Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 Bobbie- My son has both problems you mentioned. The genetics counselor notice his legs being different length and said it was an asymmetrical growth pattern due to the different cell types and it would need to be monitored. He does not walk or run well but has improved since starting PT a year ago. He will be four next month. He also has AAI and is classified as a mild widening between vertebrae c1-c2 but stable. He will continue to have x-rays every 3 years and must avoid activities that put his neck at risk. I have had several responses from the group on this subject and this condition can be out-grown. Has Shyanna had a cervical flexion/extension x-ray done? I hope to find out more information on both subjects when I take in next month for his well check-up. Especially, about the asymmetrical growth. From what I've read both conditions can impact they way someone moves. Thanks Stefanie Estes Mom to 3 and 10 --------------------------------- Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2007 Report Share Posted November 21, 2007 Stefanie: She has the x-rays done every three years, along with thyroid testing. Around her birthday this year (April) she was telling me that her hands hurt, I didn't know if they were numb or what. It usually happened in the morning. I brought her in a Dr Dave did the xrays then, he said her hands going numb made him think of the AAI. Everything was fine. We are going to the doctor in a couple of weeks so I can tell you more at that time. She doesn't run the best either but I never noticed the limp until her spec ed teacher pointed it out. What do they do in PT for ? Bobbie Re: AAI Bobbie- My son has both problems you mentioned. The genetics counselor notice his legs being different length and said it was an asymmetrical growth pattern due to the different cell types and it would need to be monitored. He does not walk or run well but has improved since starting PT a year ago. He will be four next month. He also has AAI and is classified as a mild widening between vertebrae c1-c2 but stable. He will continue to have x-rays every 3 years and must avoid activities that put his neck at risk. I have had several responses from the group on this subject and this condition can be out-grown. Has Shyanna had a cervical flexion/extension x-ray done? I hope to find out more information on both subjects when I take in next month for his well check-up. Especially, about the asymmetrical growth. From what I've read both conditions can impact they way someone moves. Thanks Stefanie Estes Mom to 3 and 10 --------------------------------- Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2007 Report Share Posted November 22, 2007 I asked my pediatrician about AAI. He said the new guidelines don't recommend checking for it. Also said that they are unnecessary d/t x-ray radiation for our little girl (11 mo). Do any of you know if there are physical signs for AAI or is it by x-ray only?? --- StefanIie Estes wrote: > Bobbie- > My son has both problems you mentioned. The > genetics counselor notice his legs being different > length and said it was an asymmetrical growth > pattern due to the different cell types and it would > need to be monitored. He does not walk or run well > but has improved since starting PT a year ago. He > will be four next month. > > He also has AAI and is classified as a mild widening > between vertebrae c1-c2 but stable. He will > continue to have x-rays every 3 years and must avoid > activities that put his neck at risk. I have had > several responses from the group on this subject and > this condition can be out-grown. > > Has Shyanna had a cervical flexion/extension x-ray > done? I hope to find out more information on both > subjects when I take in next month for his well > check-up. Especially, about the asymmetrical growth. > From what I've read both conditions can impact they > way someone moves. > > Thanks > Stefanie Estes > Mom to 3 and 10 > > > --------------------------------- > Be a better pen pal. Text or chat with friends > inside Yahoo! Mail. See how. > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2007 Report Share Posted November 22, 2007 Bobbie- When we first started taking to PT they worked a lot on trunk rotation, balance, trying to keep his arms bent at his sides (in a running position) to help propel his legs forward. He has terrible vision especially, depth perception so it's hard for me to factor out how much of his poor movement is visual or related to his leg length. The asymmetrical growth problem was just diagnosed so I'm anxious to find out what specific problems it could cause if it continues. has a slight limp and never walks in a straight line. I'm happy to hear Shyanna's neck checked out fine. Sorry, I don't have more to contribute but keep me posted on what you find out from your Dr. Stefanie > > Stefanie: > > She has the x-rays done every three years, along with thyroid testing. Around her birthday this year (April) she was telling me that her hands hurt, I didn't know if they were numb or what. It usually happened in the morning. I brought her in a Dr Dave did the xrays then, he said her hands going numb made him think of the AAI. Everything was fine. We are going to the doctor in a couple of weeks so I can tell you more at that time. She doesn't run the best either but I never noticed the limp until her spec ed teacher pointed it out. > > What do they do in PT for ? > > Bobbie > > Re: AAI > > > Bobbie- > My son has both problems you mentioned. The genetics counselor notice his legs being different length and said it was an asymmetrical growth pattern due to the different cell types and it would need to be monitored. He does not walk or run well but has improved since starting PT a year ago. He will be four next month. > > He also has AAI and is classified as a mild widening between vertebrae c1-c2 but stable. He will continue to have x-rays every 3 years and must avoid activities that put his neck at risk. I have had several responses from the group on this subject and this condition can be out-grown. > > Has Shyanna had a cervical flexion/extension x-ray done? I hope to find out more information on both subjects when I take in next month for his well