Re: wedge

[Guest guest]

Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,... Barb from KYPeggy wrote: Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from

getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy butIt's me..LOL Do any of you sleep on a wedge? I am trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.

Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggy

on 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote:

Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,...

Barb from KY

Peggy wrote:

Hi Group, Question.... AGAIN... When I lay down I feel like something is

laying on my neck preventing me from getting air.. Is this part of it ? I'm

thinking it may be my thyroid growing again. I know this sounds crazy but

It's me..LOL

Do any of you sleep on a wedge? I am trying to stay on one, not very

successfully. It's a 12 " one maybe a smaller one would do.

God Bless Peggy

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Hey, Peggy: No, I am not walking yet. I know I need to, but most of the time it just seems like too much trouble to clean up and get dressed and go for a walk. After I take a shower I am worn out. Then there is the getting dressed part. I love my night gowns and pajama's. But I know if I am going to get this weight off I am going to have to do something or there won't be no lung for me. As for God's beauty, I know what you mean. When I sit outside on the deck, I can see mountains covered in trees for miles. It is beautiful and so relaxing. Peggy, how old did you say you were? Have you gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers. Barb in KY Peggy wrote: Barb, Those numbers

are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggyon 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote: Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my

numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,... Barb from KYPeggy wrote: Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy butIt's me..LOL Do any of you sleep on a wedge? I am trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries

<http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Bagbara and Peggy. I saw a special oxygen nose piece that was advertised on one of the web sites. The Dr. that ran the web sight was a pilot and the nose piece was for pilots. I was on cpap for a while. Then went on ox attached to cpap. Then took the ox off the cpap and used it under the cpap mask. Now I use the ox by itself. All this in 6 mo time. I had been needing ox for a long time. I have tried to go back to the web site but it messes up my cp. I had been sleeping or not sleeping for a good long while. Sit up in a lounge chair all night. Dr. said I had sleep apmea. My spellings not right but you know what I mean. In sleep apmea your air is cut off by something in your throat and you stop breathing and wake up. I run my mouth too much. God bless Grey

Re: wedge

Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,...

Barb from KYPeggy wrote:

Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy butIt's me..LOL Do any of you sleep on a wedge? I am trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

no, Grey, you don't run your mouth too much. I do have sleep apnea, but cannot stand the thoughts of that cpap thing. I am hoping it won't hurt me if I don't use one. Barb in KYjose singletary wrote: Bagbara and Peggy. I saw a special oxygen nose piece that was advertised on one of the web sites. The Dr. that ran the web sight was a pilot and the nose piece was for pilots. I was on cpap for a while. Then went on ox attached to cpap. Then took the ox off the cpap and used it under the cpap mask. Now I use the ox by itself. All this in 6 mo time. I had been needing ox for a long time. I have tried to go back

to the web site but it messes up my cp. I had been sleeping or not sleeping for a good long while. Sit up in a lounge chair all night. Dr. said I had sleep apmea. My spellings not right but you know what I mean. In sleep apmea your air is cut off by something in your throat and you stop breathing and wake up. I run my mouth too much. God bless Grey Re: wedge Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,... Barb from KYPeggy wrote: Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy butIt's me..LOL Do any of you sleep on a wedge? I am trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice.

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

Peggy,

My wedge is as wide across as a hospital bed and come down about 1/2 way the length of the bed. I put a pillow on that. Sometimes I just use pillows piled up. I slide down in the night and that is when I get into trouble. My sleep panic is because I get into a position where I am too flat and can not breathe. I thought of velcro jammies..ha!

I am worried about your neck discomfort. Did you ask the doc?

Love,

Joyce >> Hi Group, Question.... AGAIN... When I lay down I feel like something is> laying on my neck preventing me from getting air.. Is this part of it ? I'm> thinking it may be my thyroid growing again. I know this sounds crazy but> It's me..LOL > Do any of you sleep on a wedge? I am trying to stay on one, not very> successfully. It's a 12" one maybe a smaller one would do.> God Bless Peggy>

[Guest guest]

I'm 63, going on 32 and OH YEA, I've had more tests than I can remember this past two years. As soon as I loose about 50 more lbs. I will go into the Hosp. for three days for tests to see if I qualify for transplant. You have to be pretty healthy other than the IPF. My trans. Dr. says the main thing is walking because you have to get up right after surgery to exercise your new lung.. So that gives a little motivation to walk.

