Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Peggy- Thank you for your reply about the prednisone. I too have gained weight and my doctor wanted me to lose weight in order to qualify for a transplant. It's a " catch 22 " !!!! After I wrote to you I found an article on the effects of it. This is what it said " When presecribed in large doses (more than 10 milligrams a day) prednisone almost always leads to complications such as diabetes, cataracts, brittle bones, facial puffiness, hairiness, personality changes, weakness, loss of muscle tissue, fluid retention, peptic ulcer, hypertension, acne, glaucoma and susceptibility to infection. All of this sounds worse than the condition its supposed to be helping. You were smart to go off of it and I'm going to try to get my doctor to support me in going off of it too. Thanks a lot. Ronnie --- Breathe-Support wrote: > There are 12 messages in this issue. > > Topics in this digest: > > 1. Re: I am sorry > From: dianequinlan@... > 2. Re: Isabel Welcome > From: dianequinlan@... > 3. Hobbies > From: dianequinlan@... > 4. Support > From: " Leanne " > > 5. Re: Hobbies > > 6. Re: Digest Number 120 > > 7. Hi Barb > > 8. Re: Re: Oxygen > From: Leanne Storch > > 9. Re: Profile > From: Leanne Storch > > 10. Re: Digest Number 120 > > 11. Hi Barb > > 12. Re: 'In My Opinion' and 'Rules' and Fair > Dealing with the Docs > From: " happyyellowroses " > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Sun, 19 Mar 2006 18:00:52 +0000 > From: dianequinlan@... > Subject: Re: I am sorry > > Ann - you do not need to apologise for > anything! We are here to listen....hang in there, > honey! > > -- > Diane Quinlan > dianequinlan@... > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 2 > Date: Sun, 19 Mar 2006 18:09:22 +0000 > From: dianequinlan@... > Subject: Re: Isabel Welcome > > Ginger - please don't feel like you are alone...I > can't be there physically to hug you or make you > laugh, but all you have to do is turn the computer > on and let us know how you are doing. I am blessed > to have a husband and family...but sometimes I still > feel a little lonely cause I can't always explain to > them how I feel. I tend to keep some things to > myself and not talk about them because they get > upset and worry. Or, I see pity in their eyes. I > don't want that. So, I try to just say " I'm OK " and > keep going. But, here I feel as tho I can let my > guard down. > So, Ginger...keep up your fighting spirit and keep > talking to us... > Hugs, Diane > > -- > Diane Quinlan > dianequinlan@... > > > I just get so tired of this machine always being a > part of my life. And so much medication, questions, > debates with insurance companys. I often feel so > alone here, as I know of no one with this disease in > my area. And loosing my husband, my life partner, my > #1 encourager and supporter, my soul mate in July > just seemed to add to my delimma. > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 3 > Date: Sun, 19 Mar 2006 18:12:21 +0000 > From: dianequinlan@... > Subject: Hobbies > > Do any of you have hobbies or ways to spend your > time? Things that you do where you can mentally > escape for awhile? > I do miniatures....dollhouses....I love doing crafts > and have made some things with polymer clay...I also > make birthday and anniversary cards for family and > friends. When I'm working on something, I actually > forget that I'm on oxygen for awhile....it really > helps me cope. How about you? > > -- > Diane Quinlan > dianequinlan@... > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 4 > Date: Sat, 18 Mar 2006 15:25:38 -0000 > > Subject: Support > > Ginger, > > You put it very well. > > My first reaction when reading the post was of > shock. I realized > that he was responding to Ann. Then, I thought > it was tongue in > cheek. (with a side of serious) > > Honestly, I think Owen opened up a floodgate and > maybe that's not a > bad thing. This is a support group and maybe he > needs our support > more now than ever. It's a situation that we all > are facing > possibly sooner rather than later. Truthfully, it's > a situation > facing all living things. We all cope in our own > way. Who's to say > it's right or wrong. Peggy is certainly entitled to > her feelings > and thoughts as Owen is as Ginger and Ann are. > > > My goal was to have an open forum where people can > talk about what's > on their mind in a safe environment. Maybe it's > kind of like a > family where we can " yell " at one another and be > gentle with one > another and totally misunderstand one another. This > is brand new > for a lot of us and we are learning as we go. > > Personally, I have found the exchanges going on > between everyone > totally awesome. I learn so much from each one of > you and I > appreciate your honesty and caring. How do we limit > people? > > Leanne > Moderator > > > > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 5 > Date: Sun, 19 Mar 2006 