Texana Services

[Guest guest]

My son is a new client of Texana and I was told that if the parents make good

living than the child doesn't get any funding. Is that correct?

Nirit

[Guest guest]

Unfortunately, they go by the parents income. I had to divorce my husband, use my income and after he finished and I was able to get HISD to pay for is education. I remarried, illegal? maybe, but HOW in the word they expect you to pay , unless you are a Doctor , Lawyer, etc....but is not my son's fault that I am just a hard worker unable to get a title.sounds hard, but it's truerosieSubject: Texana ServicesTo: Texas-Autism-Advocacy Date: Monday, May 9, 2011, 6:22 PM

My son is a new client of Texana and I was told that if the parents make good living than the child doesn't get any funding. Is that correct?

Nirit

[Guest guest]

When my son was four he went through Texana's intake process for ABA services which does take parents' income into consideration. We had to pay for services according to a sliding pay scale because my son did not quality for SSI (we made too much money) so he was placed on the Medicaid Interest Waiver lists because he had no income of his own and waives the parents' income (that was 7 years ago and he's still waiting for Medicaid). It was determined by our MAP (monthly ability to pay) that we made too much money and we had to pay for ABA services at the highest pay tier on the sliding scale. Back then that was about $72 per hour for ABA. I filed with my insurance and of course my claim was denied.

R.

[Guest guest]

Still sign up for all the lists.  If your child has health issues like an intestinal disorder -- if you can get that diagnosis, or if your child can get diagnosed with asthma and have a nebulizer prescribed, then you can get on MDCP and then they base need on the child's salary (which they have none).

If you can't go that route, then you can get a divorce and be a single mom and get help.  Then you can probably qualify for lots of things.  Do what you have to do to help your child.I think it's absurd that some parents have to divorce in order to help their children.  My husband makes a decent living, but what did that mean when all our money and then some had to go to help our child who was made very medically sick by the shots?  We got him on MDCP just in time to spare our marriage because that would have been the only thing left we could do in order to get him services.

This is the first year that the services are really working and helping him.  With budget cuts, who knows how long we can rely on this help, so this has got to be the year that take shim far.My son was diagnosed with both an intestinal disorder and asthma.  You can't get on with just an autism diagnosis, but MDCP gives a medicaid waiver that pays for what insurance doesn't cover at the doctors if you go to a medicaid provider.  Since before MDCP our son was usually in an emergency room or urgent care about two times a month, this has really helped.  It also pays for speech, PT, and OT.  It pays for respite, but you have to hire your own worker.

[Guest guest]

Haven do you know how severe the asthma has to be? My daughter does have asthma, and has a nebulizer but only has to use it whenever she gets sick, do you know if this would disqualify her?Sent: Tuesday, May 10, 2011 6:18 PMTo: Texas-Autism-Advocacy Subject: Re: Texana Services Still sign up for all the lists. If your child has health issues like an intestinal disorder -- if you can get that diagnosis, or if your child can get diagnosed with asthma and have a nebulizer prescribed, then you can get on MDCP and then they base need on the child's salary (which they have none).If you can't go that route, then you can get a divorce and be a single mom and get help. Then you can probably qualify for lots of things. Do what you have to do to help your child.I think it's absurd that some parents have to divorce in order to help their children. My husband makes a decent living, but what did that mean when all our money and then some had to go to help our child who was made very medically sick by the shots? We got him on MDCP just in time to spare our marriage because that would have been the only thing left we could do in order to get him services.This is the first year that the services are really working and helping him. With budget cuts, who knows how long we can rely on this help, so this has got to be the year that take shim far.My son was diagnosed with both an intestinal disorder and asthma. You can't get on with just an autism diagnosis, but MDCP gives a medicaid waiver that pays for what insurance doesn't cover at the doctors if you go to a medicaid provider. Since before MDCP our son was usually in an emergency room or urgent care about two times a month, this has really helped. It also pays for speech, PT, and OT. It pays for respite, but you have to hire your own worker.

[Guest guest]

Thank you all.

I didn't know if it is legal for them to not give funding. After all they get

tax payer funding....

Nirit

>

> Haven do you know how severe the asthma has to be? My daughter does have

asthma, and has a nebulizer but only has to use it whenever she gets sick, do

you know if this would disqualify her?

>

> Re: Texana Services

>

>

> Still sign up for all the lists.  If your child has health issues like an

intestinal disorder -- if you can get that diagnosis, or if your child can get

diagnosed with asthma and have a nebulizer prescribed, then you can get on MDCP

and then they base need on the child's salary (which they have none).

