Re: Lynn..Mesothelial hyperplasia

[Guest guest]

Just gotta go down the road before you can know the way! (my own quote, ha).

Kind of like, "Do unto others as you would have them do unto you?" Love all you have to offer, and try always to apply it to my life.

kiss kiss,

9/04 IPF

~Ginger~

[Guest guest]

.... my FRIENDS are OK but, my church ....!

Last week, a VOLUNTEER said she'd take me around last Thursday

(along with my daughter) so I could pay bills and run a few errands

as I hadn't been released to drive yet ... he's since done so. Wed

night, the volunteer called and said she couldn't do it because of

the church's " insurance " . Fortunately, a 100% disabled vet friend was

able to do so and, our mortgage, car payment etc. got paid for this

month. He also called this morning about taking my daughter to GS

camp where she'll be a PA for the second year in a row. I'm picking

him up so, he'll know the way but, he'll pick her up and take her

home as I have a dr. appointment.

Any suggestions as to HOW big a piece of my mind I ought to give the

pastoral assistant???

Pissed-Off Phred

---- Original Message ----

From: joycedalton29@...

To: Breathe-Support

Subject: RE: Lynn..Mesothelial hyperplasia

Date: Sun, 25 Jun 2006 15:03:37 -0000

>

>Lynn,

>

>Did they tell you if Mesothelial Hyperplasia could be caused by

>asbestos? Were you ever exposed? I know this is different from

>Mesothelioma, but sounds it is a benign form of the same disease.

>This

>stuff is complicated to read....but sooo interesting. What exactly

>does

>BOOP changes mean? [:-/]

>

>I hope that you can do o.k. at work. I do understand your comments

>about friends. Not only have I been dissapointed in some of my

>friends,

>I look back and see my own lack of loving kindness to others. Just

>gotta go down the road before you can know the way! (my own quote,

>ha).

>

>Take care of you and I hope your life continues to improve.

>

>Hugs,

>

>Joyce PF 1997

>

[Guest guest]

Dear PO'd Phred,

Had to respond to this one. You can trust those

100% disabled vets, they are the best and they

know what you are going through. Too bad that

human personalities had to appear from a church.

You would think that compassion for their 'fellow

man' would prevail, but sometimes the personality

comes through instead of the love of the Lord.

Regarding my own personal status; I'm doing much

better now and staying busy with Joan's affairs

and trying to run a home by myself now. I truly

get a big bunch of support from you wonderful

people. God Bless.

Bob in Utah

100% myself, but I don't drive Fred!

[Guest guest]

.... and Bob In Utah, I know I ALSO am a disabled vet. By the way, my

great-great granduncle was Oliver Cowdrey ... name ring a bell???

No, I'm Catholic, not LDS.

---- Original Message ----

From: rholt72@...

To: Breathe-Support

Subject: Re: Lynn..Mesothelial hyperplasia

Date: Sun, 25 Jun 2006 11:54:16 -0600

>Dear PO'd Phred,

>

>Had to respond to this one. You can trust those

>100% disabled vets, they are the best and they

>know what you are going through. Too bad that

>human personalities had to appear from a church.

>You would think that compassion for their 'fellow

>man' would prevail, but sometimes the personality

>comes through instead of the love of the Lord.

>

>Regarding my own personal status; I'm doing much

>better now and staying busy with Joan's affairs

>and trying to run a home by myself now. I truly

>get a big bunch of support from you wonderful

>people. God Bless.

>

>Bob in Utah

>100% myself, but I don't drive Fred!

[Guest guest]

Hey Phred, Next time you talk to volunteer, tell them, thought volunteer meant to give freely, and if God can forgive them for not "helping needy", then you will try alos.phredta11bl@... wrote: ... my FRIENDS are OK but, my church ....!Last week, a VOLUNTEER said she'd take me around last Thursday (along with my daughter) so I could pay bills and run a few errandsas I hadn't been released to drive yet ... he's since done so. Wednight, the volunteer called and said she couldn't do it because ofthe church's "insurance".

