Re: more news from houston

[Guest guest]

,

You sound so sick and miserable. You are so young and my heart breaks for you. You have such a strong spirit and you are a fighter. You also have at least a couple of good reasons to fight for your life and health. Hang on, trust in God. Perhaps the rheumatologist will be able to help you. I have no idea about the shaking legs...have any of you had this? When I was taking big doses of prednisone I was shaky all over and the albuterol in my nebs and inhaler make me shaky. My main nebulizing med is Duo-neb which is the same as Combivent. Maybe that is part of the shakiness?

Take care and let me know what the new doc says. Hope he is a caring and wise doc.....there are some out there!

Hugs,

Joyce PF 1997> >> > hi everyone.> > > > my son has returned home so we have been running like chickens > with > > our heads cut off.> > > > it is currently 1 am central time and i am wide awake with a > splitting > > migraine and muscle cramps from the actimmune....gotta luv it!> > > > i saw the pulmy today...asked about imuran and cytoxan as well as > > transplants. my pulmy is not convinced of the effects of imuran > and > > cytoxan so does not feel he should prescribe those at this time. > > however he did prescribe combivent in an inhaler....i have never > used > > one of those things before today.> > > > as far as transplants go......that was kind of a downer in some > ways > > but in other ways not. my pulmy said unless i take a huge downward > > spiral i do not need to worry about transplants for a few years > > yet....that's a good thing i think. on the other hand he is not > sure i > > would be eligible because of the eosinophilic granuloma. this is > > controllable but curable and the chance of it causing the PF to > > return is a strong possibility. but he said when the time comes > he'll > > do everything he can to help me meet eligibility criteria.> > > > my dad is coming to visit this weekend so i probably will not be > on > > line much. i am very nervous about it. this will be the first time > he > > has ever been to my home. we just reunited about 5 months ago > after > > not seeing each other or speaking for the last 10 years. it's been > > a change for both of us but a very welcomed one.> > > > i have missed you all but trying to keep the little one entertained> > now that school is out. he will be going home with grandpa this > weekend> > for a week long stay..another break...YAHOO!!!! lol> > > > talk to you all soon. i read the boards, just don't always have > time > > to get replies in. thanks so much for inquiring about me. that > means > > alot to me.> > > > hugs and best wishes to you all!!> > > > jaime in houston> >>

[Guest guest]

Hi , My nail beds are purple reddish, the Dr.s say it's clubbing. I don't know that this ever stops. It used to be just my pinkies and ring fingers but now all fingers, not thumbs yet.

I do hope they find the cause of the shaking. prednisone had me doing the shimmy shakes.

God Bless you honey. Enjoy your Dad this week-end...Peggy 09/04 ipf

forgot to mention about the rhumatologist....DUH! pulmy is sending

me to a rhumatologist about my nailbeds turning purple until rubbed

back to color and also for the uncontrollable shaking of the legs...

nothing like sitting on the toilet and your legs go to shaking so

bad you think it's gonna shake the toilet right out of the floor

with you on it....last from 5 to 15 minutes...OHJOY!

>

> hi everyone.

>

> my son has returned home so we have been running like chickens

with

> our heads cut off.

>

> it is currently 1 am central time and i am wide awake with a

splitting

> migraine and muscle cramps from the actimmune....gotta luv it!

>

> i saw the pulmy today...asked about imuran and cytoxan as well as

> transplants. my pulmy is not convinced of the effects of imuran

and

> cytoxan so does not feel he should prescribe those at this time.

> however he did prescribe combivent in an inhaler....i have never

used

> one of those things before today.

>

> as far as transplants go......that was kind of a downer in some

ways

> but in other ways not. my pulmy said unless i take a huge downward

> spiral i do not need to worry about transplants for a few years

> yet....that's a good thing i think. on the other hand he is not

sure i

> would be eligible because of the eosinophilic granuloma. this is

> controllable but curable and the chance of it causing the PF to

> return is a strong possibility. but he said when the time comes

he'll

> do everything he can to help me meet eligibility criteria.

>

> my dad is coming to visit this weekend so i probably will not be

on

> line much. i am very nervous about it. this will be the first time

he

> has ever been to my home. we just reunited about 5 months ago

after

> not seeing each other or speaking for the last 10 years. it's been

> a change for both of us but a very welcomed one.

>

> i have missed you all but trying to keep the little one entertained

> now that school is out. he will be going home with grandpa this

weekend

> for a week long stay..another break...YAHOO!!!! lol

>

> talk to you all soon. i read the boards, just don't always have

time

> to get replies in. thanks so much for inquiring about me. that

means

> alot to me.

