Re: had my surgery at last

[Guest guest]

Good luck with your recovery..what is a chaotic lipoma..great description

but I am sure it isn't a lipoma turnign round and round and screaming as I

am picturing!! LOL ... you have several months of healing so that calf

muscle may just get in gear as well...too soon to tell. Randee

In a message dated 1/1/2010 11:10:49 P.M. Central Standard Time,

mscurio@... writes:

I finally had my surgery done. It seems to have gone reasonably well.

the lipoma turned out to be chaotic, so they were unable to remove it, but

they did de-tether me.

The healing seems to be going along smoothly. I think I have more

sensation in my foot than I used to, although the calf muscle still doesn't

work

any different--not that we expected it to.

Just thought I'd let you know.

Thanks for all the support over the last several months while I was

waiting for a surgery date and was stressing out.

[Guest guest]

As I understand it, it means that the nerves are all tangled up in it. If the

lipoma was just wrapped around the cord, or lay alongside it, they would have

fully removed the lipoma. As it was, there was no way to untangle it without

causing more damage.

My surgeon is extremely experienced in this specific disease (about 30 years

doing this procedure) so if he says it's better off left this way, I trust him.

He's done studies about different techniques vs outcomes, and stuff like that.

For those curious about him, here's his homepage:

http://www.permanente.net/homepage/kaiser/doctor/dachlingpang/

I can't tell you a whole lot about him, except that he and his partner were the

two most knowledgeable people I met on this subject and came highly recommended

by other neurosurgeons. They were very direct and clear about the procedure and

what it would entail specifically. The only complaint I could have had was that

the waiting list was long--there were about 60 people in line ahead of me, and I

had to wait about 14 months to get a surgery date. The scheduler was excellent

however, and kept me well informed about what was going on whenever I called to

check in, and was patient with me when I was freaky.

Which, you know, happened from time to time.

>

> Good luck with your recovery..what is a chaotic lipoma..great description

> but I am sure it isn't a lipoma turnign round and round and screaming as I

> am picturing!! LOL ... you have several months of healing so that calf

> muscle may just get in gear as well...too soon to tell. Randee

>

>

> In a message dated 1/1/2010 11:10:49 P.M. Central Standard Time,

> mscurio@... writes:

>

>

>

>

> I finally had my surgery done. It seems to have gone reasonably well.

> the lipoma turned out to be chaotic, so they were unable to remove it, but

> they did de-tether me.

>

> The healing seems to be going along smoothly. I think I have more

> sensation in my foot than I used to, although the calf muscle still doesn't

work

> any different--not that we expected it to.

>

> Just thought I'd let you know.

>

> Thanks for all the support over the last several months while I was

> waiting for a surgery date and was stressing out.

>

>

>

>

>

>

>

>

[Guest guest]

So glad everything went well for you! It will be many many months before all the

nerves settle down and you can honestly see what all changed for you. In the

meantime, Happy Healing! 

Subject: had my surgery at last

To: tetheredspinalcord

Date: Friday, January 1, 2010, 11:10 PM

 

I finally had my surgery done. It seems to have gone reasonably well.

the lipoma turned out to be chaotic, so they were unable to remove it, but they

did de-tether me.

The healing seems to be going along smoothly. I think I have more sensation in

my foot than I used to, although the calf muscle still doesn't work any

different--not that we expected it to.

Just thought I'd let you know.

Thanks for all the support over the last several months while I was waiting for

a surgery date and was stressing out.

[Guest guest]

Glad everything went well with your surgery, I have a lipoma too, just curious

how old are you and when did you get diagnoised, did you always knew you had

this condition....still learning here....thanks

Sharon

________________________________

To: tetheredspinalcord

Sent: Sat, January 2, 2010 12:10:03 AM

Subject: had my surgery at last

 

I finally had my surgery done. It seems to have gone reasonably well.

the lipoma turned out to be chaotic, so they were unable to remove it, but they

did de-tether me.

The healing seems to be going along smoothly. I think I have more sensation in

my foot than I used to, although the calf muscle still doesn't work any

different--not that we expected it to.

Just thought I'd let you know.

Thanks for all the support over the last several months while I was waiting for

a surgery date and was stressing out.

[Guest guest]

I have the same problem as you. My lipoma is wrapping around nerves. I went to

a neurosurgeon at one hospital and he thinks thats the root of my problems not

the tethered cord. I really think its the tethered cord like another suregeon

told me who didnt want to operate on the lipoma. They told me that the lipoma

has probally been their forever so if I only became symtomatic about a year ago

it leads me to believe that the tethered cord is the cause. Thanks for sharing

your story It helps me decide who to go to for my surgery. I dont want them to

take out the lipoma if it can stay. Well anyway I hope you feel beter and keep

us updated.

Thanks

Chris

> >

> > Good luck with your recovery..what is a chaotic lipoma..great description

> > but I am sure it isn't a lipoma turnign round and round and screaming as I

> > am picturing!! LOL ... you have several months of healing so that calf

> > muscle may just get in gear as well...too soon to tell. Randee

> >

> >

> > In a message dated 1/1/2010 11:10:49 P.M. Central Standard Time,

> > mscurio@ writes:

> >

> >

> >

> >

> > I finally had my surgery done. It seems to have gone reasonably well.

> > the lipoma turned out to be chaotic, so they were unable to remove it, but

> > they did de-tether me.

> >

> > The healing seems to be going along smoothly. I think I have more

> > sensation in my foot than I used to, although the calf muscle still doesn't

work

> > any different--not that we expected it to.

> >

> > Just thought I'd let you know.

> >

> > Thanks for all the support over the last several months while I was

> > waiting for a surgery date and was stressing out.

> >

> >

> >

> >

> >

> >

> >

> >