14:02:07 -0500 > > Subject: Re: Hobbies > > I'm still working on my house. We had an addition > put on before I found out that I have IPF and the > addition needed to have the floors laid and trim > around the windows as well as patching holes in old > plaster walls. I told my Dr. that I needed to finish > that work so he said OK but just keep a good mask on > to keep from taking in saw dust and plaster dust. So > I am doing that. > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Barb It's true weight makes a big difference. My TX Dr. wants me about 170 to 180 I am 5'3". I have lost my appetite and it doesn't seem like it's helping me lose. I am now trying to walk a little every day. My front porch is 75 feet long and I try for three trips up and back an few times a day. This stuff is still a pain.. Good luck. God Bless. Peggy Wow!...thats great Peggy! I wish I could walk 75ft just one time a day. I use to could. Thats how I realized my down hill slide. When I could not walk very far. At one time I could walk from my bedroom W/O the tube....through the house, down the steps into my suburban and then hit the portable tube, calmly. Today I walk from my bedroom WITH the tube, through the house, get to the front door and am reaching for the portable tube before I take off the home unit tube. Times have sure changed. Now, ask me to ride that new scooter across your front porch, Peggy and I'll do it!. <smiles> kiss kiss ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Ronnie, Just be sure to come off slowly. and know the side effects last a long time. I have been off for about 6 or 8 weeks and am still suffering. So be careful. God Bless you and help you through this rough time. Peggy on 3/20/06 4:59 PM, Jerome Tuss at runningred3@... wrote: Peggy- Thank you for your reply about the prednisone. I too have gained weight and my doctor wanted me to lose weight in order to qualify for a transplant. It's a " catch 22 " !!!! After I wrote to you I found an article on the effects of it. This is what it said " When presecribed in large doses (more than 10 milligrams a day) prednisone almost always leads to complications such as diabetes, cataracts, brittle bones, facial puffiness, hairiness, personality changes, weakness, loss of muscle tissue, fluid retention, peptic ulcer, hypertension, acne, glaucoma and susceptibility to infection. All of this sounds worse than the condition its supposed to be helping. You were smart to go off of it and I'm going to try to get my doctor to support me in going off of it too. Thanks a lot. Ronnie --- Breathe-Support wrote: > There are 12 messages in this issue. > > Topics in this digest: > > 1. Re: I am sorry > From: dianequinlan@... > 2. Re: Isabel Welcome > From: dianequinlan@... > 3. Hobbies > From: dianequinlan@... > 4. Support > From: " Leanne " > > 5. Re: Hobbies > > 6. Re: Digest Number 120 > > 7. Hi Barb > > 8. Re: Re: Oxygen > From: Leanne Storch > > 9. Re: Profile > From: Leanne Storch > > 10. Re: Digest Number 120 > > 11. Hi Barb > > 12. Re: 'In My Opinion' and 'Rules' and Fair > Dealing with the Docs > From: " happyyellowroses " > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Sun, 19 Mar 2006 18:00:52 +0000 > From: dianequinlan@... > Subject: Re: I am sorry > > Ann - you do not need to apologise for > anything! We are here to listen....hang in there, > honey! > > -- > Diane Quinlan > dianequinlan@... > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 2 > Date: Sun, 19 Mar 2006 18:09:22 +0000 > From: dianequinlan@... > Subject: Re: Isabel Welcome > > Ginger - please don't feel like you are alone...I > can't be there physically to hug you or make you > laugh, but all you have to do is turn the computer > on and let us know how you are doing. I am blessed > to have a husband and family...but sometimes I still > feel a little lonely cause I can't always explain to > them how I feel. I tend to keep some things to > myself and not talk about them because they get > upset and worry. Or, I see pity in their eyes. I > don't want that. So, I try to just say " I'm OK " and > keep going. But, here I feel as tho I can let my > guard down. > So, Ginger...keep up your fighting spirit and keep > talking to us... > Hugs, Diane > > -- > Diane Quinlan > dianequinlan@... > > > I just get so tired of this machine always being a > part of my life. And so much medication, questions, > debates with insurance companys. I often feel so > alone here, as I know of no one with this disease in > my area. And loosing my husband, my life partner, my > #1 encourager and supporter, my soul mate in July > just seemed to add to my delimma. > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 3 > Date: Sun, 19 Mar 2006 18:12:21 +0000 > From: dianequinlan@... > Subject: Hobbies > > Do any of you have hobbies or ways to spend your > time? Things that you do where you can mentally > escape for awhile? > I do miniatures....dollhouses....I love doing crafts > and