check-up. Especially, about the asymmetrical growth. From what I've read both conditions can impact they way someone moves. > > Thanks > Stefanie Estes > Mom to 3 and 10 > > > --------------------------------- > Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 I personally would not trust those new guidelines! I can not imagine not testing for AAI. What if the child had AAI and didn't know it and did a flip and broke their neck? That is just my opinion, but I would definately insist on doing those xrays unless the doctor could give me a good reason not to. Kristy Guntrum wrote: I asked my pediatrician about AAI. He said the new guidelines don't recommend checking for it. Also said that they are unnecessary d/t x-ray radiation for our little girl (11 mo). Do any of you know if there are physical signs for AAI or is it by x-ray only?? --- StefanIie Estes wrote: > Bobbie- > My son has both problems you mentioned. The > genetics counselor notice his legs being different > length and said it was an asymmetrical growth > pattern due to the different cell types and it would > need to be monitored. He does not walk or run well > but has improved since starting PT a year ago. He > will be four next month. > > He also has AAI and is classified as a mild widening > between vertebrae c1-c2 but stable. He will > continue to have x-rays every 3 years and must avoid > activities that put his neck at risk. I have had > several responses from the group on this subject and > this condition can be out-grown. > > Has Shyanna had a cervical flexion/extension x-ray > done? I hope to find out more information on both > subjects when I take in next month for his well > check-up. Especially, about the asymmetrical growth. > From what I've read both conditions can impact they > way someone moves. > > Thanks > Stefanie Estes > Mom to 3 and 10 > > > --------------------------------- > Be a better pen pal. Text or chat with friends > inside Yahoo! Mail. See how. > > [Non-text portions of this message have been > removed] > > __________________________________________________________ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 - Below are a few websites I looked at when was diagnosed with AAI. He was 3 when his x-ray was done and was able to hold the pose for the picture. He had no symptoms and I was certain it would be negative. I was wrong. You may decide to have an x-ray done when you child gets a little older. (I'm not sure how they do the x-ray on infants-I guess that's another questions) Then you could rule it out and mark one thing off your worry list. I had in gymnastics and learning to do somersaults only to find I was letting him do things that put his spine at risk. In my situation, I was thankful I had his films done. It was recommended by our genetics counselor. http://www.ds-health.com/aai.htm http://www.emedicine.com/orthoped/topic503.htm http://www.altonweb.com/cs/downsyndrome/index.htm?page=aaiab.html (use the outline to the left to select AAI and Screening) Stefanie Mom to 3 and 10 --------------------------------- Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2007 Report Share Posted November 27, 2007 Stefanie: Shyanna saw her cardiologist yesterday. After her appointment we were taking and I mentioned about having her checked for scoliosis. She asked me if I wanted her to check. I sometimes forget that she's a pediatrician as well. = ) So she checked for scoliosis and looked at her hips as well. She said that she didn't notice a limp, however, she does kick her right leg out to the side when she walks. She said sometimes if they do start to walk with a limp it will correct itself. She said just keep checking and shoot for a target date of say Valentines Day . If I still notice it by then, have her seen by our family doctor again. As for the scoliosis, she MAY have a slight bit at the top of the spine, but nothing they would do anything about right now. The bottom of her spine is as straight as an arrow. In addition to those questions, I did ask her about the genetic specialist. I've been reading lots of posts on here about people seeing the genetic specialists, etc. She said that Shyanna really has 2 pediatricians following her, our family doctor and herself (cardiologist) She said if something comes up that they think we should see the genetic specialist, they would refer us. Otherwise, they have certain things they will monitor, the main two being the thyroid and the AAI, which Dr. Dave is doing a fine job with. Just thought I'd update you. Shyanna saw her cardiologist and eye doctor yesterday. She sees the cardiologist every other year. This one was just a check up, she is doing wonderful. Next time she'll get an EKG and an Echo. Her eye doctor said her glasses are doing what they are suppose to and we don't have to go back for another year. (She has strabismus) Whoo hoo!!! Yesterday was a good day for us! Has had his check up yet? Bobbie Re: AAI Bobbie- My son has both problems you mentioned. The genetics counselor notice his legs being different length and said it was an asymmetrical growth pattern due to the different cell types and it would need to be monitored. He does not walk or run well but has improved since starting PT a year ago. He will be four next month. He also has AAI and is classified as a mild widening between vertebrae c1-c2 but stable. He will continue to have x-rays every 3 years and must avoid activities that put his neck at risk. I have had several responses from the group on this subject and this condition can be out-grown. Has Shyanna had a cervical flexion/extension x-ray done? I hope to find out more information on both subjects when I take in next month for his well check-up. Especially, about the asymmetrical growth. From what I've read both conditions can impact they way someone moves. Thanks Stefanie Estes Mom to 3 and 10 --------------------------------- Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Bobbie- Happy to hear Shyanna's appointments all went well! I'll will pass along any interesting info I might find at 's check-ups. His are later in the month. Sounds like you have some good doctors! Have a good weekend. Stefanie --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
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