Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Hi Glo, WELCOME. We do the best we can to find out all we can about this disease.What kind have they diagnosed you with? Yes, some of us are nosey, but any info from any source may help someone else. Aren't grands lovely, I have 5, love them all to pieces. You will find this group will give you the support, information and encouragement we all need. God Bless and Keep You In The Palms of Hands ipf 7/05glo caskey wrote: Hi, My name is Glola and I have recently been diagnosed with Pulmonary Fibrosis. I had a lung biopsy to confirm the type and they have told me that Prednisone will not help me. From what I have been reading I think I am glad about that. I am in the early stages of the disease and I am not on oxygen. At this point my symptoms are fairly mild. I am trying to get back into exercising after the biopsy to stay as well as I can. I am 65 years old and a retired teacher. I have never smoked nor lived with a smoker. We have no idea where I got this disease. I have been married for 41 years and my husband and I have 4 married children. We enjoy our 8 grandchildren a lot and we are expecting a ninth in the fall. I enjoy my flower garden, reading, and Scrabble. I belong to a Bible study, craftgroup Scrabble club and book club, and my friends are very important to me. They have been very supportive the last few weeks My favorite movies are "Princess Bride" and "Second Hand Lions" I have been reading the info on this site for about a week and feel like I have learned a lot from it about the disease. etc. In July I am going to the U of Chicago to see if they have any suggestions for me. The NAC sounds very interesting and I want to find out more about it. Enough for now. Glola Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Hi Glola, Welcome to out group! I too am a teacher and am trying to research why so many teachers have this disease. Did you teach in a portable? Any leaky roofs, musty smell in your room? I am 50 and for the past two years have been teaching in a mildewy portable. I was VERY healthy prior to my room change, went to the gym 5 days a week, jogged 2 to 4 miles and did weights, never smoked, ate well, and kept very active with my church, friends and family. I got bronchitis 4 times last year, constant alergies and migraines, blurry vision and dry eyes. I now have scarring throughout both lungs and have been diagnosed with 3rd stage sarcoidosis. My family thinks so many teachers are sick because we are exposed to a wide variety of diseases on a daily basis. I am banking on the classroom conditions. Any input will be appreciated. Good luck to you and I am glad you have joined our group- PF 3/06glo caskey wrote: Hi, My name is Glola and I have recently been diagnosed with Pulmonary Fibrosis. I had a lung biopsy to confirm the type and they have told me that Prednisone will not help me. From what I have been reading I think I am glad about that. I am in the early stages of the disease and I am not on oxygen. At this point my symptoms are fairly mild. I am trying to get back into exercising after the biopsy to stay as well as I can. I am 65 years old and a retired teacher. I have never smoked nor lived with a smoker. We have no idea where I got this disease. I have been married for 41 years and my husband and I have 4 married children. We enjoy our 8 grandchildren a lot and we are expecting a ninth in the fall. I enjoy my flower garden, reading, and Scrabble. I belong to a Bible study, craftgroup Scrabble club and book club, and my friends are very important to me. They have been very supportive the last few weeks My favorite movies are "Princess Bride" and "Second Hand Lions" I have been reading the info on this site for about a week and feel like I have learned a lot from it about the disease. etc. In July I am going to the U of Chicago to see if they have any suggestions for me. The NAC sounds very interesting and I want to find out more about it. Enough for now. Glola Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 It's an interesting theory to question the environment you worked in....but as far as the number of kids you are with with lots of diseases....then, there would be a lot of pediatric nurses and doctors with PF....if you think you were exposed to sick kids in your room, imagine being exposed to several hundred kids every day in a pediatric emergency room!! I haven't seen any reason why that could cause our illness....but the environment could be something worth investigating. --Diane Quinlan dianequinlan@... scoliosis/PF/2004 -------------- Original message -------------- Hi Glola, Welcome to out group! I too am a teacher and am trying to research why so many teachers