>

> If you can't go that route, then you can get a divorce and be a single mom and

get help.  Then you can probably qualify for lots of things.  Do what you have

to do to help your child.

>

> I think it's absurd that some parents have to divorce in order to help their

children.  My husband makes a decent living, but what did that mean when all our

money and then some had to go to help our child who was made very medically sick

by the shots?  We got him on MDCP just in time to spare our marriage because

that would have been the only thing left we could do in order to get him

services.

>

> This is the first year that the services are really working and helping him 

With budget cuts, who knows how long we can rely on this help, so this has got

to be the year that take shim far.

>

> My son was diagnosed with both an intestinal disorder and asthma.  You can't

get on with just an autism diagnosis, but MDCP gives a medicaid waiver that pays

for what insurance doesn't cover at the doctors if you go to a medicaid

provider.  Since before MDCP our son was usually in an emergency room or urgent

care about two times a month, this has really helped.  It also pays for speech,

PT, and OT.  It pays for respite, but you have to hire your own worker.

>

[Guest guest]

So I just got a call today from mdcp. The only doctor we see is dr . Matt is on his dads insurance paid by his company. We don't do OT or PT or ST because our free time after school is spent doing rpm. I might like speech but our insurance would pay for some of that if I wanted. As for respite my tutors do it but I wouldn't mind a break in cost. When matt is 18 I may need more help. What should I ask for? I've already put locks on my doors built a pool, modified the shower...but feel I should get some kind of help even if only in principal. TrinaSent from my iPhone

Thank you all.

I didn't know if it is legal for them to not give funding. After all they get tax payer funding....

Nirit

>

> Haven do you know how severe the asthma has to be? My daughter does have asthma, and has a nebulizer but only has to use it whenever she gets sick, do you know if this would disqualify her?

>

> Re: Texana Services

>

>

> Still sign up for all the lists. If your child has health issues like an intestinal disorder -- if you can get that diagnosis, or if your child can get diagnosed with asthma and have a nebulizer prescribed, then you can get on MDCP and then they base need on the child's salary (which they have none).

>

> If you can't go that route, then you can get a divorce and be a single mom and get help. Then you can probably qualify for lots of things. Do what you have to do to help your child.

>

> I think it's absurd that some parents have to divorce in order to help their children. My husband makes a decent living, but what did that mean when all our money and then some had to go to help our child who was made very medically sick by the shots? We got him on MDCP just in time to spare our marriage because that would have been the only thing left we could do in order to get him services.

>

> This is the first year that the services are really working and helping him With budget cuts, who knows how long we can rely on this help, so this has got to be the year that take shim far.

>

> My son was diagnosed with both an intestinal disorder and asthma. You can't get on with just an autism diagnosis, but MDCP gives a medicaid waiver that pays for what insurance doesn't cover at the doctors if you go to a medicaid provider. Since before MDCP our son was usually in an emergency room or urgent care about two times a month, this has really helped. It also pays for speech, PT, and OT. It pays for respite, but you have to hire your own worker.

>

[Guest guest]

Sent from my iPad

Still sign up for all the lists. If your child has health issues like an intestinal disorder -- if you can get that diagnosis, or if your child can get diagnosed with asthma and have a nebulizer prescribed, then you can get on MDCP and then they base need on the child's salary (which they have none).

If you can't go that route, then you can get a divorce and be a single mom and get help. Then you can probably qualify for lots of things. Do what you have to do to help your child.I think it's absurd that some parents have to divorce in order to help their children. My husband makes a decent living, but what did that mean when all our money and then some had to go to help our child who was made very medically sick by the shots? We got him on MDCP just in time to spare our marriage because that would have been the only thing left we could do in order to get him services.

This is the first year that the services are really working and helping him. With budget cuts, who knows how long we can rely on this help, so this has got to be the year that take shim far.My son was diagnosed with both an intestinal disorder and asthma. You can't get on with just an autism diagnosis, but MDCP gives a medicaid waiver that pays for what insurance doesn't cover at the doctors if you go to a medicaid provider. Since before MDCP our son was usually in an emergency room or urgent care about two times a month, this has really helped. It also pays for speech, PT, and OT. It pays for respite, but you have to hire your own worker.

