of

research. I know many will not have the time I had. But, there are

even way more websites and forums now to help you then when I started 6

years ago.

Love and prayers,

Heidi N

July 19, 2012

I thought this group was about helping and tolerance and not personal vendettas?Â Ah well. I have to say I also did not find it funny.Â I have been very happy with the recent conversation that seems to be supportive and a great sharing of resources and information, and this felt like a bit of a slap in the face, again on a bad day. On another note â€“ does anyone have recommendations for therapies in the Houston area?Â My sonâ€™s OT/Speech seems to be unable to help at this point, and weâ€™re looking for other forms of therapies to help him progress.Â Heâ€™s 10, but is about on the level of a 4 year old.Â We are looking for hippotherapy, art therapy, anything physical (he loves to move!), water therapy (he loves to swim!), music therapy, etcâ€¦Â From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Lori and Weldon GliddenSent: Thursday, July 19, 2012 7:14 AMTo: Texas-Autism-Advocacy Subject: Re: Medications - Intuniv I have come to this group regarding an issue very few times and received very helpful information each time. I have also recommended this group to many others. In light of our current situation and the reason for my initial post, I don't find this information helpful or funny especially after the night I just experienced with my son.Subject: Re: Medications - IntunivTo: Texas-Autism-Advocacy Date: Thursday, July 19, 2012, 12:25 AM During the marketing phase of a new vaccine the various players sit around in a room: Drug pusher # one: Well, we expect this vaccine to work approximately 37 percent of the time. DP #2: Yeah, but we won't tell patients that. They will think it works all the time and it will give them a sense of protection. Most of the 63% it doesn't work on weren't going to get the illness anyway, but they will think it is because they took the vaccine. It's a win-win for us. DP # 3: What are the side effects? DP # 1: It could cause anaphylaxis, seizure disorder, ADD, ADHD, autism, restless leg syndrome, SIDS, and possible death in adults, as well. DP #2: Well we can't do anything about the deaths. The government might pay them out through VAERS. Either way, we're immune from litigation. It's a win-win for us. DP #3: For the anaphylaxis, we would increase sales of Epipens. For the seizures we could get several on Depakote or Tegretol. For those who get ADD, ADHD, or autism; we can increase sales of Ritalin, Straterra, and Intuniv. The latter two were designed specifically for these conditions which we knew would be caused by vaccines. DP #1: And the SIDS most don't even think is related to anything at all. We could just keep the public believing that things like SIDS and autism just happen out of the blue. DP#3: Well, we've given plenty to our guys in Washington to keep saying its genetic. SIDS just happens for no reason. I think the public can be expected to continue to believe that. But that's the side effect that bothers me. We can't generate any more profit from dead children. DP # 1: I think the rates of that will be minimal, and the profit margin expected from the direct sale of the vaccine added to the profit margin of the subsequent drugs that will be needed will more than make up for that. DP # 2: What's the net profit annually expected off this vaccine? DP # 1: One billion annually if we can get it mandated. DP# 3: Which politicians do we have to fund this year to get this to happen? DP # 2: I think we all know which ones. DP# 3: What will be the residual net profit from the subsequent meds needed to to control the fall out? DP# 1: I think we can respect a substantial rise in sales of seizure and ADHD meds. DP # 3: I think the autism will also largely increase the sales of psychotropics. DP #2: Certainly! That is really going to be a boon. DP # 1: What's the down side? DP # 3: I'm sure there will be more parents saying that the vaccine caused autism. (laughter among the group) DP # 2: Yeah, but we are sponsoring " Grey's Anatomy, " Private Practice, " and any other doctor shows we can sponsor. We'll be sure to get more propaganda into the dialogue. DP #1: Yeah, that one in PP about those parents being " wackos " was great! (laughter) DP # 3: I liked the one where on House, Dr, House tells the mom if she doesn't vaccinate then she should just go out and buy a coffin! DP # 2: So we're good on making autism parents look crazy on TV? DP # 1: Yeah, we're good on that. DP# 3: So now all we need are the commercials to make people afraid, right? Others: yep. DP # 3: So this vaccine will make us a billion annually and drastically increase sales of Depakote, Epipens, Intuniv, Straterra, and several psychotorpic meds. We are immune from litigation for damages ....Life is good. DP # 2: OOps, I forgot to mention one other possible side effect. DP # 3: What's that? DP # 2: Well, Sir, it could also cause hot dog head. DP # 3: Well, think of a more clinical name for that, make it a condition and get to work on a new drug for it first thing in the morning. DP # 2: Consider it done, Sir. No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5140 - Release Date: 07/18/12No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5140 - Release Date: 07/18/12