>

> hugs and best wishes to you all!!

>

> jaime in houston

>

[Guest guest]

i have very shaky hands sometimes from the prednisone. yuck!

i just think the combivent tastes nasty..other than that it hasn't

bothered me yet.

i had my actimmune shot last night with severe migraine, muscle

cramps and fevers all night. didn't get to sleep til nearly 5 this

morning and up shortly after 10 this morning. thanks for keeping me

company Barb!!!!

speaking of Barb, she did alot of research into her medical

condition and what she told me shocked me a little so i did a little

more research myself. the disease that she was diagnosed

with...can't think of the long name right off hand...is another name

for the eosinophilic granuloma which is the auto immune disease that

caused my PF......it is a very rare and uncommon disease, mostly

found in children and here we are......maybe we really have reverted

back to childhood Barb. hehe just kidding, trying to lighten the

situation a little. luv ya bunches!!

jaime

> > >

> > > hi everyone.

> > >

> > > my son has returned home so we have been running like chickens

> > with

> > > our heads cut off.

> > >

> > > it is currently 1 am central time and i am wide awake with a

> > splitting

> > > migraine and muscle cramps from the actimmune....gotta luv it!

> > >

> > > i saw the pulmy today...asked about imuran and cytoxan as well

as

> > > transplants. my pulmy is not convinced of the effects of imuran

> > and

> > > cytoxan so does not feel he should prescribe those at this

time.

> > > however he did prescribe combivent in an inhaler....i have

never

> > used

> > > one of those things before today.

> > >

> > > as far as transplants go......that was kind of a downer in some

> > ways

> > > but in other ways not. my pulmy said unless i take a huge

downward

> > > spiral i do not need to worry about transplants for a few years

> > > yet....that's a good thing i think. on the other hand he is not

> > sure i

> > > would be eligible because of the eosinophilic granuloma. this

is

> > > controllable but curable and the chance of it causing the PF to

> > > return is a strong possibility. but he said when the time comes

> > he'll

> > > do everything he can to help me meet eligibility criteria.

> > >

> > > my dad is coming to visit this weekend so i probably will not

be

> > on

> > > line much. i am very nervous about it. this will be the first

time

> > he

> > > has ever been to my home. we just reunited about 5 months ago

> > after

> > > not seeing each other or speaking for the last 10 years. it's

been

> > > a change for both of us but a very welcomed one.

> > >

> > > i have missed you all but trying to keep the little one

entertained

> > > now that school is out. he will be going home with grandpa this

> > weekend

> > > for a week long stay..another break...YAHOO!!!! lol

> > >

> > > talk to you all soon. i read the boards, just don't always have

> > time

> > > to get replies in. thanks so much for inquiring about me. that

> > means

> > > alot to me.

> > >

> > > hugs and best wishes to you all!!

> > >

> > > jaime in houston

> > >

> >

>

[Guest guest]

Nail beds turning purple???? Mine are too. What's that all about? Every I turn around there is 'one more thing' to deal with. Sher ipf 5-06

more news from houston

forgot to mention about the rhumatologist....DUH! pulmy is sending me to a rhumatologist about my nailbeds turning purple until rubbed back to color and also for the uncontrollable shaking of the legs...nothing like sitting on the toilet and your legs go to shaking so bad you think it's gonna shake the toilet right out of the floor with you on it....last from 5 to 15 minutes...OHJOY!>> hi everyone.> > my son has returned home so we have been running like chickens with > our heads cut off.> > it is currently 1 am central time and i am wide awake with a splitting > migraine and muscle cramps from the actimmune....gotta luv it!> > i saw the pulmy today...asked about imuran and cytoxan as well as > transplants. my pulmy is not convinced of the effects of imuran and > cytoxan so does not feel he should prescribe those at this time. > however he did prescribe combivent in an inhaler....i have never used > one of those things before today.> > as far as transplants go......that was kind of a downer in some ways > but in other ways not. my pulmy said unless i take a huge downward > spiral i do not need to worry about transplants for a few years > yet....that's a good thing i think. on the other hand he is not sure i > would be eligible because of the eosinophilic granuloma. this is > controllable but curable and the chance of it causing the PF to > return is a strong possibility. but he said when the time comes he'll > do everything he can to help me meet eligibility criteria.> > my dad is coming to visit this weekend so i probably will not be on > line much. i am very nervous about it. this will be the first time he > has ever been to my home. we just reunited about 5 months ago after > not seeing each other or speaking for the last 10 years. it's been > a change for both of us but a very welcomed one.> > i have missed you all but trying to keep the little one entertained> now that school is out. he will be going home with grandpa this weekend> for a week long stay..another break...YAHOO!!!! lol> > talk to you all soon. i read the boards, just don't always have time > to get replies in. thanks so much for inquiring about me. that means > alot to me.> > hugs and best wishes to you all!!> > jaime in houston>