[Guest guest]

Having a nebulizer WILL qualify her.Haven

[Guest guest]

Asthma is a sign that your daughter has vitamin D deficiency. Treat that and

asthma should slowly go away. Practically a cure (as long as you maintain

optimal level). 2000 IU of vitamin D per 25lbs of body weight. Google asthma and

vitamin D.

http://www.vitamindcouncil.org/science/research/vitamin-d-and-asthma.shtml

http://www.vitamindcouncil.org/health/autism/autism-information.shtml

Autistic kids tend to have rather low vitamin D level.

>

> Haven do you know how severe the asthma has to be? My daughter does have

asthma, and has a nebulizer but only has to use it whenever she gets sick, do

you know if this would disqualify her?

>

> Re: Texana Services

>

>

> Still sign up for all the lists.  If your child has health issues like an

intestinal disorder -- if you can get that diagnosis, or if your child can get

diagnosed with asthma and have a nebulizer prescribed, then you can get on MDCP

and then they base need on the child's salary (which they have none).

>

> If you can't go that route, then you can get a divorce and be a single mom and

get help.  Then you can probably qualify for lots of things.  Do what you have

to do to help your child.

>

> I think it's absurd that some parents have to divorce in order to help their

children.  My husband makes a decent living, but what did that mean when all our

money and then some had to go to help our child who was made very medically sick

by the shots?  We got him on MDCP just in time to spare our marriage because

that would have been the only thing left we could do in order to get him

services.

>

> This is the first year that the services are really working and helping him 

With budget cuts, who knows how long we can rely on this help, so this has got

to be the year that take shim far.

>

> My son was diagnosed with both an intestinal disorder and asthma.  You can't

get on with just an autism diagnosis, but MDCP gives a medicaid waiver that pays

for what insurance doesn't cover at the doctors if you go to a medicaid

provider.  Since before MDCP our son was usually in an emergency room or urgent

care about two times a month, this has really helped.  It also pays for speech,

PT, and OT.  It pays for respite, but you have to hire your own worker.

>

[Guest guest]

Asthma can also be a sign of exhausted adrenals.  Get her on MDCP and then try vitamin D3 and adrenal support.  There is also some good research on ALA and asthma, BUT don't use ALA unless you do the AC Protocol.  It must be dosed on its half-life or you could make things worse.

[Guest guest]

Haven,I did a quick research and it seems that exhausted adrenals happen because of vitamin D deficiency. Remember vitamin D is not actually a vitamin but rather prehormone that your body converts into powerful hormone that acts as gene regulator everywhere in the body.  http://www.myadrenalfatigue.com/vitamin-d-dr-john-cannell  This is just one example that I found after a quick research. I have to get dinner started but later I will do more reading over it.

Louis

 

Asthma can also be a sign of exhausted adrenals.  Get her on MDCP and then try vitamin D3 and adrenal support.  There is also some good research on ALA and asthma, BUT don't use ALA unless you do the AC Protocol.  It must be dosed on its half-life or you could make things worse.

[Guest guest]

It is interesting.  Let me know what you find.  However, my son has been on Vitamin D3 for a very long time.  Only after we added ACE and began the AC Protocol did the signs of asthma abate.Haven

[Guest guest]

Haven, once you qualify are you qualified forever or do you have to requalify every once in a while??

Thanks,

Carolyn

To: Texas-Autism-Advocacy Sent: Thursday, May 12, 2011 6:37 PMSubject: Re: Texana Services

Having a nebulizer WILL qualify her.Haven

[Guest guest]

You have to re-qualify once a year.  Your child cannot have any money in the bank.  You need to keep in  mind that if your child were to come into any money, then the state will want to be paid back.You have to create a special needs trust (somewhere down the road)  that states the trust only provides for over and above what the state provides.  If anyone wishes to leave something to your child, they must leave it to the special needs trust.  The parents can be the trustees while they are living, and then you must name a trustee or trustees to handle the money if something should happen to you.

Just wanted to give you the heads up about not leaving anything to the child directly as the state would then come and take back.

[Guest guest]

I don't see her coming into any money any time soon, but can let family know that. I am worried that they are going to give me a hard time since it is asthma with a nebulizer, is that considered to be a possible need to be placed in a nursing home???

Carolyn

To: Texas-Autism-Advocacy Sent: Friday, May 13, 2011 7:52 AMSubject: Re: Texana Services

You have to re-qualify once a year. Your child cannot have any money in the bank. You need to keep in mind that if your child were to come into any money, then the state will want to be paid back.You have to create a special needs trust (somewhere down the road) that states the trust only provides for over and above what the state provides. If anyone wishes to leave something to your child, they must leave it to the special needs trust. The parents can be the trustees while they are living, and then you must name a trustee or trustees to handle the money if something should happen to you.Just wanted to give you the heads up about not leaving anything to the child directly as the state would then come and take back.

