Guest guest Posted March 3, 1999 Report Share Posted March 3, 1999 > >It's great to be home and looking forward to receiving posts from WACMA >e-mail...are things really slow, no one posting or what? I'm sending this >through also as a test so I can make sure I'm receiving mail. > >To any newcomers that have children with ACM, please feel free to write me >any time. > > >Thanks for listening, >Suzanne L. >(Danny Boy's Mom) 4 yrs. old >ACM 1, SM >5 months post-op, Children's Hospital, Boston Hi Suzanne, Welcome home! So happy to hear that Danny is doing so well :-} As I was reading your post I was thinking that an email from you to might have a lot of bearing when they go to court simply, because Danny is near the same age and has had the surgery and is apparently doing GREAT! That is such wonderful news!!! Well anyway, I thought I would mention it. hugs, Judy marie > > > > > > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 Whenever I have a problem that involves computers and software, I go to this chatroom at Talk City where all the computer nerds hang out and get good answers right away. Try that. It's easy to find. Kendra wrote: > > > Hi, > Sorry to bother you all. I have a question to ask eventhough it > doesn't have anything to do with this list. Can anyone tell me how to > use Microsoft Outlook? How would I use Microsoft Outlook with Juno? How > could I get my mail through my juno address through Microsoft Outlook > instead? Someone, please help me. I'm so stumped! Thanks. > > Thanks, > Kendra > ___________________________________________________________________ > You don't need to buy Internet access to use free Internet e-mail. > Get completely free e-mail from Juno at http://www.juno.com/getjuno.html > or call Juno at (800) 654-JUNO [654-5866] > > ------------------------------------------------------------------------ > Is ONElist important to you? Has it changed your life? > http://www.onelist.com > Come visit our new web site and share with us your stories Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 Okay thanks. Kendra On Fri, 12 Mar 1999 20:30:28 -0600 Holman writes: > > >Whenever I have a problem that involves computers and software, I go >to this >chatroom at Talk City where all the computer nerds hang out and get >good >answers right away. Try that. It's easy to find. > > >Kendra wrote: > >> >> >> Hi, >> Sorry to bother you all. I have a question to ask eventhough >it >> doesn't have anything to do with this list. Can anyone tell me how >to >> use Microsoft Outlook? How would I use Microsoft Outlook with Juno? > How >> could I get my mail through my juno address through Microsoft >Outlook >> instead? Someone, please help me. I'm so stumped! Thanks. >> >> Thanks, >> Kendra >> ___________________________________________________________________ >> You don't need to buy Internet access to use free Internet e-mail. >> Get completely free e-mail from Juno at >http://www.juno.com/getjuno.html >> or call Juno at (800) 654-JUNO [654-5866] >> >> >------------------------------------------------------------------------ >> Is ONElist important to you? Has it changed your life? >> http://www.onelist.com >> Come visit our new web site and share with us your stories > > >------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 > > > >This is the first flame exchange I have ever seen on this list. Maybe it does >need some moderating - to control flaming! =0) I hope it doesn't get to be like >the Lehigh group -> " The Diabetes E-mail List from Hell " ------ That didn't come anywhere near to a flame. Rosie Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 My idea in having this list was to help others with diabetes and be a support for each other. I haven't seen anything that was to far off base other than the request for computer aide. If someone can't use their computer than they can't get the support and information they need. Was there another message I missed that was off the topic of diabetes??? I really watch the list and really haven't seen anything I felt was that much off base. I'm a mother hen type and have been on quite a few lists where " flaming " was almost a weekly occurance. I don't want that on this list. If there is a problem write me off list. -moderator--petra@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 Is this list moderated? The number of postings is becoming very large for the content involved. Replies to a specific person should NOT be posted to the entire list. And questions NOT concerning DIABETES belong elsewhere!! Please respect the list members time by posting general info regarding diabetes on this list, anything else or private stuff TAKE IT ELSEWHERE! ---------- > > To: diabetesonelist > Subject: Re: Hello > Date: Friday, March 12, 1999 10:20 PM > > > > Okay thanks. > > Kendra > > On Fri, 12 Mar 1999 20:30:28 -0600 Holman > writes: > > > > > >Whenever I have a problem that involves computers and software, I go > >to this > >chatroom at Talk City where all the computer nerds hang out and get > >good > >answers right away. Try that. It's easy to find. > > > > > >Kendra wrote: > > > >> > >> > >> Hi, > >> Sorry to bother you all. I have a question to ask eventhough > >it > >> doesn't have anything to do with this list. Can anyone tell me how > >to > >> use Microsoft Outlook? How would I use Microsoft Outlook