We live in the Forest so I walk in my PJ's on my porch. I can't hardly relate to city living after two years here. So I don't have to tire out before I walk. Keep tryin' I'll keep prayin. God Bless Peggy

on 4/24/06 8:18 PM, Barbara Soice at babs594@... wrote:

Hey, Peggy: No, I am not walking yet. I know I need to, but most of the time it just seems like too much trouble to clean up and get dressed and go for a walk. After I take a shower I am worn out. Then there is the getting dressed part. I love my night gowns and pajama's. But I know if I am going to get this weight off I am going to have to do something or there won't be no lung for me. As for God's beauty, I know what you mean. When I sit outside on the deck, I can see mountains covered in trees for miles. It is beautiful and so relaxing. Peggy, how old did you say you were? Have you gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers.

Barb in KY

Peggy wrote:

Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.

Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggy

on 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote:

Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,...

Barb from KY

Peggy wrote:

Hi Group, Question.... AGAIN... When I lay down I feel like something is

laying on my neck preventing me from getting air.. Is this part of it ? I'm

thinking it may be my thyroid growing again. I know this sounds crazy but

It's me..LOL

Do any of you sleep on a wedge? I am trying to stay on one, not very

successfully. It's a 12 " one maybe a smaller one would do.

God Bless Peggy

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Peggy: How are you losing weight? Starving yourself to death or what? What do you have to weigh to qualify for a lung transplant. I am 5' 7" and weigh 295. BarbPeggy wrote: I'm 63, going on 32 and OH YEA, I've had more tests than I can remember this past two years. As soon as I loose about 50 more lbs. I will go into the Hosp. for three days for tests to see if I qualify for transplant. You have to be pretty healthy other than the IPF. My trans. Dr. says the main thing is walking because you have to get up right after surgery to exercise your new lung.. So that gives a little motivation to walk. We live in the Forest so I walk in my PJ's on my porch. I can't hardly relate to city living after two years here. So I don't have to tire out before I

walk. Keep tryin' I'll keep prayin. God Bless Peggyon 4/24/06 8:18 PM, Barbara Soice at babs594@... wrote: Hey, Peggy: No, I am not walking yet. I know I need to, but most of the time it just seems like too much trouble to clean up and get dressed and go for a walk. After I take a shower I am worn out. Then there is the getting dressed part. I love my night gowns and pajama's. But I know if I am going to get this weight off I am going to have to do something or there won't be no lung for me. As for God's beauty, I know what you mean. When I sit outside on the deck, I can see mountains covered in trees for miles. It is beautiful and so relaxing. Peggy, how old did you say you were? Have you gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers. Barb in KY Peggy

wrote: Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggyon 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote: Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on

through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,...Barb from KYPeggy wrote: Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy butIt's me..LOL Do any of you sleep on a wedge? I am trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries

<http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Group,

This is the size wedge I have. I put a pillow or two on it usually. It is as wide as a hospital bed. I breathe much better when I use it.

http://images.harrietcarter.com/images/products/3623x.jpg

Now, unfortunatly the girl in the picture is not me! Joyce

> Hi Group, Question.... AGAIN... When I lay down I feel like something is> laying on my neck preventing me from getting air.. Is this part of it ? I'm> thinking it may be my thyroid growing again. I know this sounds crazy but> It's me..LOL > Do any of you sleep on a wedge? I am trying to stay on one, not very> successfully. It's a 12" one maybe a smaller one would do.> God Bless Peggy> > > > > > > ------------------------------------------------------------------------------> Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. > >

[Guest guest]

Gray, You could never run your mouth to much. That's why were here. My husband has used a c-pap for 20 years. He has obstructive apnea. The mussels in his throat (double chin ) relax and cut off the air. The C-pap forces the air into him. Once he got used to it he is getting enough oxygen at night and therefor feels better during the day. It is VERY important to use your c-pap. God Bless Peggy

on 4/24/06 8:48 PM, jose singletary at jsingletary@... wrote:

Bagbara and Peggy. I saw a special oxygen nose piece that was advertised on one of the web sites. The Dr. that ran the web sight was a pilot and the nose piece was for pilots. I was on cpap for a while. Then went on ox attached to cpap. Then took the ox off the cpap and used it under the cpap mask. Now I use the ox by itself. All this in 6 mo time. I had been needing ox for a long time. I have tried to go back to the web site but it messes up my cp. I had been sleeping or not sleeping for a good long while. Sit up in a lounge chair all night. Dr. said I had sleep apmea. My spellings not right but you know what I mean. In sleep apmea your air is cut off by something in your throat and you stop breathing and wake up. I run my mouth too much. God bless Grey

Re: wedge

Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,...

