Guest guest Posted February 23, 1999 Report Share Posted February 23, 1999 Hi Everybody, I know we have talked about joint pain in the past, but mine has never really been bad until now. So, my chiari brain has forgotten what has been said in the past. I feel like my knees, ankles, and hips are going to pop out of joint. My shoulders hurt too, but I don't have to bare weight on those. What does everyone do for this kind of pain? I didn't sleep last night because I couldn't get comfortable. Maybe I will just have Jeff hit me in the head and knock me out. He said that he could fart and hold my head under the blankets and it would do the same thing, I passed on that one. Hobbling in Maine, Kathleen ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 1999 Report Share Posted February 24, 1999 >Since they seem to be finding some possible links between chiari and >fibromyalgia I sometimes wondered if it might be some kind of >chiari-induced fibromyalgia. I can relate also to the joint pain. I was DG with fibromyalgia also and I do believe that they are associated. As for things to feel better .......well I have gotten out of bed many times at any hour when I couldn't sleep. I have found that a soak in the tub helps somewhat and I can then relax and go to sleep sometimes. Hugs, Judy Marie ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 1999 Report Share Posted February 24, 1999 >Hi Everybody, > >I know we have talked about joint pain in the past, but mine has never >really been bad until now. So, my chiari brain has forgotten what has >been said in the past. I feel like my knees, ankles, and hips are going >to pop out of joint. My shoulders hurt too, but I don't have to bare >weight on those. What does everyone do for this kind of pain? I didn't >sleep last night because I couldn't get comfortable. Maybe I will just >have Jeff hit me in the head and knock me out. He said that he could >fart and hold my head under the blankets and it would do the same thing, >I passed on that one. > >Hobbling in Maine, >Kathleen > > >------------------------------------------------------------------------ Hi Kathleen, I had my ankles, knees and hips x-rayed a few years ago because I was having so much trouble. Didn't show any major deterioration (except for my lower back which IS A MESS) I was tested for rhuematic arthritis a couple of times - don't have it. I do tend to retain ALOT of fluid - I notice I hurt alot more at those times. But other than that - I don't know why it happens so I figured it might be chiari-related. Since they seem to be finding some possible links between chiari and fibromyalgia I sometimes wondered if it might be some kind of chiari-induced fibromyalgia. I think it would be a good thing to ask on the next survey.. I know what you mean about not being able to get comfy enough to sleep though...been there ,done that. In fact, I'm still doing it. I hope you feel better soon...I can't imagine that the traction is comfortable (could that be connected I wonder?) Please don't try the farting technique...it sounds dangerous :-) Hobbling in Pennsylvania, Vikki ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 1999 Report Share Posted February 24, 1999 At 11:47 PM -0600 2/24/99, Chadbourne wrote: >Ladies, > he told me that he had never >seen a case of fibromyalgia where chiari wasn't a contributing factor. I >assumed that he had seen chiari without fibromyalgia though. I don't know >diddly about fibro except some of the symptoms. Does anyone know just what >it is? > Hillbilly > > Hi , Yes I do know what fibro is. It is an inflamation of the muscles and nerves......and it is very painful. hugs, Judy Marie ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 1999 Report Share Posted February 24, 1999 At 8:42 PM -0600 2/24/99, Judy Marie wrote: >At 11:47 PM -0600 2/24/99, Chadbourne wrote: >>Ladies, >> he told me that he had never >>seen a case of fibromyalgia where chiari wasn't a contributing factor. I >>assumed that he had seen chiari without fibromyalgia though. I don't know >>diddly about fibro except some of the symptoms. Does anyone know just what >>it is? >> Hillbilly >> >> >Hi , > Yes I do know what fibro is. It is an inflamation of the muscles and >nerves......and it is very painful. >hugs, >Judy Marie Geeeeeez did I goof this!!!!!!! it is an inflamation of the muscles and the TENDONS.............not the nerves ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 1999 Report Share Posted February 24, 1999 Ladies, I hate to be listening in on you at this late hour but in response to: Since they seem to be finding some possible links between chiari and > >fibromyalgia I sometimes wondered if it might be some kind of > >chiari-induced fibromyalgia. During my infamous Q/A session with my NSG I asked him if their was a connection between fybromyalgia and chiari, he told me that he had never seen a case of fibromyalgia where