Re: jennifer and bryce

[Guest guest]

Eligibility meetings suck.

(agreeing with )

I think the reason why they suck is because when you go into the meeting and

they give your child a label that he didn't have before, it is like having the

diagnosis of MDS all over again. Right when you thought you were over that shock

and your heart finally began to find its right place in the middle of your chest

(when it was previously at your feet) someone says something is wrong. And,

then, you get sad or angry or scared and somehow you have to suck it up and move

on and pretend that everything is ok. And, then you get sad or angry or scared

all over again because sometimes you just want everything to stop and everything

to be ok.

And, eventually, you do realize that everything really is ok. The label the

school gives you is just a label. All it means is that your child will get the

services he/she needs with this label. If they had the DD label, Bryce would

have kept it. You will fight many battles for your children. (disabled or not)

You will cry for and with them, you will be angry or upset for and with them,

you will laugh at and with them. And, once they are grown you can look back and

think, " That wasn't so bad.We made it through it. " And, when they are grown, no

one asks " What labels did they give your child in school? "

Lots of hugs for you and Bryce, . I hope you both have a good school

year and I KNOW that Bryce will do wonderfully this year and he will learn and

blossom and blow you away with all that he does!

Kristy

Lowe wrote:

I just thought it may be easier to respond to everyone in one email.

Yes, it is completly crazy that Bryces school did away with the DD category.

This is the first year that they have done away with the category, up untill now

it was the same as in other places through age 8. I think that it may be that

our school system just doesnt have the funds to assist all of the children with

needs so they had to narrow the field. I know it is extremely sad because so

many children are going to fall between the cracks. I know quite a few families

that had to obtain outside therapy for their children just to fill the gaps. All

in all I know that his preschool teacher labeled him the way she felt she had to

to get him the services that would be best for him. He now gets the benefits of

both worlds he gets the specialized attention of our schools special ed program

and gets to be in a mainstream class room all day. It was just that horrible

shock I had to deal with since I had

no clue

that the DD category would be gone. MR had never been any consideration for him

in the past and to hear it for the first time in a room full or almost total

strangers. It was actually kind of a funny day his teacher made me sit next to

her and put a box of tissues between us. Right before they stated their findings

she grabbed a tissue for herself and handed one to me then held my hand. She

knew what they were going to say she had made her own reccomendation stating the

same thing. I guess she just knew how much of a shock it would be for me, I must

have sat in that room with her just crying for over an hour. Is it just me or do

those eligibility meetings just suck? Anyway thanks to all for the warm welcome

backs. Its nice to be able to vent to someone who might actually understand.

jennifer

---------------------------------

Boardwalk for $500? In 2007? Ha!

Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games.

[Guest guest]

Boy, that is so true. My Brookie (16 months) was recently diagnosed in July and

that is how I felt - angry, scared, confused, disbelief. I am getting better

about things now, but it is like I am walking around pretending like things are

ok, which slowly I am seeing that they are not as bad as they once seemed.

Brookie has always been the same Brookie, label or not. Wonderful, happy, sweet,

smily, like a little piece of heaven right here on earth.

Kim

mother of Kylie 4, MDS 18 months

Re: jennifer and bryce

To: MosaicDS

> Eligibility meetings suck.

> (agreeing with )

>

> I think the reason why they suck is because when you go into

> the meeting and they give your child a label that he didn't have

> before, it is like having the diagnosis of MDS all over again.

> Right when you thought you were over that shock and your heart

> finally began to find its right place in the middle of your

> chest (when it was previously at your feet) someone says

> something is wrong. And, then, you get sad or angry or scared

> and somehow you have to suck it up and move on and pretend that

> everything is ok. And, then you get sad or angry or scared all

> over again because sometimes you just want everything to stop

> and everything to be ok.

>

> And, eventually, you do realize that everything really is ok.

> The label the school gives you is just a label. All it means is

> that your child will get the services he/she needs with this

> label. If they had the DD label, Bryce would have kept it. You

> will fight many battles for your children. (disabled or not) You

> will cry for and with them, you will be angry or upset for and

> with them, you will laugh at and with them. And, once they are

> grown you can look back and think, " That wasn't so bad.We made

> it through it. " And, when they are grown, no one asks " What

> labels did they give your child in school? "

>

> Lots of hugs for you and Bryce, . I hope you both have

> a good school year and I KNOW that Bryce will do wonderfully

> this year and he will learn and blossom and blow you away with

> all that he does!

> Kristy

>

> Lowe wrote:

> I just thought it may be easier to respond to everyone

> in one email. Yes, it is completly crazy that Bryces school did

> away with the DD category. This is the first year that they have

> done away with the category, up untill now it was the same as in

> other places through age 8. I think that it may be that our

> school system just doesnt have the funds to assist all of the

> children with needs so they had to narrow the field. I know it

> is extremely sad because so many children are going to fall

> between the cracks. I know quite a few families that had to

> obtain outside therapy for their children just to fill the gaps.

> All in all I know that his preschool teacher labeled him the way

> she felt she had to to get him the services that would be best

> for him. He now gets the benefits of both worlds he gets the

> specialized attention of our schools special ed program and gets

> to be in a mainstream class room all day. It was just that

> horrible shock I had to deal with since I had

> no clue

> that the DD category would be gone. MR had never been any

> consideration for him in the past and to hear it for the first

> time in a room full or almost total strangers. It was actually

> kind of a funny day his teacher made me sit next to her and put

> a box of tissues between us. Right before they stated their

> findings she grabbed a tissue for herself and handed one to me

> then held my hand. She knew what they were going to say she had

> made her own reccomendation stating the same thing. I guess she

> just knew how much of a shock it would be for me, I must have

> sat in that room with her just crying for over an hour. Is it

> just me or do those eligibility meetings just suck? Anyway

> thanks to all for the warm welcome backs. Its nice to be able to

> vent to someone who might actually understand.

> jennifer

>

> ---------------------------------

> Boardwalk for $500? In 2007? Ha!

> Play Monopoly Here and Now (it's updated for today's economy) at

> Yahoo! Games.

>

>