Fortunately, a 100% disabled vet friend wasable to do so and, our mortgage, car payment etc. got paid for thismonth. He also called this morning about taking my daughter to GScamp where she'll be a PA for the second year in a row. I'm pickinghim up so, he'll know the way but, he'll pick her up and take herhome as I have a dr. appointment.Any suggestions as to HOW big a piece of my mind I ought to give thepastoral assistant???Pissed-Off Phred---- Original Message ----From: joycedalton29aolTo: Breathe-Support Subject: RE: Lynn..Mesothelial hyperplasiaDate: Sun, 25 Jun 2006 15:03:37 -0000>>Lynn,>>Did they tell you if Mesothelial Hyperplasia could be caused by>asbestos? Were you ever exposed? I know this is different

from>Mesothelioma, but sounds it is a benign form of the same disease. >This>stuff is complicated to read....but sooo interesting. What exactly>does>BOOP changes mean? [:-/]>>I hope that you can do o.k. at work. I do understand your comments>about friends. Not only have I been dissapointed in some of my>friends,>I look back and see my own lack of loving kindness to others. Just>gotta go down the road before you can know the way! (my own quote,>ha).>>Take care of you and I hope your life continues to improve.>>Hugs,>>Joyce PF 1997>

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

[Guest guest]

Hi Joyce,

You wrote; " 85% blockage of the right coronary artery...(I never have had a symptom). "

First off , I want to put a "STAR" by the name of the Cardiac surgeon who found that blockage and thank you God ,for keeping you with us for what ever time SHE decide to remain here (not some one elses time frame) Welcome home Joyce. You were missed.

Mesothelial Hyperplasia is a benign (sp) form of asbestosis. I was in the trades for close to 12 years, during the 70's & 80. I was a quartz fuser/blower for the micro electronic industry. My workbench was made of asbestos board, I used a kind of masking tape that was made with asbestos. The ovens I used to anneal the quartz work I made every day were lined with bricks made of asbestos. I didnt really understand how toxic the job was until it was to late. The DX was really a "no brainer", I've been telling them thats what is is for years. It is a complicated disease to DX though. And yo are so right so right, the info on the web about the disease is just mindnumbing.

One note of positivty I've been able to access (I think) is that even though it may be a precurser to malignant mesothelioma, it has been caught at a very early stage. While my mesothelial cells have become abnormal, there still may be a way to stay on top of the changes well enough to zap any malignant cells that do decide to show up. All of this is in addition to the PF!!!

BOOP?

BOOP is Bronchiolitis Olibterans Organizing Pneumonia. BOOP is inflammation in the lungs.

Bronchiolitis is inflammation of the very small airways called the bronchioles, less than one millimeter in diameter. There are over 200,000 of these airways.

Obliterans means that the inflammation in these small airways completely fills the bronchioles and obliterates the opening of the airway with inflammation.

Organizing is a term used to describe the pattern of the inflammation cells.

Pneumonia means that the lung is filled with inflammation, where the blood takes up oxygen. The rounded structures where this occurs are called alveoli. There are millions of them. If unfolded, they create an area the size of a tennis court. (WOW!!)

http://www.epler.com/BoopWhat'sBoopDiseaseInformation.htm

I'm glad your back home Joyce, very happy about your good news and so sorry you've had to go through such a trial recently.

"Just gotta go down the road before you can know the way! (my own quote, ha)."

I love that!!! Can I build a song around your wise words? If it goes Gold we'll all go to Disney Land!! LOL!!! So you better hang around for a while longer Girlfriend.

We got a Breath-Support bash to plan!!!!

My heart and prayers to you Joyce.