[Guest guest]

To Peggy from Sher....read your post re: nail. I do have clubbing of fingers and some toes (?) and you write about purple nail beds being the clubbing too. Well, I just learned something new. I'm constantly learning on this board. Thanks. ipf 5-06

Re: more news from houston

Hi , My nail beds are purple reddish, the Dr.s say it's clubbing. I don't know that this ever stops. It used to be just my pinkies and ring fingers but now all fingers, not thumbs yet.I do hope they find the cause of the shaking. prednisone had me doing the shimmy shakes. God Bless you honey. Enjoy your Dad this week-end...Peggy 09/04 ipf

forgot to mention about the rhumatologist....DUH! pulmy is sending me to a rhumatologist about my nailbeds turning purple until rubbed back to color and also for the uncontrollable shaking of the legs...nothing like sitting on the toilet and your legs go to shaking so bad you think it's gonna shake the toilet right out of the floor with you on it....last from 5 to 15 minutes...OHJOY!>> hi everyone.> > my son has returned home so we have been running like chickens with > our heads cut off.> > it is currently 1 am central time and i am wide awake with a splitting > migraine and muscle cramps from the actimmune....gotta luv it!> > i saw the pulmy today...asked about imuran and cytoxan as well as > transplants. my pulmy is not convinced of the effects of imuran and > cytoxan so does not feel he should prescribe those at this time. > however he did prescribe combivent in an inhaler....i have never used > one of those things before today.> > as far as transplants go......that was kind of a downer in some ways > but in other ways not. my pulmy said unless i take a huge downward > spiral i do not need to worry about transplants for a few years > yet....that's a good thing i think. on the other hand he is not sure i > would be eligible because of the eosinophilic granuloma. this is > controllable but curable and the chance of it causing the PF to > return is a strong possibility. but he said when the time comes he'll > do everything he can to help me meet eligibility criteria.> > my dad is coming to visit this weekend so i probably will not be on > line much. i am very nervous about it. this will be the first time he > has ever been to my home. we just reunited about 5 months ago after > not seeing each other or speaking for the last 10 years. it's been > a change for both of us but a very welcomed one.> > i have missed you all but trying to keep the little one entertained> now that school is out. he will be going home with grandpa this weekend> for a week long stay..another break...YAHOO!!!! lol> > talk to you all soon. i read the boards, just don't always have time > to get replies in. thanks so much for inquiring about me. that means > alot to me.> > hugs and best wishes to you all!!> > jaime in houston>

[Guest guest]

I am sure glad I don't have to explain what clubing is again P UIP 8/00Sher K Bauman wrote: To Peggy from Sher....read your post re: nail. I do have clubbing of fingers and some toes (?) and you write about purple nail beds being the clubbing too. Well, I just learned something new. I'm constantly learning on this board. Thanks. ipf 5-06 Re: more news from houston Hi , My nail beds are purple reddish, the Dr.s say it's clubbing. I don't know that this ever stops. It used to be just my pinkies and ring fingers but now all fingers, not thumbs yet.I do hope they find the cause of the shaking. prednisone had me doing the shimmy shakes. God Bless you honey. Enjoy your Dad this week-end...Peggy 09/04 ipf forgot to

mention about the rhumatologist....DUH! pulmy is sending me to a rhumatologist about my nailbeds turning purple until rubbed back to color and also for the uncontrollable shaking of the legs...nothing like sitting on the toilet and your legs go to shaking so bad you think it's gonna shake the toilet right out of the floor with you on it....last from 5 to 15 minutes...OHJOY!>> hi everyone.> > my son has returned home so we have been running like chickens with > our heads cut off.> > it is currently 1 am central time and i am wide awake with a splitting > migraine and muscle cramps from the actimmune....gotta luv it!> > i saw the pulmy today...asked about imuran and cytoxan as well as > transplants. my pulmy is not convinced of

