Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 HI Peggy, I'm already on Prozac, Xanax and Klonopin for my anxiety and depression,. Guess this is just something I have to work thru, and I did get some new tubing, thank you so much... Hugsss, Vicky IPF/PH 4/06 ••••••••••••• Original Message ••••••••••••• Oh Vicky, That is terrible. The depression is totally normal, please call your Dr and ask to be put on wellbutron it will help you cope. YOU NEED IT. I think we are all on an anti-depressant. Coming off the prednisone will make you have all kinds of side effects. It's like coming off a heavy duty drug. It seems like you have decreased your dosage pretty quickly, that could be one reason for your depression. It took me almost a year to come off 60 mg. My body hurt in places I didn't know I had. My hubby read this post and said that it really bad to have a sugar count that high. you have to talk to your Dr and get something for that. The thing does is walk when his sugar gets high. Honey, Keep us posted, I'll be praying for you.Did you get a hold of your O2 Co. ? That is very important. You could get an infection by not changing your tubing and cannullas. God Bless.. love and prayers...Peggy 09/04 ipf Hi all,Just me, needing to vent a little. Is it normal to get depressed when comming down off steroids? I went from 40 to 30 and am now at 20. I'm so tired od drs, hospitals, needles, tests , apts. Last night my sugar was over 500, so my drs office said go to ER. I went and the nurse told me, " Your dr should of told you to do somethingcause your gonna have a long wait, we're busy". I said even with my sugar this high? She said yep, so I just left. I miss my normal life, every morning I wake up there is that monster, staring me in the face, laughing at me, reminding me how hes in my body and hes gonna get me in the ned. I tell him you wont get my soul but still, I know my family has to be tired of me,and my sickness. Please forgive me for dumping , but I dont have anyone else to talk to about this. Vicky IPF/PH 4/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Joyce, Thank you for your support, my husband said the same thing, that the people in my online group know how I feel, they are going thru the same thing, it helps to vent sometimes..... Hugssssss, Vicky IPF/PH 4/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 , Now you truely are an inspiration to us all, you have little ones and still hang in there. Thank you so much for your support too, it means more than you know....... Hugsss, Vicky IPF/PH 4/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Oh Vicky, That is terrible. The depression is totally normal, please call your Dr and ask to be put on wellbutron it will help you cope. YOU NEED IT. I think we are all on an anti-depressant. Coming off the prednisone will make you have all kinds of side effects. It's like coming off a heavy duty drug. It seems like you have decreased your dosage pretty quickly, that could be one reason for your depression. It took me almost a year to come off 60 mg. My body hurt in places I didn't know I had. My hubby read this post and said that it really bad to have a sugar count that high. you have to talk to your Dr and get something for that. The thing does is walk when his sugar gets high. Honey, Keep us posted, I'll be praying for you. Did you get a hold of your O2 Co. ? That is very important. You could get an infection by not changing your tubing and cannullas. God Bless.. love and prayers...Peggy 09/04 ipf Hi all, Just me, needing to vent a little. Is it normal to get depressed when comming down off steroids? I went from 40 to 30 and am now at 20. I'm so tired od drs, hospitals, needles, tests , apts. Last night my sugar was over 500, so my drs office said go to ER. I went and the nurse told me, " Your dr should of told you to do somethingcause your gonna have a long wait, we're busy " . I said even with my sugar this high? She said yep, so I just left. I miss my normal life, every morning I wake up there is that monster, staring me in the face, laughing at me, reminding me how hes in my body and hes gonna get me in the ned. I tell him you wont get my soul but still, I know my family has to be tired of me,and my sickness. Please forgive me for dumping , but I dont have anyone else to talk to about this. Vicky IPF/PH 4/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Vicky, Sorry you are going through a rough time. Unfortunately, weaning off prednisone is really rough. Peggy's right - a lot of us are on antidepressants - I'm on zoloft and I can't go off as I get surly. I hate being dependent on antidepessents but I don't like being surly or off kilter either! I don't know much about blood sugar unfortunately, but perhaps you will get some good advice from the board. Were you able to get ahold of the doctor today? Please keep us posted. You and your family are in my prayers. Leanne ipf 1/03 PS. You can vent ANY TIME.vicky81856 wrote: Hi all,Just me, needing to vent a little. Is it normal to get depressed when comming down off steroids? I went from 40 to 30 and am now at 20. I'm so tired od drs, hospitals, needles, tests , apts. Last night my sugar was over 500, so my drs office said go to ER. I went and the nurse told me, " Your dr should of told you to do somethingcause your gonna have a long wait, we're busy". I said even with my sugar this high? She said yep, so I just left. I miss my normal life, every morning I wake up there is that monster, staring me in the face, laughing at me, reminding me how hes in my body and hes gonna get me in the ned. I tell him you wont get my soul but still, I know my family has to be tired of me,and my sickness. Please forgive me for dumping , but I dont have anyone else to talk to about this. Vicky IPF/PH 4/06 Yahoo! Sports Fantasy Football ’06 - Go with the leader. Start your league today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Vicky, You dump all you want on me! I get it!!!! This is why we are here! I for one need to know that another person understands my fright and my pain. I, too, seem to have one more sickness, then one more, then one more. I get tired of the smell of medical places! By sharing your frustrations and depressions, it is helping the rest of know that we are only human. Get mad, get sad, cry ......... just don't give up! We love you Vicky! Hugs, Joyce PF 1997 >> Hi all,> > Just me, needing to vent a little. Is it normal to get depressed when > comming down off steroids? I went from 40 to 30 and am now at 20. I'm > so tired od drs, hospitals, needles, tests , apts. Last night my sugar > was over 500, so my drs office said go to ER. I went and the nurse told > me, " Your dr should of told you to do somethingcause your gonna have a > long wait, we're busy". I said even with my sugar this high? She said > yep, so I just left. I miss my normal life, every morning I wake up > there is that monster, staring me in the face, laughing at me, > reminding me how hes in my body and hes gonna get me in the ned. I tell > him you wont get my soul but still, I know my family has to be tired of > me,and my sickness. Please forgive me for dumping , but I dont have > anyone else to talk to about this. > > Vicky IPF/PH 4/06> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 vicki i know exactly how you feel sometimes. i have those days when i wish i hadn't awakened at all and then i have those days where i thank the heavens for giving me another day. i know what you mean about coming down off the steroids too...i went from 60 to 40 to 30 to 20......what fun! i hate this disease and the way it has effected me and my family. i hate knowing there are others out there who suffer from this monster. but then again i am glad i have all of you to help me get through each day. and don't you ever worry about venting hun...we all need to do it at some point. keep your chin up! jaime in houston > > Hi all, > > Just me, needing to vent a little. Is it normal to get depressed when > comming down off steroids? I went from 40 to 30 and am now at 20. I'm > so tired od drs, hospitals, needles, tests , apts. Last night my sugar > was over 500, so my drs office said go to ER. I went and the nurse told > me, " Your dr should of told you to do somethingcause your gonna have a > long wait, we're busy " . I said even with my sugar this high? She said > yep, so I just left. I miss my normal life, every morning I wake up > there is that monster, staring me in the face, laughing at me, > reminding me how hes in my body and hes gonna get me in the ned. I tell > him you wont get my soul but still, I know my family has to be tired of > me,and my sickness. Please forgive me for dumping , but I dont have > anyone else to talk to about this. > > Vicky IPF/PH 4/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 I did get some new tubing, And I thought I was the only one who got excited about getting new tubing for my machine. YIPPEE! kiss kiss, ~Ginger~ IPF 9/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Vicky you just vent away. Joyce said it best yes we do " GET IT " .. Warm fuzzy hugs back at you. Peggy 09/04 ipf Joyce, Thank you for your support, my husband said the same thing, that the people in my online group know how I feel, they are going thru the same thing, it helps to vent sometimes..... Hugssssss, Vicky IPF/PH 4/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 GREAT. All I KNOW is prayer helps when all else fails. I get such comfort.. God Bless you Vicky. He will help you with this monster...Peggy 09/04 ipf HI Peggy, I'm already on Prozac, Xanax and Klonopin for my anxiety and depression,. Guess this is just something I have to work thru, and I did get some new tubing, thank you so much... Hugsss, Vicky IPF/PH 4/06 €€€€€€€€€€€€€ Original Message €€€€€€€€€€€€€ Oh Vicky, That is terrible. The depression is totally normal, please call your Dr and ask to be put on wellbutron it will help you cope. YOU NEED IT. I think we are all on an anti-depressant. Coming off the prednisone will make you have all kinds of side effects. It's like coming off a heavy duty drug. It seems like you have decreased your dosage pretty quickly, that could be one reason for your depression. It took me almost a year to come off 60 mg. My body hurt in places I didn't