Re: New Lymie needs advice on rife machine

[Guest guest]

Bettina,

I don't think I can offer any better advise than Jim and the others have provided, but I just wanted to let you know about our experience, so you know you're not alone.

My wife was having a lot of neurological problems, pain, aggression, ADD, etc. At one point, she could not complete a sentence, because by the time she got from the subject to the verb, she could not remember what the object was;

She received numerous diagnoses from MD's, but the 3 neuorologists she saw had 3 of the most interesting ones.

The first asked why she was in a wheelchair. When told that she could not stand because of the pain, that she could not straighten her neck and back, and great fatigue, and after a few little neuorlogical tests, she was told there was "nothing wrong with her", and she was "healthy enough to run a marathon."

The second asked her to stand and raise her arms. Since her pain had become so intense, for so long, she could not force her left arm away from her side. He even tried to force it up, and couldn't do it (Intense pain!). His diagnosis was "frozen shoulder"; nothing neorological.

The third decided that all this was from something that had happened in her past, or possibly that I was abusing her, and diagnosed her with "comversion disorder" or "conversion reaction". He wanted to give her Sodium Amitol" (truth serum) and find out what I was doing to her. Fortunately, she's a tough chick, and did not let them do that to her.

Later the next year, we found Dr. C in MO, who easily diagnosed her, even before her tests came back. The abx and especially the IV abx saved her life. Later, the abx stopped helping, so we had to move on to other things. That's why I'm here. The rife type technology has helped her quite a bit.

By the way, did your son get a Western Blot test? The ELISA test is really worthless - lots of false negatives. There are a few other tests out there, including the Bowen test that might help convince your husband (and sometimes insurance companies). But the bottom line is that Lyme is diagnosed "clinically" (by symptoms) with only support from lab work. I would trust a doctor who has seen hundreds of Lyme patients more than one who has seen just a few.

By the way, infectious disease specialists, who should be better, are some of the worst. One that saw my wife made the idiotic statement, that since she had taken some antibiotics, it was going to be impossible to tell whether she had neurological Lyme.

Good luck with your son,

[Guest guest]

We did not do the . We did the test for cytokines, t cell and Western Blot for Lyme. There were bands on the Western blot , specifically the p100 kept showing up. There was a lot of inflammation indicated. The test summary suggested an active infection even though the WB was negative. Thanks for sharing. The docs are so scary. Do you suggest we skip the abc and do rife and protocols? I just think Dr. DK might be right. For some reason I keep thinking I should take my son to him. I know Dr. J in DC knows his stuff. I am just not convinced the abx is the solution. I wish you all of you total healing. Bettina

Bettina,

I don't think I can offer any better advise than Jim and the others have provided, but I just wanted to let you know about our experience, so you know you're not alone.

My wife was having a lot of neurological problems, pain, aggression, ADD, etc. At one point, she could not complete a sentence, because by the time she got from the subject to the verb, she could not remember what the object was;

She received numerous diagnoses from MD's, but the 3 neuorologists she saw had 3 of the most interesting ones.

The first asked why she was in a wheelchair. When told that she could not stand because of the pain, that she could not straighten her neck and back, and great fatigue, and after a few little neuorlogical tests, she was told there was "nothing wrong with her", and she was "healthy enough to run a marathon."

The second asked her to stand and raise her arms. Since her pain had become so intense, for so long, she could not force her left arm away from her side. He even tried to force it up, and couldn't do it (Intense pain!). His diagnosis was "frozen shoulder"; nothing neorological.

The third decided that all this was from something that had happened in her past, or possibly that I was abusing her, and diagnosed her with "comversion disorder" or "conversion reaction". He wanted to give her Sodium Amitol" (truth serum) and find out what I was doing to her. Fortunately, she's a tough chick, and did not let them do that to her.