[Guest guest]

Ok, apparently when I called and got her on the CLASS waiting list, she was also placed on the waiting list for MDCP, we are about 3.5 yrs down the line from getting to the top of the list..... Is there anything else we may qualify for regardless of income sooner to get her on Medicaid so I can get her the therapies she needs without having to kill myself trying to work for it??

Thanks,

Carolyn

To: Texas-Autism-Advocacy Sent: Friday, May 13, 2011 7:52 AMSubject: Re: Texana Services

You have to re-qualify once a year. Your child cannot have any money in the bank. You need to keep in mind that if your child were to come into any money, then the state will want to be paid back.You have to create a special needs trust (somewhere down the road) that states the trust only provides for over and above what the state provides. If anyone wishes to leave something to your child, they must leave it to the special needs trust. The parents can be the trustees while they are living, and then you must name a trustee or trustees to handle the money if something should happen to you.Just wanted to give you the heads up about not leaving anything to the child directly as the state would then come and take back.

[Guest guest]

Request rider 28 through Mdcp. PrestonSent from my iPhone

Ok, apparently when I called and got her on the CLASS waiting list, she was also placed on the waiting list for MDCP, we are about 3.5 yrs down the line from getting to the top of the list..... Is there anything else we may qualify for regardless of income sooner to get her on Medicaid so I can get her the therapies she needs without having to kill myself trying to work for it??

Thanks,

Carolyn

To: Texas-Autism-Advocacy Sent: Friday, May 13, 2011 7:52 AMSubject: Re: Texana Services

You have to re-qualify once a year. Your child cannot have any money in the bank. You need to keep in mind that if your child were to come into any money, then the state will want to be paid back.You have to create a special needs trust (somewhere down the road) that states the trust only provides for over and above what the state provides. If anyone wishes to leave something to your child, they must leave it to the special needs trust. The parents can be the trustees while they are living, and then you must name a trustee or trustees to handle the money if something should happen to you.Just wanted to give you the heads up about not leaving anything to the child directly as the state would then come and take back.

[Guest guest]

Have you applied for medical grants? We got a $5,000 one from UnitedHealthcare Children's Foundation and a pretty big one from Small Steps in Speech. The first one covers OT and Speech and the second one covers speech. Our insurance covered nothing and at the time my hubby wasn't making much. It was a huge lifesaver! We also received a grant that helped to get my son an iPad from the Prayer Child Foundation. If you google any of those terms they will come right up and they all have online application. We were on SSI Disability for a very short time but hubby got a new job and so we are no longer on it.

 

Ok, apparently when I called and got her on the CLASS waiting list, she was also placed on the waiting list for MDCP, we are about 3.5 yrs down the line from getting to the top of the list.....  Is there anything else we may qualify for regardless of income sooner to get her on Medicaid so I can get her the therapies she needs without having to kill myself trying to work for it??

Thanks,

Carolyn

To: Texas-Autism-Advocacy

Sent: Friday, May 13, 2011 7:52 AM

Subject: Re: Texana Services

 

You have to re-qualify once a year.  Your child cannot have any money in the bank.  You need to keep in  mind that if your child were to come into any money, then the state will want to be paid back.You have to create a special needs trust (somewhere down the road)  that states the trust only provides for over and above what the state provides.  If anyone wishes to leave something to your child, they must leave it to the special needs trust.  The parents can be the trustees while they are living, and then you must name a trustee or trustees to handle the money if something should happen to you.

Just wanted to give you the heads up about not leaving anything to the child directly as the state would then come and take back.

[Guest guest]

Typo... the first one covers OT and PT and the second one speech... sorry! Haven't had enough coffee this a.m.

Have you applied for medical grants? We got a $5,000 one from UnitedHealthcare Children's Foundation and a pretty big one from Small Steps in Speech. The first one covers OT and Speech and the second one covers speech. Our insurance covered nothing and at the time my hubby wasn't making much. It was a huge lifesaver! We also received a grant that helped to get my son an iPad from the Prayer Child Foundation. If you google any of those terms they will come right up and they all have online application. We were on SSI Disability for a very short time but hubby got a new job and so we are no longer on it.

 

Ok, apparently when I called and got her on the CLASS waiting list, she was also placed on the waiting list for MDCP, we are about 3.5 yrs down the line from getting to the top of the list.....  Is there anything else we may qualify for regardless of income sooner to get her on Medicaid so I can get her the therapies she needs without having to kill myself trying to work for it??