have this disease. Did you teach in a portable? Any leaky roofs, musty smell in your room? I am 50 and for the past two years have been teaching in a mildewy portable. I was VERY healthy prior to my room change, went to the gym 5 days a week, jogged 2 to 4 miles and did weights, never smoked, ate well, and kept very active with my church, friends and family. I got bronchitis 4 times last year, constant alergies and migraines, blurry vision and dry eyes. I now have scarring throughout both lungs and have been diagnosed with 3rd stage sarcoidosis. My family thinks so many teachers are sick because we are exposed to a wide variety of diseases on a daily basis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Hi Diane, The list of people who ususually get PF are of course grain handlers and other farming occupations AND 1. teachers, 2.firemen and 3. healthcare poviders- I wish I could find a website that lists the statistics of these groups. dianequinlan@... wrote: It's an interesting theory to question the environment you worked in....but as far as the number of kids you are with with lots of diseases....then, there would be a lot of pediatric nurses and doctors with PF....if you think you were exposed to sick kids in your room, imagine being exposed to several hundred kids every day in a pediatric emergency room!! I haven't seen any reason why that could cause our illness....but the environment could be something worth investigating. --Diane Quinlan dianequinlan@... scoliosis/PF/2004 -------------- Original message -------------- Hi Glola, Welcome to out group! I too am a teacher and am trying to research why so many teachers have this disease. Did you teach in a portable? Any leaky roofs, musty smell in your room? I am 50 and for the past two years have been teaching in a mildewy portable. I was VERY healthy prior to my room change, went to the gym 5 days a week, jogged 2 to 4 miles and did weights, never smoked, ate well, and kept very active with my church, friends and family. I got bronchitis 4 times last year, constant alergies and migraines, blurry vision and dry eyes. I now have scarring throughout both lungs and have been diagnosed with 3rd stage sarcoidosis. My family thinks so many teachers are sick because we are exposed to a wide variety of diseases on a daily basis. Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Hi Glola, Welcome to our group. I'm so sorry you've had to find us. I know this is so scary for you. You are not alone with this monster. We are all right in there fighting with you. The best advice I can give you right now is stay strong. I am 63 diagnosed with ipf in Sept. 2004. My numbers have stayed the same for a year and a half. You are not going anywhere until our Heavenly Father calls you. Stay as active as possible. Keep an up beat attitude. Believe Gods report. I'll be praying for you. God Bless...Peggy on 5/20/06 2:08 PM, glo caskey at glocaskey@... wrote: Hi, My name is Glola and I have recently been diagnosed with Pulmonary Fibrosis. I had a lung biopsy to confirm the type and they have told me that Prednisone will not help me. From what I have been reading I think I am glad about that. I am in the early stages of the disease and I am not on oxygen. At this point my symptoms are fairly mild. I am trying to get back into exercising after the biopsy to stay as well as I can. I am 65 years old and a retired teacher. I have never smoked nor lived with a smoker. We have no idea where I got this disease. I have been married for 41 years and my husband and I have 4 married children. We enjoy our 8 grandchildren a lot and we are expecting a ninth in the fall. I enjoy my flower garden, reading, and Scrabble. I belong to a Bible study, craftgroup Scrabble club and book club, and my friends are very important to me. They have been very supportive the last few weeks My favorite movies are " Princess Bride " and " Second Hand Lions " I have been reading the info on this site for about a week and feel like I have learned a lot from it about the disease. etc. In July I am going to the U of Chicago to see if they have any suggestions for me. The NAC sounds very interesting and I want to find out more about it. Enough for now. Glola Sneak preview the all-new Yahoo.com <http://us.rd.yahoo.com/evt=40762/*http://www.yahoo.com/preview> . It's not radically different. Just radically better. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Hi Glola, Welcome to our group. We are a little nutsy, but we are good for each other. What treatment are they offering you? Stay around! Hugs, Joyce >> Hi,> My name is Glola and I have recently been diagnosed with Pulmonary Fibrosis.