the effects of imuran and > cytoxan so does not feel he should prescribe those at this time. > however he did prescribe combivent in an inhaler....i have never used > one of those things before today.> > as far as transplants go......that was kind of a downer in some ways > but in other ways not. my pulmy said unless i take a huge downward > spiral i do not need to worry about transplants for a few years > yet....that's a good thing i think. on the other hand he is not sure i > would be eligible because of the eosinophilic granuloma. this is > controllable but curable and the chance of it causing the PF to > return is a strong possibility. but he said when the time comes he'll > do everything he can to help me meet eligibility criteria.> > my dad is coming to visit this weekend so i probably will not be on > line much. i am very nervous

about it. this will be the first time he > has ever been to my home. we just reunited about 5 months ago after > not seeing each other or speaking for the last 10 years. it's been > a change for both of us but a very welcomed one.> > i have missed you all but trying to keep the little one entertained> now that school is out. he will be going home with grandpa this weekend> for a week long stay..another break...YAHOO!!!! lol> > talk to you all soon. i read the boards, just don't always have time > to get replies in. thanks so much for inquiring about me. that means > alot to me.> > hugs and best wishes to you all!!> > jaime in houston>

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

> >> > hi everyone.> > > > my son has returned home so we have been running like chickens > with > > our heads cut off.> > > > it is currently 1 am central time and i am wide awake with a > splitting > > migraine and muscle cramps from the actimmune....gotta luv it!> > > > i saw the pulmy today...asked about imuran and cytoxan as well as > > transplants. my pulmy is not convinced of the effects of imuran > and > > cytoxan so does not feel he should prescribe those at this time. > > however he did prescribe combivent in an inhaler....i have never > used > > one of those things before today.> > > > as far as transplants go......that was kind of a downer in some > ways > > but in other ways not. my pulmy said unless i take a huge downward > > spiral i do not need to worry about transplants for a few years > > yet....that's a good thing i think. on the other hand he is not > sure i > > would be eligible because of the eosinophilic granuloma. this is > > controllable but curable and the chance of it causing the PF to > > return is a strong possibility. but he said when the time comes > he'll > > do everything he can to help me meet eligibility criteria.> > > > my dad is coming to visit this weekend so i probably will not be > on > > line much. i am very nervous about it. this will be the first time > he > > has ever been to my home. we just reunited about 5 months ago > after > > not seeing each other or speaking for the last 10 years. it's been > > a change for both of us but a very welcomed one.> > > > i have missed you all but trying to keep the little one entertained> > now that school is out. he will be going home with grandpa this > weekend> > for a week long stay..another break...YAHOO!!!! lol> > > > talk to you all soon. i read the boards, just don't always have > time > > to get replies in. thanks so much for inquiring about me. that > means > > alot to me.> > > > hugs and best wishes to you all!!> > > > jaime in houston> >>

[Guest guest]

Nail beds turning purple???? Mine are too O.K. How many of you are looking at your toes......come on ...fess up???

Joyce PF 1997> >> > hi everyone.> > > > my son has returned home so we have been running like chickens > with > > our heads cut off.> > > > it is currently 1 am central time and i am wide awake with a > splitting > > migraine and muscle cramps from the actimmune....gotta luv it!> > > > i saw the pulmy today...asked about imuran and cytoxan as well as > > transplants. my pulmy is not convinced of the effects of imuran > and > > cytoxan so does not feel he should prescribe those at this time. > > however he did prescribe combivent in an inhaler....i have never > used > > one of those things before today.> > > > as far as transplants go......that was kind of a downer in some > ways > > but in other ways not. my pulmy said unless i take a huge downward > > spiral i do not need to worry about transplants for a few years > > yet....that's a good thing i think. on the other hand he is not > sure i > > would be eligible because of the eosinophilic granuloma. this is > > controllable but curable and the chance of it causing the PF to > > return is a strong possibility. but he said when the time comes > he'll > > do everything he can to help me meet eligibility criteria.> > > > my dad is coming to visit this weekend so i probably will not be > on > > line much. i am very nervous about it. this will be the first time > he > > has ever been to my home. we just reunited about 5 months ago > after > > not seeing each other or speaking for the last 10 years. it's been > > a change for both of us but a very welcomed one.> > > > i have missed you all but trying to keep the little one entertained> > now that school is out. he will be going home with grandpa this > weekend> > for a week long stay..another break...YAHOO!!!! lol> > > > talk to you all soon. i read the boards, just don't always have > time > > to get replies in. thanks so much for inquiring about me. that > means > > alot to me.> > > > hugs and best wishes to you all!!> > > > jaime in houston> >>

[Guest guest]

I was hoping you would...