Thanks,

Carolyn

To: Texas-Autism-Advocacy

Sent: Friday, May 13, 2011 7:52 AM

Subject: Re: Texana Services

 

You have to re-qualify once a year.  Your child cannot have any money in the bank.  You need to keep in  mind that if your child were to come into any money, then the state will want to be paid back.You have to create a special needs trust (somewhere down the road)  that states the trust only provides for over and above what the state provides.  If anyone wishes to leave something to your child, they must leave it to the special needs trust.  The parents can be the trustees while they are living, and then you must name a trustee or trustees to handle the money if something should happen to you.

Just wanted to give you the heads up about not leaving anything to the child directly as the state would then come and take back.

[Guest guest]

United healthcare children's foundation grants will also pay for aba. PrestonSent from my iPhone

Have you applied for medical grants? We got a $5,000 one from UnitedHealthcare Children's Foundation and a pretty big one from Small Steps in Speech. The first one covers OT and Speech and the second one covers speech. Our insurance covered nothing and at the time my hubby wasn't making much. It was a huge lifesaver! We also received a grant that helped to get my son an iPad from the Prayer Child Foundation. If you google any of those terms they will come right up and they all have online application. We were on SSI Disability for a very short time but hubby got a new job and so we are no longer on it.

Ok, apparently when I called and got her on the CLASS waiting list, she was also placed on the waiting list for MDCP, we are about 3.5 yrs down the line from getting to the top of the list..... Is there anything else we may qualify for regardless of income sooner to get her on Medicaid so I can get her the therapies she needs without having to kill myself trying to work for it??

Thanks,

Carolyn

To: Texas-Autism-Advocacy

Sent: Friday, May 13, 2011 7:52 AM

Subject: Re: Texana Services

You have to re-qualify once a year. Your child cannot have any money in the bank. You need to keep in mind that if your child were to come into any money, then the state will want to be paid back.You have to create a special needs trust (somewhere down the road) that states the trust only provides for over and above what the state provides. If anyone wishes to leave something to your child, they must leave it to the special needs trust. The parents can be the trustees while they are living, and then you must name a trustee or trustees to handle the money if something should happen to you.

Just wanted to give you the heads up about not leaving anything to the child directly as the state would then come and take back.

[Guest guest]

I also saw that they recently raised their lifetime grant limit per child to $10,000 instead of the $7000 it used to be.

 

United healthcare children's foundation grants will also pay for aba. Preston

Sent from my iPhone

 

Have you applied for medical grants? We got a $5,000 one from UnitedHealthcare Children's Foundation and a pretty big one from Small Steps in Speech. The first one covers OT and Speech and the second one covers speech. Our insurance covered nothing and at the time my hubby wasn't making much. It was a huge lifesaver! We also received a grant that helped to get my son an iPad from the Prayer Child Foundation. If you google any of those terms they will come right up and they all have online application. We were on SSI Disability for a very short time but hubby got a new job and so we are no longer on it.

 

Ok, apparently when I called and got her on the CLASS waiting list, she was also placed on the waiting list for MDCP, we are about 3.5 yrs down the line from getting to the top of the list.....  Is there anything else we may qualify for regardless of income sooner to get her on Medicaid so I can get her the therapies she needs without having to kill myself trying to work for it??

Thanks,

Carolyn

To: Texas-Autism-Advocacy

Sent: Friday, May 13, 2011 7:52 AM

Subject: Re: Texana Services

 

You have to re-qualify once a year.  Your child cannot have any money in the bank.  You need to keep in  mind that if your child were to come into any money, then the state will want to be paid back.You have to create a special needs trust (somewhere down the road)  that states the trust only provides for over and above what the state provides.  If anyone wishes to leave something to your child, they must leave it to the special needs trust.  The parents can be the trustees while they are living, and then you must name a trustee or trustees to handle the money if something should happen to you.

Just wanted to give you the heads up about not leaving anything to the child directly as the state would then come and take back.

[Guest guest]

Ok, so explain the rider 28 program to me, and will it work for a child with Asthma (on nebulizers whenever she is ill) and PDD NOS???? She doesn't need a great amount of care (besides constant supervision), she just desperately needs therapy and possibly ABA which our insurance doesn't cover and I can't afford any more therapy or help....