> I had a lung biopsy to confirm the type and they have told me that Prednisone will not help me. From what I have been reading I think I am glad about that.> > I am in the early stages of the disease and I am not on oxygen. At this point my symptoms are fairly mild. I am trying to get back into exercising after the biopsy to stay as well as I can.> > I am 65 years old and a retired teacher. I have never smoked nor lived with a smoker. We have no idea where I got this disease.> > I have been married for 41 years and my husband and I have 4 married children. We enjoy our 8 grandchildren a lot and we are expecting a ninth in the fall. > > I enjoy my flower garden, reading, and Scrabble. I belong to a Bible study, craftgroup Scrabble club and book club, and my friends are very important to me. They have been very supportive the last few weeks> > > My favorite movies are "Princess Bride" and "Second Hand Lions" > > I have been reading the info on this site for about a week and feel like I have learned a lot from it about the disease. etc.> > In July I am going to the U of Chicago to see if they have any suggestions for me.> The NAC sounds very interesting and I want to find out more about it.> Enough for now.> Glola> > > ---------------------------------> Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Hi Glola, what beautiful name. I will never tire of watching that movie... " as you wish " ...I'm recouping from my biopsy. Fussin cuz I'm tethered to oxygen, blessed to have the insurance that pays for the machine and tanks. Glad your symptoms are mild. Excercise and healthy eating make all of the difference in the world. Best wishes on your consult in Chicago. LynnA > > Hi, > My name is Glola and I have recently been diagnosed with Pulmonary Fibrosis. > I had a lung biopsy to confirm the type and they have told me that Prednisone will not help me. From what I have been reading I think I am glad about that. > > I am in the early stages of the disease and I am not on oxygen. At this point my symptoms are fairly mild. I am trying to get back into exercising after the biopsy to stay as well as I can. > > I am 65 years old and a retired teacher. I have never smoked nor lived with a smoker. We have no idea where I got this disease. > > I have been married for 41 years and my husband and I have 4 married children. We enjoy our 8 grandchildren a lot and we are expecting a ninth in the fall. > > I enjoy my flower garden, reading, and Scrabble. I belong to a Bible study, craftgroup Scrabble club and book club, and my friends are very important to me. They have been very supportive the last few weeks > > > My favorite movies are " Princess Bride " and " Second Hand Lions " > > I have been reading the info on this site for about a week and feel like I have learned a lot from it about the disease. etc. > > In July I am going to the U of Chicago to see if they have any suggestions for me. > The NAC sounds very interesting and I want to find out more about it. > Enough for now. > Glola > > > --------------------------------- > Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Good Morning Lynn, How is it going? I hope you have a speedy recovery. I didn't go to church today but am praying for you right here. Have you heard anything from the biopsy yet? Was it an open lung or Vat ? I didn't have one. The C scan showed just what I had. We just don't know what caused it. How long were you in the hospital ? God Bless and comfort you today... Peggy on 5/21/06 2:23 AM, Armede at armede@... wrote: Hi Glola, what beautiful name. I will never tire of watching that movie... " as you wish " ...I'm recouping from my biopsy. Fussin cuz I'm tethered to oxygen, blessed to have the insurance that pays for the machine and tanks. Glad your symptoms are mild. Excercise and healthy eating make all of the difference in the world. Best wishes on your consult in Chicago. LynnA > > Hi, > My name is Glola and I have recently been diagnosed with Pulmonary Fibrosis. > I had a lung biopsy to confirm the type and they have told me that Prednisone will not help me. From what I have been reading I think I am glad about that. > > I am in the early stages of the disease and I am not on oxygen. At this point my symptoms are fairly mild. I am trying to get back into exercising after the biopsy to stay as well as I can. > > I am 65 years old and a retired teacher. I have never smoked nor lived with a smoker. We have no idea where I got this disease. > > I have been married for 41 years and my husband and I have 4 married children. We enjoy our 8 grandchildren a lot and we are expecting a ninth in the fall. > > I enjoy my flower garden, reading, and Scrabble. I belong to a Bible study, craftgroup Scrabble club and book club, and my friends are very important to