July 19, 2012

My son is on Tenex, which is another form of that drug.Â He takes half a mg at lunch, and it helps him last the day.Â When he takes too much, he gets sleepy, but we were discovering that around 2.30/3 pm, he would melt down and couldnâ€™t function.Â Giving him that half mg seems to take the edge off, and he no longer attacks his teachers or loses it over anything that he doesnâ€™t like.Â (We still have problems, obviously, but the lack of screaming fits that last for hours because of half a mg is an amazing difference, we thinkâ€¦) My friend/neighborâ€™s daughter is on it, and it has made a huge difference.Â She is not autistic, but she did have some issues, one of which made her so overwhelmed and overwrought that she kept getting in trouble at school for screaming.Â Literally just screaming â€“ long, drawn out scream â€“ whenever she got upset.Â It had been going on for a while, but now with Intuiv and talk therapy, she is able to cope with her overemotional states and has been totally different.Â The goal is to get her off the drug, but right now, sheâ€™s taking a fairly small dose (canâ€™t remember exactly how much), but her mother was very worried about it because she had heard of problems.Â I think itâ€™s just important to remember that itâ€™s very different for different people.Â My friend has been diagnosed bipolar herself, and she went without meds for years due to the negative side effects, but now sheâ€™s found one that works, and sheâ€™s just thrilled herself.Â I think that we all need to remember that while some choose not to medicate for various reasons, it can sometimes be the â€œbestâ€ option for others. From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Lori and Weldon GliddenSent: Wednesday, July 18, 2012 8:33 PMTo: Texas-Autism-Advocacy Subject: Medications - Intuniv Has anyone had any experience with Intuniv. My son has been taking it for about 6 months now. At first it really seemed to help bridge the gap between when his adderall ER was kicking in and when he is coming off of his adderall ER in the evening. Now he is having some really bad behavior - flashing, screaming at people, tantruming. Behavior we have not seen in a long while. It is the behavor that had disappearred plus way more. We have tried other medications that really did well in the beginning but long term became a nightmare. Any help would be appreciated. I am against prescription medications unless they are absolutely warranted. That would mean that the child absolutely cannot function or the parent cannot control the child. If the medication is need in order to keep the child in the home with the family as opposed to being institutionalized, then by all means.... I made up my mind not to do psychotropics (unless it came that my son became self injurious or seriously agressive to the point of not being able to be in the home) when he was three and his dev ped said he would never get any better and that I should institutionalze him immediatly and just " get on with your life. " Of course I refused, and then she said, " Well, then...if you can just hold on until he is a little older, I have drugs I can put him on that willmake your life easier. " Of course this angered me, and I told her I was not interested in making my life easier but making the quality of my son's life better and I stormed out. Every thing this doctor said my son was NEVER going to be able to do, he can already do at the age of 12.5. the only exceptions to date are drive a car, go to college, live on his own, and get married. For these we have time. Christ didn't leave home until he was thirty.I made up my mind not to put my son on these meds for many reasons. One is that I beleive it was the drug companies who damaged my son. I beleive they are notorious for giving a drug which then causes another condition or state of being so that they can then prescribe another drug and so on -- so there is a wealth of profit for them there. It sickens me to have to give a nickle to those who poisoned my child, and so I don't do this unless absolutely it becomes necessary. He had to be on steroids for a considerable time thanks to the damage done to immune system from vaccines. I had no choice as my son has to be able to breathe. But since the institution of the AC Protocol and including adrenal support, my son has not had to take a steroid. He has needed Xopanex from time to time, but usually this is a sign he needs more adrenal support. The AC Protocol has improved his immune function beyond our wildest dreams. In the early years of his regression, my son could be aggressive and self injurious. He would throw himself up against the wall so hard he would fall down. He was given to tantrums where he hit, bit, and kicked me. I dealt with these using an ABA type approach to change the behavior. For us it worked. I learned that food intolerances had a direct effect on his behavior, kept a food diary, and eliminated the offeding foods. Still accidents can happen, and about three years ago he got an offending food and changed into Dr. Hyde, had a tantrum and tried to choke me. This taught me that with him I have to be extremely careful about food. It has never happened since. He has bad days like any other kid but he has not been self-injurious or physically aggressive since. However that day did scare me, and so I know if it were a common occurrence and I could not find a way to change these things, I would give my son a drug if it would keep him at home. I cannot bear the thought of my son winding up in an institution. So each parent has to make that decision based on their circumstances. I am happy and do feel blessed that I never had to put my son on psychotropics. Doctors did suggest it for the hyperactivity and the stimming, but I rejected it. For us we felt these should be considered only when not doing them would put our son or us at risk (or others at risk) of bodily harm. I would exhaust every natural means of finding the root cause of what is going on before resorting to a drug that will merely cover up the problem and not heal it. That is just our thinking, but no one can judge another parent for deciding to do so. Each parent knows his own limits and what their child may need and what the parent can handle. My own opinion is to try every natural thing that can bring about an actual healing process. For me, I just cant give another nickle to people I believe are inherently evil if I can find a better way and bring about actual healing. These drugs carry with them myriad side effects, and some are dangerous, so simply be fully informed before making a decision.No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5139 - Release Date: 07/18/12No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5139 - Release Date: 07/18/12