LynnA

>> > Lynn,> > Did they tell you if Mesothelial Hyperplasia could be caused by> asbestos? Were you ever exposed? I know this is different from> Mesothelioma, but sounds it is a benign form of the same disease. This> stuff is complicated to read....but sooo interesting. What exactly does> BOOP changes mean? [:-/]> > I hope that you can do o.k. at work. I do understand your comments> about friends. Not only have I been dissapointed in some of my friends,> I look back and see my own lack of loving kindness to others. > > Take care of you and I hope your life continues to improve.> > Hugs,> > Joyce PF 1997>

[Guest guest]

"Pissed-Off Phred" !!!! It is so good to read you posting again and "giving attitude!!" no less, as the kids say. Welcome back and thanks for keeping it real. That PA sounds like she is just plain clueless. I'm not surprised to hear that a Vet came through for you. Military Service people often have a whole different spin on the importance of making and living up to a commitment. I hope you let your Pastor know the "assistant" needs some schooling on the word "assist".

Welcome back, much respect, LynnA

>> ... my FRIENDS are OK but, my church ....!> > Last week, a VOLUNTEER said she'd take me around last Thursday > (along with my daughter) so I could pay bills and run a few errands> as I hadn't been released to drive yet ... he's since done so. Wed> night, the volunteer called and said she couldn't do it because of> the church's "insurance". Fortunately, a 100% disabled vet friend was> able to do so and, our mortgage, car payment etc. got paid for this> month. He also called this morning about taking my daughter to GS> camp where she'll be a PA for the second year in a row. I'm picking> him up so, he'll know the way but, he'll pick her up and take her> home as I have a dr. appointment.> > Any suggestions as to HOW big a piece of my mind I ought to give the> pastoral assistant???> > Pissed-Off Phred> > ---- Original Message ----> To: Breathe-Support > Subject: RE: Lynn..Mesothelial hyperplasia> Date: Sun, 25 Jun 2006 15:03:37 -0000> > >> >Lynn,> >> >Did they tell you if Mesothelial Hyperplasia could be caused by> >asbestos? Were you ever exposed? I know this is different from> >Mesothelioma, but sounds it is a benign form of the same disease. > >This> >stuff is complicated to read....but sooo interesting. What exactly> >does> >BOOP changes mean? [:-/]> >> >I hope that you can do o.k. at work. I do understand your comments> >about friends. Not only have I been dissapointed in some of my> >friends,> >I look back and see my own lack of loving kindness to others. Just> >gotta go down the road before you can know the way! (my own quote,> >ha).> >> >Take care of you and I hope your life continues to improve.> >> >Hugs,> >> >Joyce PF 1997> >>

[Guest guest]

I'm packin my bag. I wanna come to the Bash..

Peggy 09/04 ipf

Hi Joyce,

You wrote; " 85% blockage of the right coronary artery...(I never have had a symptom). "

First off , I want to put a " STAR " by the name of the Cardiac surgeon who found that blockage and thank you God ,for keeping you with us for what ever time SHE decide to remain here (not some one elses time frame) Welcome home Joyce. You were missed.

Mesothelial Hyperplasia is a benign (sp) form of asbestosis. I was in the trades for close to 12 years, during the 70's & 80. I was a quartz fuser/blower for the micro electronic industry. My workbench was made of asbestos board, I used a kind of masking tape that was made with asbestos. The ovens I used to anneal the quartz work I made every day were lined with bricks made of asbestos. I didnt really understand how toxic the job was until it was to late. The DX was really a " no brainer " , I've been telling them thats what is is for years. It is a complicated disease to DX though. And yo are so right so right, the info on the web about the disease is just mindnumbing.

One note of positivty I've been able to access (I think) is that even though it may be a precurser to malignant mesothelioma, it has been caught at a very early stage. While my mesothelial cells have become abnormal, there still may be a way to stay on top of the changes well enough to zap any malignant cells that do decide to show up. All of this is in addition to the PF!!!

BOOP?

BOOP is Bronchiolitis Olibterans Organizing Pneumonia. BOOP is inflammation in the lungs.

Bronchiolitis is inflammation of the very small airways called the bronchioles, less than one millimeter in diameter. There are over 200,000 of these airways.