Peggy 09/04 ipf

I am sure glad I don't have to explain what clubing is again P UIP 8/00

Sher K Bauman wrote:

To Peggy from Sher....read your post re: nail. I do have clubbing of fingers and some toes (?) and you write about purple nail beds being the clubbing too. Well, I just learned something new. I'm constantly learning on this board. Thanks. ipf 5-06

Re: more news from houston

Hi , My nail beds are purple reddish, the Dr.s say it's clubbing. I don't know that this ever stops. It used to be just my pinkies and ring fingers but now all fingers, not thumbs yet.

I do hope they find the cause of the shaking. prednisone had me doing the shimmy shakes.

God Bless you honey. Enjoy your Dad this week-end...Peggy 09/04 ipf

forgot to mention about the rhumatologist....DUH! pulmy is sending

me to a rhumatologist about my nailbeds turning purple until rubbed

back to color and also for the uncontrollable shaking of the legs...

nothing like sitting on the toilet and your legs go to shaking so

bad you think it's gonna shake the toilet right out of the floor

with you on it....last from 5 to 15 minutes...OHJOY!

>

> hi everyone.

>

> my son has returned home so we have been running like chickens

with

> our heads cut off.

>

> it is currently 1 am central time and i am wide awake with a

splitting

> migraine and muscle cramps from the actimmune....gotta luv it!

>

> i saw the pulmy today...asked about imuran and cytoxan as well as

> transplants. my pulmy is not convinced of the effects of imuran

and

> cytoxan so does not feel he should prescribe those at this time.

> however he did prescribe combivent in an inhaler....i have never

used

> one of those things before today.

>

> as far as transplants go......that was kind of a downer in some

ways

> but in other ways not. my pulmy said unless i take a huge downward

> spiral i do not need to worry about transplants for a few years

> yet....that's a good thing i think. on the other hand he is not

sure i

> would be eligible because of the eosinophilic granuloma. this is

> controllable but curable and the chance of it causing the PF to

> return is a strong possibility. but he said when the time comes

he'll

> do everything he can to help me meet eligibility criteria.

>

> my dad is coming to visit this weekend so i probably will not be

on

> line much. i am very nervous about it. this will be the first time

he

> has ever been to my home. we just reunited about 5 months ago

after

> not seeing each other or speaking for the last 10 years. it's been

> a change for both of us but a very welcomed one.

>

> i have missed you all but trying to keep the little one entertained

> now that school is out. he will be going home with grandpa this

weekend

> for a week long stay..another break...YAHOO!!!! lol

>

> talk to you all soon. i read the boards, just don't always have

time

> to get replies in. thanks so much for inquiring about me. that

means

> alot to me.

>

> hugs and best wishes to you all!!

>

> jaime in houston

>

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

I did

Peggy 09/04 ipf

Nail beds turning purple???? Mine are too O.K. How many of you are looking at your toes......come on ...fess up???

Joyce PF 1997

>

> Nail beds turning purple???? Mine are too. What's that all about? Every I turn around there is 'one more thing' to deal with. Sher ipf 5-06

> more news from houston

>

>

> forgot to mention about the rhumatologist....DUH! pulmy is sending

> me to a rhumatologist about my nailbeds turning purple until rubbed

> back to color and also for the uncontrollable shaking of the legs...

>

> nothing like sitting on the toilet and your legs go to shaking so

> bad you think it's gonna shake the toilet right out of the floor

> with you on it....last from 5 to 15 minutes...OHJOY!

>

[Guest guest]

I am sure glad I don't have to explain what clubing is again P UIP 8/00

, my fingers are STILL in knots....RED fingernails and all...lol.

kiss kiss,

9/04 IPF

~Ginger~

[Guest guest]

Joyce, I'm not sure if this is a total joke or not. But MY some of my toenails are doing strange things. I thought it was the aging process but with my finger nails, I wonder.....Sher

Re: more news from houston

Nail beds turning purple???? Mine are too O.K. How many of you are looking at your toes......come on ...fess up???