July 19, 2012

We have a music therapist that works out of Scroggins Therapy - I believe they are in Alvin. You might check with some of the area school districts to see if they have a music therapist because they often will take on clients out side of the school district. You may also want to check was other therapy centers like Children Therapy Center and ask them if they know of any in this area. You might even consider changing OT's - sometimes a new therapist will take a different approach.

Subject: Re: Medications - IntunivTo: Texas-Autism-Advocacy Date: Thursday, July 19, 2012, 12:25 AM

During the marketing phase of a new vaccine the various players sit around in a room:

Drug pusher # one: Well, we expect this vaccine to work approximately 37 percent of the time.

DP #2: Yeah, but we won't tell patients that. They will think it works all the time and it will give them a sense of protection. Most of the 63% it doesn't work on weren't going to get the illness anyway, but they will think it is because they took the vaccine. It's a win-win for us.

DP # 3: What are the side effects?

DP # 1: It could cause anaphylaxis, seizure disorder, ADD, ADHD, autism, restless leg syndrome, SIDS, and possible death in adults, as well.

DP #2: Well we can't do anything about the deaths. The government might pay them out through VAERS. Either way, we're immune from litigation. It's a win-win for us.

DP #3: For the anaphylaxis, we would increase sales of Epipens. For the seizures we could get several on Depakote or Tegretol. For those who get ADD, ADHD, or autism; we can increase sales of Ritalin, Straterra, and Intuniv. The latter two were designed specifically for these conditions which we knew would be caused by vaccines.

DP #1: And the SIDS most don't even think is related to anything at all. We could just keep the public believing that things like SIDS and autism just happen out of the blue.

DP#3: Well, we've given plenty to our guys in Washington to keep saying its genetic. SIDS just happens for no reason. I think the public can be expected to continue to believe that. But that's the side effect that bothers me. We can't generate any more profit from dead children.

DP # 1: I think the rates of that will be minimal, and the profit margin expected from the direct sale of the vaccine added to the profit margin of the subsequent drugs that will be needed will more than make up for that.

DP # 2: What's the net profit annually expected off this vaccine?

DP # 1: One billion annually if we can get it mandated.

DP# 3: Which politicians do we have to fund this year to get this to happen?

DP # 2: I think we all know which ones.

DP# 3: What will be the residual net profit from the subsequent meds needed to to control the fall out?

DP# 1: I think we can respect a substantial rise in sales of seizure and ADHD meds.

DP # 3: I think the autism will also largely increase the sales of psychotropics.

DP #2: Certainly! That is really going to be a boon.

DP # 1: What's the down side?

DP # 3: I'm sure there will be more parents saying that the vaccine caused autism.

(laughter among the group)

DP # 2: Yeah, but we are sponsoring "Grey's Anatomy," Private Practice," and any other doctor shows we can sponsor. We'll be sure to get more propaganda into the dialogue.

DP #1: Yeah, that one in PP about those parents being "wackos" was great!