Obliterans means that the inflammation in these small airways completely fills the bronchioles and obliterates the opening of the airway with inflammation.

Organizing is a term used to describe the pattern of the inflammation cells.

Pneumonia means that the lung is filled with inflammation, where the blood takes up oxygen. The rounded structures where this occurs are called alveoli. There are millions of them. If unfolded, they create an area the size of a tennis court. (WOW!!)

http://www.epler.com/BoopWhat'sBoopDiseaseInformation.htm

I'm glad your back home Joyce, very happy about your good news and so sorry you've had to go through such a trial recently.

" Just gotta go down the road before you can know the way! (my own quote, ha). "

I love that!!! Can I build a song around your wise words? If it goes Gold we'll all go to Disney Land!! LOL!!! So you better hang around for a while longer Girlfriend.

We got a Breath-Support bash to plan!!!!

My heart and prayers to you Joyce.

LynnA

>

>

> Lynn,

>

> Did they tell you if Mesothelial Hyperplasia could be caused by

> asbestos? Were you ever exposed? I know this is different from

> Mesothelioma, but sounds it is a benign form of the same disease. This

> stuff is complicated to read....but sooo interesting. What exactly does

> BOOP changes mean? [:-/]

>

> I hope that you can do o.k. at work. I do understand your comments

> about friends. Not only have I been dissapointed in some of my friends,

> I look back and see my own lack of loving kindness to others. >

> Take care of you and I hope your life continues to improve.

>

> Hugs,

>

> Joyce PF 1997

>

[Guest guest]

Lynn,

Instead of Disney Land, why don't we all go to a nice little island somewhere. A place that would not allow any pain, coughing, weakness, sleeplessness, nausea or worry. No meds. There would be no need for oxygen tanks or wheelchairs. No need for docs. Just a couple of weeks off would be nice! We could sit around and eat all the fattening food that we want and not have diabetic seizures or heart attacks. We could sing with our strong voices and talk half the night. No thought of medical bills or lost income. Just a group of us enjoying a brief respite from it all. Wouldn't it be nice?

Hugs anyway,

Joyce PF 1997 > >> >> > Lynn,> >> > Did they tell you if Mesothelial Hyperplasia could be caused by> > asbestos? Were you ever exposed? I know this is different from> > Mesothelioma, but sounds it is a benign form of the same disease. This> > stuff is complicated to read....but sooo interesting. What exactly> does> > BOOP changes mean? [:-/]> >> > I hope that you can do o.k. at work. I do understand your comments> > about friends. Not only have I been dissapointed in some of my> friends,> > I look back and see my own lack of loving kindness to others. >> > Take care of you and I hope your life continues to improve.> >> > Hugs,> >> > Joyce PF 1997> >>

[Guest guest]

My own quote is: "You never get to high to fall"TongueDancer2U@... wrote: Just gotta go down the road before you can know the way! (my own quote, ha). Kind of like, "Do unto others as you would have them do unto you?" Love all you have to offer, and try always to apply it to my life. kiss kiss, 9/04 IPF ~Ginger~

Yahoo! Groups gets better. Check out the new email design. Plus there’s much more to come.

[Guest guest]

I just re-read this and realised it sounds kind of strange;

and thank you God ,for keeping you with us for> what ever time SHE (is Joyce, not a MD. *smile* )decides to remain here (not some one elses time frame) > Welcome home Joyce. You were missed.

One of the Staff at our bank made the mistake of using some bazzar formula that detemines "life expectancy" in referance to a bank loan. She punched this number and that and aske my Mom this question and that. She arrived at the number 79 and excitedly told my Mother she had many years ahead of her!!! My Mother laughed and thanked the young woman and then showed the banker her drivers liscence. The young woman stared at it went back to her calculator (!) and subtracted 1919 from 2006-TWICE, before she got it!!!! LOL!!!