Barb from KY

Peggy wrote:

Hi Group, Question.... AGAIN... When I lay down I feel like something is

laying on my neck preventing me from getting air.. Is this part of it ? I'm

thinking it may be my thyroid growing again. I know this sounds crazy but

It's me..LOL

Do any of you sleep on a wedge? I am trying to stay on one, not very

successfully. It's a 12 " one maybe a smaller one would do.

God Bless Peggy

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Joyce, I had graves disease ( inward growing thyroid ) had surgery. That was 30 years ago. Now I have nodules on my thyroid found last year. I'm afraid they may be getting bigger. I'm going to check it out soon.

I like the velcro idea but my skin is pretty sensitive. lol But I wouldn't have to pester my hubby to scratch my back.. God Bless Peggy

on 4/24/06 9:56 PM, janne5303 at joycedalton29@... wrote:

Peggy,

My wedge is as wide across as a hospital bed and come down about 1/2 way the length of the bed. I put a pillow on that. Sometimes I just use pillows piled up. I slide down in the night and that is when I get into trouble. My sleep panic is because I get into a position where I am too flat and can not breathe. I thought of velcro jammies..ha!

I am worried about your neck discomfort. Did you ask the doc?

Love,

Joyce

>

> Hi Group, Question.... AGAIN... When I lay down I feel like something is

> laying on my neck preventing me from getting air.. Is this part of it ? I'm

> thinking it may be my thyroid growing again. I know this sounds crazy but

> It's me..LOL

> Do any of you sleep on a wedge? I am trying to stay on one, not very

> successfully. It's a 12 " one maybe a smaller one would do.

> God Bless Peggy

>

[Guest guest]

Group, I also use this same wedge as you can see.. I did NOT give permission to use my picture. Thanks for the heads up Joyce Peggy

on 4/24/06 10:47 PM, janne5303 at joycedalton29@... wrote:

Group,

This is the size wedge I have. I put a pillow or two on it usually. It is as wide as a hospital bed. I breathe much better when I use it.

http://images.harrietcarter.com/images/products/3623x.jpg

Now, unfortunatly the girl in the picture is not me! Joyce

> Hi Group, Question.... AGAIN... When I lay down I feel like something is

> laying on my neck preventing me from getting air.. Is this part of it ? I'm

> thinking it may be my thyroid growing again. I know this sounds crazy but

> It's me..LOL

> Do any of you sleep on a wedge? I am trying to stay on one, not very

> successfully. It's a 12 " one maybe a smaller one would do.

> God Bless Peggy

>

>

>

>

>

>

> ------------------------------------------------------------------------------

> Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice.

>

>

[Guest guest]

By going off prednisone and the main reason is I have a gas range and my husband is doing the cooking... LOL LOL.. He's sitting here and told me to tell you that.. He is really doing a great job. My appetite and stomach

are all of a sudden small. I fill up really fast. And it is so hard to breath if I over eat.

I'm 5'3 and now am 210. I was 229.. Yep I waddled. now I sway gracefully.

I think that makes me the president of the Chubby Club. Guy's can NOT comment on this post.. Peggy

on 4/24/06 10:43 PM, Barbara Soice at babs594@... wrote:

Peggy: How are you losing weight? Starving yourself to death or what? What do you have to weigh to qualify for a lung transplant. I am 5' 7 " and weigh 295.

Barb

Peggy wrote:

I'm 63, going on 32 and OH YEA, I've had more tests than I can remember this past two years. As soon as I loose about 50 more lbs. I will go into the Hosp. for three days for tests to see if I qualify for transplant. You have to be pretty healthy other than the IPF. My trans. Dr. says the main thing is walking because you have to get up right after surgery to exercise your new lung.. So that gives a little motivation to walk.