(laughter)

DP # 3: I liked the one where on House, Dr, House tells the mom if she doesn't vaccinate then she should just go out and buy a coffin!

DP # 2: So we're good on making autism parents look crazy on TV?

DP # 1: Yeah, we're good on that.

DP# 3: So now all we need are the commercials to make people afraid, right?

Others: yep.

DP # 3: So this vaccine will make us a billion annually and drastically increase sales of Depakote, Epipens, Intuniv, Straterra, and several psychotorpic meds. We are immune from litigation for damages ....Life is good.

DP # 2: OOps, I forgot to mention one other possible side effect.

DP # 3: What's that?

DP # 2: Well, Sir, it could also cause hot dog head.

DP # 3: Well, think of a more clinical name for that, make it a condition and get to work on a new drug for it first thing in the morning.

DP # 2: Consider it done, Sir.

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5140 - Release Date: 07/18/12

July 19, 2012

Thanks â€“ I will go ahead and contact them.Â We had been using Christus St. (in Webster), but they admitted that they are at a plateau and donâ€™t know what to do next.Â We said we were interested in still looking for something, and they are going to let us know if they hear of anything from other parents, but in the meantime, weâ€™re looking for other things.Â Weâ€™re considering other OT/speech options, but he also gets some at school, and so he wonâ€™t be going without â€“ just with a little less. From: Texas-Autism-Advocacy [mailto:Texas-Autism-Advocacy ] On Behalf Of Lori and Weldon GliddenSent: Thursday, July 19, 2012 1:39 PMTo: Texas-Autism-Advocacy Subject: RE: Medications - Intuniv We have a music therapist that works out of Scroggins Therapy - I believe they are in Alvin. You might check with some of the area school districts to see if they have a music therapist because they often will take on clients out side of the school district. You may also want to check was other therapy centers like Children Therapy Center and ask them if they know of any in this area. You might even consider changing OT's - sometimes a new therapist will take a different approach.Subject: Re: Medications - IntunivTo: Texas-Autism-Advocacy Date: Thursday, July 19, 2012, 12:25 AM During the marketing phase of a new vaccine the various players sit around in a room: Drug pusher # one: Well, we expect this vaccine to work approximately 37 percent of the time. DP #2: Yeah, but we won't tell patients that. They will think it works all the time and it will give them a sense of protection. Most of the 63% it doesn't work on weren't going to get the illness anyway, but they will think it is because they took the vaccine. It's a win-win for us. DP # 3: What are the side effects? DP # 1: It could cause anaphylaxis, seizure disorder, ADD, ADHD, autism, restless leg syndrome, SIDS, and possible death in adults, as well. DP #2: Well we can't do anything about the deaths. The government might pay them out through VAERS. Either way, we're immune from litigation. It's a win-win for us. DP #3: For the anaphylaxis, we would increase sales of Epipens. For the seizures we could get several on Depakote or Tegretol. For those who get ADD, ADHD, or autism; we can increase sales of Ritalin, Straterra, and Intuniv. The latter two were designed specifically for these conditions which we knew would be caused by vaccines. DP #1: And the SIDS most don't even think is related to anything at all. We could just keep the public believing that things like SIDS and autism just happen out of the blue. DP#3: Well, we've given plenty to our guys in Washington to keep saying its genetic. SIDS just happens for no reason. I think the public can be expected to continue to believe that. But that's the side effect that bothers me. We can't generate any more profit from dead children. DP # 1: I think the rates of that will be minimal, and the profit margin expected from the direct sale of the vaccine added to the profit margin of the subsequent drugs that will be needed will more than make up for that. DP # 2: What's the net profit annually expected off this vaccine? DP # 1: One billion annually if we can get it mandated. DP# 3: Which politicians do we have to fund this year to get this to happen? DP # 2: I think we all know which ones. DP# 3: What will be the residual net profit from the subsequent meds needed to to control the fall out? DP# 1: I think we can respect a substantial rise in sales of seizure and ADHD meds. DP # 3: I think the autism will also largely increase the sales of psychotropics. DP #2: Certainly! That is really going to be a boon. DP # 1: What's the down side? DP # 3: I'm sure there will be more parents saying that the vaccine caused autism. (laughter among the group) DP # 2: Yeah, but we are sponsoring " Grey's Anatomy, " Private Practice, " and any other doctor shows we can sponsor. We'll be sure to get more propaganda into the dialogue. DP #1: Yeah, that one in PP about those parents being " wackos " was great! (laughter) DP # 3: I liked the one where on House, Dr, House tells the mom if she doesn't vaccinate then she should just go out and buy a coffin! DP # 2: So we're good on making autism parents look crazy on TV? DP # 1: Yeah, we're good on that. DP# 3: So now all we need are the commercials to make people afraid, right? Others: yep. DP # 3: So this vaccine will make us a billion annually and drastically increase sales of Depakote, Epipens, Intuniv, Straterra, and several psychotorpic meds. We are immune from litigation for damages ....Life is good. DP # 2: OOps, I forgot to mention one other possible side effect. DP # 3: What's that? DP # 2: Well, Sir, it could also cause hot dog head. DP # 3: Well, think of a more clinical name for that, make it a condition and get to work on a new drug for it first thing in the morning. DP # 2: Consider it done, Sir. No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5140 - Release Date: 07/18/12 No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5140 - Release Date: 07/18/12No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5141 - Release Date: 07/19/12No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5141 - Release Date: 07/19/12