Joyce PF 1997> >> > hi everyone.> > > > my son has returned home so we have been running like chickens > with > > our heads cut off.> > > > it is currently 1 am central time and i am wide awake with a > splitting > > migraine and muscle cramps from the actimmune....gotta luv it!> > > > i saw the pulmy today...asked about imuran and cytoxan as well as > > transplants. my pulmy is not convinced of the effects of imuran > and > > cytoxan so does not feel he should prescribe those at this time. > > however he did prescribe combivent in an inhaler....i have never > used > > one of those things before today.> > > > as far as transplants go......that was kind of a downer in some > ways > > but in other ways not. my pulmy said unless i take a huge downward > > spiral i do not need to worry about transplants for a few years > > yet....that's a good thing i think. on the other hand he is not > sure i > > would be eligible because of the eosinophilic granuloma. this is > > controllable but curable and the chance of it causing the PF to > > return is a strong possibility. but he said when the time comes > he'll > > do everything he can to help me meet eligibility criteria.> > > > my dad is coming to visit this weekend so i probably will not be > on > > line much. i am very nervous about it. this will be the first time > he > > has ever been to my home. we just reunited about 5 months ago > after > > not seeing each other or speaking for the last 10 years. it's been > > a change for both of us but a very welcomed one.> > > > i have missed you all but trying to keep the little one entertained> > now that school is out. he will be going home with grandpa this > weekend> > for a week long stay..another break...YAHOO!!!! lol> > > > talk to you all soon. i read the boards, just don't always have > time > > to get replies in. thanks so much for inquiring about me. that > means > > alot to me.> > > > hugs and best wishes to you all!!> > > > jaime in houston> >>

[Guest guest]

This is a picture of fingernail clubbing: http://images.google.com/imgres?imgurl=http://www.coalitionforpf.org/images/clubbing.jpg & imgrefurl=http://www.coalitionforpf.org/Patients/clubbing.asp & h=278 & w=380 & sz=11 & hl=en & start=31 & tbnid=aLxn9fnU7BAZjM: & tbnh=87 & tbnw=119 & prev=/images%3Fq%3Dclubbing%26start%3D20%26ndsp%3D20%26svnum%3D10%26hl%3Den%26lr%3D%26ie%3DUTF-8%26sa%3DN

This is a picture of toenail clubbing: http://www.aic.cuhk.edu.hk/web8/Clubbing.htm

Cute, huh? > > >> > > hi everyone.> > > > > > my son has returned home so we have been running like chickens > > with > > > our heads cut off.> > > > > > it is currently 1 am central time and i am wide awake with a > > splitting > > > migraine and muscle cramps from the actimmune....gotta luv it!> > > > > > i saw the pulmy today...asked about imuran and cytoxan as well as > > > transplants. my pulmy is not convinced of the effects of imuran > > and > > > cytoxan so does not feel he should prescribe those at this time. > > > however he did prescribe combivent in an inhaler....i have never > > used > > > one of those things before today.> > > > > > as far as transplants go......that was kind of a downer in some > > ways > > > but in other ways not. my pulmy said unless i take a huge downward > > > spiral i do not need to worry about transplants for a few years > > > yet....that's a good thing i think. on the other hand he is not > > sure i > > > would be eligible because of the eosinophilic granuloma. this is > > > controllable but curable and the chance of it causing the PF to > > > return is a strong possibility. but he said when the time comes > > he'll > > > do everything he can to help me meet eligibility criteria.> > > > > > my dad is coming to visit this weekend so i probably will not be > > on > > > line much. i am very nervous about it. this will be the first time > > he > > > has ever been to my home. we just reunited about 5 months ago > > after > > > not seeing each other or speaking for the last 10 years. it's been > > > a change for both of us but a very welcomed one.> > > > > > i have missed you all but trying to keep the little one entertained> > > now that school is out. he will be going home with grandpa this > > weekend> > > for a week long stay..another break...YAHOO!!!! lol> > > > > > talk to you all soon. i read the boards, just don't always have > > time > > > to get replies in. thanks so much for inquiring about me. that > > means > > > alot to me.> > > > > > hugs and best wishes to you all!!> > > > > > jaime in houston> > >> >>

[Guest guest]

Joyce...I just looked at the pictures of clubbing nails. Ugggg. My nails are not that advanced but I surely see the clubbing. I thought these symptoms 'came later' but guess not. I've been wondering what's going on with my toe nails and guess I have my answer. Thanks Joyce. I feel embarrassed to complain about anything. You deal with so much more and always sound cheerful to others. Hugs to you too. Sher ipf 5-06

Re: more news from houston

This is a picture of fingernail clubbing: http://images.google.com/imgres?imgurl=http://www.coalitionforpf.org/images/clubbing.jpg & imgrefurl=http://www.coalitionforpf.org/Patients/clubbing.asp & h=278 & w=380 & sz=11 & hl=en & start=31 & tbnid=aLxn9fnU7BAZjM: & tbnh=87 & tbnw=119 & prev=/images%3Fq%3Dclubbing%26start%3D20%26ndsp%3D20%26svnum%3D10%26hl%3Den%26lr%3D%26ie%3DUTF-8%26sa%3DN

This is a picture of toenail clubbing: http://www.aic.cuhk.edu.hk/web8/Clubbing.htm