Later the next year, we found Dr. C in MO, who easily diagnosed her, even before her tests came back. The abx and especially the IV abx saved her life. Later, the abx stopped helping, so we had to move on to other things. That's why I'm here. The rife type technology has helped her quite a bit.

By the way, did your son get a Western Blot test? The ELISA test is really worthless - lots of false negatives. There are a few other tests out there, including the Bowen test that might help convince your husband (and sometimes insurance companies). But the bottom line is that Lyme is diagnosed "clinically" (by symptoms) with only support from lab work. I would trust a doctor who has seen hundreds of Lyme patients more than one who has seen just a few.

By the way, infectious disease specialists, who should be better, are some of the worst. One that saw my wife made the idiotic statement, that since she had taken some antibiotics, it was going to be impossible to tell whether she had neurological Lyme.

Good luck with your son,

[Guest guest]

Bettina,

The fact that the test summary suggested an active infection tells me that the lab's conclusion is that he has a Lyme infection.

They test the blood, use the metrics of the test (the numbers), then make a conclusion or summary.

The lab is going to be the most objective information. The interpretation is where the subjectivity comes in. I think that your husband is concerned that LLMD's are subjective.

But the LLMD's have seen hundreds of people who have Lyme and have a huge range of test results. They see people like my wife, who have extremely positive results, and others who have negative results, but have a few "markers" that are not large enough to turn the test positive, but tell a doctor that is familiar with the tests a lot. He puts this "marker" with the symptoms he sees, and makes a conclusion based on the whole patient.

I am not giving medical advice, but I will give you my practical opinion:

Since you have the Ultimate Digital Rife Machine, I would use it. As Jim mentioned, later, you may have to move to a stronger machine to completely get rid of the infection. I would just start at a low time to try and avoid a strong herx reaction. Maybe 15-30 seconds; wait at least 3-4 days before you conclude whether or not he has a herx. Everybody's different, but some people have neurological herxes that don't begin immediately. There could actually be a slight "calm before the storm". If there is no discernable herx, then increase the treatment time to 1-2 minutes. I think it is worth taking a couple of extra weeks building up, rather than going through the hell of a bad neurological herx.

As far as the antibiotics are concerned, they will probably not get rid of the entire infection, since they force the bacteria into cysts. So sometime in the future, he will probably have to be off the antibiotics for a period of time, while he continues with a Rife machine, until all have come out of the cysts and been killed. You should talk to whichever doctor you decide to go to and tell him about using the Rife machine. He may say that the machine is enough for now.

Personally, my opinion is to keep it as simple as possible: 1) Kill bacteria with as few methods as possible. That way you know what is affecting him.

2) Detox. I think think the simpler the better. As a 16 year old, I would think your son would rather take one thing rather than a dozen.

I'm not sure I remember who Dr. DK is. Does he have a different protocol?

To: "Lyme_and_Rife " <Lyme_and_Rife > Sent: Sunday, January 1, 2012 10:38 PMSubject: Re: New Lymie needs advice on rife machine

We did not do the . We did the test for cytokines, t cell and Western Blot for Lyme. There were bands on the Western blot , specifically the p100 kept showing up. There was a lot of inflammation indicated. The test summary suggested an active infection even though the WB was negative. Thanks for sharing. The docs are so scary. Do you suggest we skip the abc and do rife and protocols? I just think Dr. DK might be right. For some reason I keep thinking I should take my son to him. I know Dr. J in DC knows his stuff. I am just not convinced the abx is the solution. I wish you all of you total healing. Bettina

Bettina,

I don't think I can offer any better advise than Jim and the others have provided, but I just wanted to let you know about our experience, so you know you're not alone.

My wife was having a lot of neurological problems, pain, aggression, ADD, etc. At one point, she could not complete a sentence, because by the time she got from the subject to the verb, she could not remember what the object was;

She received numerous diagnoses from MD's, but the 3 neuorologists she saw had 3 of the most interesting ones.