July 19, 2012

The Children's Therapy Center is really good and they are great with anyone on the spectrum. When we were there they had OT and Speech and they communicated with each other - often working together. We were with them for many years, like 12 years for OT with great results.

Subject: Re: Medications - IntunivTo: Texas-Autism-Advocacy Date: Thursday, July 19, 2012, 12:25 AM

During the marketing phase of a new vaccine the various players sit around in a room:

Drug pusher # one: Well, we expect this vaccine to work approximately 37 percent of the time.

DP #2: Yeah, but we won't tell patients that. They will think it works all the time and it will give them a sense of protection. Most of the 63% it doesn't work on weren't going to get the illness anyway, but they will think it is because they took the vaccine. It's a win-win for us.

DP # 3: What are the side effects?

DP # 1: It could cause anaphylaxis, seizure disorder, ADD, ADHD, autism, restless leg syndrome, SIDS, and possible death in adults, as well.

DP #2: Well we can't do anything about the deaths. The government might pay them out through VAERS. Either way, we're immune from litigation. It's a win-win for us.

DP #3: For the anaphylaxis, we would increase sales of Epipens. For the seizures we could get several on Depakote or Tegretol. For those who get ADD, ADHD, or autism; we can increase sales of Ritalin, Straterra, and Intuniv. The latter two were designed specifically for these conditions which we knew would be caused by vaccines.

DP #1: And the SIDS most don't even think is related to anything at all. We could just keep the public believing that things like SIDS and autism just happen out of the blue.

DP#3: Well, we've given plenty to our guys in Washington to keep saying its genetic. SIDS just happens for no reason. I think the public can be expected to continue to believe that. But that's the side effect that bothers me. We can't generate any more profit from dead children.

DP # 1: I think the rates of that will be minimal, and the profit margin expected from the direct sale of the vaccine added to the profit margin of the subsequent drugs that will be needed will more than make up for that.

DP # 2: What's the net profit annually expected off this vaccine?

DP # 1: One billion annually if we can get it mandated.

DP# 3: Which politicians do we have to fund this year to get this to happen?

DP # 2: I think we all know which ones.

DP# 3: What will be the residual net profit from the subsequent meds needed to to control the fall out?

DP# 1: I think we can respect a substantial rise in sales of seizure and ADHD meds.

DP # 3: I think the autism will also largely increase the sales of psychotropics.

DP #2: Certainly! That is really going to be a boon.

DP # 1: What's the down side?

DP # 3: I'm sure there will be more parents saying that the vaccine caused autism.

(laughter among the group)

DP # 2: Yeah, but we are sponsoring "Grey's Anatomy," Private Practice," and any other doctor shows we can sponsor. We'll be sure to get more propaganda into the dialogue.

DP #1: Yeah, that one in PP about those parents being "wackos" was great!

(laughter)

DP # 3: I liked the one where on House, Dr, House tells the mom if she doesn't vaccinate then she should just go out and buy a coffin!

DP # 2: So we're good on making autism parents look crazy on TV?

DP # 1: Yeah, we're good on that.

DP# 3: So now all we need are the commercials to make people afraid, right?

Others: yep.