Cute, huh? > > >> > > hi everyone.> > > > > > my son has returned home so we have been running like chickens > > with > > > our heads cut off.> > > > > > it is currently 1 am central time and i am wide awake with a > > splitting > > > migraine and muscle cramps from the actimmune....gotta luv it!> > > > > > i saw the pulmy today...asked about imuran and cytoxan as well as > > > transplants. my pulmy is not convinced of the effects of imuran > > and > > > cytoxan so does not feel he should prescribe those at this time. > > > however he did prescribe combivent in an inhaler....i have never > > used > > > one of those things before today.> > > > > > as far as transplants go......that was kind of a downer in some > > ways > > > but in other ways not. my pulmy said unless i take a huge downward > > > spiral i do not need to worry about transplants for a few years > > > yet....that's a good thing i think. on the other hand he is not > > sure i > > > would be eligible because of the eosinophilic granuloma. this is > > > controllable but curable and the chance of it causing the PF to > > > return is a strong possibility. but he said when the time comes > > he'll > > > do everything he can to help me meet eligibility criteria.> > > > > > my dad is coming to visit this weekend so i probably will not be > > on > > > line much. i am very nervous about it. this will be the first time > > he > > > has ever been to my home. we just reunited about 5 months ago > > after > > > not seeing each other or speaking for the last 10 years. it's been > > > a change for both of us but a very welcomed one.> > > > > > i have missed you all but trying to keep the little one entertained> > > now that school is out. he will be going home with grandpa this > > weekend> > > for a week long stay..another break...YAHOO!!!! lol> > > > > > talk to you all soon. i read the boards, just don't always have > > time > > > to get replies in. thanks so much for inquiring about me. that > > means > > > alot to me.> > > > > > hugs and best wishes to you all!!> > > > > > jaime in houston> > >> >>

[Guest guest]

well mine aren't quite THAT ugly! LOL but i do have the lumps over

my nailbeds on all 10 fingers just like in the picture...good thing

i have started painting my nails!!! hehehehe

> > > >

> > > > hi everyone.

> > > >

> > > > my son has returned home so we have been running like

chickens

> > > with

> > > > our heads cut off.

> > > >

> > > > it is currently 1 am central time and i am wide awake with a

> > > splitting

> > > > migraine and muscle cramps from the actimmune....gotta luv

it!

> > > >

> > > > i saw the pulmy today...asked about imuran and cytoxan as

well as

> > > > transplants. my pulmy is not convinced of the effects of

imuran

> > > and

> > > > cytoxan so does not feel he should prescribe those at this

time.

> > > > however he did prescribe combivent in an inhaler....i have

never

> > > used

> > > > one of those things before today.

> > > >

> > > > as far as transplants go......that was kind of a downer in

some

> > > ways

> > > > but in other ways not. my pulmy said unless i take a huge

downward

> > > > spiral i do not need to worry about transplants for a few

years

> > > > yet....that's a good thing i think. on the other hand he is

not

> > > sure i

> > > > would be eligible because of the eosinophilic granuloma.

this is

> > > > controllable but curable and the chance of it causing the PF

to

> > > > return is a strong possibility. but he said when the time

comes

> > > he'll

> > > > do everything he can to help me meet eligibility criteria.

> > > >

> > > > my dad is coming to visit this weekend so i probably will

not be

> > > on

> > > > line much. i am very nervous about it. this will be the

first time

> > > he

> > > > has ever been to my home. we just reunited about 5 months ago

> > > after

> > > > not seeing each other or speaking for the last 10 years.

it's been

> > > > a change for both of us but a very welcomed one.

> > > >

> > > > i have missed you all but trying to keep the little one

> entertained

> > > > now that school is out. he will be going home with grandpa

this

> > > weekend

> > > > for a week long stay..another break...YAHOO!!!! lol

> > > >

> > > > talk to you all soon. i read the boards, just don't always

have

> > > time

> > > > to get replies in. thanks so much for inquiring about me.

that

> > > means

> > > > alot to me.

> > > >

> > > > hugs and best wishes to you all!!

> > > >

> > > > jaime in houston

> > > >

> > >

> >

>

[Guest guest]

Sher,

I, too, bang my spoon on my high chair. I am not always cheerful and upbeat. It seems when one of us is down, one of the group will be strong and bring the other one up. That is our job here! Stay close by, my little lip quivers at times, too. Then I will need you to cheer me up and help me be stronger!