Take care all, LynnA

> >> >> > Lynn,> >> > Did they tell you if Mesothelial Hyperplasia could be caused by> > asbestos? Were you ever exposed? I know this is different from> > Mesothelioma, but sounds it is a benign form of the same disease. This> > stuff is complicated to read....but sooo interesting. What exactly> does> > BOOP changes mean? [:-/]> >> > I hope that you can do o.k. at work. I do understand your comments> > about friends. Not only have I been dissapointed in some of my> friends,> > I look back and see my own lack of loving kindness to others. >> > Take care of you and I hope your life continues to improve.> >> > Hugs,> >> > Joyce PF 1997> >>

[Guest guest]

Joyce--That sounds like heaven. (oops, just a little dark humor there.)

Joyce wrote:

> Lynn,

>

> Instead of Disney Land, why don't we *all* go to a nice little island

> somewhere. A place that would not allow any pain, coughing, weakness,

> sleeplessness, nausea or worry. No meds. There would be no need for

> oxygen tanks or wheelchairs. No need for docs. Just a couple of weeks

> off would be nice! We could sit around and eat all the fattening food

> that we want and not have diabetic seizures or heart attacks. We

> could sing with our strong voices and talk half the night. No thought

> of medical bills or lost income. Just a group of us enjoying a brief

> respite from it all. Wouldn't it be nice?

>

> Hugs anyway,

>

> Joyce PF 1997

>

> > >

> > >

> > > Lynn,

> > >

> > > Did they tell you if Mesothelial Hyperplasia could be caused by

> > > asbestos? Were you ever exposed? I know this is different from

> > > Mesothelioma, but sounds it is a benign form of the same disease. This

> > > stuff is complicated to read....but sooo interesting. What exactly

> > does

> > > BOOP changes mean? [:-/]

> > >

> gt; > I hope that you can do o.k. at work. I do understand your comments

> > > about friends. Not only have I been dissapointed in some of my

> > friends,

> > > I look back and see my own lack of loving kindness to others. >

> > > Take care of you and I hope your life continues to improve.

> > >

> > > Hugs,

> > >

> > > Joyce PF 1997

> > >

> >

>

>

>

>------------------------------------------------------------------------

>

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>Checked by AVG Free Edition.

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>

>

[Guest guest]

.... WHAT bank was that and, where? I'll make a note NOT to open an

account there!

Phred

---- Original Message ----

From: armede@...

To: Breathe-Support

Subject: RE: Re: Lynn..Mesothelial hyperplasia

Date: Tue, 27 Jun 2006 01:48:18 -0000

>

>I just re-read this and realised it sounds kind of strange;

>

> and thank you God ,for keeping you with us for

>> what ever time SHE (is Joyce, not a MD. *smile* )decides to

>remain here (not some one elses time frame)

>> Welcome home Joyce. You were missed.

>

>One of the Staff at our bank made the mistake of using some bazzar

>formula that detemines " life expectancy " in referance to a bank loan.

>She punched this number and that and aske my Mom this question and

>that.

>She arrived at the number 79 and excitedly told my Mother she had

>many

>years ahead of her!!! My Mother laughed and thanked the young woman

>and

>then showed the banker her drivers liscence. The young woman stared

>at

>it went back to her calculator (!) and subtracted 1919 from

>2006-TWICE,

>before she got it!!!! LOL!!!

>

>Take care all, LynnA

>

>

>

>

>

>> >

>> >

>> > Lynn,

>> >

>> > Did they tell you if Mesothelial Hyperplasia could be caused by

>> > asbestos? Were you ever exposed? I know this is different from

>> > Mesothelioma, but sounds it is a benign form of the same disease.

>This

>> > stuff is complicated to read....but sooo interesting. What

>exactly

>> does

>> > BOOP changes mean? [:-/]

>> >

>> > I hope that you can do o.k. at work. I do understand your

>comments

>> > about friends. Not only have I been dissapointed in some of my

>> friends,

>> > I look back and see my own lack of loving kindness to others. >

>> > Take care of you and I hope your life continues to improve.

>> >

>> > Hugs,

>> >

>> > Joyce PF 1997

>> >

>>

>

>