have made some things with polymer clay...I also > make birthday and anniversary cards for family and > friends. When I'm working on something, I actually > forget that I'm on oxygen for awhile....it really > helps me cope. How about you? > > -- > Diane Quinlan > dianequinlan@... > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 4 > Date: Sat, 18 Mar 2006 15:25:38 -0000 > > Subject: Support > > Ginger, > > You put it very well. > > My first reaction when reading the post was of > shock. I realized > that he was responding to Ann. Then, I thought > it was tongue in > cheek. (with a side of serious) > > Honestly, I think Owen opened up a floodgate and > maybe that's not a > bad thing. This is a support group and maybe he > needs our support > more now than ever. It's a situation that we all > are facing > possibly sooner rather than later. Truthfully, it's > a situation > facing all living things. We all cope in our own > way. Who's to say > it's right or wrong. Peggy is certainly entitled to > her feelings > and thoughts as Owen is as Ginger and Ann are. > > > My goal was to have an open forum where people can > talk about what's > on their mind in a safe environment. Maybe it's > kind of like a > family where we can " yell " at one another and be > gentle with one > another and totally misunderstand one another. This > is brand new > for a lot of us and we are learning as we go. > > Personally, I have found the exchanges going on > between everyone > totally awesome. I learn so much from each one of > you and I > appreciate your honesty and caring. How do we limit > people? > > Leanne > Moderator > > > > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 5 > Date: Sun, 19 Mar 2006 14:02:07 -0500 > > Subject: Re: Hobbies > > I'm still working on my house. We had an addition > put on before I found out that I have IPF and the > addition needed to have the floors laid and trim > around the windows as well as patching holes in old > plaster walls. I told my Dr. that I needed to finish > that work so he said OK but just keep a good mask on > to keep from taking in saw dust and plaster dust. So > I am doing that. > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Ronnie: Please respond to this. It is very important. What is this about being a certain weight in order to qualify for a lung transplant. I have just been placed on the list and I weigh 295 lbs. My doctor never mentioned anything about weight. I need to know so I can go on a diet right now. I also have diabetes which I take both insulin and pills for. Is this going to set me back also? Please answer. BarbPeggy wrote: Ronnie, Just be sure to come off slowly. and know the side effects last a long time. I have been off for about 6 or 8 weeks and am still suffering. So be careful.God Bless you and help you through this rough time. Peggyon 3/20/06 4:59 PM, Jerome Tuss at runningred3@... wrote: Peggy- Thank you for your reply about the prednisone.I too have gained weight and my doctor wanted me tolose weight in order to qualify for a transplant. It's a "catch 22"!!!! After I wrote to you I found anarticle on the effects of it. This is what it said"When presecribed in large doses (more than 10milligrams a day) prednisone almost always leads tocomplications such as diabetes, cataracts, brittlebones, facial puffiness, hairiness, personalitychanges, weakness, loss of muscle tissue, fluidretention, peptic ulcer, hypertension, acne, glaucomaand susceptibility to infection. All of this soundsworse than the condition its supposed to be helping. You were smart to go off of it and I'm going to try toget my doctor to support me in going off of it too. Thanks a lot. Ronnie--- Breathe-Support wrote:> There are 12 messages in this issue.> > Topics in this digest:> > 1. Re: I am sorry> 2. Re: Isabel Welcome> 3. Hobbies> 4. Support> > 5. Re: Hobbies> > 6. Re: Digest Number 120> > 7. Hi Barb> > 8. Re: Re: Oxygen> > 9. Re: Profile> > 10. Re: Digest Number 120> > 11. Hi Barb> From: Peggy > 12. Re: 'In My Opinion' and 'Rules' and Fair> Dealing with the Docs> > > >________________________________________________________________________>________________________________________________________________________> > Message: 1 > Date: Sun, 19 Mar 2006 18:00:52 +0000> Subject: Re: I am sorry> > Ann - you do not need to apologise for> anything! We are here to listen....hang in there,> honey!> > --> Diane Quinlan > dianequinlan@... > > [This message contained attachments]> > > >________________________________________________________________________>________________________________________________________________________> > Message: 2 > Date: Sun, 19 Mar 2006 18:09:22 +0000> Subject: Re: Isabel Welcome> > Ginger - please don't feel like you are alone...I> can't be there physically to hug you or make you> laugh, but all you have to do is turn the computer> on and let us know how you are doing. I am blessed> to have a husband and family...but sometimes I still> feel a little lonely cause I can't always explain to> them how I feel. I tend to keep some things to> myself and not talk about them because they get> upset and worry. Or, I see pity in their eyes. I> don't want that. So, I try to just say "I'm OK" and> keep going. But, here I feel as tho I can let my> guard down. > So, Ginger...keep up your fighting spirit and keep> talking to us...