We live in the Forest so I walk in my PJ's on my porch. I can't hardly relate to city living after two years here. So I don't have to tire out before I walk. Keep tryin' I'll keep prayin. God Bless Peggy

on 4/24/06 8:18 PM, Barbara Soice at babs594@... wrote:

Hey, Peggy: No, I am not walking yet. I know I need to, but most of the time it just seems like too much trouble to clean up and get dressed and go for a walk. After I take a shower I am worn out. Then there is the getting dressed part. I love my night gowns and pajama's. But I know if I am going to get this weight off I am going to have to do something or there won't be no lung for me. As for God's beauty, I know what you mean. When I sit outside on the deck, I can see mountains covered in trees for miles. It is beautiful and so relaxing. Peggy, how old did you say you were? Have you gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers.

Barb in KY

Peggy wrote:

Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.

Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggy

on 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote:

Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,...

Barb from KY

Peggy wrote:

Hi Group, Question.... AGAIN... When I lay down I feel like something is

laying on my neck preventing me from getting air.. Is this part of it ? I'm

thinking it may be my thyroid growing again. I know this sounds crazy but

It's me..LOL

Do any of you sleep on a wedge? I am trying to stay on one, not very

successfully. It's a 12 " one maybe a smaller one would do.

God Bless Peggy

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Hey Barb, All the college kids here are wearing the character pj bottoms, I bought me some. Everyone wears out in public. Love It. I look like everyone else and am still comfy. I think I look "cute" in tweety bird pj's Barbara Soice wrote: Hey, Peggy: No, I am not walking yet. I know I need to, but most of the time it just seems like too much trouble to clean up and get dressed and go for a walk. After I take a shower I am worn out. Then there is the getting dressed part. I love my night gowns and pajama's. But I know if I am going to get this weight off I am going to have to do something or there won't be no lung for me. As for God's beauty, I know what you mean. When I sit outside on the deck, I can see mountains covered in trees

for miles. It is beautiful and so relaxing. Peggy, how old did you say you were? Have you gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers. Barb in KY Peggy wrote: Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggyon 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote: Hi, Peggy: Yes, I do feel

as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,... Barb from KYPeggy wrote: Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy

butIt's me..LOL Do any of you sleep on a wedge? I am trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

I have Betty Boop. American Flags. I bent over to get something I dropped on the floor and when I turned around all three of my kids and their spouses stood tall with hands over their hearts. Smarties.. Peggy

on 4/24/06 11:42 PM, linda arnold at lovepuppy49@... wrote:

Hey Barb,

All the college kids here are wearing the character pj bottoms, I bought me some. Everyone wears out in public. Love It. I look like everyone else and am still comfy. I think I look " cute " in tweety bird pj's

Barbara Soice wrote:

Hey, Peggy: No, I am not walking yet. I know I need to, but most of the time it just seems like too much trouble to clean up and get dressed and go for a walk. After I take a shower I am worn out. Then there is the getting dressed part. I love my night gowns and pajama's. But I know if I am going to get this weight off I am going to have to do something or there won't be no lung for me. As for God's beauty, I know what you mean. When I sit outside on the deck, I can see mountains covered in trees for miles. It is beautiful and so relaxing. Peggy, how old did you say you were? Have you gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers.

Barb in KY

Peggy wrote:

Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.

Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggy

on 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote:

Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,...

Barb from KY

Peggy wrote:

Hi Group, Question.... AGAIN... When I lay down I feel like something is

laying on my neck preventing me from getting air.. Is this part of it ? I'm

thinking it may be my thyroid growing again. I know this sounds crazy but

It's me..LOL

Do any of you sleep on a wedge? I am trying to stay on one, not very

successfully. It's a 12 " one maybe a smaller one would do.

God Bless Peggy

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Peggy-Thanks for that! It brought a much needed smile to my face!