know I had. My hubby read this post and said that it really bad to have a sugar count that high. you have to talk to your Dr and get something for that. The thing does is walk when his sugar gets high. Honey, Keep us posted, I'll be praying for you. Did you get a hold of your O2 Co. ? That is very important. You could get an infection by not changing your tubing and cannullas. God Bless.. love and prayers...Peggy 09/04 ipf Hi all, Just me, needing to vent a little. Is it normal to get depressed when comming down off steroids? I went from 40 to 30 and am now at 20. I'm so tired od drs, hospitals, needles, tests , apts. Last night my sugar was over 500, so my drs office said go to ER. I went and the nurse told me, " Your dr should of told you to do somethingcause your gonna have a long wait, we're busy " . I said even with my sugar this high? She said yep, so I just left. I miss my normal life, every morning I wake up there is that monster, staring me in the face, laughing at me, reminding me how hes in my body and hes gonna get me in the ned. I tell him you wont get my soul but still, I know my family has to be tired of me,and my sickness. Please forgive me for dumping , but I dont have anyone else to talk to about this. Vicky IPF/PH 4/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Just don't forget we're here for you to talk about any and all your fears. You are not alone. We all have been where you are. I'll be prayin. God Bless...Peggy 09/04 ipf HI Peggy, I'm already on Prozac, Xanax and Klonopin for my anxiety and depression,. Guess this is just something I have to work thru, and I did get some new tubing, thank you so much... Hugsss, Vicky IPF/PH 4/06 €€€€€€€€€€€€€ Original Message €€€€€€€€€€€€€ Oh Vicky, That is terrible. The depression is totally normal, please call your Dr and ask to be put on wellbutron it will help you cope. YOU NEED IT. I think we are all on an anti-depressant. Coming off the prednisone will make you have all kinds of side effects. It's like coming off a heavy duty drug. It seems like you have decreased your dosage pretty quickly, that could be one reason for your depression. It took me almost a year to come off 60 mg. My body hurt in places I didn't know I had. My hubby read this post and said that it really bad to have a sugar count that high. you have to talk to your Dr and get something for that. The thing does is walk when his sugar gets high. Honey, Keep us posted, I'll be praying for you. Did you get a hold of your O2 Co. ? That is very important. You could get an infection by not changing your tubing and cannullas. God Bless.. love and prayers...Peggy 09/04 ipf Hi all, Just me, needing to vent a little. Is it normal to get depressed when comming down off steroids? I went from 40 to 30 and am now at 20. I'm so tired od drs, hospitals, needles, tests , apts. Last night my sugar was over 500, so my drs office said go to ER. I went and the nurse told me, " Your dr should of told you to do somethingcause your gonna have a long wait, we're busy " . I said even with my sugar this high? She said yep, so I just left. I miss my normal life, every morning I wake up there is that monster, staring me in the face, laughing at me, reminding me how hes in my body and hes gonna get me in the ned. I tell him you wont get my soul but still, I know my family has to be tired of me,and my sickness. Please forgive me for dumping , but I dont have anyone else to talk to about this. Vicky IPF/PH 4/06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Hey, Vicky: My dr never helped me with my diabetes. So when it gets high, I just take me 20 more units and see what happens. I have not had to be weaned off of prednisone yet, so I really do not know how you feel, but I understand it is pretty rough. You hang in there. Barb in KY Adult Pulmonary LCH 6-06Leanne Storch wrote: Vicky, Sorry you are going through a rough time. Unfortunately, weaning off prednisone is really rough. Peggy's right - a lot of us are on antidepressants - I'm on zoloft and I can't go off as I get surly. I hate being dependent on antidepessents but I don't like being surly or off kilter either! I don't know much about blood sugar unfortunately, but perhaps you will get some good advice from the board. Were you able to get ahold of the doctor today? Please keep us posted. You and your family are in my prayers. Leanne ipf 1/03 PS. You can vent ANY TIME.vicky81856 wrote: Hi all,Just me, needing to vent a little. Is it normal to get depressed when comming down off steroids? I went from 40 to 30 and am now at 20. I'm so tired od drs, hospitals, needles, tests , apts. Last night my sugar was over 500, so my drs office said go to ER. I went and the nurse told me, " Your dr should of told you to do somethingcause your gonna have a long wait, we're busy". I said even with my sugar this high? She said yep, so I just left. I miss my normal life, every morning I wake up there is that monster, staring me in the face, laughing at me, reminding me how hes in my body and hes gonna get me in the ned. I tell him you wont get my soul but still, I know my family has to be tired of me,and my sickness. Please forgive me for dumping , but I dont have anyone else to talk to about this. Vicky IPF/PH 4/06 Yahoo! Sports Fantasy Football ’06 - Go with the leader. Start your league today! Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Dear Vicky, I have felt the same way--yes, I've gotten depressed coming down off prednisone. I'm sorry you are feeling so anxious and frightened and depressed. If you were just diagnosed a couple months ago (I'm new and assume the dates everyone is using refer to the date of diagnosis), your life has just changed dramatically, and you have a lot to deal with. But you've got to watch out for the depression, it's kind of like an emotional hallucination. You know you're depressed when it's not just a few things getting you down, but the whole world seems terrible, and you think you are totally worthless. That's when you have to do a reality check and remember the world is still pretty much the same cool place it was, and you're still worth just as much as you were before the diagnosis. The last time I got really depressed when I had just gone on oxygen, I recall saying to myself-- " of what use is my life. I can't even do anything, I haven't enough energy to hardly tie my shoes. I'm too depressed to be cheerful or even say much to my wife or visit other folks--if I can't do anything, then what am I, a potted plant? " So that day I concluded that even though I couldn't _do_ anything, at least I could be a _decoration_ that my family appreciated seeing around the house. Not much to hang on to, but it got me through. Keep on truckin', NSIP 3/03 vicky81856 wrote: > Hi all, > > Just me, needing to vent a little. Is it normal to get depressed when > comming down off steroids? I went from 40 to 30 and am now at 20. I'm > so tired od drs, hospitals, needles, tests , apts. Last night my sugar > was over 500, so my drs office said go to ER. I went and the nurse told > me, " Your dr should of told you to do somethingcause your gonna have a > long wait, we're busy " . I said even with my sugar this high? She said > yep, so I just left. I miss my normal life, every morning I wake up > there is that monster, staring me in the face, laughing at me, > reminding me how hes in my body and hes gonna get me in the ned. I tell > him you wont get my soul but still, I know my family has to be tired of > me,and my sickness. Please forgive me for dumping , but I dont have > anyone else to talk to about this. > > Vicky IPF/PH 4/06 > > > >------------------------------------------------------------------------ > >No virus found in this incoming message. >Checked by AVG Free Edition. >Version: 7.1.394 / Virus Database: 268.9.5/376 - Release Date: 6/26/2006 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 Hi Vicky, you are definately not alone. Last month I stent two weeks of steroids at 60 mg a day. The detox off them have had me weeping, paranoid and (oddly enough) not wanting to be touched. It seems like it hurt just to be touched? Anyone else have that? I also am on celexa, an anti-anxiaty drug. Unless it envolves blood, I am never going to listen to a phone health advices prodding to go to the ER. At least you had the sence to take off. Take care and keep those md's on task. lynnA > > Hi all, > > Just me, needing to vent a little. Is it normal to get depressed when > comming down off steroids? I went from 40 to 30 and am now at 20. I'm > so tired od drs, hospitals, needles, tests , apts. Last night my sugar > was over 500, so my drs office said go to ER. I went and the nurse told > me, " Your dr should of told you to do somethingcause your gonna have a > long wait, we're busy " . I said even with my sugar this high? She said > yep, so I just left. I miss my normal life, every morning I wake up > there is that monster, staring me in the face, laughing at me, > reminding me how hes in my body and hes gonna get me in the ned. I tell > him you wont get my soul but still, I know my family has to be tired of > me,and my sickness. Please forgive me for dumping , but I dont have > anyone else to talk to about this. > > Vicky IPF/PH 4/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 NSAIDS What are *NSAIDS*? I have never hear of this term. I always appreciate all the educational information I learn from all of you sweet folks. kiss kiss, ~Ginger~ 9/04 IPF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 Most of us have so much to cope with. I suffered from severe panic attacks about suffering and death so badly that my Dr. put me on Atarax and Ativan. It has made a big difference. kiss kiss, ~Ginger~ IPF 9/04 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 I too am on an anti-depressant...Lexapro. Like Leanne, I'd rather be ON it than OFF it. Most of us have so much to cope with. Anything that makes it easier I'm willing to do. I don't have to be 'super-woman' anymore. Those damn silver bracelets nearly cut to the bone. LOL> Sher ipf 5-06 Re: a bad day Vicky, Sorry you are going through a rough time. Unfortunately, weaning off prednisone is really rough. Peggy's right - a lot of us are on antidepressants - I'm on zoloft and I can't go off as I get surly. I hate