me. They have been very supportive the last few weeks > > > My favorite movies are " Princess Bride " and " Second Hand Lions " > > I have been reading the info on this site for about a week and feel like I have learned a lot from it about the disease. etc. > > In July I am going to the U of Chicago to see if they have any suggestions for me. > The NAC sounds very interesting and I want to find out more about it. > Enough for now. > Glola > > > --------------------------------- > Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 > > > > Hi, > > My name is Glola and I have recently been diagnosed with Pulmonary > Fibrosis. > > I had a lung biopsy to confirm the type and they have told me that > Prednisone will not help me. From what I have been reading I think I am > glad about that. > > > > I am in the early stages of the disease and I am not on oxygen. At > this point my symptoms are fairly mild. I am trying to get back into > exercising after the biopsy to stay as well as I can. > > > > I am 65 years old and a retired teacher. I have never smoked nor lived > with a smoker. We have no idea where I got this disease. > > > > I have been married for 41 years and my husband and I have 4 married > children. We enjoy our 8 grandchildren a lot and we are expecting a > ninth in the fall. > > > > I enjoy my flower garden, reading, and Scrabble. I belong to a Bible > study, craftgroup Scrabble club and book club, and my friends are very > important to me. They have been very supportive the last few weeks > > > > > > My favorite movies are " Princess Bride " and " Second Hand Lions " > > > > I have been reading the info on this site for about a week and feel > like I have learned a lot from it about the disease. etc. > > > > In July I am going to the U of Chicago to see if they have any > suggestions for me. > > The NAC sounds very interesting and I want to find out more about it. > > Enough for now. > > Glola > > > > > > --------------------------------- > > Sneak preview the all-new Yahoo.com. It's not radically different. > Just radically better. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Hi Everyone, Thank you all for your welcome. I can handle " a Little nutsy " My diagnosis is " usual interstitial fibrosis " The pulmonologist did not offer any treatment, but said that steroids would not help my type and suggested that I go to the U of Chicago to see if they had any trials I might be part of or if I might be eligible for lung transplant. So that is what I am doing. I never taught in a temporary classroom. Many years ago I taught in a very old building that might have had mold, but I don't recall that it bothered me. I have had lots of respiratory infections some of them I knew I caught from students, but I have never had pneumonia that I know of. It was always in my sinuses, throat or sometimes bronchitis. I have been trying to read a lot of the old emails to gather information, but so many new ones come each day that it is slow. Anyway I feel that I am getting to know you and to enjoy knowing you. Glola > > > > Hi, > > My name is Glola and I have recently been diagnosed with Pulmonary > Fibrosis. > > I had a lung biopsy to confirm the type and they have told me that > Prednisone will not help me. From what I have been reading I think I am > glad about that. > > > > I am in the early stages of the disease and I am not on oxygen. At > this point my symptoms are fairly mild. I am trying to get back into > exercising after the biopsy to stay as well as I can. > > > > I am 65 years old and a retired teacher. I have never smoked nor lived > with a smoker. We have no idea where I got this disease. > > > > I have been married for 41 years and my husband and I have 4 married > children. We enjoy our 8 grandchildren a lot and we are expecting a > ninth in the fall. > > > > I enjoy my flower garden, reading, and Scrabble. I belong to a Bible > study, craftgroup Scrabble club and book club, and my friends are very > important to me. They have been very supportive the last few weeks > > > > > > My favorite movies are " Princess Bride " and " Second Hand Lions " > > > > I have been reading the info on this site for about a week and feel > like I have learned a lot from it about the disease. etc. > > > > In July I am going to the U of Chicago to see if they have any > suggestions for me. > > The NAC sounds very interesting and I want to find out more about it. > > Enough for now. > > Glola > > > > > > --------------------------------- > > Sneak preview the all-new Yahoo.com. It's not radically different. > Just radically better. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Hi Glola, Thanks for replying about the classroom. I guess I keep hoping there is a definative reason why I got this. I too had lots of sinus problems, sore throats and bronchitis before I was diagnosed. At least you are in the early stages-that sounds promising. glocaskey wrote: Hi Everyone, Thank you all for your welcome. I can handle "a Little nutsy" My diagnosis is "usual interstitial fibrosis" The pulmonologist did not offer any treatment, but said that steroids would not help my type and suggested that I go to the U of Chicago to see if they had any trials I might be part of or if I might be eligible for lung transplant. So that is what I am doing. I never taught in a temporary classroom. Many years ago I taught in a very old building that might have had mold, but I don't recall that it bothered me. I have had lots of respiratory infections some of them I knew I caught from students, but I have never had pneumonia that I know of. It was always in my sinuses, throat or sometimes bronchitis. I have been trying to read a lot of the old emails to gather information, but so many new ones come each day that it is slow. Anyway I feel that I am getting to know you and to enjoy knowing you. Glola > > > > Hi, > > My name is Glola and I have recently been diagnosed with Pulmonary > Fibrosis. > > I had a lung biopsy to confirm the type and they have told me that > Prednisone will not help me. From what I have been reading I think I am > glad about that. > > > > I am in the early stages of the disease and I am not on oxygen. At > this point my symptoms are fairly mild. I am trying to get back into > exercising after the biopsy to stay as well as I can. > > > > I am 65 years old and a retired teacher. I have never smoked nor lived > with a smoker. We have no idea where I got this disease. > > > > I have been married for 41 years and my husband and I have 4 married > children. We enjoy our 8 grandchildren a lot and we are expecting a > ninth in the fall. > > > > I enjoy my flower garden, reading, and Scrabble. I belong to a Bible > study, craftgroup Scrabble club and book club, and my friends are very > important to me. They have been very supportive the last few weeks > > > > > > My favorite movies are "Princess Bride" and "Second Hand Lions" > > > > I have been reading the info on this site for about a week and feel > like I have learned a lot from it about the disease. etc. > > > > In July I am going to the U of Chicago to see if they have any > suggestions for me. > > The NAC sounds very interesting and I want to find out more about it. > > Enough for now. > > Glola > > > > > > --------------------------------- > > Sneak preview the all-new Yahoo.com. It's not radically different. > Just radically better. > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Hi, My name is Glola and I have recently been diagnosed with Pulmonary Fibrosis. I had a lung biopsy to confirm the type and they have told me that Prednisone will not help me. From what I have been reading I think I am glad about that. I am in the early stages of the disease and I am not on oxygen. At this point my symptoms are fairly mild. I am trying to get back into exercising after the biopsy to stay as well as I can. I am 65 years old and a retired teacher. I have never smoked nor lived with a smoker. We have no idea where I got this disease. I have been married for 41 years and my husband and I have 4 married children. We enjoy our 8 grandchildren a lot and we are expecting a ninth in the fall. I enjoy my flower garden, reading, and Scrabble. I belong to a Bible study, craftgroup Scrabble club and book club, and my friends are very important to me. They have been very supportive the last few weeks My favorite movies are "Princess Bride" and "Second Hand Lions" I have been reading the info on this site for about a week and feel like I have learned a lot from it about the disease. etc. In July I am going to the U of Chicago to see if they have any suggestions for me. The NAC sounds very interesting and I want to find out more about it. Enough for now. Glola Glola, I'm also not yet on oxygen, but I guess that'll be our future. I'm in the "Inspire" trial at the U of Chicago, and it's still open for volunteers. They don't want you on any outside medications while you're in the trial, but they will allow NAC if you deteriorate to a certain point. Also, I think they're going to start a trial with Perfenidone there, and are going to be accepting applicants. U of Chicago is very up to date on IPF, and has a xplant team there. Very expen$ive place though. Thank God for insurance. All my best.........Arlen IPF 2/05 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Glola, welcome to our group. I'm sure you will enjoy it as much as I have in the little time I have been here. Like you, I have no idea how I got this disease. When I see the specialist next time I will pursue this. When I was diagnosed I didn't even know there were different "kinds". We're about the same age....I'm 67. Married, with two daughters and 5 granddaughters. Keep comin' back. We need each other. Sher ipf 5-06 Re: Just Joined > >> > Hi,> > My name is Glola and I have recently been diagnosed with Pulmonary> Fibrosis.