The first asked why she was in a wheelchair. When told that she could not stand because of the pain, that she could not straighten her neck and back, and great fatigue, and after a few little neuorlogical tests, she was told there was "nothing wrong with her", and she was "healthy enough to run a marathon."

The second asked her to stand and raise her arms. Since her pain had become so intense, for so long, she could not force her left arm away from her side. He even tried to force it up, and couldn't do it (Intense pain!). His diagnosis was "frozen shoulder"; nothing neorological.

The third decided that all this was from something that had happened in her past, or possibly that I was abusing her, and diagnosed her with "comversion disorder" or "conversion reaction". He wanted to give her Sodium Amitol" (truth serum) and find out what I was doing to her. Fortunately, she's a tough chick, and did not let them do that to her.

Later the next year, we found Dr. C in MO, who easily diagnosed her, even before her tests came back. The abx and especially the IV abx saved her life. Later, the abx stopped helping, so we had to move on to other things. That's why I'm here. The rife type technology has helped her quite a bit.

By the way, did your son get a Western Blot test? The ELISA test is really worthless - lots of false negatives. There are a few other tests out there, including the Bowen test that might help convince your husband (and sometimes insurance companies). But the bottom line is that Lyme is diagnosed "clinically" (by symptoms) with only support from lab work. I would trust a doctor who has seen hundreds of Lyme patients more than one who has seen just a few.

By the way, infectious disease specialists, who should be better, are some of the worst. One that saw my wife made the idiotic statement, that since she had taken some antibiotics, it was going to be impossible to tell whether she had neurological Lyme.

Good luck with your son,

[Guest guest]

Hi Bettina,

I wouldn't want to give any medical advice, but I would still definitely start treatments with the rife machinne you have.

Then, I would keep the appointment with your LLMD in DC and let him know that you are treating with the machine.

Personally, I would also tell him what your preference is, maybe just going with the rife machine for a period of time to see how things go..

Be up front, and let him know that many people believe that the antibiotics tend to drive the bacteria into cysts, and that you would like to avoid that, if possible. He may have a different opinion about that, but, please let him know that is a concern of a lot of people. He is probably still learning as well as lots of us.

If you are one who prays, please pray about your decision, and trust that God will help guide you through your decision making process. He doesn't promise full knowledge, but that he will guide you one step at a time.

As long as you continue to drive on in your pursuit of your son's health, you will get there.

Let me know if you have any other concerns.

Good luck,

To: "Lyme_and_Rife " <Lyme_and_Rife > Sent: Monday, January 2, 2012 8:19 PMSubject: Re: New Lymie needs advice on rife machine

Strangly enough, ,my hubby would not even comment on the possibility of the test being a legitimate tool of diagnosis. Like you, I thought they had no reason to be biased, and they said it had 99% viability. For me, that and an abnormal spect scan is enough to convince me he has it. Do you think I should do the ABX at all? I really don't like the idea of the relapse that is inevitable. I will talk to his doctor about it when we return. Dietrich Klinghart in Seattle has his protocol on his web site. Bettina

To: "Lyme_and_Rife " <Lyme_and_Rife > Sent: Monday, January 2, 2012 9:56 AMSubject: Re: New Lymie needs advice on rife machine

Bettina,

The fact that the test summary suggested an active infection tells me that the lab's conclusion is that he has a Lyme infection.

They test the blood, use the metrics of the test (the numbers), then make a conclusion or summary.

The lab is going to be the most objective information. The interpretation is where the subjectivity comes in. I think that your husband is concerned that LLMD's are subjective.

But the LLMD's have seen hundreds of people who have Lyme and have a huge range of test results. They see people like my wife, who have extremely positive results, and others who have negative results, but have a few "markers" that are not large enough to turn the test positive, but tell a doctor that is familiar with the tests a lot. He puts this "marker" with the symptoms he sees, and makes a conclusion based on the whole patient.