> Hugs, Diane > > --> Diane Quinlan > dianequinlan@... > > > I just get so tired of this machine always being a> part of my life. And so much medication, questions,> debates with insurance companys. I often feel so> alone here, as I know of no one with this disease in> my area. And loosing my husband, my life partner, my> #1 encourager and supporter, my soul mate in July> just seemed to add to my delimma. > > [This message contained attachments]> > > >________________________________________________________________________>________________________________________________________________________> > Message: 3 > Date: Sun, 19 Mar 2006 18:12:21 +0000> Subject: Hobbies> > Do any of you have hobbies or ways to spend your> time? Things that you do where you can mentally> escape for awhile?> I do miniatures....dollhouses....I love doing crafts> and have made some things with polymer clay...I also> make birthday and anniversary cards for family and> friends. When I'm working on something, I actually> forget that I'm on oxygen for awhile....it really> helps me cope. How about you?> > --> Diane Quinlan > dianequinlan@... > > [This message contained attachments]> > > >________________________________________________________________________>________________________________________________________________________> > Message: 4 > Date: Sat, 18 Mar 2006 15:25:38 -0000> > Subject: Support> > Ginger,> > You put it very well.> > My first reaction when reading the post was of> shock. I realized > that he was responding to Ann. Then, I thought> it was tongue in > cheek. (with a side of serious)> > Honestly, I think Owen opened up a floodgate and> maybe that's not a > bad thing. This is a support group and maybe he> needs our support > more now than ever. It's a situation that we all> are facing > possibly sooner rather than later. Truthfully, it's> a situation > facing all living things. We all cope in our own> way. Who's to say > it's right or wrong. Peggy is certainly entitled to> her feelings > and thoughts as Owen is as Ginger and Ann are. > > > My goal was to have an open forum where people can> talk about what's > on their mind in a safe environment. Maybe it's> kind of like a > family where we can "yell" at one another and be> gentle with one > another and totally misunderstand one another. This> is brand new > for a lot of us and we are learning as we go.> > Personally, I have found the exchanges going on> between everyone > totally awesome. I learn so much from each one of> you and I > appreciate your honesty and caring. How do we limit> people? > > Leanne> Moderator > > > > > > > > > > > >________________________________________________________________________>________________________________________________________________________> > Message: 5 > Date: Sun, 19 Mar 2006 14:02:07 -0500> > Subject: Re: Hobbies> > I'm still working on my house. We had an addition> put on before I found out that I have IPF and the> addition needed to have the floors laid and trim> around the windows as well as patching holes in old> plaster walls. I told my Dr. that I needed to finish> that work so he said OK but just keep a good mask on> to keep from taking in saw dust and plaster dust. So> I am doing that.> === message truncated ===__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 I was listed for tx 2+ yrs ago and I had to sign a paper saying they would not tx me if I weighed over 183. They go by you height. Jan --------- Re: Hobbies> > I'm still working on my house. We had an addition> put on before I found out that I have IPF and the> addition needed to have the floors laid and trim> around the windows as well as patching holes in old> plaster walls. I told my Dr. that I needed to finish> that work so he said OK but just keep a good mask on> to keep from taking in saw dust and plaster dust. So> I am doing that.> === message truncated ===__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Thanks for your input Jan. Makes me feel a little better about the weight thing. I only have at least 110 lbs to lose. Pray for me everyone, I am going to try. Barbjltitus@... wrote: I was listed for tx 2+ yrs ago and I had to sign a paper saying they would not tx me if I weighed over 183. They go by you height. Jan --------- Re: Hobbies> > I'm still working on my house. We had an addition> put on before I found out that I have IPF and the> addition needed to have the floors laid and trim> around the windows as well as patching holes in old> plaster walls. I told my Dr. that I needed to finish> that work so he said OK but just keep a good mask on> to keep from taking in saw dust and plaster dust. So> I am doing that.