with Juno? > > How > >> could I get my mail through my juno address through Microsoft > >Outlook > >> instead? Someone, please help me. I'm so stumped! Thanks. > >> > >> Thanks, > >> Kendra > >> ___________________________________________________________________ > >> You don't need to buy Internet access to use free Internet e-mail. > >> Get completely free e-mail from Juno at > >http://www.juno.com/getjuno.html > >> or call Juno at (800) 654-JUNO [654-5866] > >> > >> > >------------------------------------------------------------------------ > >> Is ONElist important to you? Has it changed your life? > >> http://www.onelist.com > >> Come visit our new web site and share with us your stories > > > > > >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 Hmm, sounds like it's being moderated now! Re: Hello >> Date: Friday, March 12, 1999 10:20 PM >> >> >> >> Okay thanks. >> >> Kendra >> >> On Fri, 12 Mar 1999 20:30:28 -0600 Holman >> writes: >> > >> > >> >Whenever I have a problem that involves computers and software, I go >> >to this >> >chatroom at Talk City where all the computer nerds hang out and get >> >good >> >answers right away. Try that. It's easy to find. >> > >> > >> >Kendra wrote: >> > >> >> >> >> >> >> Hi, >> >> Sorry to bother you all. I have a question to ask eventhough >> >it >> >> doesn't have anything to do with this list. Can anyone tell me how >> >to >> >> use Microsoft Outlook? How would I use Microsoft Outlook with Juno? >> > How >> >> could I get my mail through my juno address through Microsoft >> >Outlook >> >> instead? Someone, please help me. I'm so stumped! Thanks. >> >> >> >> Thanks, >> >> Kendra >> >> ___________________________________________________________________ >> >> You don't need to buy Internet access to use free Internet e-mail. >> >> Get completely free e-mail from Juno at >> >http://www.juno.com/getjuno.html >> >> or call Juno at (800) 654-JUNO [654-5866] >> >> >> >> >> >------------------------------------------------------------------------ >> >> Is ONElist important to you? Has it changed your life? >> >> http://www.onelist.com >> >> Come visit our new web site and share with us your stories >> > >> > >> >------------------------------------------------------------------------ >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 Yes if he doesn't like it here he could leave no one else was complaining that is what I like about this list. Ann S Re: Hello >>> Date: Friday, March 12, 1999 10:20 PM >>> >>> >>> >>> Okay thanks. >>> >>> Kendra >>> >>> On Fri, 12 Mar 1999 20:30:28 -0600 Holman >>> writes: >>> > >>> > >>> >Whenever I have a problem that involves computers and software, I go >>> >to this >>> >chatroom at Talk City where all the computer nerds hang out and get >>> >good >>> >answers right away. Try that. It's easy to find. >>> > >>> > >>> >Kendra wrote: >>> > >>> >> >>> >> >>> >> Hi, >>> >> Sorry to bother you all. I have a question to ask eventhough >>> >it >>> >> doesn't have anything to do with this list. Can anyone tell me how >>> >to >>> >> use Microsoft Outlook? How would I use Microsoft Outlook with Juno? >>> > How >>> >> could I get my mail through my juno address through Microsoft >>> >Outlook >>> >> instead? Someone, please help me. I'm so stumped! Thanks. >>> >> >>> >> Thanks, >>> >> Kendra >>> >> ___________________________________________________________________ >>> >> You don't need to buy Internet access to use free Internet e-mail. >>> >> Get completely free e-mail from Juno at >>> >http://www.juno.com/getjuno.html >>> >> or call Juno at (800) 654-JUNO [654-5866] >>> >> >>> >> >>> >------------------------------------------------------------------------ >>> >> Is ONElist important to you? Has it changed your life? >>> >> http://www.onelist.com >>> >> Come visit our new web site and share with us your stories >>> > >>> > >>> >------------------------------------------------------------------------ >>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 This is the first flame exchange I have ever seen on this list. Maybe it does need some moderating - to control flaming! =0) I hope it doesn't get to be like the Lehigh group -> " The Diabetes E-mail List from Hell " ------ Ann Stagner wrote: > > > Yes if he doesn't like it here he could leave no one else was complaining > that is what I like about this list. > > Ann S > Re: Hello > > > > > >> > >> > >>Is this list moderated? The number of postings is becoming very large for > >>the content involved. Replies to a specific person should NOT be posted to > >>the entire list. And questions NOT concerning DIABETES belong elsewhere!! > >>Please respect the list members time by posting general info regarding > >>diabetes on this list, anything else or private stuff TAKE IT ELSEWHERE! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 Ms Rosie wrote: That didn't come anywhere near to a flame. But that is all a matter of definitions and/or degrees. It still was a rather unhappy exchange by the standards I have seen here so far. I hope we can lighten up is all I would suggest. I also don't want to give the impression that I think it is all that serious. That is why I included the little graphic smiley face =0). This is supposed to indicate levity of the part of the writer. =0) Everything has been on the up and up until now =0) I hope it stays that way =0) Peace, Love, Have a Nice Day, and all that ind of good stuff, now. =0) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 I love the list the way it is!!!! You all have been terriffic and I am learning so much and being able to share some of your personal challenges and triumphs that is what makes it so great!!!! Lori Re: Hello >From: petra@... > >My idea in having this list was to help others with diabetes and be a >support for each other. I haven't seen anything that was to far off >base other than the request for computer aide. If someone can't use >their computer than they can't get the support and information they >need. >Was there another message I missed that was off the topic of diabetes??? >I really watch the list and really haven't seen anything I felt was that >much off base. I'm a mother hen type and have been on quite a few lists >where " flaming " was almost a weekly occurance. I don't want that on >this list. >If there is a problem write me off list. >-moderator--petra@... > >------------------------------------------------------------------------ >We are proud as punch of our new web site! >http://www.onelist.com >Onelist: The leading provider of free email community services > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 1999 Report Share Posted March 14, 1999 Excuse me, but I take exception to your comments. ANY diabetes information is helpful. Diabetes related replies should be on this board because there may be more people out there who have the same question. We are all here to learn from each other. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 1999 Report Share Posted August 5, 1999 Suz, What prompted this doctor to tell you you were " borderline " ? This is a terrible misnomer. You are diabetic or you aren't. Were you pregnant at the time? Gestational diabetes is a whole different thing. Other than during pregnancy, either your body can handle sugars or it can't... if it can't you are diabetic. Have you had your sugar levels checked again? You can be diabetic for years and have no symptoms. If you catch it early and control it you have much better luck at controlling problems later on. Meenie Re: Re: Hello > > >Hi , > >Yep, that's me, Newborns In Need Suz <g>. {{{{{{}}}}}}I >didn't know you were diabetic. My dh () is diabetic, and the >doctors told me when I was young that I'm borderline. Fortunately >it has gone no further than that at this point. I will keep you >in my prayers regarding the pelvic mass and these other tests. >Please keep me posted. > >Your sis in Christ, >Suz=) > > " N. Duff " wrote: >> >> >> >> suz - are you newborns in need suz? I am diabetic >> also? (((((((((suz))))))))))) -- went to an endo yesterday and loved him >> - i am diabetic and he is going to help me - he was terrific and a real >> answer to prayer - has put me on prandin and another med - have an appt >> with a dietitian and am having all sorts of blood tests done - he was smart >> and blunt and made me laugh - at the same time telling me that i am >> diabetic, he will help me control it - will never not be one - i have had >> so many doubts about it - now i am clear -- >> >> suz, i think i know you - please write - hi to everyone else >> today i see the gyn about my pelvic mass --- >> nancy > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2005 Report Share Posted December 9, 2005 Hi, Maile. I've never heard of Cortef. I will ask my mother's doctor about it because I want to get my mother off that horrible Prednisone. From what I understand, it works because it inhibits many metabolic functions preventing things like inflammation, but it also inhibits necessary functions leading to all the terrible side effects. Prednisone does not cure anything - a short-term fix and long-term nightmare. I apologize that this post is more of a rant than a contribution. Sorry about that. It's very frustrating for me. > > Hi, everyone > Was just told I have " extensive " PF, because of > Internal Scleroderma. My doctor prescribed Cortef > because I refuse to take Prednisone (Was on Pred. for > many years due to Polymyositis and it was terrible.) > Has anyone else taken Cortef? What have been your > results? > > I also take DHEA and MSM and plan to increase dosages. > > thanx, > -Maile > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2005 Report Share Posted December 9, 2005 It IS frustrating. Personally, in the end, I felt the prednisone was making me physically weaker (and muscle weakness is one of the many side effects!). --- damandy123 wrote: > Hi, Maile. I've never heard of Cortef. I will ask my > mother's doctor > about it because I want to get my mother off that > horrible > Prednisone. From what I understand, it works because > it inhibits > many metabolic functions preventing things like > inflammation, but it > also inhibits necessary functions leading to all the > terrible side > effects. Prednisone does not cure anything - a > short-term fix and > long-term nightmare. I apologize that this post is > more of a rant > than a contribution. Sorry about that. It's very > frustrating for me. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2005 Report Share Posted December 10, 2005 I have mixed connective tissue disease and PF with symptoms mimicking scleroderma and lupus and polymyositis. Have been taking prednisone for 4 years. Now taking cellcept for past 2years. I don't like taking so many drugs but right now I don't think I have a choice. I take meds for gastric reflux and esophagus damage too as well as raynaud's. I did have to adjust dosage on reglan due to side effects. Was taken twice the recommended dosage to increase effectiveness but could not tolerate. Never have taken cortef, dhea or msm (unless they are abbreviations I'm not familiar with). Have you been considered for lung transplant? Hello Hi, everyoneWas just told I have "extensive" PF, because ofInternal Scleroderma. My doctor prescribed Cortefbecause I refuse to take Prednisone (Was on Pred. formany years due to Polymyositis and it was terrible.)Has anyone else taken Cortef? What have been yourresults?I also take DHEA and MSM and plan to increase dosages.thanx,-Maile__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2005 Report Share Posted December 10, 2005 Maile, I'm brand new to all this, and haven't taken anything. Was just recently diagnosed with IPF, and I'm still trying to plot a course of action. Godspeed and good luck. All my best,.....Arlen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Arlen, Thanx for the encouragement. Let me know what plan you decide upon, if you don't mind. I have more tests to do so I don't know what's going on yet either. regards, -Maile --- sarleno@... wrote: > Maile, > I'm brand new to all this, and haven't taken > anything. Was just recently > diagnosed with IPF, and I'm still trying to plot a > course of action. Godspeed > and good luck. > > All my best,.....Arlen > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2005 Report Share Posted December 12, 2005 Hello all , my result of my biopys was oct. nonspecic interstitial pulmonary fibrosis..............which the nonspsecific cracks me up I got this from work m.s.u. hardsurface grounds department . I had been sick for three and a half years, I kept telling my doc. something is wrong I never smoked a runner, swimmer, but no one would listen 5 docters later I go to U of M for a second appinion and here is where I am at now I started predizone fri after thanksgiving it sucks after researching the desease and understanding more of what is not happening or is happening and knowing the help predizone is giving me really is nothing compared to the chances I might have holistically or with other drusg that are not steriods. I have been weening myself off of predizone so by the 29 of dec when I go back to see the doc at Uof M they will probably freak! they forget its our body we hire them for the education then we make our finale decision, anyway I brought some productss at the health food store this weekend have already started to boost my immmune system and as soon as the predizone is out I will start some of the other natural produts that were shared on this website oh yeah I 'm 46 two childern 18 , 20 one going into marien biology and enviremental science, and the other one animation single parent so Im in for the fight of my quality of life so I can enjoy being an adult parent maybe a gramma sorry for rambling and as I have spent most of my life hands on work mywriting skills trully lack again I apoligize bye doriskoa girl wrote: Hi, everyoneWas just told I have "extensive" PF, because ofInternal Scleroderma. My doctor prescribed Cortefbecause I refuse to take Prednisone (Was on Pred. formany years due to Polymyositis and it was terrible.)Has anyone else taken Cortef? What have been yourresults?I also take DHEA and MSM and plan to increase dosages.thanx,-Maile__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Leanne, Don't apologize for the rambling. My wife says I started that way before I came down with IPF. Yes, It's very hard to say "Goodbye" to 2 of our group, and it comes as a reality check to me, and I assume to others. My heart goes out to their families. Arlen IPF 2/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Dear everyone, I sit here with tears welling up in my eyes. God bless you all. I think it's safe to say that we are all feeling the sadness of two of our own passing. It's tough. We have to resolve to FIGHT this disease. Thank you all for the kindness and support that I know that I've felt personally. Thanks also for sharing how you are feeling. I know I put on the brave face too but inside I wonder is it getting closer? How much time to I have? Am I being foolish with the time I have? I want to see my babies have babies. Grandma has a nice ring to it. Thank God we have God and know that there is a reason somehow, some way for all of this. He puts people in your life for a reason, and I'm thankful. I think I'm kind of rambling and I'm sorry. I just feel this deep sadness. Thanks for being there and letting me share. Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Made any new flowers, Rita? Glad to see your post. Joyce >> Hi all: Welcome back, Leanne. I wondered what had happened to all the > chats that go on -- I didn't find any here, and thought perhaps yahoo > was having a problem. I didn't get Monday's digest until this morning! > I think I'm figuring out how to work my way through this group site. At > least I hope so. I'm keeping good thoughts for everyone.> Rita IPF -- 10/05 COPD 7/01> Quote Link to comment Share on other sites More sharing options...
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