I am not giving medical advice, but I will give you my practical opinion:

Since you have the Ultimate Digital Rife Machine, I would use it. As Jim mentioned, later, you may have to move to a stronger machine to completely get rid of the infection. I would just start at a low time to try and avoid a strong herx reaction. Maybe 15-30 seconds; wait at least 3-4 days before you conclude whether or not he has a herx. Everybody's different, but some people have neurological herxes that don't begin immediately. There could actually be a slight "calm before the storm". If there is no discernable herx, then increase the treatment time to 1-2 minutes. I think it is worth taking a couple of extra weeks building up, rather than going through the hell of a bad neurological herx.

As far as the antibiotics are concerned, they will probably not get rid of the entire infection, since they force the bacteria into cysts. So sometime in the future, he will probably have to be off the antibiotics for a period of time, while he continues with a Rife machine, until all have come out of the cysts and been killed. You should talk to whichever doctor you decide to go to and tell him about using the Rife machine. He may say that the machine is enough for now.

Personally, my opinion is to keep it as simple as possible: 1) Kill bacteria with as few methods as possible. That way you know what is affecting him.

2) Detox. I think think the simpler the better. As a 16 year old, I would think your son would rather take one thing rather than a dozen.

I'm not sure I remember who Dr. DK is. Does he have a different protocol?

To: "Lyme_and_Rife " <Lyme_and_Rife > Sent: Sunday, January 1, 2012 10:38 PMSubject: Re: New Lymie needs advice on rife machine

We did not do the . We did the test for cytokines, t cell and Western Blot for Lyme. There were bands on the Western blot , specifically the p100 kept showing up. There was a lot of inflammation indicated. The test summary suggested an active infection even though the WB was negative. Thanks for sharing. The docs are so scary. Do you suggest we skip the abc and do rife and protocols? I just think Dr. DK might be right. For some reason I keep thinking I should take my son to him. I know Dr. J in DC knows his stuff. I am just not convinced the abx is the solution. I wish you all of you total healing. Bettina

Bettina,

I don't think I can offer any better advise than Jim and the others have provided, but I just wanted to let you know about our experience, so you know you're not alone.

My wife was having a lot of neurological problems, pain, aggression, ADD, etc. At one point, she could not complete a sentence, because by the time she got from the subject to the verb, she could not remember what the object was;

She received numerous diagnoses from MD's, but the 3 neuorologists she saw had 3 of the most interesting ones.

The first asked why she was in a wheelchair. When told that she could not stand because of the pain, that she could not straighten her neck and back, and great fatigue, and after a few little neuorlogical tests, she was told there was "nothing wrong with her", and she was "healthy enough to run a marathon."

The second asked her to stand and raise her arms. Since her pain had become so intense, for so long, she could not force her left arm away from her side. He even tried to force it up, and couldn't do it (Intense pain!). His diagnosis was "frozen shoulder"; nothing neorological.

The third decided that all this was from something that had happened in her past, or possibly that I was abusing her, and diagnosed her with "comversion disorder" or "conversion reaction". He wanted to give her Sodium Amitol" (truth serum) and find out what I was doing to her. Fortunately, she's a tough chick, and did not let them do that to her.

Later the next year, we found Dr. C in MO, who easily diagnosed her, even before her tests came back. The abx and especially the IV abx saved her life. Later, the abx stopped helping, so we had to move on to other things. That's why I'm here. The rife type technology has helped her quite a bit.

By the way, did your son get a Western Blot test? The ELISA test is really worthless - lots of false negatives. There are a few other tests out there, including the Bowen test that might help convince your husband (and sometimes insurance companies). But the bottom line is that Lyme is diagnosed "clinically" (by symptoms) with only support from lab work. I would trust a doctor who has seen hundreds of Lyme patients more than one who has seen just a few.

By the way, infectious disease specialists, who should be better, are some of the worst. One that saw my wife made the idiotic statement, that since she had taken some antibiotics, it was going to be impossible to tell whether she had neurological Lyme.