Sheila Strong

Reply-To: Breathe-Support

To: <Breathe-Support >

Subject: Re: wedge

Date: Mon, 24 Apr 2006 23:49:05 -0400

I have Betty Boop. American Flags. I bent over to get something I dropped on

the floor and when I turned around all three of my kids and their spouses

stood tall with hands over their hearts. Smarties.. Peggy

on 4/24/06 11:42 PM, linda arnold at lovepuppy49@... wrote:

Hey Barb,

All the college kids here are wearing the character pj bottoms, I bought me

some. Everyone wears out in public. Love It. I look like everyone else and

am still comfy. I think I look " cute " in tweety bird pj's

Barbara Soice wrote:

Hey, Peggy: No, I am not walking yet. I know I need to, but most of the

time it just seems like too much trouble to clean up and get dressed and go

for a walk. After I take a shower I am worn out. Then there is the getting

dressed part. I love my night gowns and pajama's. But I know if I am going

to get this weight off I am going to have to do something or there won't be

no lung for me. As for God's beauty, I know what you mean. When I sit

outside on the deck, I can see mountains covered in trees for miles. It is

beautiful and so relaxing. Peggy, how old did you say you were? Have you

gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers.

Barb in KY

Peggy wrote:

Barb, Those numbers are great. I know you must feel better. God's blessings

are always so wonderful. When I go outside to have my coffee in the mornings

I just marvel at the wondrous beauty of Gods handy work. We have so many

birds, I love the humming birds.

Are you doing some walking? I am trying so hard. I am just so weak but I

know it's getting better because I was on the go all day yesterday. God

Bless you with good air, Peggy

on 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote:

Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I

lie down. I then prop myself up real good with five pillows and usually

have a good nights sleep. The fact that I am taping the canula to my face

at night has helped me keep it on. I wish the Dr. had thought of it sooner.

Since I have been keeping it on through the night my oxy numbers are getting

higher during the day. Can you believe this, my numbers have been between

93-95 all day long. When diagnosed I was 81, I believe God is working a

miracle with me. Keep praying for me everyone as I am praying for all of

you.,...

Barb from KY

Peggy wrote:

Hi Group, Question.... AGAIN... When I lay down I feel like something is

laying on my neck preventing me from getting air.. Is this part of it ? I'm

thinking it may be my thyroid growing again. I know this sounds crazy but

It's me..LOL

Do any of you sleep on a wedge? I am trying to stay on one, not very

successfully. It's a 12 " one maybe a smaller one would do.

God Bless Peggy

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries

<http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/ev

t=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo!

Messenger with Voice.

[Guest guest]

Peggy, Have you tried putting a pillow under your knees? Sometimes just enough resistance to stop you for going to the end of bed.This is why I bought bed with footboard, Keep quilt at bottom so can't slide down. Peggy wrote: Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggyon 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote: Hi, Peggy: Yes, I do

feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,... Barb from KYPeggy wrote: Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy

butIt's me..LOL Do any of you sleep on a wedge? I am trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Hey, : IF you ever run into any garfield pj's let me know.Peggy wrote: I have Betty Boop. American Flags. I bent over to get something I dropped on the floor and when I turned around all three of my kids and their spouses stood tall with hands over their hearts. Smarties.. Peggyon 4/24/06 11:42 PM, linda arnold at lovepuppy49@... wrote: Hey Barb, All the college kids here are wearing the character pj bottoms, I bought me some. Everyone wears out in public. Love It. I look like everyone else and am still comfy. I think I look "cute" in tweety bird pj's Barbara Soice wrote: Hey, Peggy: No, I am not

walking yet. I know I need to, but most of the time it just seems like too much trouble to clean up and get dressed and go for a walk. After I take a shower I am worn out. Then there is the getting dressed part. I love my night gowns and pajama's. But I know if I am going to get this weight off I am going to have to do something or there won't be no lung for me. As for God's beauty, I know what you mean. When I sit outside on the deck, I can see mountains covered in trees for miles. It is beautiful and so relaxing. Peggy, how old did you say you were? Have you gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers. Barb in KY Peggy wrote: Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee

in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggyon 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote: Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a

miracle with me. Keep praying for me everyone as I am praying for all of you.,...Barb from KYPeggy wrote: Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy butIt's me..LOL Do any of you sleep on a wedge? I am trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Peggy What size? Barbara Soice wrote: Hey, : IF you ever run into any garfield pj's let me know.Peggy wrote: I have Betty Boop. American Flags. I bent over to get something I dropped on the floor and when I turned around all three of my kids and their spouses stood tall with hands over their hearts. Smarties.. Peggyon 4/24/06 11:42 PM, linda arnold at lovepuppy49@... wrote: Hey Barb, All the college kids here are wearing the character pj bottoms, I bought me some. Everyone wears out in public. Love It. I look

like everyone else and am still comfy. I think I look "cute" in tweety bird pj's Barbara Soice wrote: Hey, Peggy: No, I am not walking yet. I know I need to, but most of the time it just seems like too much trouble to clean up and get dressed and go for a walk. After I take a shower I am worn out. Then there is the getting dressed part. I love my night gowns and pajama's. But I know if I am going to get this weight off I am going to have to do something or there won't be no lung for me. As for God's beauty, I know what you mean. When I sit outside on the deck, I can see mountains covered in trees for miles. It is beautiful and so relaxing. Peggy, how old did you say you were? Have you gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers. Barb in