being dependent on antidepessents but I don't like being surly or off kilter either! I don't know much about blood sugar unfortunately, but perhaps you will get some good advice from the board. Were you able to get ahold of the doctor today? Please keep us posted. You and your family are in my prayers. Leanne ipf 1/03 PS. You can vent ANY TIME.vicky81856 wrote: Hi all,Just me, needing to vent a little. Is it normal to get depressed when comming down off steroids? I went from 40 to 30 and am now at 20. I'm so tired od drs, hospitals, needles, tests , apts. Last night my sugar was over 500, so my drs office said go to ER. I went and the nurse told me, " Your dr should of told you to do somethingcause your gonna have a long wait, we're busy". I said even with my sugar this high? She said yep, so I just left. I miss my normal life, every morning I wake up there is that monster, staring me in the face, laughing at me, reminding me how hes in my body and hes gonna get me in the ned. I tell him you wont get my soul but still, I know my family has to be tired of me,and my sickness. Please forgive me for dumping , but I dont have anyone else to talk to about this. Vicky IPF/PH 4/06 Yahoo! Sports Fantasy Football ’06 - Go with the leader. Start your league today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 , It is so good when we hear from the men in our group....especially when they are 'real' about thier feelings and fears. I believe that it is tougher for men because they are used to being the 'strong' Dad and Husband. Thanks for sharing your real self with us. Hugs, Joyce PF 1997> > > Hi all,> >> > Just me, needing to vent a little. Is it normal to get depressed when> > comming down off steroids? I went from 40 to 30 and am now at 20. I'm> > so tired od drs, hospitals, needles, tests , apts. Last night my sugar> > was over 500, so my drs office said go to ER. I went and the nurse told> > me, " Your dr should of told you to do somethingcause your gonna have a> > long wait, we're busy". I said even with my sugar this high? She said> > yep, so I just left. I miss my normal life, every morning I wake up> > there is that monster, staring me in the face, laughing at me,> > reminding me how hes in my body and hes gonna get me in the ned. I tell> > him you wont get my soul but still, I know my family has to be tired of> > me,and my sickness. Please forgive me for dumping , but I dont have> > anyone else to talk to about this.> >> > Vicky IPF/PH 4/06> >> > > >> >------------------------------------------------------------------------> >> >No virus found in this incoming message.> >Checked by AVG Free Edition.> >Version: 7.1.394 / Virus Database: 268.9.5/376 - Release Date: 6/26/2006> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2006 Report Share Posted June 28, 2006 Ginger, Ibuprofen, motrin, alleve, are all NSAIDS. I am not sure but I think Tylenol is not. Hope this helps-TongueDancer2U@... wrote: NSAIDS What are *NSAIDS*? I have never hear of this term. I always appreciate all the educational information I learn from all of you sweet folks. kiss kiss, ~Ginger~ 9/04 IPF Want to be your own boss? Learn how on Yahoo! Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 .... hey, my wife and daughter KNOW when I am concerned about things and get emotional ... I also tell my daughter to " ... do as I say, not as I do " , I admit my mistakes. Phred ---- Original Message ---- From: joycedalton29@... To: Breathe-Support Subject: RE: Re: a bad day Date: Wed, 28 Jun 2006 21:50:51 -0000 > >, > >It is so good when we hear from the men in our group....especially >when >they are 'real' about thier feelings and fears. I believe that it is >tougher for men because they are used to being the 'strong' Dad and >Husband. Thanks for sharing your real self with us. > >Hugs, > >Joyce PF 1997 > >> >> > Hi all, >> > >> > Just me, needing to vent a little. Is it normal to get depressed >when >> > comming down off steroids? I went from 40 to 30 and am now at 20. >I'm >> > so tired od drs, hospitals, needles, tests , apts. Last night my >sugar >> > was over 500, so my drs office said go to ER. I went and the >nurse >told >> > me, " Your dr should of told you to do somethingcause your gonna >have a >> > long wait, we're busy " . I said even with my sugar this high? She >said >> > yep, so I just left. I miss my normal life, every morning I wake >up >> > there is that monster, staring me in the face, laughing at me, >> > reminding me how hes in my body and hes gonna get me in the ned. >I >tell >> > him you wont get my soul but still, I know my family has to be >tired >of >> > me,and my sickness. Please forgive me for dumping , but I dont >have >> > anyone else to talk to about this. >> > >> > Vicky IPF/PH 4/06 >> > >> > >> > >> >>-------------------------------------------------------------------- >---\ >- >> > >> >No virus found in this incoming message. >> >Checked by AVG Free Edition. >> >Version: 7.1.394 / Virus Database: 268.9.5/376 - Release Date: >6/26/2006 >> > >> > >> > > Quote Link to comment Share on other sites More sharing options...
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