chiari wasn't a contributing factor. I assumed that he had seen chiari without fibromyalgia though. I don't know diddly about fibro except some of the symptoms. Does anyone know just what it is? Hillbilly ---------- > > To: Vikki Webster ; chiariegroups > Subject: Re: joint pain > Date: Wednesday, February 24, 1999 9:09 AM > > > >> > I can relate also to the joint pain. I was DG with fibromyalgia also and I > do believe that they are associated. > > As for things to feel better .......well I have gotten out of bed many > times at any hour when I couldn't sleep. I have found that a soak in the > tub helps somewhat and I can then relax and go to sleep sometimes. > Hugs, > Judy Marie > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 Fibromyalgia syndrome (also called "FMS" or "FM" ) is a complex, chronic condition which causes widespread pain and profound fatigue, as well as a variety of other symptoms. Its effects are felt primarily in muscles, tendons, and ligaments throughout the body. Unlike arthritis, however, no inflammation accompanies fibromyalgia, and the joints of the body are not directly affected. The pain of fibromyalgia syndrome is usually described as aching or burning and is unpredictable in nature. Its severity varies from day to day, and different parts of the body tend to be affected at different times. In some people, FMS pain can be very severe and disabling, while in others it may cause only mild discomfort. Likewise, the fatigue which often accompanies fibromyalgia syndrome ranges from a mild, tired feeling to all-consuming exhaustion. tender points: Identified by the American College of Rheumatology in 1990, at digital palpation with an approximate force of 4kg. 1 & 2, Occiput: bilateral, at the suboccipital muscle insertions. 3 & 4, Low cervical: bilateral, at the anterior aspects of the intertransverse spaces at C5-C7. 5 & 6, Trapezius: bilateral, at the midpoint of the upper border. 7 & 8, Supraspinatus: bilateral, at origins, above the scapula spine near the medial border. 9 & 10, Second Rib: bilateral, at the second costochondral junctions, just lateral to the junctions on upper surfaces. 11 & 12, Lateral epicondyle: bilateral, 2cm distal to the epicondyles. 13 & 14, Gluteal: bilateral, in upper outer quadrant of buttocks in anteriorfold of muscle. 15 & 16, Greater trochanter: bilateral, posterior to the trochanteric prominence. 17 & 18, Knee: bilateral, at the medial fat pad proximal to the joint line. Symptoms In addition to pain and fatigue, individuals with FMS usually experience some of the following symptoms: Sleep Disturbance Despite getting adequate amounts of sleep, FMS patients may awaken feeling unrefreshed, as if they've barely slept at all. They may also have difficulty falling asleep or staying asleep. Stiffness Body stiffness is a significant problem experienced by most patients. It can occur upon awakening or remaining in one position for prolonged periods. It can also accompany weather changes. Increased Headaches or Facial Pain Headaches are a common complaint for many with FMS. They may be caused by referred pain from tender neck and shoulder areas, or they may be associated with pain in the muscles and other soft tissues around the temporomandibular joint, or TMJ, which is located where the jaw meets the ear. In the latter case, jaw or facial pain is usually present, too. Abdominal Discomfort FMS-related symptoms include digestive disturbances, abdominal pain and bloating, constipation, and diarrhea. As a whole, such symptoms are known as irritable bowel syndrome. Irritable Bladder Fibromyalgia patients may notice an increase in urinary frequency or experience a greater urgency to urinate. Often, no accompanying bladder infection is present. Numbness or Tingling Also known as "paresthesia", symptoms usually involve a prickling or burning sensation, particularly in the extremities. Chest Pain Persons with FMS sometimes experience a condition called "costochondralgia" which involves muscular pain at the spot where the ribs meet the chest bone. Since costochondralgia mimics cardiac symptoms, it is always a good idea to check with a physician if chest pain occurs. Cognitive Disorders Frequent complaints, which vary from day to day, include difficulty concentrating, "spaciness", memory lapses, word mix-ups when speaking or writing, and clumsiness or dropping things. Dysequilibrium FMS patients may also experience dizziness and balance problems. Typically, there is no classical, spinning vertigo. Rather difficulties in orientation occur when standing, driving, or reading. Environmental Sensitivity Allergic-like reactions to a variety of substances are common, as are sensitivities to light, noise, odors, and weather patterns. Dryness of the skin, eyes, and mouth is also common. Other Symptoms Increasingly, additional symptoms and syndromes are being associated with FMS. Diagnosis Currently, no