> === message truncated ===__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Leeann: Thank you for starting this group. It is great. I would have joined sooner, but I just bought this computer the other day so I could get on here with this group. I spoke to you on the phone when I was first diagnosed with IPF. I am the one that lives in Bronston, Kentucky. Again, thanks a lot. Barbjltitus@... wrote: I was listed for tx 2+ yrs ago and I had to sign a paper saying they would not tx me if I weighed over 183. They go by you height. Jan --------- Re: Hobbies> > I'm still working on my house. We had an addition> put on before I found out that I have IPF and the> addition needed to have the floors laid and trim> around the windows as well as patching holes in old> plaster walls. I told my Dr. that I needed to finish> that work so he said OK but just keep a good mask on> to keep from taking in saw dust and plaster dust. So> I am doing that.> === message truncated ===__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2006 Report Share Posted March 20, 2006 Barb It's true weight makes a big difference. My TX Dr. wants me about 170 to 180 I am 5'3 " . I have lost my appetite and it doesn't seem like it's helping me lose. I am now trying to walk a little every day. My front porch is 75 feet long and I try for three trips up and back an few times a day. This stuff is still a pain.. Good luck. God Bless. Peggy on 3/20/06 9:40 PM, Barbara Soice at babs594@... wrote: Ronnie: Please respond to this. It is very important. What is this about being a certain weight in order to qualify for a lung transplant. I have just been placed on the list and I weigh 295 lbs. My doctor never mentioned anything about weight. I need to know so I can go on a diet right now. I also have diabetes which I take both insulin and pills for. Is this going to set me back also? Please answer. Barb Peggy wrote: Ronnie, Just be sure to come off slowly. and know the side effects last a long time. I have been off for about 6 or 8 weeks and am still suffering. So be careful. God Bless you and help you through this rough time. Peggy on 3/20/06 4:59 PM, Jerome Tuss at runningred3@... wrote: Peggy- Thank you for your reply about the prednisone. I too have gained weight and my doctor wanted me to lose weight in order to qualify for a transplant. It's a " catch 22 " !!!! After I wrote to you I found an article on the effects of it. This is what it said " When presecribed in large doses (more than 10 milligrams a day) prednisone almost always leads to complications such as diabetes, cataracts, brittle bones, facial puffiness, hairiness, personality changes, weakness, loss of muscle tissue, fluid retention, peptic ulcer, hypertension, acne, glaucoma and susceptibility to infection. All of this sounds worse than the condition its supposed to be helping. You were smart to go off of it and I'm going to try to get my doctor to support me in going off of it too. Thanks a lot. Ronnie --- Breathe-Support wrote: > There are 12 messages in this issue. > > Topics in this digest: > > 1. Re: I am sorry > From: dianequinlan@... > 2. Re: Isabel Welcome > From: dianequinlan@... > 3. Hobbies > From: dianequinlan@... > 4. Support > From: " Leanne " > > 5. Re: Hobbies > > 6. Re: Digest Number 120 > > 7. Hi Barb > > 8. Re: Re: Oxygen > From: Leanne Storch > > 9. Re: Profile > From: Leanne Storch > > 10. Re: Digest Number 120 > > 11. Hi Barb > > 12. Re: 'In My Opinion' and 'Rules' and Fair > Dealing with the Docs > From: " happyyellowroses " > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Sun, 19 Mar 2006 18:00:52 +0000 > From: dianequinlan@... > Subject: Re: I am sorry > > Ann - you do not need to apologise for > anything! We are here to listen....hang in there, > honey! > > -- > Diane Quinlan > dianequinlan@... > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 2 > Date: Sun, 19 Mar 2006 18:09:22 +0000 > From: dianequinlan@... > Subject: Re: Isabel Welcome > > Ginger - please don't feel like you are alone...I > can't be there physically to hug you or make you > laugh, but all you have to do is turn the computer > on and let us know how you are doing. I am blessed > to have a husband and family...but sometimes I still > feel a little lonely cause I can't always explain to > them how I feel. I tend to keep some things to > myself and not talk about them because they get > upset and worry. Or, I see pity in their eyes. I > don't want that. So, I try to just say " I'm OK " and > keep going. But, here I feel as tho I can let my > guard down. > So, Ginger...keep up your fighting spirit and keep > talking to us... > Hugs, Diane > > -- > Diane Quinlan > dianequinlan@... > > > I just get so tired of this machine always being a > part of my life. And so much medication, questions, > debates with insurance companys. I often feel so > alone here, as I know of no one with this disease in > my area. And loosing my husband, my life partner, my > #1 encourager and supporter, my soul mate in July > just seemed to add to my delimma. > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 3 > Date: Sun, 19 Mar 2006 18:12:21 +0000 > From: dianequinlan@... > Subject: Hobbies > > Do any of you have hobbies or ways to spend your > time? Things that you do where you can mentally > escape for awhile? > I do miniatures....dollhouses....I love doing crafts > and have made some things with polymer clay...I also > make birthday and anniversary cards for family and > friends. When I'm working on something, I actually > forget that I'm on oxygen for awhile....it really > helps me cope. How about you? > > -- > Diane Quinlan > dianequinlan@... > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 4 > Date: Sat, 18 Mar 2006 15:25:38 -0000 > > Subject: Support > > Ginger, > > You put it very well. > > My first reaction when reading the post was of > shock. I realized > that he was responding to Ann. Then, I thought > it was tongue in > cheek. (with a side of serious) > > Honestly, I think Owen opened up a floodgate and > maybe that's not a > bad thing. This is a support group and maybe he > needs our support > more now than ever. It's a situation that we all > are facing > possibly sooner rather than later. Truthfully, it's > a situation > facing all living things. We all cope in our own > way. Who's to say > it's right or wrong. Peggy is certainly entitled to > her feelings > and thoughts as Owen is as Ginger and Ann are. > > > My goal was to have an open forum where people can > talk about what's > on their mind in a safe environment. Maybe it's > kind of like a > family where we can " yell " at one another and be > gentle with one > another and totally misunderstand one another. This > is brand new > for a lot of us and we are learning as we go. > > Personally, I have found the exchanges going on > between everyone > totally awesome. I learn so much from each one of > you and I > appreciate your honesty and caring. How do we limit > people? > > Leanne > Moderator > > > > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 5 > Date: Sun, 19 Mar 2006 14:02:07 -0500 > > Subject: Re: Hobbies > > I'm still working on my house. We had an addition > put on before I found out that I have IPF and the > addition needed to have the floors laid and trim > around the windows as well as patching holes in old > plaster walls. I told my Dr. that I needed to finish > that work so he said OK but just keep a good mask on > to keep from taking in saw dust and plaster dust. So > I am doing that. > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 we can have a salad together. God Bless. Peggy Sthing....and I'll bring the *coke float* for us. <giggles> kiss kiss, ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Surething....and I'll bring the *coke float* for us. <giggles> kiss kiss, ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Ginger, Thanks to my little Inogen's battery. I only make it one trip, rest go again. I really don't have my heart in it. But ya gotta do what ya gotta do. Come on over and ride the porch we can have a salad together. God Bless. Peggy on 3/20/06 11:28 PM, TongueDancer2U@... at TongueDancer2U@... wrote: Barb It's true weight makes a big difference. My TX Dr. wants me about 170 to 180 I am 5'3 " . I have lost my appetite and it doesn't seem like it's helping me lose. I am now trying to walk a little every day. My front porch is 75 feet long and I try for three trips up and back an few times a day. This stuff is still a pain.. Good luck. God Bless. Peggy Wow!...thats great Peggy! I wish I could walk 75ft just one time a day. I use to could. Thats how I realized my down hill slide. When I could not walk very far. At one time I could walk from my bedroom W/O the tube....through the house, down the steps into my suburban and then hit the portable tube, calmly. Today I walk from my bedroom WITH the tube, through the house, get to the front door and am reaching for the portable tube before I take off the home unit tube. Times have sure changed. Now, ask me to ride that new scooter across your front porch, Peggy and I'll do it!. <smiles> kiss kiss ~Ginger~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Barb, Bronston, Kentucky I am a Ky girl. too. Raised in the hills of Eastern Ky. I live near Louisville, now. Have you seen doctors in Lexington or any larger cities? Joyce> > > There are 12 messages in this issue.> > > > Topics in this digest:> > > > 1. Re: I am sorry> > > 2. Re: Isabel Welcome> > > 3. Hobbies> > > 4. Support> > > 5. Re: Hobbies> > > 6. Re: Digest Number 120> > > 7. Hi Barb> > > 8. Re: Re: Oxygen> > > 9. Re: Profile> > > 10. Re: Digest Number 120> > > 11. Hi Barb> > > 12. Re: 'In My Opinion' and 'Rules' and Fair> > Dealing with the Docs> > > > > > >> ________________________________________________________________________> >> ________________________________________________________________________> > > > Message: 1 > > Date: Sun, 19 Mar 2006 18:00:52 +0000> > > Subject: Re: I am sorry> > > > Ann - you do not need to apologise for> > anything! We are here to listen....hang in there,> > honey!