Good luck with your son,

[Guest guest]

Yeah, Jim,

We have seen a lot of the Lyme wars that happen out there.

DHS actually was sent to our house, and imagine me, a perpetual slob, having our house examined to see if I was fit to take care of my wife. Here I am, with some dishes in the sink, some stuff lying around, thinking that if I didn't have the house clean enough, they would take my wife away from me!!

And me, being the only one who ever demonstrated any concern about her!!

There was a great deal of prayer being sent over that period of time. Fortunately, the person sent to the house could see the concern I had for her, and they let it drop. With just a note, I believe I could have lost her.

It's mind-boggling to think about.

On your other note about testing and diagnosis, here in Oklahoma, was bitten in 1994. That year there were 99 documented cases of Lyme disease in OK. Over the next few years, a new director of the OK health board decided that Lyme disease did not exist in OK. (I would love to see the financial records of this person; I would be willing to bet there were deposits from some lobbyists, or pharmaceutical co's).As a result, there were just a handful of cases accepted as documented over the next 8 years or so. Near the end of this time. I, and some others, were invited to speak to the Oklahmoa Osteopathic School of Medicine, and were able to present our personal stories of Lyme Disease. Because of this, many new doctors were exposed to the horror stories of undiagnosed Lyme Disease. And hopefully, they will remember what they heard, and diagnose some of their patients in the

future.

Keep up the good fight!,

To: Lyme_and_Rife Sent: Tuesday, January 3, 2012 2:21 PMSubject: Re: New Lymie needs advice on rife machine

Hi ,Have you ever considered if the doctor suggesting you had abused your wife had decided to contact the authorities, how a bad Lyme situation could have become drastically worse and fast!Your wife is so Lyme and hers and your situation is so common, meaning that most doctorshave no clue what chronic Lyme is and this equates to them mistreating their patients withoutany real intent to do so... Anyone can be ignorant about any situation, I think when a doctoris clueless as your wife's various docs are/were, they should stand aside and refer her to someone else who may be able to help or just stop talking and listen to their patients and spouseshave to say. I've seen some doctors take such a strong stand as they feel they can't be wrong, and this can really be dangerous for their patients. I can honestly say early on when I had undxdgut pain, my local docs referred me to a teaching hospital,

being completely honest sayingthey don't know everything and my chances were much greater getting help from a specialistat a teaching hospital. At least there a label was put on my pain and a dx of gut dismotility wasgiven. I don't mind going from doctor to doctor if progress is made along the way.. But in your wife'scase, nothing was happening until I presume you hooked up with Dr. C in MO... He's anothervery good LLMD... Unfortunately anyone with chronic Lyme who is not treated correctly and immediately.their health worsens as they spend valuable time trying to find a doctor who can help.Just from what you've written, you and your wife clearly have been put through the chronicLyme maze... Really shameful isn't it? And this is common. You go to see a specialist for help and walk away feeling even more confused. I know these guys are busy and they can't possibly know everything, theirdecisions unfortunately

affects their patients lives.And can you believe, today the correct Lyme testing protocol is first the ELISA, if positive, thenthe Western Blot, if it is positive, it is Lyme!! But like you say, the ELISA is mostly worthless, andthe WB still can show inaccurate results... And since many doctors base their decisions as to whetherpatients have Lyme or not based on the results of these test, many unfortunately are told they don't have Lyme, the test was negative, they are sent home and will continue to worsen to the point such asyour wife where Lyme has taken over the body. Not only does this affect the patient and his/her family,but it also skews the correct reporting of Lyme disease to the CDC. They show about 30,000 new cases of Lyme yearly, many in the Lyme community believes this number is up to 10 times higher... The CDC at one point even made this very same statement.. Trust in what you learn and what