diagnostic, laboratory test exists for FMS. For fibromyalgia to be diagnosed, other conditions that mimic its symptoms must first be excluded (i.e., thyroid disease, lupus, lyme disease, rheumatoid arthritis, etc.). Furthermore, according to official, diagnostic criteria established by the American College of Rheumatology, a patient must suffer from widespread pain in all four body quadrants for at least three months. Finally, 11 of 18 possible tender points should be present when specific locations in the neck, shoulders, chest, hip, knee, and elbow regions of the body are examined by a physician (see diagram at right), although patients may not be aware that these tender points exist. Some physicians take the position that less than 11 tender points can be present at any given time for a fibromyalgia diagnosis to be made. Rheumatologyists and physiatrists (specialists in physical medicine and rehabilitation) are often the most knowledgeable when it comes to diagnosing FMS. Treatment To date, there is no cure for FMS. Treatment consists of managing symptoms to the greatest extent possible. Because patients vary widely in their responses to available modalities, several approaches may need to be tried before a satisfactory regimen can be established. For this reason, a multi-disciplinary, medical team approach is beneficial. The following treatments, used alone or in combination, generally help patients feel better and improve their quality of life: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 I have fibromyalgia also. Have been treated with muscle relaxers at bedtime for this. The neurologist that I saw last week, the one who doesn't believe in acm1 and the problems it can cause also doesn't believe in fibromyalgia. And the rhuematologist that treats me for fibro is the one who recommended me to that jerk in the first place. Cherry Re: joint pain >Since they seem to be finding some possible links between chiari and >fibromyalgia I sometimes wondered if it might be some kind of >chiari-induced fibromyalgia. I can relate also to the joint pain. I was DG with fibromyalgia also and I do believe that they are associated. As for things to feel better .......well I have gotten out of bed many times at any hour when I couldn't sleep. I have found that a soak in the tub helps somewhat and I can then relax and go to sleep sometimes. Hugs, Judy Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 , fibromyalgia is a muscule disorder. It feels like the joints are hurting, but it is the tightness of the tendon and muscle surrounding the joint that is causing the problem. " Fibromyalgia is a painful condition that arises from the muscles and is usually caused by a combination of physical and emotional stress that results in disturbed sleep " , this is a quote from information given to me by my rheumatologist. Also the MOST IMPORTANT is to restore your normal sleep. There is no blood tests or any other tests for fibro. Some doctors are beginning to believe that there is a connection with acm1. Others, do not because they were not taught this when they were in medical school or they just don't believe in either fibromyalgia or acm1. I have both and I do believe that they are related and that it will be proven someday in the not too distant future. Cherry Re: joint pain > Date: Wednesday, February 24, 1999 9:09 AM > > > >> > I can relate also to the joint pain. I was DG with fibromyalgia also and I > do believe that they are associated. > > As for things to feel better .......well I have gotten out of bed many > times at any hour when I couldn't sleep. I have found that a soak in the > tub helps somewhat and I can then relax and go to sleep sometimes. > Hugs, > Judy Marie > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 In a message dated 2/24/99 11:18:41 PM Pacific Standard Time, scott@show- me.net writes: << don't know diddly about fibro except some of the symptoms. Does anyone know just what it is? >> I would like some info on this too please! Thanks, Kath in Oh ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 1999 Report Share Posted February 25, 1999 Judy Marie, even my useless neuro agrees that my chiari has induced the fibromyalgia, if that is any help to you. LOL Ann Brisbane Australia Judy Marie wrote: > >Since they seem to be finding some possible links between chiari and > >fibromyalgia I sometimes wondered if it might be some kind of > >chiari-induced fibromyalgia. > > I can relate also to the joint pain. I was DG with fibromyalgia also and I > do believe that they are associated. > > As for things to feel better .......well I have gotten out of bed many > times at any hour when I couldn't sleep. I have found that a soak in the > tub helps somewhat and I can then relax and go to sleep sometimes. > Hugs, > Judy Marie > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
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