Hugs,

Joyce PF 1997> > > >> > > > hi everyone.> > > > > > > > my son has returned home so we have been running like chickens > > > with > > > > our heads cut off.> > > > > > > > it is currently 1 am central time and i am wide awake with a > > > splitting > > > > migraine and muscle cramps from the actimmune....gotta luv it!> > > > > > > > i saw the pulmy today...asked about imuran and cytoxan as well as > > > > transplants. my pulmy is not convinced of the effects of imuran > > > and > > > > cytoxan so does not feel he should prescribe those at this time. > > > > however he did prescribe combivent in an inhaler....i have never > > > used > > > > one of those things before today.> > > > > > > > as far as transplants go......that was kind of a downer in some > > > ways > > > > but in other ways not. my pulmy said unless i take a huge downward > > > > spiral i do not need to worry about transplants for a few years > > > > yet....that's a good thing i think. on the other hand he is not > > > sure i > > > > would be eligible because of the eosinophilic granuloma. this is > > > > controllable but curable and the chance of it causing the PF to > > > > return is a strong possibility. but he said when the time comes > > > he'll > > > > do everything he can to help me meet eligibility criteria.> > > > > > > > my dad is coming to visit this weekend so i probably will not be > > > on > > > > line much. i am very nervous about it. this will be the first time > > > he > > > > has ever been to my home. we just reunited about 5 months ago > > > after > > > > not seeing each other or speaking for the last 10 years. it's been > > > > a change for both of us but a very welcomed one.> > > > > > > > i have missed you all but trying to keep the little one entertained> > > > now that school is out. he will be going home with grandpa this > > > weekend> > > > for a week long stay..another break...YAHOO!!!! lol> > > > > > > > talk to you all soon. i read the boards, just don't always have > > > time > > > > to get replies in. thanks so much for inquiring about me. that > > > means > > > > alot to me.> > > > > > > > hugs and best wishes to you all!!> > > > > > > > jaime in houston> > > >> > >> >>

[Guest guest]

Yes, I will be there for you too Joyce. The meaning of "support group" isn't it? I feel so sad for those who go through chronic conditions alone. I've belonged to other support groups and facilitated many but don't remember one as sensitive as this group! All for one and one for all....to be sure. I feel better this evening and I know it's because I finally opened myself up a bit. I'm an external processor and when I don't talk I get bogged down. Have a good night, sleep well. Sher ipf 5-06

Re: more news from houston

Sher,

I, too, bang my spoon on my high chair. I am not always cheerful and upbeat. It seems when one of us is down, one of the group will be strong and bring the other one up. That is our job here! Stay close by, my little lip quivers at times, too. Then I will need you to cheer me up and help me be stronger!

Hugs,

Joyce PF 1997> > > >> > > > hi everyone.> > > > > > > > my son has returned home so we have been running like chickens > > > with > > > > our heads cut off.> > > > > > > > it is currently 1 am central time and i am wide awake with a > > > splitting > > > > migraine and muscle cramps from the actimmune....gotta luv it!> > > > > > > > i saw the pulmy today...asked about imuran and cytoxan as well as > > > > transplants. my pulmy is not convinced of the effects of imuran > > > and > > > > cytoxan so does not feel he should prescribe those at this time. > > > > however he did prescribe combivent in an inhaler....i have never > > > used > > > > one of those things before today.> > > > > > > > as far as transplants go......that was kind of a downer in some > > > ways > > > > but in other ways not. my pulmy said unless i take a huge downward > > > > spiral i do not need to worry about transplants for a few years > > > > yet.....that's a good thing i think. on the other hand he is not > > > sure i > > > > would be eligible because of the eosinophilic granuloma. this is > > > > controllable but curable and the chance of it causing the PF to > > > > return is a strong possibility. but he said when the time comes > > > he'll > > > > do everything he can to help me meet eligibility criteria.> > > > > > > > my dad is coming to visit this weekend so i probably will not be > > > on > > > > line much. i am very nervous about it. this will be the first time > > > he > > > > has ever been to my home. we just reunited about 5 months ago > > > after > > > > not seeing each other or speaking for the last 10 years. it's been > > > > a change for both of us but a very welcomed one.> > > > > > > > i have missed you all but trying to keep the little one entertained> > > > now that school is out. he will be going home with grandpa this > > > weekend> > > > for a week long stay..another break...YAHOO!!!! lol> > > > > > > > talk to you all soon. i read the boards, just don't always have > > > time > > > > to get replies in. thanks so much for inquiring about me. that > > > means > > > > alot to me.> > > > > > > > hugs and best wishes to you all!!> > > > > > > > jaime in houston> > > >> > >> >>