> > > > --> > Diane Quinlan > > dianequinlan@... > > > > [This message contained attachments]> > > > > > > >> ________________________________________________________________________> >> ________________________________________________________________________> > > > Message: 2 > > Date: Sun, 19 Mar 2006 18:09:22 +0000> > > Subject: Re: Isabel Welcome> > > > Ginger - please don't feel like you are alone...I> > can't be there physically to hug you or make you> > laugh, but all you have to do is turn the computer> > on and let us know how you are doing. I am blessed> > to have a husband and family...but sometimes I still> > feel a little lonely cause I can't always explain to> > them how I feel. I tend to keep some things to> > myself and not talk about them because they get> > upset and worry. Or, I see pity in their eyes. I> > don't want that. So, I try to just say "I'm OK" and> > keep going. But, here I feel as tho I can let my> > guard down. > > So, Ginger...keep up your fighting spirit and keep> > talking to us...> > Hugs, Diane > > > > --> > Diane Quinlan > > dianequinlan@... > > > > > > I just get so tired of this machine always being a> > part of my life. And so much medication, questions,> > debates with insurance companys. I often feel so> > alone here, as I know of no one with this disease in> > my area. And loosing my husband, my life partner, my> > #1 encourager and supporter, my soul mate in July> > just seemed to add to my delimma. > > > > [This message contained attachments]> > > > > > > >> ________________________________________________________________________> >> ________________________________________________________________________> > > > Message: 3 > > Date: Sun, 19 Mar 2006 18:12:21 +0000> > > Subject: Hobbies> > > > Do any of you have hobbies or ways to spend your> > time? Things that you do where you can mentally> > escape for awhile?> > I do miniatures....dollhouses....I love doing crafts> > and have made some things with polymer clay...I also> > make birthday and anniversary cards for family and> > friends. When I'm working on something, I actually> > forget that I'm on oxygen for awhile....it really> > helps me cope. How about you?> > > > --> > Diane Quinlan > > dianequinlan@... > > > > [This message contained attachments]> > > > > > > >> ________________________________________________________________________> >> ________________________________________________________________________> > > > Message: 4 > > Date: Sat, 18 Mar 2006 15:25:38 -0000> > > Subject: Support> > > > Ginger,> > > > You put it very well.> > > > My first reaction when reading the post was of> > shock. I realized > > that he was responding to Ann. Then, I thought> > it was tongue in > > cheek. (with a side of serious)> > > > Honestly, I think Owen opened up a floodgate and> > maybe that's not a > > bad thing. This is a support group and maybe he> > needs our support > > more now than ever. It's a situation that we all> > are facing > > possibly sooner rather than later. Truthfully, it's> > a situation > > facing all living things. We all cope in our own> > way. Who's to say > > it's right or wrong. Peggy is certainly entitled to> > her feelings > > and thoughts as Owen is as Ginger and Ann are. > > > > > > My goal was to have an open forum where people can> > talk about what's > > on their mind in a safe environment. Maybe it's> > kind of like a > > family where we can "yell" at one another and be> > gentle with one > > another and totally misunderstand one another. This> > is brand new > > for a lot of us and we are learning as we go.> > > > Personally, I have found the exchanges going on> > between everyone > > totally awesome. I learn so much from each one of> > you and I > > appreciate your honesty and caring. How do we limit> > people? > > > > Leanne> > Moderator > > > > > > > > > > > > > > > > > > > > > > > >> ________________________________________________________________________> >> ________________________________________________________________________> > > > Message: 5 > > Date: Sun, 19 Mar 2006 14:02:07 -0500> > > Subject: Re: Hobbies> > > > I'm still working on my house. We had an addition> > put on before I found out that I have IPF and the> > addition needed to have the floors laid and trim> > around the windows as well as patching holes in old> > plaster walls. I told my Dr. that I needed to finish> > that work so he said OK but just keep a good mask on> > to keep from taking in saw dust and plaster dust. So> > I am doing that.> > > === message truncated ===> > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
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