DP # 3: So this vaccine will make us a billion annually and drastically increase sales of Depakote, Epipens, Intuniv, Straterra, and several psychotorpic meds. We are immune from litigation for damages ....Life is good.

DP # 2: OOps, I forgot to mention one other possible side effect.

DP # 3: What's that?

DP # 2: Well, Sir, it could also cause hot dog head.

DP # 3: Well, think of a more clinical name for that, make it a condition and get to work on a new drug for it first thing in the morning.

DP # 2: Consider it done, Sir.

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5140 - Release Date: 07/18/12 No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5140 - Release Date: 07/18/12

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.2197 / Virus Database: 2437/5141 - Release Date: 07/19/12

July 19, 2012

Excellent....send copy to government officials.

July 19, 2012

Lori,I am so very sorry if I offended anyone, and it was not meant to disparage any parent who feels the need to use these medications. As I've said before, I certainly feel that sometimes they become necessary, but IMO they would never have been necessary if certain people had not harm and damaged these children in the first place.

It was not meant to disparage any parent, but I think it is a rather true depiction of the operation of the pharmaceutical industry. These companies are in business for one purpose, and that is to make MONEY. I think anyone thinking they are doing it for the good of humanity is fooling themselves.

Lori, I have been where you are, and I went through many horrendous days and horrible nights, so it was not flippant and the satire was not directed at you personally.I don't know what other interventions you've tried. I don't know if you tested your child for mercury poisoning, lead poisoning, protein tolerances, deranged copper/zinc. When I found this support group back in late 2001, Andy and Moria posted a lot, and I am grateful to them. the focus of this group then was geared toward biomedical/ natural interventions to move kids toward healing. Yes, we rejected pharmaceuticals and that is our choice just as yours is to see their benefit. I am simply extremely conservative in that regard. But as I said in my earlier post, you are the only one who can decide if that is what you feel your child needs. My satire - though some found it unfunny- is a fairly accurate depiction of how the pharmaceutical industry thinks and operates.

I won't apologize for believing that true healing comes from finding the source of the problem and fixing it biomedically. That is not to disparage or judge you or any other parent who chooses to go down that road. But I will say this: My son was in as bad a shape as a kid could possibly be. His episodes of transient catatonia were frightening. His tantrums were such that I could go NO WHERE unless I could get the errand done in thirty minutes. I've dealt with my share of being hit, kicked, punched, and bitten. I simply chose a different road, and it worked, and it is working in a more permanent way. but it was not easy and often quite difficult. We cam eraly to biomed and late to AC -- and if hindsight is twenty twenty, the one thing I would change is to do AC as soon as possible.

, for adrenals we started with ACE by Thorne, but quickly realized he needed far more, so we switched to Adrnergize by enzymatic. this in addition to using ALA only for chealtion, I believe, dramatically improved his " asthma. " It has casued me to beleive that for years I allowed my son to be treated for " asthma " when the real issue was adrenal fatigue. I wonder how many kids are strung out on steroids when the real problem is adrenal -- and how many mainstream docs are going to bother thinking that when they can generate far more profit by prescribing steroids? Steroids work for adrenal fatigue because they do feed the adrenals, but with those you have a much higher expense for the drugs, many more side effects such as extreme weight gain, which my son experienced on them, and the risk of developing diabetes and cataracts among other things. In addition, if your child is on steroids, of course you have to keep going to the doctor's for follow up visits to get your prescriptions renewed.

With Adrenergize you can usually find it at your local health food store and it is relatively inexpensive. ALA is the same -- though with ALA, you cannot have any amalgams and you must dose for a minimum of 64 hours every three hours. There was a study done and in the study, every child with asthma who received ALA rather than placebo had their asthma improve.

The FIRST thing we noticed after beginning the AC Protocol was the improvement in asthma and in our son's general immunological status. Also his anxiety was greatly reduced. There were roughly a minimum of fifty visits to a doctor in 2010 and at least thirteen ER visits. In 2011, we saw a doctor four times only. Two of those were well visits. We had no visits to the ER in 2011. I believe IMO that biomed following the AC Protocol can help the vast majority of these children in a natural way. It is long. It is tedious. It requires commitment and a sacrifice of sleep for a number of years.