> > I had a lung biopsy to confirm the type and they have told me that> Prednisone will not help me. >From what I have been reading I think Iam> glad about that.> >> > I am in the early stages of the disease and I am not on oxygen. At> this point my symptoms are fairly mild. I am trying to get back into> exercising after the biopsy to stay as well as I can.> >> > I am 65 years old and a retired teacher. I have never smoked norlived> with a smoker. We have no idea where I got this disease.> >> > I have been married for 41 years and my husband and I have 4 married> children. We enjoy our 8 grandchildren a lot and we are expecting a> ninth in the fall.> >> > I enjoy my flower garden, reading, and Scrabble. I belong to a Bible> study, craftgroup Scrabble club and book club, and my friends are very> important to me. They have been very supportive the last few weeks> >> >> > My favorite movies are "Princess Bride" and "Second Hand Lions"> >> > I have been reading the info on this site for about a week and feel> like I have learned a lot from it about the disease. etc.> >> > In July I am going to the U of Chicago to see if they have any> suggestions for me.> > The NAC sounds very interesting and I want to find out more aboutit.> > Enough for now.> > Glola> >> >> > ---------------------------------> > Sneak preview the all-new Yahoo.com. It's not radically different.> Just radically better.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Hi Glola, very unique name! i'm jaime and i too have PF although I am much younger than you and a little irritated with my pulmy today but seeing my regular dr this morning to discuss some things that concern me. i'm sorry we have to meet under these circumstances but you will not find a better group of people to go through this with. there is such a vast amount of info you can obtain just by talking to a few people who have been going through this longer than we have. i am not on oxygen either but am on prednisone and the actimmune injections...what fun! if you have the yahoo messenger, my ID is ashli11_1999 feel free to give me a shout anytime you like. hang in there, we're with you all the way. jaime in houston texas > > In a message dated 5/20/2006 1:10:52 PM Central Daylight Time, > glocaskey@... writes: > Hi, > My name is Glola and I have recently been diagnosed with Pulmonary Fibrosis. > I had a lung biopsy to confirm the type and they have told me that Prednisone > will not help me. From what I have been reading I think I am glad about that. > > I am in the early stages of the disease and I am not on oxygen. At this > point my symptoms are fairly mild. I am trying to get back into exercising after > the biopsy to stay as well as I can. > > I am 65 years old and a retired teacher. I have never smoked nor lived with > a smoker. We have no idea where I got this disease. > > I have been married for 41 years and my husband and I have 4 married > children. We enjoy our 8 grandchildren a lot and we are expecting a ninth in the > fall. > > I enjoy my flower garden, reading, and Scrabble. I belong to a Bible study, > craftgroup Scrabble club and book club, and my friends are very important to > me. They have been very supportive the last few weeks > > > My favorite movies are " Princess Bride " and " Second Hand Lions " > > I have been reading the info on this site for about a week and feel like I > have learned a lot from it about the disease. etc. > > In July I am going to the U of Chicago to see if they have any suggestions > for me. > The NAC sounds very interesting and I want to find out more about it. > Enough for now. > Glola > Glola, > I'm also not yet on oxygen, but I guess that'll be our future. I'm in the > " Inspire " trial at the U of Chicago, and it's still open for volunteers. They > don't want you on any outside medications while you're in the trial, but > they will allow NAC if you deteriorate to a certain point. Also, I think they're > going to start a trial with Perfenidone there, and are going to be accepting > applicants. U of Chicago is very up to date on IPF, and has a xplant team > there. Very expen$ive place though. Thank God for insurance. > > All my best.........Arlen IPF 2/05 > Quote Link to comment Share on other sites More sharing options...
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