works!!Take care,Jim>> Bettina,> > I don't think I can offer any better advise than Jim and the others have provided, but I just wanted to let you know about our experience, so you know you're not alone.> > My wife was having a lot of neurological problems, pain, aggression, ADD, etc. At one point, she could not complete a sentence, because by the time she got from the subject to the verb, she could not remember what the object was; > > She received numerous diagnoses from MD's, but the 3 neuorologists she saw had 3 of the most interesting ones.> > The first asked why she was in a wheelchair. When told that she could not stand because

of the pain, that she could not straighten her neck and back, and great fatigue, and after a few little neuorlogical tests, she was told there was "nothing wrong with her", and she was "healthy enough to run a marathon."> > The second asked her to stand and raise her arms. Since her pain had become so intense, for so long, she could not force her left arm away from her side. He even tried to force it up, and couldn't do it (Intense pain!). His diagnosis was "frozen shoulder"; nothing neorological.> > The third decided that all this was from something that had happened in her past, or possibly that I was abusing her, and diagnosed her with "comversion disorder" or "conversion reaction". He wanted to give her Sodium Amitol" (truth serum) and find out what I was doing to her. Fortunately, she's a tough chick, and did not let them do that to her.> > Later the next year, we found Dr.

C in MO, who easily diagnosed her, even before her tests came back. The abx and especially the IV abx saved her life. Later, the abx stopped helping, so we had to move on to other things. That's why I'm here. The rife type technology has helped her quite a bit.> > By the way, did your son get a Western Blot test? The ELISA test is really worthless - lots of false negatives. There are a few other tests out there, including the Bowen test that might help convince your husband (and sometimes insurance companies). But the bottom line is that Lyme is diagnosed "clinically" (by symptoms) with only support from lab work. I would trust a doctor who has seen hundreds of Lyme patients more than one who has seen just a few.> > By the way, infectious disease specialists, who should be better, are some of the worst. One that saw my wife made the idiotic statement, that since she had taken some antibiotics, it was

going to be impossible to tell whether she had neurological Lyme.> > Good luck with your son,> >

[Guest guest]

Yes, I am a praying person. If I didn't I would be dead by now. I am trusting God to show me how to help him. I know sometimes I slip and fail to trust. It is difficult when one feels they should do something different than what their spouse does. I am praying for God to give him wisdom too. My son is sleeping peacefully right now as the rife machine is going. Today the Naturopath picked him high reactivity to parasites with the energy testing. So we will see if this emits a herx. I will continue the detox and parasite homeopathy along with th e rife. Tonight I am just letting it cycle through all frequencies. Thanks for you support and advice. BettinaSent from my Motorola ATRIX™ 4G on AT & T Re: New Lymie needs advice on rife machine We did not do the . We did the test for cytokines, t cell and Western Blot for Lyme. There were bands on the Western blot , specifically the p100 kept showing up. There was a lot of inflammation indicated. The test summary suggested an active infection even though the WB was negative. Thanks for sharing. The docs are so scary. Do you suggest we skip the abc and do rife and protocols? I just think Dr. DK might be right. For some reason I keep thinking I should take my son to him. I know Dr. J in DC knows his stuff. I am just not convinced the abx is the solution. I wish you all of you total healing. Bettina Bettina, I don't think I can offer any better advise than Jim and the others have provided, but I just wanted to let you know about our experience, so you know you're not alone. My wife was having a lot of neurological problems, pain, aggression, ADD, etc. At one point, she could not complete a sentence, because by the time she got from the subject to the verb, she could not remember what the object was; She received numerous diagnoses from MD's, but the 3 neuorologists she saw had 3 of the most interesting ones. The first asked why she was in a wheelchair. When told that she could not stand because of the pain, that she could not straighten her neck and back, and great fatigue, and after a few little neuorlogical tests, she was told there was "nothing wrong with her", and she was "healthy enough to run a marathon." The second asked her to stand and raise her arms. Since her pain had become so intense, for so long, she could not force her left arm away from her side. He even tried to force it up, and couldn't do it (Intense pain!). His diagnosis was "frozen shoulder"; nothing neorological. The third decided that all this was from something that had happened in her past, or possibly that I was abusing her, and diagnosed her with "comversion disorder" or "conversion reaction". He wanted to give her Sodium Amitol" (truth serum) and find out what I was doing to her. Fortunately, she's a tough chick, and did not let them do that to her. Later the next year, we found Dr. C in MO, who easily diagnosed her, even before her tests came back. The abx and especially the IV abx saved her life. Later, the abx stopped helping, so we had to move on to other things. That's why I'm here. The rife type technology has helped her quite a bit. By the way, did your son get a Western Blot test? The ELISA test is really worthless - lots of false negatives. There are a few other tests out there, including the Bowen test that might help convince your husband (and sometimes insurance companies). But the bottom line is that Lyme is diagnosed "clinically" (by symptoms) with only support from lab work. I would trust a doctor who has seen hundreds of Lyme patients more than one who has seen just a few. By the way, infectious disease specialists, who should be better, are some of the worst. One that saw my wife made the idiotic statement, that since she had taken some antibiotics, it was going to be impossible to tell whether she had neurological Lyme. Good luck with your son,