Again, I apologize if a little satire directed at those who poisoned my child offended anyone. If you feel you need to use these drugs, by all means do so. but at least know the people you are relying on and know the side effects and know that these drugs do not not cure anything, but they may give you some respite or buy you some time to think about what to do next. AC doesn't work for every child. About 25 % do not respond to chelation. I wish there were an easy way to help these kids, but we all know it is all tough choices. But I do stand by my beliefs -- I believe these companies have done and do evil and though I concede as I did before that there are times when we find we must...for myself and for my family I see them as a last resort and not a first.

" " ...For your merchants were the great men of the earth, for by your pharmakeia all the nations were deceived. "

-Revelation 18:23

July 19, 2012

Haven -

I simply asked for information, not a judgement from anyone who does not know the journey we have been on with our son. If you did know me, you would know that I am one of the most conservative people you will ever meet when it comes to medical interventions. I am not ignorant when it comes to pharmaceuticals or the companies that sell them. What I do know is that after working with emergency medical services for many years, if it wasn't for the pharmaceutical companies producing certain meds, we would not have the meds we need to save lives on a daily basis. You also need to keep in mind that, as a very wise doctor once told me, all meds, whether pharmaceutical, biomedical or natural interventions, are all foreign substances because your own body did not produce them. We have transported numerous patients who have had serious reactions to biomedical and/or natural interventions. I believe

the companies marketing these substances are also in it to make money and many have no regulations.

I have seen others post funny messages and I don't have an issue with that - I do have a sense of humor. I just would prefer them not being posted as a response to a request for information.

I would appreciate closing the book on this discussion.

Lori

Subject: Re: Medications - IntunivTo: Texas-Autism-Advocacy Date: Thursday, July 19, 2012, 7:43 PM

Lori,

I am so very sorry if I offended anyone, and it was not meant to disparage any parent who feels the need to use these medications. As I've said before, I certainly feel that sometimes they become necessary, but IMO they would never have been necessary if certain people had not harm and damaged these children in the first place.

It was not meant to disparage any parent, but I think it is a rather true depiction of the operation of the pharmaceutical industry. These companies are in business for one purpose, and that is to make MONEY. I think anyone thinking they are doing it for the good of humanity is fooling themselves.

Lori, I have been where you are, and I went through many horrendous days and horrible nights, so it was not flippant and the satire was not directed at you personally.

I don't know what other interventions you've tried. I don't know if you tested your child for mercury poisoning, lead poisoning, protein tolerances, deranged copper/zinc. When I found this support group back in late 2001, Andy and Moria posted a lot, and I am grateful to them. the focus of this group then was geared toward biomedical/ natural interventions to move kids toward healing. Yes, we rejected pharmaceuticals and that is our choice just as yours is to see their benefit. I am simply extremely conservative in that regard. But as I said in my earlier post, you are the only one who can decide if that is what you feel your child needs. My satire - though some found it unfunny- is a fairly accurate depiction of how the pharmaceutical industry thinks and operates.

I won't apologize for believing that true healing comes from finding the source of the problem and fixing it biomedically. That is not to disparage or judge you or any other parent who chooses to go down that road. But I will say this: My son was in as bad a shape as a kid could possibly be. His episodes of transient catatonia were frightening. His tantrums were such that I could go NO WHERE unless I could get the errand done in thirty minutes. I've dealt with my share of being hit, kicked, punched, and bitten. I simply chose a different road, and it worked, and it is working in a more permanent way. but it was not easy and often quite difficult. We cam eraly to biomed and late to AC -- and if hindsight is twenty twenty, the one thing I would change is to do AC as soon as possible.

, for adrenals we started with ACE by Thorne, but quickly realized he needed far more, so we switched to Adrnergize by enzymatic. this in addition to using ALA only for chealtion, I believe, dramatically improved his "asthma." It has casued me to beleive that for years I allowed my son to be treated for "asthma" when the real issue was adrenal fatigue. I wonder how many kids are strung out on steroids when the real problem is adrenal -- and how many mainstream docs are going to bother thinking that when they can generate far more profit by prescribing steroids? Steroids work for adrenal fatigue because they do feed the adrenals, but with those you have a much higher expense for the drugs, many more side effects such as extreme weight gain, which my son experienced on them, and the risk of developing diabetes and cataracts among other things. In addition, if your child is on steroids, of course

you have to keep going to the doctor's for follow up visits to get your prescriptions renewed.