KY Peggy wrote: Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggyon 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote: Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner.

Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,...Barb from KYPeggy wrote: Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy butIt's me..LOL Do any of you sleep on a wedge? I am trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy Love cheap thrills? Enjoy

PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Sorry, Just tired Barb E-mail me size see what I can do. linda arnold wrote: Peggy What size? Barbara Soice wrote: Hey, : IF you ever run into any garfield pj's let me know.Peggy wrote: I have Betty Boop. American Flags. I bent over to get something I dropped on the floor and when I turned around all three of my kids and their spouses stood tall with hands over their hearts.

Smarties.. Peggyon 4/24/06 11:42 PM, linda arnold at lovepuppy49@... wrote: Hey Barb, All the college kids here are wearing the character pj bottoms, I bought me some. Everyone wears out in public. Love It. I look like everyone else and am still comfy. I think I look "cute" in tweety bird pj's Barbara Soice wrote: Hey, Peggy: No, I am not walking yet. I know I need to, but most of the time it just seems like too much trouble to clean up and get dressed and go for a walk. After I take a shower I am worn out. Then there is the getting dressed part. I love my night gowns and pajama's. But I know if I am going to get this weight off I am going to have to do something or there won't be no lung for me. As for God's beauty, I know what you mean. When I sit outside on the deck, I can see

mountains covered in trees for miles. It is beautiful and so relaxing. Peggy, how old did you say you were? Have you gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers. Barb in KY Peggy wrote: Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggyon 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote: Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times

when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,...Barb from KYPeggy wrote: Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy butIt's me..LOL Do any of you sleep on a wedge? I am

trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

It was me, . Size 3 or 4 X. Barb in KYlinda arnold wrote: Peggy What size? Barbara Soice wrote: Hey, : IF you ever run into any garfield pj's let me know.Peggy wrote: I have Betty Boop. American Flags. I bent over to get something I dropped on the floor and when I turned around all three of my kids and their spouses stood tall with hands over their

hearts. Smarties.. Peggyon 4/24/06 11:42 PM, linda arnold at lovepuppy49@... wrote: Hey Barb, All the college kids here are wearing the character pj bottoms, I bought me some. Everyone wears out in public. Love It. I look like everyone else and am still comfy. I think I look "cute" in tweety bird pj's Barbara Soice wrote: Hey, Peggy: No, I am not walking yet. I know I need to, but most of the time it just seems like too much trouble to clean up and get dressed and go for a walk. After I take a shower I am worn out. Then there is the getting dressed part. I love my night gowns and pajama's. But I know if I am going to get this weight off I am going to have to do something or there won't be no lung for me. As for God's beauty, I know what you mean. When I sit outside on the deck, I can

see mountains covered in trees for miles. It is beautiful and so relaxing. Peggy, how old did you say you were? Have you gotten assertive with you pulmonary Dr. yet? I will keep you in my prayers. Barb in KY Peggy wrote: Barb, Those numbers are great. I know you must feel better. God's blessings are always so wonderful. When I go outside to have my coffee in the mornings I just marvel at the wondrous beauty of Gods handy work. We have so many birds, I love the humming birds.Are you doing some walking? I am trying so hard. I am just so weak but I know it's getting better because I was on the go all day yesterday. God Bless you with good air, Peggyon 4/24/06 7:39 PM, Barbara Soice at babs594@... wrote: Hi, Peggy: Yes, I do feel as if the oxygen is being cut off at times