[Guest guest]

Hey : I know how you feel. I dealt with the DFCS this past month when the hospital social worker decided I had Munchhausens' by proxy and reported me. This was the Sunday after the Wednesday that I got the positive Lyme test on my son. Unfortunately, his psychiatric symptoms required me to call the cops and ambulance to take him to the hospital. He stabilized by the time they got him there, so it made her have to find something to write in her report. I still do not have a copy from the case worker that the case is closed. I do not plan to pay that hospital bill, in fact , I am considering getting some legal advice. I do get tired of having to use precious energy to fight. Take care,Bettina To: "Lyme_and_Rife " <Lyme_and_Rife > Sent: Tuesday, January 3, 2012 9:00 PM Subject: Re: Re: New Lymie needs advice on rife machine

Yeah, Jim,

We have seen a lot of the Lyme wars that happen out there.

DHS actually was sent to our house, and imagine me, a perpetual slob, having our house examined to see if I was fit to take care of my wife. Here I am, with some dishes in the sink, some stuff lying around, thinking that if I didn't have the house clean enough, they would take my wife away from me!!

And me, being the only one who ever demonstrated any concern about her!!

There was a great deal of prayer being sent over that period of time. Fortunately, the person sent to the house could see the concern I had for her, and they let it drop. With just a note, I believe I could have lost her.

It's mind-boggling to think about.

On your other note about testing and diagnosis, here in Oklahoma, was bitten in 1994. That year there were 99 documented cases of Lyme disease in OK. Over the next few years, a new director of the OK health board decided that Lyme disease did not exist in OK. (I would love to see the financial records of this person; I would be willing to bet there were deposits from some lobbyists, or pharmaceutical co's).As a result, there were just a handful of cases accepted as documented over the next 8 years or so. Near the end of this time. I, and some others, were invited to speak to the Oklahmoa Osteopathic School of Medicine, and were able to present our personal stories of Lyme Disease. Because of this, many new doctors were exposed to the horror stories of undiagnosed Lyme Disease. And hopefully, they will remember what they heard, and diagnose some of their patients in the

future.