Thanks,

Carolyn

To: "Texas-Autism-Advocacy " <Texas-Autism-Advocacy >Sent: Friday, May 13, 2011 8:22 AMSubject: Re: Texana Services

Request rider 28 through Mdcp. Preston

Sent from my iPhone

Ok, apparently when I called and got her on the CLASS waiting list, she was also placed on the waiting list for MDCP, we are about 3.5 yrs down the line from getting to the top of the list..... Is there anything else we may qualify for regardless of income sooner to get her on Medicaid so I can get her the therapies she needs without having to kill myself trying to work for it??

Thanks,

Carolyn

To: Texas-Autism-Advocacy Sent: Friday, May 13, 2011 7:52 AMSubject: Re: Texana Services

You have to re-qualify once a year. Your child cannot have any money in the bank. You need to keep in mind that if your child were to come into any money, then the state will want to be paid back.You have to create a special needs trust (somewhere down the road) that states the trust only provides for over and above what the state provides. If anyone wishes to leave something to your child, they must leave it to the special needs trust. The parents can be the trustees while they are living, and then you must name a trustee or trustees to handle the money if something should happen to you.Just wanted to give you the heads up about not leaving anything to the child directly as the state would then come and take back.

[Guest guest]

Yes, Carolyn.  My son has asthma with need of a nebulizer.  He has been better these past few months with a new protocol, but we are guardedly optimistic.  If we were to stop the protocol, our son's asthma would come back and he would need the nebulizer and other drugs.  so I don't know how it is going to work when we come up for renewal.  He is still under a doctor's care and has to seen routinely.  Again, if we decided to stop the protocol he's on, I have not doubt his symptoms would return. 

He qualified under the asthma and the intestinal disorder (NOS) he has chronic, debillitating constipation and has mega-colon.  But my understanding is he would have qualified under the asthma alone.  I think kids with asthma who do not have nebulizers are less likely to qualify.  When you go to the nursing home - this is what we were told, he just had to be there part of two days. It was not bad, and the nurses were very sympathetic and kind to our son.  they have to come in every so often and run vitals.  We did have to pay for the two full days in the nursing home.  I can't remember if insurance reimbursed.  Our insurance was so bad I'm thinking they didn't and we scraped the money up somehow.

If things go well, and our son stays healthy, we will gladly trade services for his continued good health, but I think as bad as he was, we will have to keep the nebulizer handy for quite some time just in case.  If the FDA were to make any of the supplements he's on available only by prescription (and believe me that is what the drug companies want -they want us all to have to have a prescription before we ca even buy vitamin C) then we might couldnot afford it and then he would once again need the nebulizer and other drugs (that is what the drug companies want: everybody on a host of their drugs for a lifetime).

But the protocol my son is on can actually heal his body.  At this point, to what degree I am uncertain.  Only the future can tell.  My son's situation is different ins some respects.  the damage to his immune system makes him over react to many insect bites and he will suffer anaphylaxis, so we have to have a nebulizer in that event along with Epipens.  he also cannot fight the bacteria that gets introduced from any insect bite such as a mosquito and he will develop radiating staff from each andevery bite site.

However, my understanding is he did not qualify under his immune disorder, he qualified under the asthma due to need of a nebulizer and he qualified under the intestinal disorder.  it is a rather crazy system.  IMO most children with autism are very medically and neurologically sick in one form or fashion, and they should all be covered under MDCP.

The government has taken great pains to throw away these children completely: their voices cannot be heard at court for medical damage, they cannot get appropriate educations in public schools, they cannot get the supports and services they need to progress when they are young, their parents are weighted with a very heavy financial burden, and they want us all to be silent and just " disappear. "

Get whatever help you can get for your child while it is available.  The powers that be would rather deal withour children as adults in the prisons, institutions, and on the streets as the future homeless than do what is right at the right time, so you must help your child any way you can.

We are in the same boat as you.  I worry what will happen to my son in the future, and if there will be anything to leave him, it will be the proceeds from the sale of our farm IF we can manage to hang onto it at least.  But we have to create a trust for that money to flow into  in order to keep him out of an institution if something happens to us.

[Guest guest]

I don't know if they are still allowing Rider 28, but call MDCP and say you want a Rider 28.  Then get a docotr's order to go to a nursing home for two days.  Once that is done your childis bumped to the top of the list and the waiver will kick in  at that time.

yes, the Rider 28 will work for a child with asthma.  You need the doctor's order into a nursing home, and it needs to say that due to your child's unique health needs, the child cannot stay a full thirty days.  Ours was due to the special diet he had to be on and it would have been difficult for the nursing home to provide it.