With Adrenergize you can usually find it at your local health food store and it is relatively inexpensive. ALA is the same -- though with ALA, you cannot have any amalgams and you must dose for a minimum of 64 hours every three hours. There was a study done and in the study, every child with asthma who received ALA rather than placebo had their asthma improve.

The FIRST thing we noticed after beginning the AC Protocol was the improvement in asthma and in our son's general immunological status. Also his anxiety was greatly reduced. There were roughly a minimum of fifty visits to a doctor in 2010 and at least thirteen ER visits. In 2011, we saw a doctor four times only. Two of those were well visits. We had no visits to the ER in 2011. I believe IMO that biomed following the AC Protocol can help the vast majority of these children in a natural way. It is long. It is tedious. It requires commitment and a sacrifice of sleep for a number of years.

Again, I apologize if a little satire directed at those who poisoned my child offended anyone. If you feel you need to use these drugs, by all means do so. but at least know the people you are relying on and know the side effects and know that these drugs do not not cure anything, but they may give you some respite or buy you some time to think about what to do next. AC doesn't work for every child. About 25 % do not respond to chelation. I wish there were an easy way to help these kids, but we all know it is all tough choices. But I do stand by my beliefs -- I believe these companies have done and do evil and though I concede as I did before that there are times when we find we must...for myself and for my family I see them as a last resort and not a first.

""...For your merchants were the great men of the earth, for by your pharmakeia all the nations were deceived."-Revelation 18:23

July 19, 2012

Sure, Lori. Let's do agree to that. It was never meant as a judgment against you and I am sorry you took it that way. Every journey is different, and I know yours has been and is still tough. No argument that insulin and a few other drugs save many lives. Let's move on. I hope you find the answers you are looking for and nothing but success with your child's progress. I recently lost my brother to a prescription med that was prescribed as a first choice when it should've been prescribed as a last resort and any settlement that comes will be cold comfort for his children. You are right that conservatism is best when making these decisions.

There is no doubt that any of us would take a drug today if we knew it could prevent us from dying tomorrow. It is all about risk vs. benefit.Take care.

July 20, 2012

I also saw very big improvements from chelation. We do diets and biomed and the only RX med we now use from time to time is clonidine. I tried every ADD/ADHD drug that came out. A doctor also had my 5 year old on 75 mg of Zoloft for several years. Which is the dose a 190 pound person would take. I am not against drugs but I will tell you our children for whatever reason do not react the same way to these very same drugs that work for others. I have a friend who does not have a child with Autism but he does have ADD and a speech disorder. He was trying several different ADD drugs and developed Tardive Dyskenisia. His doctor took him off the drugs but he still has ticks. He now has an appt with Dr. to treat the source of the issue of the ADD.

One of the most terrible side effects we saw was with Tenex. It was a very small starter dose. My son came at me with a knife and terrorized the dog. Remember that none of these drugs were developed to treat Autism and every drug has side effects. Taking another drug to stop the side effects is not medicine IMO and it's not healing. Find the source of the issue, fix that and although you'll still have Autism it might be more manageable and you won't have the long term side effects that taking chemicals can cause.

Excellent....send copy to government officials.

July 20, 2012

I would only add that this is a discussion group and if you post a question, you are going to get opinions that may differ from your own. That is the nature of an online discussion group.

Marilyn

July 20, 2012

Lori:

We have two on the spectrum. One we medicate, one we don't. The only tips I have are, whatever drug you opt for, start very low dose. Many kiddos on the spectrum have other medical issues (some which haven't been fully identified) and are very sensitive to meds. Some docs like to start meds like Intuniv out at the "recommended" range. See if they'll start at the minimum dose available. Our Tori was on Zoloft for two years at 0.8 ml. of a 250/5 ml. solution (very low dose) and that was all she needed. We now have her on 5 mg. of Focalin XR once a day. That wears off about 2:30 in the afternoon and we give her a cup of espresso at that time. The caffeine is sufficient stimulant at that time to keep her focused; and for her, the ability to have her brain focus on one thing as opposed to a million things helps her stay calm and anxiety

free.

Our neuro developmental pedi's theory is that you will know whether or not the drug is going to "work" for the child within a very short period of time (a few days to a week).

Byrne

To: Texas-Autism-Advocacy Sent: Thursday, July 19, 2012 9:52 PMSubject: Re: Medications - Intuniv