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Re: Maddy in hospital

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Poor little Maddy! Is it just me or does anyone else just want to reach out and

slap these doctors that let her suffer like this?! I am soooo frustrated...I

just cannot even imagine your frustration ! When are they going to figure

out what is going on with her?? SIGH

Lots of prayers your way, for you, for Maddy, for the Docs and nurses to have

guidance and compassion.  HUGS,

Subject: Maddy in hospital

To: " tsc " <tetheredspinalcord >

Date: Monday, August 16, 2010, 12:01 PM

 

Saturday afternoon Maddy had a grand mal seizure. We went to the ER,they did

scans etc. They said she probably is coming down with a virus and take her home.

Yesterday afternoon we were called back to the ER because they said the blood

cultures showed some bacteria growth so she was admitted.She has a mediport so

admitting doctor said she suspects line sepsis. She is on 2 different

antibiotics. Her headache is still very bad,and they arent doing anything except

tylenol,motrin,I had to ask for something stronger so they gave lortab which

doesnt help. Nsg,neurology and peds will be by this morning. I wonder if they

should tap her shunt as well. She isnt eating or drinking very well this

morning. I think since she is inpatient they should try and get her pain under

control. Keep Maddy in your prayers.

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Hello,

You are her advocate and you have to find a way to let them know she is in pain.

Find out why they are not controlling it and then try to turn it around. She

needs to get that pain under control as you say below. It's so hard to believe

that in this day and age and all that is known that she has pain levels above a

2-4 in a hospital.

My husband had three cardiac stents placed two weeks ago and complained that his

pain was at a 2-3 (because he was asked what his level was) and he was given a

bolus of morphine that made his blood pressure drop out and he began vomiting

with 20 minutes of the injection into his IV. It was too much, his pain was

only a 2-3 and it never went above that.

One given too much and one not given enough - I don't get it.

Kathy

Maddy in hospital

To: " tsc " <tetheredspinalcord >

Date: Monday, August 16, 2010, 12:01 PM

Saturday afternoon Maddy had a grand mal seizure. We went to the ER,they did

scans etc. They said she probably is coming down with a virus and take her

home.

Yesterday afternoon we were called back to the ER because they said the blood

cultures showed some bacteria growth so she was admitted.She has a mediport so

admitting doctor said she suspects line sepsis. She is on 2 different

antibiotics. Her headache is still very bad,and they arent doing anything

except

tylenol,motrin,I had to ask for something stronger so they gave lortab which

doesnt help. Nsg,neurology and peds will be by this morning. I wonder if they

should tap her shunt as well. She isnt eating or drinking very well this

morning. I think since she is inpatient they should try and get her pain under

control. Keep Maddy in your prayers.

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,

I'll keep Maddy in my prayers. I agree - you are her advocate. I would bring

this issue up directly with her MD when he does rounds. If it is his/her

intern that does his rounds, address it with the intern and see that they

handle it. If the intern does not handle her pain, I would request to see

her MD and address it with him/her. Another option is to ask to speak with

the Nurse manager on the floor. Discuss your concerns with the RN manager.

They do have some pull. I was admitted after one of my cerebral bleeds. I

was transferred from the ER of another hospital to the hospital where I was

admitted. Then, they decided I didn't have a cerebral bleed (like the other

hospital said I had), yet they weren't discharging me. They refused to give

me pain meds. I had fought as much as I could, but wasn't really in a

position to do much more. A friend called to check on me and was infuriated.

She called the RN manager on the floor and I finally got some pain mgmt.

That was the only dose I got during my stay (ultimately, I was d/c after 3

days with the same headache I was admitted with). A final option, most

hospitals have a patient ombudsman. For some reason, I'm thinking this is

required by law (but not sure). Check out the hospital for an ombudsman. The

information desk should know. If all else fails, threaten to have her

transferred to another facility. If you feel she isn't getting adequate care

there, then that is what you need to do to get her the proper care. (When I

had problems with the care my dad was getting as an inpatient at a hospital,

I was very serious when I said I was going to have him transferred. But once

I started raising cane and addressed my concerns with the RN manager, they

were all over his care - like they should have been without my prodding).

I agree with you about asking them to tap her shunt and make sure there

isn't infection there. I was actually thinking spinal tap to make sure she

didn't have meningitis. That can definitely cause fever and seizure. The

only way to diagnose it is with a spinal tap.

Best wishes for getting things straightened out with the hospital and

getting Maddy the care she needs and deserves and for a speedy recovery.

Jenn

>

>

> From: Edgecomb <cedgecomb_1977@...<cedgecomb_1977%40yahoo.com>

> >

> Subject: Maddy in hospital

> To: " tsc "

<tetheredspinalcord <tetheredspinalcord%40yahoogroups.com>

> >

> Date: Monday, August 16, 2010, 12:01 PM

>

> Saturday afternoon Maddy had a grand mal seizure. We went to the ER,they

> did

> scans etc. They said she probably is coming down with a virus and take her

> home.

> Yesterday afternoon we were called back to the ER because they said the

> blood

> cultures showed some bacteria growth so she was admitted.She has a mediport

> so

> admitting doctor said she suspects line sepsis. She is on 2 different

> antibiotics. Her headache is still very bad,and they arent doing anything

> except

> tylenol,motrin,I had to ask for something stronger so they gave lortab

> which

> doesnt help. Nsg,neurology and peds will be by this morning. I wonder if

> they

> should tap her shunt as well. She isnt eating or drinking very well this

> morning. I think since she is inpatient they should try and get her pain

> under

> control. Keep Maddy in your prayers.

>

>

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