Keep up the good fight!,

To: Lyme_and_Rife Sent: Tuesday, January 3, 2012 2:21 PMSubject: Re: New Lymie needs advice on rife machine

Hi ,Have you ever considered if the doctor suggesting you had abused your wife had decided to contact the authorities, how a bad Lyme situation could have become drastically worse and fast!Your wife is so Lyme and hers and your situation is so common, meaning that most doctorshave no clue what chronic Lyme is and this equates to them mistreating their patients withoutany real intent to do so... Anyone can be ignorant about any situation, I think when a doctoris clueless as your wife's various docs are/were, they should stand aside and refer her to someone else who may be able to help or just stop talking and listen to their patients and spouseshave to say. I've seen some doctors take such a strong stand as they feel they can't be wrong, and this can really be dangerous for their patients. I can honestly say early on when I had undxdgut pain, my local docs referred me to a teaching hospital,

being completely honest sayingthey don't know everything and my chances were much greater getting help from a specialistat a teaching hospital. At least there a label was put on my pain and a dx of gut dismotility wasgiven. I don't mind going from doctor to doctor if progress is made along the way.. But in your wife'scase, nothing was happening until I presume you hooked up with Dr. C in MO... He's anothervery good LLMD... Unfortunately anyone with chronic Lyme who is not treated correctly and immediately.their health worsens as they spend valuable time trying to find a doctor who can help.Just from what you've written, you and your wife clearly have been put through the chronicLyme maze... Really shameful isn't it? And this is common. You go to see a specialist for help and walk away feeling even more confused. I know these guys are busy and they can't possibly know everything, theirdecisions unfortunately

affects their patients lives.And can you believe, today the correct Lyme testing protocol is first the ELISA, if positive, thenthe Western Blot, if it is positive, it is Lyme!! But like you say, the ELISA is mostly worthless, andthe WB still can show inaccurate results... And since many doctors base their decisions as to whetherpatients have Lyme or not based on the results of these test, many unfortunately are told they don't have Lyme, the test was negative, they are sent home and will continue to worsen to the point such asyour wife where Lyme has taken over the body. Not only does this affect the patient and his/her family,but it also skews the correct reporting of Lyme disease to the CDC. They show about 30,000 new cases of Lyme yearly, many in the Lyme community believes this number is up to 10 times higher... The CDC at one point even made this very same statement.. Trust in what you learn and what

works!!Take care,Jim>> Bettina,> > I don't think I can offer any better advise than Jim and the others have provided, but I just wanted to let you know about our experience, so you know you're not alone.> > My wife was having a lot of neurological problems, pain, aggression, ADD, etc. At one point, she could not complete a sentence, because by the time she got from the subject to the verb, she could not remember what the object was; > > She received numerous diagnoses from MD's, but the 3 neuorologists she saw had 3 of the most interesting ones.> > The first asked why she was in a wheelchair. When told that she could not stand

because

of the pain, that she could not straighten her neck and back, and great fatigue, and after a few little neuorlogical tests, she was told there was "nothing wrong with her", and she was "healthy enough to run a marathon."> > The second asked her to stand and raise her arms. Since her pain had become so intense, for so long, she could not force her left arm away from her side. He even tried to force it up, and couldn't do it (Intense pain!). His diagnosis was "frozen shoulder"; nothing neorological.> > The third decided that all this was from something that had happened in her past, or possibly that I was abusing her, and diagnosed her with "comversion disorder" or "conversion reaction". He wanted to give her Sodium Amitol" (truth serum) and find out what I was doing to her. Fortunately, she's a tough chick, and did not let them do that to her.> > Later the next year, we found Dr.

C in MO, who easily diagnosed her, even before her tests came back. The abx and especially the IV abx saved her life. Later, the abx stopped helping, so we had to move on to other things. That's why I'm here. The rife type technology has helped her quite a bit.> > By the way, did your son get a Western Blot test? The ELISA test is really worthless - lots of false negatives. There are a few other tests out there, including the Bowen test that might help convince your husband (and sometimes insurance companies). But the bottom line is that Lyme is diagnosed "clinically" (by symptoms) with only support from lab work. I would trust a doctor who has seen hundreds of Lyme patients more than one who has seen just a few.> > By the way, infectious disease specialists, who should be better, are some of the worst. One that saw my wife made the idiotic statement, that since she had taken some antibiotics, it was

going to be impossible to tell whether she had neurological Lyme.> > Good luck with your son,> >