when I lie down. I then prop myself up real good with five pillows and usually have a good nights sleep. The fact that I am taping the canula to my face at night has helped me keep it on. I wish the Dr. had thought of it sooner. Since I have been keeping it on through the night my oxy numbers are getting higher during the day. Can you believe this, my numbers have been between 93-95 all day long. When diagnosed I was 81, I believe God is working a miracle with me. Keep praying for me everyone as I am praying for all of you.,...Barb from KYPeggy wrote: Hi Group, Question.... AGAIN... When I lay down I feel like something islaying on my neck preventing me from getting air.. Is this part of it ? I'mthinking it may be my thyroid growing again. I know this sounds crazy butIt's me..LOL Do any of you sleep on a wedge? I am

trying to stay on one, not verysuccessfully. It's a 12" one maybe a smaller one would do.God Bless Peggy Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries <http://us.rd.yahoo.com/mail_us/taglines/postman9/*http://us.rd.yahoo.com/evt=39666/*http://beta.messenger.yahoo.com/> for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

no, Grey, you don't run your mouth too much. I do have sleep apnea, but cannot stand the thoughts of that cpap thing. I am hoping it won't hurt me if I don't use one.

Barb in KY

I have a new cpap, and have never used it....I am sooo very claustrophobic, and just the thought of it scares me senseless. But Dr. says altho I do not have sleep apnea, he says I need it to expell damaging CO2. And that I can sit in my recliner a few hours a day and use it. He says the whole purpose of the cpap for me is the expulsion of CO2. That I don't get rid of it adequately. It is my understanding is that's pretty normal for all IPF/IP folks on O2. Not real sure what the results are if you never use the cpap. Guess I may find out, unless I can bring myself to try to use it.

kiss kiss,

~Ginger~

[Guest guest]

Peggy: How are you losing weight? Starving yourself to death or what? What do you have to weigh to qualify for a lung transplant. I am 5' 7" and weigh 295.

Barb

When I went to Dallas last November for my evaluation, the Lung Dr. there said I needed to loose 60 more lbs. to qualify for the transplant. And I weighed 223 lbs then. Pretty dificult to loose much weight while on prednisone. Like Peggy, I love cake!

kiss kiss,

Ginger~

[Guest guest]

Peggy,

It is so interesting that you have Graves Disease. Did the docs consider this when making your diagnosis. Read the following: Graves' disease can have an effect on many parts of the body such as the nervous system, eyes, skin, hair/nails, lungs, digestive system, muscles/bones and reproductive system.

Graves disease is an autoimmune disease which is not curable, but treatable. If you had it, you have it. Like Lupus, sometimes it works silently. When I thought I was in remission and feeling better it was attacking my lungs. I think Ginny has had much the same experience. By the time lung disease presents itself, damage is done.

If they can treat your autoimmune disease (such as they began concentrating on Lupus and it's treatment when I had biopsy) it buys time. You can not undo fibrosis, but slow its progression by halting the autoimmune disease.

Ask your doc. There are many sites that relate lung disease to Graves. Let me know.

God will help you in your search for answers. I am praying for you.

Joyce

> >> > Hi Group, Question.... AGAIN... When I lay down I feel like something is> > laying on my neck preventing me from getting air.. Is this part of it ? I'm> > thinking it may be my thyroid growing again. I know this sounds crazy but> > It's me..LOL > > Do any of you sleep on a wedge? I am trying to stay on one, not very> > successfully. It's a 12" one maybe a smaller one would do.> > God Bless Peggy> >> > >

[Guest guest]

Hey Barb, My wife tells me that it is the inability to get rid of co2 that poisons our bodies. I think I would take your doctors advice and use the cpap in the lounge chair to see if it might make you feel better. It is my understanding that expelling the co2 is a big problem as our lungs get weaker. Hope you get to feeling better. Grey

Re: wedge

no, Grey, you don't run your mouth too much. I do have sleep apnea, but cannot stand the thoughts of that cpap thing. I am hoping it won't hurt me if I don't use one.

Barb in KY

I have a new cpap, and have never used it....I am sooo very claustrophobic, and just the thought of it scares me senseless. But Dr. says altho I do not have sleep apnea, he says I need it to expell damaging CO2. And that I can sit in my recliner a few hours a day and use it. He says the whole purpose of the cpap for me is the expulsion of CO2. That I don't get rid of it adequately. It is my understanding is that's pretty normal for all IPF/IP folks on O2. Not real sure what the results are if you never use the cpap. Guess I may find out, unless I can bring myself to try to use it.

kiss kiss,

~Ginger~